Our next support group meeting will be Saturday, February 17, from 2:30-4:30pm at the East Madison Police Station at 809 S Thompson Dr. Madison, WI 53716.
It will be a regular support meeting where we can share our progress and ask questions. Please bring whatever’s working, any books you’ve gleaned from, and all your questions.
See you there!
https://sites.google.com/site/marylandlyme/legal-cases/france–300-patients-file-suit
Original Article in French: http://rmc.bfmtv.com/emission/maladie-de-lyme-300-malades-vont-deposer-plainte-au-penal-des-janvier-1331597.html
Translated To English Below
IN FRANCE – 300 people with Lyme disease will file criminal complaints in early January 2018 against the State, the National Agency for the Safety of Medicines and Health Products (ANSM) and the National Reference Center (CNR) in Strasbourg for influence peddling, abuse of company or government assets, concealment of abuse of government or company assets, endangering the lives of others, violation of the principle of independence of experts and conflict of interests.
This complaint aims in particular “to uncover the links of interests maintained between the National Reference Center of Strasbourg and the laboratories”. The complainants believe that screening tests are unreliable.
The director of the CNR, is an expert mandated by the State and the ANSM, who also collaborates with the laboratories that manufacture these tests and participates in the validation committees of the tests. He may be charged with criminal offense, influence peddling, corruption and misuse of corporate assets.
The plaintiffs also target the State and the ANSM for endangering the lives of others and manslaughter (patient suicides) and also lack of vigilance in the choice of experts and the quality of tests.
According to one of the plaintiffs’ lawyers, by imposing a single testing technique, a single screening protocol and favoring a certain number of laboratories, the health authorities “did not play their role of supervisory or regulatory authority, but actually became employees of the pharmaceutical industry.”
Today there are tens of thousands of patients who have not been diagnosed and many of them are in absolutely catastrophic medical, material and moral situations.
The lawyers claim the responsibility of the actors of public health, but also $611,345.00 of damages per patient.
“Absurd” tests: Today, the Elisa test is used to find out if a patient has Lyme disease. Elisa is the only test that exists in France to detect the disease. If it is negative, the exams stop there for the patient. If it is positive, the doctors give a second test to the patient, much more precise, the Western Blot.
Except that the first test detects only 3 to 5 different bacteria that can cause Lyme, whereas in reality, there are more than ten. To find out if they have Lyme or not, some patients have to go to veterinary tests, much more accurate, or go to other countries like Germany, where the tests are more advanced.
Some doctors do not stop at the negative test and continue to see patients to determine if they have Lyme or not, but they are then sued by the College of Physicians and Health Insurance for ‘non-compliance’. The lawyers therefore ask for the withdrawal of these tests that they consider “absurd”.
Vive la France!
_____________
For more lawsuits in the works:
https://madisonarealymesupportgroup.com/2017/11/15/lyme-patients-file-lawsuit-against-idsa-and-insurers-over-treatment-denials/ Texans filing lawsuit
https://madisonarealymesupportgroup.com/2017/12/09/25303/
https://madisonarealymesupportgroup.com/2017/09/25/speaking-of-fake-science-fifty-seven-million-anti-trust-lawsuit-against-cdc-lyme-tests/ The CDC is accused of violation of the antitrust law in suppressing a direct testing method to diagnose an emerging infectious disease (Lyme borreliosis), which the CDC itself has called the ‘fastest growing vector borne disease in the USA’. One of the purposes of the current lawsuit is to make the Exhibits public, so that Lyme disease patients can ask their lawyer to use the Exhibits to file their own SF-95 form for damages due to delayed diagnosis.
If he wins his case, Dr. Lee intends to donate the money to a non-profit organization to set up nested PCR/16S rRNA sequence diagnostic laboratories in hospitals located in Lyme disease-endemic areas so that all Lyme patients can be diagnosed early within a few days of first symptomatic presentation and receive timely and proper treatment.
Live Webinar, January 31, 2018
5:00pm – 6:00pm Eastern Time
The Global Lyme Alliance is pleased to present Highlights from ILADS 18th Annual Scientific Conference, our expert panel of leading physicians will provide their insights and a summary of key data and research presented at this conference.
Join the discussion to hear expert insights into the latest research developments and treatment approaches in Lyme and other tick-borne diseases from our panel of Lyme physicians and patients.
Physician Panel:
Dr. Kenneth Liegner, Physician, Author and Patient Advocate https://www.curetalks.com/cu/pub/profile/240/
Dr. Thomas Moorcroft, Co-founder of Origins Of Health, an Osteopathic wellness center https://www.curetalks.com/cu/pub/profile/242/
Dr. Leo J Shea III, Clinical Associate Professor of Rehabilitation Medicine at Rusk Institute, a division of the New York University-Langone Medical Center https://www.curetalks.com/cu/pub/profile/243/
Dr. Samuel Shor, Associate Clinical Professor, George Washington University Health Care Sciences https://www.curetalks.com/cu/pub/profile/241/
Patient Panel:
Jackie Bailey, NP at Apheresis Associates of Northern Virginia (AANV)
Jennifer Crystal, Writer and Educator
The audience can ask questions from the panelists LIVE on the talk by dialing in. You can also write in your questions, which may be selected & featured during the talk.
Information & Registration HERE: https://www.curetalks.com/event/rsvp/Highlights-from-the-International-Lyme-and-Associated-Diseases-ILADS-18th-Annual-Scientific-Conference-Boston/292/
**Evidently if you are unable to listen to the live talk, by registering you will be sent a link to the page where the 60 minute talk with be uploaded and archived so you may listen at your own convenience.**
Email: education@GLA.org with any questions you want answered.
For more on the conference: https://madisonarealymesupportgroup.com/2017/11/17/take-aways-from-the-ilads-conference/
https://madisonarealymesupportgroup.com/2017/11/15/live-tweets-from-ilads/
https://madisonarealymesupportgroup.com/2017/12/11/january-2018-madison-lyme-support-group-debra-muth-nd/ (Details here)
Our next support group meeting is next Saturday, Jan. 27 from 2:30-5 at the East Madison Police Station at 809 S Thompson Dr, Madison, WI
Parking details here: https://madisonarealymesupportgroup.com/wp-content/uploads/2017/03/east-dist-parking-visitor-parking.pdf No parking allowed in red areas. You may park in the dotted yellow areas, in-between the light poles and in the last row under the red, as well as on the road leading up to the station.
Carl Tuttle
Hudson, NH
JAN 16, 2018 — Please see the letter below addressed to the TBD Working Group referencing ongoing attempts to suppress direct detection methods in the laboratory testing for Lyme disease.
Anyone wishing to contact the Lyme Disease Working Group can send an email to: tickbornedisease@hhs.gov
Letter to the Working Group:
I would like to call attention to the study below published in November of 2010 by Dr. Sin Lee identifying faulty serology tests for Lyme disease in 85.7% of the walk-in patients in the Emergency Room of Milford Hospital.
One month after publishing his paper (Dec 13, 2010) Dr. Lee received a termination of employment letter from the Director of Human Resources at Milford Hospital as they ordered the immediate shutdown of the molecular diagnostic laboratory. It appears that individuals at Yale Medical Group weren’t happy with the truth and wanted to end his work and shut down his lab sabotaging the development of a DNA sequencing test for Lyme disease diagnosis.
For those who haven’t made the connection:
Serology cannot be used to gauge treatment failure or success which makes it the ideal tool for concealing persistent infection perpetuating the thirty year dogma that chronic Lyme does not exist.
Did the scientists in Europe use Western blot or DNA sequencing to prove the Iceman contracted Lyme disease 5000 years ago? If DNA sequencing can be used to confirm Lyme disease in a dead man frozen 5000 years ago, why are we not trying to use the same technology to diagnose Lyme disease on those still walking?
Iceman Mummy May Hold Earliest Evidence of Lyme Disease
https://www.livescience.com/18704-oldest-case-lyme-disease-spotted-iceman-mummy.html
Dr. Lee went on to win a lawsuit against his employer’s irrelevant unsubstantiated accusations(Sin Hang Lee vs. Milford Hospital, Incorporated et al) and reopened his lab to continue his work. In 2014 Dr. Lee published a study of persistent infection while working on a project with the Centers for Disease Control. Once that study was published, the CDC stopped communicating with him.
“There are people who do not want to see the ugly truth which may be revealed by widespread use of direct detection tests.”
With early detection and treatment, eradication of infection is possible but faulty/misleading antibody tests are the root cause of unimaginable pain and suffering.
A Lyme patient in Norway won her recent lawsuit due to faulty/misleading antibody tests….
“On May 23rd, 2017, Seim was granted, in the District Court, 340,000 in court costs, and claims for expenses for up to 90,000”
BOTA BORRELIA – CURE LYME – Lyme patient receives compensation 10 years after inadequate treatment.
https://botaborrelia.wordpress.com/2018/01/09/bota-borrelia-cure-lyme-borreliapatient-far-ersattning-10-ar-efter-bristande-behandling-lyme-patient-receives-compensation-10-years-after-inadequate-treatment/
___________________________1. Dr. Lee’s 2010 Publication:
BMC Res Notes. 2010 Nov 1;3:273. doi: 10.1186/1756-0500-3-273.
Early Lyme disease with spirochetemia – diagnosed by DNA sequencing.
Lee SH1, Vigliotti VS, Vigliotti JS, Jones W, Williams J, Walshon J. https://www.ncbi.nlm.nih.gov/pubmed/21040573Abstract
BACKGROUND:
A sensitive and analytically specific nucleic acid amplification test (NAAT) is valuable in confirming the diagnosis of early Lyme disease at the stage of spirochetemia.
FINDINGS:
Venous blood drawn from patients with clinical presentations of Lyme disease was tested for the standard 2-tier screen and Western Blot serology assay for Lyme disease, and also by a nested polymerase chain reaction (PCR) for B. burgdorferi sensu lato 16S ribosomal DNA. The PCR amplicon was sequenced for B. burgdorferi genomic DNA validation. A total of 130 patients visiting emergency room (ER) or Walk-in clinic (WALKIN), and 333 patients referred through the private physicians’ offices were studied. While 5.4% of the ER/WALKIN patients showed DNA evidence of spirochetemia, none (0%) of the patients referred from private physicians’ offices were DNA-positive. In contrast, while 8.4% of the patients referred from private physicians’ offices were positive for the 2-tier Lyme serology assay, only 1.5% of the ER/WALKIN patients were positive for this antibody test. The 2-tier serology assay missed 85.7% of the cases of early Lyme disease with spirochetemia. The latter diagnosis was confirmed by DNA sequencing.
CONCLUSION:
Nested PCR followed by automated DNA sequencing is a valuable supplement to the standard 2-tier antibody assay in the diagnosis of early Lyme disease with spirochetemia. The best time to test for Lyme spirochetemia is when the patients living in the Lyme disease endemic areas develop unexplained symptoms or clinical manifestations that are consistent with Lyme disease early in the course of their illness.
__________________________2. Dr. Lee’s additional publication identifying chronic Lyme: (2014)
DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections.
https://www.ncbi.nlm.nih.gov/pubmed/24968274
_______________________At what point in time do we acknowledge that Lyme disease has been tenaciously mishandled to protect the long established racketeering scheme outlined in the Shrader & Associates RICO lawsuit;
You can read the court document here:
https://www.courthousenews.com/wp-content/uploads/2017/11/LymeDisease.pdf
Might I remind everyone reading this email that the Centers for Disease Control has aligned itself with the seven defendants identified in this racketeering lawsuit so if the CDC is allowed to oversee the future direction of Lyme per the recommendations/outcome of this TBD Working Group we are in for another thirty years of failure to control, treat and eliminate this 21st Century plague.
Sincerely,
Carl Tuttle
Lyme Endemic Hudson, NH
