https://www.linkedin.com/pulse/first-officially-recognized-report-violations-lyme-jenna-luche-thayer/?trackingId=2abgUgrJu2AT4TVfOFd3qw%3D%3D by Jenna Luche-Thayer, Oct. 13, 2017
First Officially Recognized Report on Violations of Lyme Patients’ Human Rights is Released
UPDATING ICD11 Borreliosis Diagnostic Codes – First Officially Recognized Report on Violations of Lyme Patients’ Human Rights is Released
I have some exciting news about our report that was submitted to United Nations!
As you may know, I founded an international Ad Hoc Committee of scientists, medical professionals, human rights experts and patient advocates to document the human right violations experienced by Lyme and relapsing fever borreliosis patients.
This report, UPDATING ICD11 Borreliosis Diagnostic Codes, was submitted to the World Health Organization and the United Nations Human Rights Council’s Special Rapporteur for health and human rights.
The Special Rapporteur then invited our team to Geneva, Switzerland to testify on the human right violations experienced by Lyme and relapsing fever borreliosis patients. The human rights violations include the obstruction to treatment options that meet international standards for clinical guidelines and the denial of coverage for many serious complications and disability caused by Lyme borreliosis.
The report was entered into record by the Special Rapporteur – this is the first officially recognized documentation of the human rights violations experienced by this patient group.
UPDATING ICD11 Borreliosis Diagnostic Codes :
(1) describes the nature of these abuses
(2) details how the WHO’s outdated diagnostic codes —known as the International Classification of Diseases (ICD) codes— for Lyme and relapsing fever borreliosis contribute to these violations
(3) provides the peer-reviewed science concerning the many complications from Lyme, including those that result from latent and seronegative infection
(4) describes how the codes need to be updated—the updates should follow same ICD code logic used by WHO for syphilis, a similar spirochetal infection that has many of the same complications including congenital transmission and systemic complications that may disable and be fatal
UPDATING ICD11 Borreliosis Diagnostic Codes is now available for purchase of $25.00 (plus shipping) on CreateSpace eStore and will be available on Amazon Europe and Amazon.com by October 19, 2017.
We are an entirely voluntary organization – all proceeds from the sale of this report will be used to support our on-going efforts.
Please know I also have some videos that further describe what these efforts mean … and will release another video on how this report is changing the understanding of the epidemic.
Please let me know if you have any questions! Jenna
For more information, contact Jenna Luché-Thayer