Archive for the ‘Uncategorized’ Category

February Support Group Meeting Reminder

Don’t forget our support group meeting this Saturday:  https://madisonarealymesupportgroup.com/2018/02/01/february-2018-support-group-meeting/

See you there!

 

 

 

 

February 2018 Support Group Meeting

winter-14

Our next support group meeting will be Saturday, February 17, from 2:30-4:30pm at the East Madison Police Station at 809 S Thompson Dr. Madison, WI 53716.

It will be a regular support meeting where we can share our progress and ask questions. Please bring whatever’s working, any books you’ve gleaned from, and all your questions.

See you there!

French Lyme Patients Filing Criminal Complaints

https://sites.google.com/site/marylandlyme/legal-cases/france–300-patients-file-suit

Maladie de Lyme: 300 malades vont déposer plainte au pénal dès janvier

Original Article in French:  http://rmc.bfmtv.com/emission/maladie-de-lyme-300-malades-vont-deposer-plainte-au-penal-des-janvier-1331597.html

Translated To English Below

IN FRANCE – 300 people with Lyme disease will file criminal complaints in early January 2018 against the State, the National Agency for the Safety of Medicines and Health Products (ANSM) and the National Reference Center (CNR) in Strasbourg for influence peddling, abuse of company or government assets, concealment of abuse of government or company assets, endangering the lives of others, violation of the principle of independence of experts and conflict of interests.
This complaint aims in particular “to uncover the links of interests maintained between the National Reference Center of Strasbourg and the laboratories”. The complainants believe that screening tests are unreliable.

The director of the CNR, is an expert mandated by the State and the ANSM, who also collaborates with the laboratories that manufacture these tests and participates in the validation committees of the tests. He may be charged with criminal offense, influence peddling, corruption and misuse of corporate assets.

The plaintiffs also target the State and the ANSM for endangering the lives of others and manslaughter (patient suicides) and also lack of vigilance in the choice of experts and the quality of tests.

According to one of the plaintiffs’ lawyers, by imposing a single testing technique, a single screening protocol and favoring a certain number of laboratories, the health authorities “did not play their role of supervisory or regulatory authority, but actually became employees of the pharmaceutical industry.”

Today there are tens of thousands of patients who have not been diagnosed and many of them are in absolutely catastrophic medical, material and moral situations.

The lawyers claim the responsibility of the actors of public health, but also $611,345.00 of damages per patient.

“Absurd” tests: Today, the Elisa test is used to find out if a patient has Lyme disease. Elisa is the only test that exists in France to detect the disease. If it is negative, the exams stop there for the patient. If it is positive, the doctors give a second test to the patient, much more precise, the Western Blot.

Except that the first test detects only 3 to 5 different bacteria that can cause Lyme, whereas in reality, there are more than ten. To find out if they have Lyme or not, some patients have to go to veterinary tests, much more accurate, or go to other countries like Germany, where the tests are more advanced.

Some doctors do not stop at the negative test and continue to see patients to determine if they have Lyme or not, but they are then sued by the College of Physicians and Health Insurance for ‘non-compliance’. The lawyers therefore ask for the withdrawal of these tests that they consider “absurd”.

Vive la France!

_____________

For more lawsuits in the works:

https://madisonarealymesupportgroup.com/2017/11/15/lyme-patients-file-lawsuit-against-idsa-and-insurers-over-treatment-denials/  Texans filing lawsuit

https://madisonarealymesupportgroup.com/2017/12/09/25303/

https://madisonarealymesupportgroup.com/2017/09/25/speaking-of-fake-science-fifty-seven-million-anti-trust-lawsuit-against-cdc-lyme-tests/  The CDC is accused of violation of the antitrust law in suppressing a direct testing method to diagnose an emerging infectious disease (Lyme borreliosis), which the CDC itself has called the ‘fastest growing vector borne disease in the USA’.  One of the purposes of the current lawsuit is to make the Exhibits public, so that Lyme disease patients can ask their lawyer to use the Exhibits to file their own SF-95 form for damages due to delayed diagnosis.
If he wins his case, Dr. Lee intends to donate the money to a non-profit organization to set up nested PCR/16S rRNA sequence diagnostic laboratories in hospitals located in Lyme disease-endemic areas so that all Lyme patients can be diagnosed early within a few days of first symptomatic presentation and receive timely and proper treatment.

 

 

2017 ILADS Conference Highlights Live Webinar

Highlights from the 2017 International Lyme and Associated Diseases (ILADS) Annual Scientific Conference – Boston

Live Webinar, January 31, 2018
5:00pm – 6:00pm Eastern Time

The Global Lyme Alliance is pleased to present Highlights from ILADS 18th Annual Scientific Conference, our expert panel of leading physicians will provide their insights and a summary of key data and research presented at this conference.

Join the discussion to hear expert insights into the latest research developments and treatment approaches in Lyme and other tick-borne diseases from our panel of Lyme physicians and patients.

Physician Panel:
Dr. Kenneth Liegner, Physician, Author and Patient Advocate  https://www.curetalks.com/cu/pub/profile/240/

Dr. Thomas Moorcroft, Co-founder of Origins Of Health, an Osteopathic wellness center  https://www.curetalks.com/cu/pub/profile/242/

Dr. Leo J Shea III, Clinical Associate Professor of Rehabilitation Medicine at Rusk Institute, a division of the New York University-Langone Medical Center  https://www.curetalks.com/cu/pub/profile/243/

Dr. Samuel Shor, Associate Clinical Professor, George Washington University Health Care Sciences  https://www.curetalks.com/cu/pub/profile/241/

Patient Panel:
Jackie Bailey, NP at Apheresis Associates of Northern Virginia (AANV)

Jennifer Crystal, Writer and Educator

The audience can ask questions from the panelists LIVE on the talk by dialing in. You can also write in your questions, which may be selected & featured during the talk.

Information & Registration HERE:  https://www.curetalks.com/event/rsvp/Highlights-from-the-International-Lyme-and-Associated-Diseases-ILADS-18th-Annual-Scientific-Conference-Boston/292/

**Evidently if you are unable to listen to the live talk, by registering you will be sent a link to the page where the 60 minute talk with be uploaded and archived so you may listen at your own convenience.**

Email: education@GLA.org with any questions you want answered.

For more on the conference:  https://madisonarealymesupportgroup.com/2017/11/17/take-aways-from-the-ilads-conference/

https://madisonarealymesupportgroup.com/2017/11/15/live-tweets-from-ilads/

https://www.lymedisease.org/lyme-sci-ilads-2017-tweets1/

January 2018 Meeting Reminder – Dr. Muth

https://madisonarealymesupportgroup.com/2017/12/11/january-2018-madison-lyme-support-group-debra-muth-nd/ (Details here)

Our next support group meeting is next Saturday, Jan. 27 from 2:30-5 at the East Madison Police Station at 809 S Thompson Dr, Madison, WI

Parking details here: https://madisonarealymesupportgroup.com/wp-content/uploads/2017/03/east-dist-parking-visitor-parking.pdf   No parking allowed in red areas. You may park in the dotted yellow areas, in-between the light poles and in the last row under the red, as well as on the road leading up to the station.