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Contact Your Senators

https://www.lymedisease.org/last-chance-fed-lyme-bill/?utm_source=Sept+14–fed+bill&utm_campaign=Sept+14–Holler&utm_medium=email

Soon, a major piece of health legislation is likely to be voted on by the U.S. Senate. If this happens, a bill we support–the Lyme and Tick-Borne Disease Prevention, Education and Research Act (S. 1503)–will be offered as an amendment.

To help prepare for this, we urgently need to add additional co-sponsors to the bill. Please take a moment to contact your U.S. senators to let them know how important this legislation is to you (even if you’ve already done so in the past).

The legislation would create an advisory committee within the Department of Health and Human Services (HHS) to identify best practices to combat tick-borne diseases. The group would be comprised of patients, advocates, researchers, medical professionals, and government officials. The bill would also require the HHS Secretary to coordinate efforts to strengthen disease surveillance and reporting, develop better diagnostic tools and tests, create a physician-education program, establish epidemiological research objectives for Lyme and other tick-borne illnesses, and prepare regular reports to Congress on the progress of efforts to combat these devastating diseases.

Voter Voice is a system that lets you easily contact your senators. You supply your name and contact information.  

Click on the link at the beginning of the article to go to Voter Voice.

WI Coppe Lab in the News

http://www.capecodtimes.com/news/20160814/study-cites-powassan-link-to-long-term-lyme-symptoms

Virologist and microbiologist, Dr. Konstance Knox, suspects persistent Lyme cases may be complicated by Powassan virus.  An unpublished 2010 study showed more than 15% of Lyme patients had Powassan.   A study completed in May of 106 patients with suspected acute tick borne disease showed 10.4 % had Powassan.

Knox states there is little data and really no way of knowing how many are truly infected with the virus, which is hard to distinguish from Lyme Disease, but is important to study as it has evolved to persist and go to the brain.

Knox is also starting to test 300 samples from patients with post tick borne infection fatigue to try and determine why active, healthy people suddenly get sick and never recover.

We all would like to know too.

For more on Powassan read: https://madisonarealymesupportgroup.com/2016/02/21/powassan-virus/

 

 

Dr. Paul Duray Research Fellowship Foundation: Some Great Research Being Done on Lyme Disease

https://durayresearch.wordpress.com/about-2/7-provocative-findings-intro/

The link above will lead you to an incredible article written by Microbiologist, Tom Grier.  There is even a pdf version with extra spacing that makes it easier to read.

In a nutshell, he shows that “virtually no funding in any country has been put into Borrelia pathology.”  He also states, “there are more than a dozen species of Borrelia that cause Lyme disease, many of which can penetrate any tissue, and add a couple Relapsing Fevers that tag along for the ride, and it becomes clear that the Lyme disease blood tests based on Borrelia burgdorferi detection that have been used for 30+ years have become pretty much useless.”

There you have it folks – straight from the horse’s mouth – with more to follow.

Grier’s story of how he met and began working with Duray can only be chalked up to Providence as at the time Grier, infected with Lyme himself, could barely walk or stay awake.  The rest would make for great nonfiction – but unfortunately, it’s ALL TRUE.  Let’s just say restraining orders are involved and other stuff you wouldn’t believe – but then again, most of you would because similar things have happened to you.

There are direct links showing:

*Mother-to-child transmission of Borrelia across the womb

*Burgdorferi and miyamotoi associated with amyloid plaques in Alzheimer’s brains

*Borrelia found in Lewy Body Dementia

*Nematode worms found in Alzheimer’s brains

*Borrelia found in five deadly brain tumors (Glioblastoma multiforme)

*Borrelia Mayonii and Borrelia burgdorferi found in human testicle

Grier states that what this means is that some dementia patients, if caught early, may improve on antibiotics (similarly to Kris Kristofferson’s story) https://madisonarealymesupportgroup.com/2016/06/09/alzheimers-byproduct-of-infection/, or even stop the progression of disease – but that treatment must be from a clinical diagnosis due to the poor testing.  It is also possible that lengthy and/or life-long therapy will be needed – and that adding an anti parasitic medicine might be the first step due to the research showing nematodes in the brain which harbor the Lyme spirochete.  https://madisonarealymesupportgroup.com/2016/06/03/borrelia-hiding-in-worms-causing-chronic-brain-diseases/.

On page four of Grier’s article he tells the story of Jack Gordon – a patient with Lewy-Body dementia.  His wife, Betty, a Lyme patient and advocate in Iowa, donated money to determine if Jack’s brain had borrelia in it.  It did.  Grier states this research is what helped them connect Lyme and Lewy-Body Dementia.

Similarly to the treatment stated above, if Lewy-Body Dementia patients can be found in the early stages, antibiotics could halt the formation of alpha-synuclein, and that the addition of an anti parasitic would be wise for the same reason stated above.

He goes on to discuss the research involving those with MS.  Grier feels that due to their research also discovering nematode involvement, the MS patient should be put on an anti parasite for nematodes, (making sure to kill all parasites in every growth stage including eggs) followed by antibiotics for Borrelia.  He states treatment would have to be aggressive to get past the Blood-Brain-Barrier, and prolonged to eradicate the Borrelia.

He also reports that while the work of veterinarian Dr. Elizabeth Burgess DVM PhD in 1990 showed that dogs infected with LD were transmitting and infecting female dogs through sexual transmission, proof in humans is lacking.  Pathologist Alan McDonald found B. burgdorferi and B. mayonii in the testicle and brain of a man who had been treated nearly continuously on antibiotics for the last seven years of his life.  Grier states the case for sexual transmission is stronger than ever.

The take home:  Treat all Borrelia early and aggressively to prevent Borrelia in immune privileged sites like the testicles and brain, and that antibiotics may not be enough, so infected couples should use a condom.

***Grier gives the caution:  Do not self treat with anthelmintics as they can cause severe inflammatory reactions and fatal encephalitis.

Free Webinar: Lyme Disease and You

MedicalMarijuanaShutterstock1-300x200Event Description:  An informative online webinar specific to medical cannabis and Lyme Disease.  This is an introduction to how various forms of medical cannabis and hemp can help relieve symptoms for people suffering with Lyme Disease.

When:  Thursday, August 18, 2016

US Times:  EST:  1:00pm-2:30pm; MST:  12pm-1:30pm, MDT:  11am-12:30pm, PST:  10am-11:30am.  For other regions see:  http://www.timeanddate.com/time/zones/  (correct me if I’m wrong but that would mean it’s on at 12pm here in WI)

Register at this link:  https://www.eventbrite.com/e/realm-of-caring-orientation-lyme-disease-and-you-tickets-26888571441

For more information on medical Cannabis see:  https://madisonarealymesupportgroup.com/2015/05/19/marijuana-the-miracle-herb/

Vaccine Injuries and the Lyme Connection

https://www.linkedin.com/pulse/vaccine-injuries-lyme-connection-joni-comstock?trk=hb_ntf_MEGAPHONE_ARTICLE_POST  written by Joni Comstock, Founder at May12.org, Advocating for Patients’ Rights and Compassionate Care

Common Groups of Diseases

“There are various diseases that have common symptoms and disease mechanism but with different labels such as – chronic Lyme disease, autism, myalgic encephalomyelitis (ME) Gulf war illness (GWI) and mold/biotoxin illness. All these patient groups have been neglected and abused by the U.S. government health agencies.

The CDC Fraud with vaccines and lyme (OspA) connection:

The LYMEerix vaccine was manufactured with ‘outer surface protein A’ (OspA). OspA is fungal and therefore has an immunosuppressive effect – causing post-sepsis syndrome. People injected with this vaccine were effected similarly to those bitten by a tick -which injects spirochetes (toxic fungi). Ironically, this vaccine was making people sick with the exact thing it was supposed to prevent!

The LYMErix vaccine gave people the same disease we know of as chronic neurologic Lyme, so then what is the disease? What is OspA?

The LYMErix vaccine was patented by the U.S. Centers for Disease Control and prevention (CDC). The synthetic OspA injected into subjects in the trial for the vaccine were getting sick. They were injected with a fungal type antigen which is toxic to humans.

LYMErix was pulled off the market when this fact was revealed to the FDA. But was anyone prosecuted like with the NECC scandal? Did anyone go to jail for racketeering? Was a fund set up for the victims?

Petition for a Congressional Investigation

It’s time to hold the CDC, Merck, Yale, IDSA (and others) responsible for the lives they have destroyed. Carl Tuttle started a petition with over 34k signatures so far – “Calling for a Congressional investigation of the CDC, IDSA and ALDF”

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf

The CDC fraudulently use the “two-tier” Lyme testing method set forth by the IDSA that has a high rate of false negatives and it was not FDA approved or validated.

VaxXed Call for Congressional Letters

The VaxXed (documentary the current CDC whistleblower, fraud with vaccines) leaders encourage viewers to write their congressmen asking for Dr. Thompson to be subpoenaed, the CDC dismantled and appropriate independent studies run, as well as for vaccines to be classified as a drug.

The film VaxXed is a great opportunity to raise awareness about CDC’s neglect and inability to properly oversee these issues. The momentum building with this film could definitely help the Lyme community with the CDC malfeasance info (as well as the other neglected and abused groups) during an investigation and a congressional hearing.

LymeRix Vaccine Victim’s Stories – FDA
http://www.fda.gov/ohrms/dockets/ac/01/briefing/3680b2_17.pdf

Action Lyme organization
http://www.actionlyme.org/EXOSOMES_BLEBS_VESICLES.htm

UC Davis confirming this model:
http://journals.plos.org/plospathogens/article?id=10.1371%2Fjournal.ppat.1004976

Scientists who understand Lyme spirochetes and OspA are immunosuppressive
https://www.linkedin.com/pulse/scientists-who-understand-lymespirochetes-ospa-joni-comstock?trk=prof-post

https://badlymeattitude.com/2016/05/04/lyme-awareness-you-cannot-inject-fungi-into-humans/”

http://www.actionlyme.org/150310_YALES_VACCINE_DEARBORN_SCAM.htm  The CDC’s Dearborn and Lyme Vaccine Scam (150310)

**Please read Dr. Stricker’s, a prominent LLMD, comment about the vaccine:

Raphael Stricker2017 Feb 08 1:33 p.m.edited

Another Lyme OspA Vaccine Whitewash

The meta-analysis by Zhao and colleagues comes to the conclusion that “the OspA vaccine against Lyme disease is safe and its immunogenicity and efficacy have been verified.” The authors arrive at this sunny conclusion by excluding 99.6% of published articles that demonstrate potential problems with the OspA vaccine. Furthermore, the authors ignore peer-reviewed studies, FDA regulatory meetings and legal proceedings that point to major problems with OspA vaccine safety (1-3). This whitewash bodes ill for future Lyme vaccine candidates because it fosters disregard for vaccine safety among Lyme vaccine manufacturers and mistrust among potential Lyme vaccinees.

References 1. Stricker RB (2008) Lymerix® risks revisited. Microbe 3: 1–2. 2. Marks DH (2011) Neurological complications of vaccination with outer surface protein A (OspA). Int J Risk Saf Med. 23: 89–96. 3. Stricker RB, Johnson L (2014) Lyme disease vaccination: safety first. Lancet Infect Dis. 14(1):12.