Archive for the ‘Uncategorized’ Category

Mosquito Repellent

http://www.medicalnewstoday.com/articles/312185.php#natural_mosquito_repellents

Mosquitoes are out in force in Wisconsin, and when you are armed with the knowledge they probably transmit Lyme Disease, https://madisonarealymesupportgroup.com/2016/07/23/german-study-finds-borrelia-in-mosquitos/ are proven to transmit encephalitis, yellow fever, malaria, West Nile virus, dengue, and others, we should all be avoiding them.

A few simple things to do:  http://articles.mercola.com/sites/articles/archive/2014/08/23/mosquito-repellent.aspx

*Drain any standing water around your house

*Wear light colored, loose clothing with long sleeves and pants, hats, and socks

*Plant marigolds around your house as bugs do not like the smell they emit

*Avoid outdoor activity from dusk to dawn, the peak time for mosquito activity. http://www.mnn.com/health/fitness-well-being/stories/7-ways-to-avoid-mosquitoes-this-summer

*Use natural repellents when outdoors

Natural mosquito repellent recipe

Apple cider vinegar helps to kill bacteria on the skin that the mosquitoes are attracted to and the high concentrations of essential oils repels them.

In an 8-ounce spray bottle, combine the following:

4 ounces apple cider vinegar
3 ounces water
100 drops citronella essential oil
50 drops lemon eucalyptus essential oil
50 drops clove oil
Shake first and test on a small area of skin first to test for sensitivity. If no reaction occurs then apply to clothes and skin often when outdoors.

Numerous studies show that lemon eucalyptus oil, citronella, and clove oil work as well if not better than DEET without causing the adverse health effects commercial sprays do.

http://www.mnn.com/health/fitness-well-being/stories/7-ways-to-avoid-mosquitoes-this-summer  Professor of medical entomology at the University of Florida in Vero Beach, Jonathan Day, says 20% of us are “high attractor types,” due to higher carbon dioxide, metabolic rate, lactic acid, acetone, and estradiol. It’s even worse if you wear red, navy blue, or black.  Medical entomologist and technical adviser to the American Mosquito Control Association, Joseph Conlon, states they are also more attracted to folks who drink a 12-ounce beer.

So there you have it.  If you are out at dusk, wearing black and drinking a beer, expect to be eaten alive.

 

 

The Glibowski Case

https://www.linkedin.com/pulse/legal-case-may-benefit-federal-government-those-lyme-luche-thayer?trk=hb_ntf_MEGAPHONE_ARTICLE_POST

The New Mexico US District Court – 2009-1039 Glibowski versus United States Office of Personnel Management (OPM) offers hope for Lyme patients trying to get insurance coverage.

After running to ground the internal appeal process through their insurance as well as an external review by OPM, a federal branch of government to protect access to evidenced-based care for the chronically infected, Robert and Debra Glibowski sought out an attorney to sue OPM.

After a long and grueling battle the tide finally turned when in 2013 a judge ruled in favor of the Glibowskis and required OPM and the insurance company to ‘justify any denials of coverage based on any lack of medical necessity under the policy.’

After a black out, another motion was filed for the judge to take up the case.

It is thought that the judge will rule to take this to the higher court of appeals, the Tenth Circuit Court of Appeals, representing one of 12 regional circuits in the nation which are right below the Supreme Court.

This is big.

Lyme Disease has a chance to be on legal record, and according to the attorney, there is a great chance this higher Court will rule in favor of the Glibowskis, setting a precedent for all OPM external reviews of Lyme Disease, not to mention shake up the insurance world by making it tougher to deny coverage.

A big “thank you” to Jenna Luche-Thayer https://www.linkedin.com/in/jenna-luche-thayer-b75b902b for a superb article delineating all of this.

Contact Your Senators

https://www.lymedisease.org/last-chance-fed-lyme-bill/?utm_source=Sept+14–fed+bill&utm_campaign=Sept+14–Holler&utm_medium=email

Soon, a major piece of health legislation is likely to be voted on by the U.S. Senate. If this happens, a bill we support–the Lyme and Tick-Borne Disease Prevention, Education and Research Act (S. 1503)–will be offered as an amendment.

To help prepare for this, we urgently need to add additional co-sponsors to the bill. Please take a moment to contact your U.S. senators to let them know how important this legislation is to you (even if you’ve already done so in the past).

The legislation would create an advisory committee within the Department of Health and Human Services (HHS) to identify best practices to combat tick-borne diseases. The group would be comprised of patients, advocates, researchers, medical professionals, and government officials. The bill would also require the HHS Secretary to coordinate efforts to strengthen disease surveillance and reporting, develop better diagnostic tools and tests, create a physician-education program, establish epidemiological research objectives for Lyme and other tick-borne illnesses, and prepare regular reports to Congress on the progress of efforts to combat these devastating diseases.

Voter Voice is a system that lets you easily contact your senators. You supply your name and contact information.  

Click on the link at the beginning of the article to go to Voter Voice.

WI Coppe Lab in the News

http://www.capecodtimes.com/news/20160814/study-cites-powassan-link-to-long-term-lyme-symptoms

Virologist and microbiologist, Dr. Konstance Knox, suspects persistent Lyme cases may be complicated by Powassan virus.  An unpublished 2010 study showed more than 15% of Lyme patients had Powassan.   A study completed in May of 106 patients with suspected acute tick borne disease showed 10.4 % had Powassan.

Knox states there is little data and really no way of knowing how many are truly infected with the virus, which is hard to distinguish from Lyme Disease, but is important to study as it has evolved to persist and go to the brain.

Knox is also starting to test 300 samples from patients with post tick borne infection fatigue to try and determine why active, healthy people suddenly get sick and never recover.

We all would like to know too.

For more on Powassan read: https://madisonarealymesupportgroup.com/2016/02/21/powassan-virus/

 

 

Dr. Paul Duray Research Fellowship Foundation: Some Great Research Being Done on Lyme Disease

https://durayresearch.wordpress.com/about-2/7-provocative-findings-intro/

The link above will lead you to an incredible article written by Microbiologist, Tom Grier.  There is even a pdf version with extra spacing that makes it easier to read.

In a nutshell, he shows that “virtually no funding in any country has been put into Borrelia pathology.”  He also states, “there are more than a dozen species of Borrelia that cause Lyme disease, many of which can penetrate any tissue, and add a couple Relapsing Fevers that tag along for the ride, and it becomes clear that the Lyme disease blood tests based on Borrelia burgdorferi detection that have been used for 30+ years have become pretty much useless.”

There you have it folks – straight from the horse’s mouth – with more to follow.

Grier’s story of how he met and began working with Duray can only be chalked up to Providence as at the time Grier, infected with Lyme himself, could barely walk or stay awake.  The rest would make for great nonfiction – but unfortunately, it’s ALL TRUE.  Let’s just say restraining orders are involved and other stuff you wouldn’t believe – but then again, most of you would because similar things have happened to you.

There are direct links showing:

*Mother-to-child transmission of Borrelia across the womb

*Burgdorferi and miyamotoi associated with amyloid plaques in Alzheimer’s brains

*Borrelia found in Lewy Body Dementia

*Nematode worms found in Alzheimer’s brains

*Borrelia found in five deadly brain tumors (Glioblastoma multiforme)

*Borrelia Mayonii and Borrelia burgdorferi found in human testicle

Grier states that what this means is that some dementia patients, if caught early, may improve on antibiotics (similarly to Kris Kristofferson’s story) https://madisonarealymesupportgroup.com/2016/06/09/alzheimers-byproduct-of-infection/, or even stop the progression of disease – but that treatment must be from a clinical diagnosis due to the poor testing.  It is also possible that lengthy and/or life-long therapy will be needed – and that adding an anti parasitic medicine might be the first step due to the research showing nematodes in the brain which harbor the Lyme spirochete.  https://madisonarealymesupportgroup.com/2016/06/03/borrelia-hiding-in-worms-causing-chronic-brain-diseases/.

On page four of Grier’s article he tells the story of Jack Gordon – a patient with Lewy-Body dementia.  His wife, Betty, a Lyme patient and advocate in Iowa, donated money to determine if Jack’s brain had borrelia in it.  It did.  Grier states this research is what helped them connect Lyme and Lewy-Body Dementia.

Similarly to the treatment stated above, if Lewy-Body Dementia patients can be found in the early stages, antibiotics could halt the formation of alpha-synuclein, and that the addition of an anti parasitic would be wise for the same reason stated above.

He goes on to discuss the research involving those with MS.  Grier feels that due to their research also discovering nematode involvement, the MS patient should be put on an anti parasite for nematodes, (making sure to kill all parasites in every growth stage including eggs) followed by antibiotics for Borrelia.  He states treatment would have to be aggressive to get past the Blood-Brain-Barrier, and prolonged to eradicate the Borrelia.

He also reports that while the work of veterinarian Dr. Elizabeth Burgess DVM PhD in 1990 showed that dogs infected with LD were transmitting and infecting female dogs through sexual transmission, proof in humans is lacking.  Pathologist Alan McDonald found B. burgdorferi and B. mayonii in the testicle and brain of a man who had been treated nearly continuously on antibiotics for the last seven years of his life.  Grier states the case for sexual transmission is stronger than ever.

The take home:  Treat all Borrelia early and aggressively to prevent Borrelia in immune privileged sites like the testicles and brain, and that antibiotics may not be enough, so infected couples should use a condom.

***Grier gives the caution:  Do not self treat with anthelmintics as they can cause severe inflammatory reactions and fatal encephalitis.