Approx. 48 Min.

The Mack Talks

Episode #6:  Dr. Roseann Capanna-Hodge

Published on Jan 17, 2019

Dr. Roseann Capanna-Hodge is a board certified Psychologist and expert in the field of Neurofeedback, Biofeedback and Holistic Therapies to aid in the healing of her clients. With her eponymous clinic (Dr. Roseann Capanna-Hodge & Associates) she is able to provide her specialized services for her community.
Listen in as we discuss the beginning of her career, her dedication to helping those with mental and physical illnesses, and her take on Lyme Disease.
Highlights from this Podcast:
» 7:30 The current state of children and mental health
» 15:08 Educating other Medical Professions on the importance of holistic therapies
» 26:05 Discussion on Lyme Disease
About the Mack Talks: The Mack Talks is a sit-down discussion with business owners, entrepreneurs, and impactful leaders led by hosts Scott Johnson and Chase Hutchison.
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**Comment**
Many great points made here including the involvement with Bartonella – known to cause psychiatric symptoms.
Hodge has a son with PANS brought on by tick borne illness.
She comments about the high variability of rashes.
She also discusses testing. (Dogs are tested every 6 months)
She states, “Late Stage Lyme,” can occur within 2 weeks of tick bite.  Many physicians do not understand that patients can jump around the stages and not even appear to have certain stages.  This is shown here by the little girl who within 4-6 hours couldn’t walk or talk after a tick bite above the eye:  https://madisonarealymesupportgroup.com/2016/12/07/igenex-presentation/
She wrote, “Brain Under Attack,” review here:  https://thinkingmomsrevolution.com/book-review-brain-attack/

 

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For more:  https://madisonarealymesupportgroup.com/2017/10/13/1st-officially-recognized-report-on-violations-of-lyme-patients-human-rights-is-released-updating-borreliosis-diagnostic-codes/

https://madisonarealymesupportgroup.com/2018/08/02/recognition-of-lyme-borreliosis-in-11th-international-classification-of-diseases/

https://madisonarealymesupportgroup.com/2018/12/19/will-the-idsa-dare-to-give-lyme-patients-coal-for-christmas/

 

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/23899599?

PETITION UPDATE

JAMA: Shapiro ED, Wormser GP. Lyme disease in 2018: what is new (and what is not) (Part 2)

JAN 18, 2019 — 

Please see the letter below addressed to the Tick Borne Disease Working Group and Assistant Secretary for Health, ADM Brett P. Giroir, M.D.

The letter is a follow-up to my original inquiry to Dr. Wormser on Jan 4, 2019 found here:

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/23836704

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, brett.giroir@hhs.gov
Cc: (65 Undisclosed recipients)
Date: January 18, 2019 at 10:38 AM
Subject: Re: JAMA: Shapiro ED, Wormser GP. Lyme disease in 2018: what is new (and what is not)
To: The Tick Borne Disease Working Group and Assistant Secretary for Health, ADM Brett P. Giroir, M.D.

For the record, I have not heard from Dr. Gary Wormser of New York Medical College regarding my inquiry referencing Lyme disease in his JAMA publication of Dec 18, 2018.

I had two questions for Dr. Wormser highlighted below:

  1. “It is well known that untreated streptococcal pharyngitis can progress to rheumatic fever, causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated HIV infection progresses to AIDS with significant disability and death. What happens to the patient with Lyme disease who goes months, years or decades before diagnosis because of a false negative serological test?”
  2. “What is the motivation for downplaying the severity of Lyme disease while ignoring patient outcry for thirty years?”

In Dr. Wormser’s absence I will answer these questions as a victim of late stage Lyme untreated for twelve years.

FIRST QUESTION

Lyme disease patients who go months, years or decades before diagnosis are often misdiagnosed and treated for the chronic diseases of our time; diseases with no known etiology.

Multiple sclerosis, Parkinson’s disease, ALS, Fibromyalgia, Chronic Fatigue Syndrome, Alszimer’s disease, Lupus etc. etc. etc.

Case in point:

Current lawsuit for Lyme misdiagnosed as Multiple Sclerosis after four negative antibody tests for Lyme disease:

(1) [J-13-2018] IN THE SUPREME COURT OF PENNSYLVANIA MIDDLE DISTRICT http://www.pacourts.us/assets/opinions/Supreme/out/Majority%20Opinion%20%20ReversedVacatedRemanded%20%2010373940443079867.pdf?cb=1

(2) Kris Kristofferson Diagnosed with Lyme Disease After Alzheimer’s Misdiagnosis
JULY 7, 2016 – 5:16 PM
http://www.soundslikenashville.com/news/kris-kristofferson-diagnosed-with-lyme-disease-after-alzheimers-misdiagnosis/

Spend time at any of the hundreds of Lyme support group meetings across the United States (19 in Pennsylvania alone) and you will hear story after story of misdiagnosis with the majority reporting negative antibody tests (or refusal to test) for Lyme disease. If Lyme patients don’t obtain the correct diagnosis then their “misdiagnosis” is treated maintaining the status quo. How many Lyme patients are currently in the healthcare system being treated for everything else but their infection?

Clinicians who are treating Lyme exclusively are seeing far greater rates of cancer in the late stage Lyme patient. (Including me)

SECOND QUESTION

“What is the motivation for downplaying the severity of Lyme disease while ignoring patient outcry for thirty years?”

Patient testimony is reporting a disease that is destroying lives, ending careers while leaving the patient in financial ruin and this has been taking place for three decades so it is unclear why anyone would want to downplay the severity of Lyme after taking an oath to “First do no harm”

Book I, of the Hippocratic school: “Practice two things in your dealings with disease: either help or do not harm the patient”.

Quote from Senator Richard Blumenthal:

“Today for me culminates more than a decade of work and probably a decade more, because I’ve seen firsthand the devastating, absolutely unacceptable damage done by Lyme disease to individual human beings, Connecticut children and residents whose lives have been changed forever as a result of Lyme disease”

Source: http://ctmirror.org/2011/07/18/blumenthal-takes-lyme-disease-fight-senate/

Blumenthal takes Lyme disease fight to the Senate July 18, 2011

Ignoring patient outcry and downplaying the severity of Lyme disease as described in the attached 2012 letter addressed to past Health Secretary Kathleen G. Sebelius has paralyzed the response to this runaway plague. https://www.dropbox.com/s/9e3uckwzkpkfbhe/Nine%20Step%20Program.doc?dl=0

We have a health crisis causing unimaginable pain and suffering and those who have controlled the narrative for the past three decades (with the support of the U.S. Centers for Disease Control) are %100 percent responsible.

Respectfully submitted,

Carl Tuttle

Lyme Endemic Hudson, NH

Cc: Alan Kadish, M.D., President, New York Medical College

 

Gary P. Wormser, M.D.
Founded in 1860, New York Medical College (NYMC), one of the nation’s largest private health sciences universities, is the leading…

 

https://www.buzzfeednews.com/article/nidhisubbaraman/oral-b-pfas-dental-floss?

These Five Brands Of Dental Floss May Expose People To Harmful Chemicals, Study Finds

PFAS “forever chemicals” are found in many consumer products, including nonstick cookware, carpets, and easy-glide floss.

Posted on January 9, 2019, at 7:10 p.m. ET

Andreypopov / Getty Images

People may absorb toxic industrial chemicals from some brands of dental floss, a new study says. It’s the latest evidence that Americans are routinely exposed to this vast class of chemicals, known as PFAS, some of which have been linked to heart disease and cancer.

Women who said they flossed with Oral-B Glide floss had higher levels of a PFAS called perfluorohexane sulfonic acid (PFHxS) in their blood than those who didn’t, researchers reported Tuesday in the Journal of Exposure Science & Environmental Epidemiology.

“I’m not trying to tell people, ‘don’t floss,’” Katie Boronow, a staff scientist at the Silent Spring Institute in Newton, Massachusetts, who was part of the study, told BuzzFeed News. “It’s about choosing safer products.”

The CDC cites dental floss on a list of products that could contain PFAS. Studies in people have linked PFHxS to liver damage and a decreased immune response.

Although scientists have known that PFAS are used in Glide, “this finding suggests that it may be more important than expected,” said Courtney Carignan, an associate professor of food science and toxicology at Michigan State University who was not part of the study.

In addition to looking at the women’s blood levels, the researchers analyzed the chemical makeup of 18 types of dental floss. Six tested positive for fluorine, an element that they said indicates the presence of PFAS compounds. Those products were CVS Health EaseBetween SuperSlip Dental Floss Waxed, Oral-B Glide Pro-Health Mint and Glide Pro-Health Original, Crest Glide Deep Clean Cool Mint Floss, Safeway Signature Care Mint Waxed Comfort Floss, and Colgate Total Dental Floss Mint.

“The safety of the people who use our products is our number one priority. Our dental floss undergoes thorough safety testing and we stand by the safety of all our products,” a spokesperson for Procter & Gamble, the company that owns the Oral-B and Crest brand, told BuzzFeed News by email.

A spokesperson for CVS Pharmacy said by email that the company is “committed to assuring that the products we offer are safe, work as intended, comply with regulations and satisfy customers. We will be reviewing the study and will also contact the supplier of this product.”

Colgate-Palmolive and Safeway did not respond to requests for comment from BuzzFeed News.

PFAS compounds are used in the manufacture of many consumer products, including Teflon and nonstick cookware, waterproofed shoes and clothes, carpets, upholstery, and some kinds of food packaging. (Colgate’s website describes its Total Dental Floss as a “single-strand Teflon fiber.”)

Firefighting foams used at airports and military bases also contain PFAS chemicals. The Department of Defense has identified 126 sites near military bases with PFAS in their drinking water sources. Dozens of municipalities near chemical factories that once made PFAS products are finding the compounds in the public water systems.

Philippe Grandjean, a professor of environmental health at Harvard who was not involved with the study, told BuzzFeed News in an email that he found the results meaningful, despite the possibility that survey participants could have been exposed to PFAS from other sources, too.

“Non-stick pans have [a] larger surface but we don’t chew on them like dental floss,” Grandjean said.

Rita Loch-Caruso, a professor of environmental health at the University of Michigan who was not involved with the study, pointed out that fluoride — which also contains fluorine — is sometimes added to dental products. “It would have been nice to see them discuss whether fluoride could have been contributing to the fluorine measurements on the floss,” she told BuzzFeed News.

Boronow said that none of the products were advertised to contain fluoride for dental health.

The survey included 178 women, 87 of whom were black and 91 non-Hispanic white. The authors noted that follow-up work should include other ethnicities.

The goal of the study, Boronow said, was to get a clearer idea of how people absorbed the chemicals. “Aside from people who have contaminated drinking water or are exposed to PFAS chemicals at work, we don’t know what the most important sources of exposure are,” she said.

Dan Vergano contributed reporting.

 

https://www.ncbi.nlm.nih.gov/pubmed/30622896

2018 Dec 29;15:e00479. doi: 10.1016/j.idcr.2018.e00479. eCollection 2019.

Acute transverse myelitis – A rare clinical manifestation of Lyme neuroborreliosis.

Abstract

Acute transverse myelitis (ATM) is a rare, potentially devastating neurological syndrome that has variety of causes, infectious being one of them. Lyme disease (LD) is the most common vector borne zoonosis in the United States (U.S.). While neurologic complications of LD are common, acute transverse myelitis is an exceedingly rare complication.

We present a case of a previously healthy 25-year-old man who presented with secondary erythema migrans, aseptic meningitis and clinical features of transverse myelitis including bilateral lower extremity motor and sensory deficits manifesting as weakness and numbness, urinary retention and constipation.

Despite negative serum antibodies against Borrelia burgdoferi, cerebrospinal fluid (CSF) was positive for Borrelia burgdorferi PCR.

Following treatment with methylprednisolone and ceftriaxone, he attained complete recovery apart from neurogenic bladder necessitating intermittent self-catheterization. We report rare manifestation of a common disease and emphasize the importance of considering LD in the differential diagnosis of acute transverse myelitis, particularly in residents of endemic areas.

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**Comment**

Nobody has a CLUE about how often anything is occurring in Lyme/MSIDS, when testing misses over half of all cases and folks are commonly misdiagnosed or undiagnosed for years.  Again, because words mean things, and research has been used against patients for over 40 years, a more accurate statement would be, “This is the first recorded case of ATM caused by Lyme Disease.”  And remember, just because something isn’t on record doesn’t mean it hasn’t happened.  Important distinction.

According to https://myelitis.org/living-with-myelitis/disease-information/afm/

The predominant presentation is weakness that may affect the limbs, face, oral or eye muscle. Weakness varies greatly ranging from subtle to very severe. AFM may result in total paralysis, partial paralysis, or weakness of just one limb. The combination of paralysis and how individuals present are widely variable. The limbs or muscle structures of individuals with AFM appear weak, flaccid, or limp and are not spastic as seen in classic cases of transverse myelitis. Since it is markedly the gray matter of the spinal cord that is inflamed in individuals with AFM, sensory, bowel and bladder functions can remain intact, however there are individuals that have both upper and lower motor neuron involvement.

The enterovirus (EV-D68) has been suspect in many of these cases however, it has not been definitively proven that it is this particular virus that has caused the paralysis,(1) although several cases of AFM occurred at around the same time as an outbreak of the EV-D68 virus.(2)

There has been a spike in AFM:  https://madisonarealymesupportgroup.com/2018/10/19/rise-in-acute-flaccid-myelitis-cases-and-the-link-to-vaccinations/

Within the above link, you will learn there are numerous theories on what causes AFM including viruses & vaccinations.  Lyme/MSIDS patients often have viral involvement, and reactivation of Lyme has been documented after vaccinations:  https://madisonarealymesupportgroup.com/2017/12/02/scottish-doctor-gives-insight-on-lyme-msids/, as well as Bartonella:  https://madisonarealymesupportgroup.com/2016/04/24/gardasil-and-bartonella/

https://madisonarealymesupportgroup.com/2016/11/07/connection-of-acute-flaccid-myelitis-and-vaccinations/  In this article, James Lyons Weiler states:

The US press has been pushing a view of acute flaccid paralysis as a mysterious condition of unknown etiology (unknown cause). Checking the scientific literature, however, tells us that AFP is most often Guillain Barre Syndrome (GBS), a condition that appears on the National Vaccine Injury Compensation Program as a “Table Condition” – i.e., one that the US HHS has no defense against when parents file in the NVICP for compensation for GBS as a vaccine injury in their children.  https://madisonarealymesupportgroup.com/2018/12/07/acute-flaccid-paralysis-is-most-often-guillain-barre-syndrome/

GBS is also often a player with Lyme/MSIDS:  https://madisonarealymesupportgroup.com/2019/01/09/transverse-myelitis-guillain-barre-associated-with-bartonella/

https://madisonarealymesupportgroup.com/2017/07/14/clinical-association-lyme-disease-and-guillain-barre/  In Dr. Waisbren’s book, Treatment of Chronic Lyme Disease, the majority of his 51 cases of chronic Lyme had high EBV titers.  He also states,

“As will be seen in other cases, the Epstein-Barr virus may be a candidate for a co-infection associated with LD.”  

Waisbren often treated this co-infected patients that had EBV with 1000mg of Valtrex three times a day with good success.  He also used gamma globulin (4cc twice a week).

So Lyme/MSIDS patients are at the top of the list for AFM for numerous reasons.  Personally, I had a MRI at one point due to the excruciating pain in my spine and occipital headaches.  This pain was unrelenting.  Borrelia burgdorferi (Bb) loves the brain and spinal column.  Many viruses hang out in the spine.  The MRI showed nothing abnormal and I was sent home with the same pain I came with.  While I believe proper antimicrobial treatment to be imperative, what finally relieved this pain for me was MSM:  https://madisonarealymesupportgroup.com/2018/03/02/dmso-msm-for-lyme-msids/

Along with swelling in the spine, patients can have brain swelling as well.  Within one week, I met 3 Lyme patients with Chiari, another supposed “rare” condition:  https://madisonarealymesupportgroup.com/2016/04/02/chiari/  While Chiari is often caused by structural defects in the brain and spinal cord that occur during fetal development, it can also be caused due to injury, exposure to harmful substances, or infection. 

When you study the Bb organism, along with the numerous coinfections, spine and brain swelling makes complete sense and needs to be studied further:  https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/

There is so much research begging to be done, yet main stream medicine wants to wrap Lyme into a pretty box with a bow on top.  Again, if there is any box involved with Lyme/MSIDS, it’s Pandora’s.