Archive for the ‘Psychological Aspects’ Category

Lyme Brain & Fibro Fog: Natural Solutions Webinar

https://rawlsmd.com/webinars/lyme-brain-fibro-fog/?

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Lyme Brain & Fibro Fog

Live Webinar with Dr. Bill Rawls

Wednesday, July 21st
8pm EDT

Webinar can be viewed on any device

The physical symptoms of chronic Lyme disease and fibromyalgia are challenging on their own. But when your mental capacities start to waver, it can take levels of frustration and fear to a whole new level.

Why are Lyme and fibromyalgia sufferers so prone to brain and neurological symptoms, and what can you do to find effective and lasting relief?

Join an updated live webinar with Dr. Bill Rawls, author of the best-selling book Unlocking Lyme, who knows firsthand what it’s like to live with Lyme brain and fibro fog. He’ll explain why Lyme disease and fibromyalgia tend to target the brain, and share insights on the best herbs and other natural lifestyle remedies for overcoming symptoms and reducing the risk and severity of long-term degenerative cognitive conditions such as dementia.

You’ll learn exactly what you need to clear the fog and restore healthy cognitive and neurological function, so that you can get back to thinking and feeling like yourself again.

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In this webinar, Dr. Rawls will also discuss:

• Why cognitive symptoms like confusion, short-term memory loss, anxiety, anger, and depression are so common in chronic illness patients such as those with Lyme disease, fibromyalgia, and Long COVID.

• How microbes, inflammation, and immune dysfunction disrupt cognitive function

• The best herbs and natural remedies for restoring and protecting brain health

• Numerous insights during the live Q&A with Dr. Rawls

About Dr. Bill Rawls

Bill Rawls, M.D., is a physician and leading expert in Lyme disease, integrative health, and herbal medicine. In the middle of his successful medical career, Dr. Rawls’ life was interrupted by Lyme disease. In his journey to overcome it, he explored nearly every treatment possible – from conventional medicine to a range of alternative therapies. In the more than 12 years since his recovery, Dr. Rawls has helped thousands of patients find their path to healing from Lyme disease and chronic illness. He is the author of the best-selling book Unlocking Lyme, and the Medical Director of RawlsMD.com and Vital Plan, an online holistic health company and Certified B Corporation®.

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For more:

Lyme Disease, Autoimmune Encephalopathy, & Basal Ganglia Encephalitis

http://  Approx. 1 hour, 15 Min.

Nov. 23, 2020

The Links between Lyme Disease and Autoimmune Encephalopathy and Basal Ganglia Encephalitis (BGE) – Presentation and Q&A Part of the PANS/PANDAS webinar series
Professor Craig Shimasaki,
CEO of Moleculera Labs,
Oklahoma USA Presentation

“Healing Can’t Happen in a Bubble of Fear”

https://www.lymedisease.org/amy-scher-bubble-of-fear/

Amy Scher: “Healing can’t happen in a bubble of fear”

By Amy B. Scher

In order to fully heal, you are going to have to let go and lighten up (mostly on yourself).

That’s what I tell people when they are trying to micro-manage every itty bit of themselves and their protocols in order to heal. It may seem like an easy suggestion to follow after all they’ve been through. However it was personally one of the most difficult parts of healing for me to embrace.

I lived in a bubble of fear, worried that everything I did or didn’t do would make or break my healing. But  eventually, it became clear to me that healing will not (and cannot) happen in a bubble of fear. Fear is contradictory to the environment that is needed for wellbeing.

While much went into my ultimate recovery from Lyme, the act of lightening up and letting go had one of the most profound impacts on my journey.

When we suppress ourselves, we can end up feeling anxious, depressed, and sick. If healing is all about getting free to experience a full life again, we must also pay attention to freeing ourselves from the patterns and behaviors that no longer serve us.

Lightening up does not always come easy, but it’s so worth it, and it does come if we let it.

The tyranny of perfectionism

My parents raised me with all the love and silliness you’d expect from the hippies that they were. They always praised me as smart, sweet, artistic, and kind.

But instead of taking these compliments as truth, the part of me that analyzed and internalized everything contorted them into a rule: I must be perfect.

With no one else requiring this of me, I took perfection on as my calling, my purpose. As I grew older, the pressure of this piled on me like a thousand pounds. I strived to be the one who made everyone happy and was celebrated for great things, but I also longed to be one whose faults went unnoticed.

When I strayed from the person I thought I should be—by not getting perfect grades, not being the perfect friend, or making a mistake—my insides would clench. I spent a lot of time rehearsing in my head what things I could have done differently, better. Even though my parents didn’t seem  bothered by any of my imperfections, I worried I might somehow be less of a shining star to them.

By the time I’d been suffering with chronic illness and my body had been falling apart for a good long while, I had assigned much of the blame to myself. Somehow, I must have not done this life thing good enough, perfect enough. Now, perfection was something I owed to the people around me as an apology for being the glaring burden I felt myself to be. I tried hard to convince myself I deserved mercy in this new small life, yet still, even on my near-deathbed, I felt I wasn’t doing sick perfect enough.

The truth is this: I was unloved by myself long before my physical body went astray. And it had become painfully obvious that this pattern was crushing my being and assaulting my immune system. At some point, I decided that if I didn’t lighten the f**k up, this pattern of perfection was going to kill me. I sensed that maybe it had already started to in some way.

The self-criticism trap

You cannot bully yourself into doing enough good or being good enough to feel good—and good enough to be loved, especially by yourself. That’s just not how it works.

Thanks to Stanford University’s Center for Compassion and Altruism Research and Education, we now have scientific data that shows us how and why self-criticism isn’t healthy. (Although we probably didn’t need scientific proof on this one). Self-criticism “makes us weaker in the face of failure, more emotional, and less likely to assimilate lessons from our failures.”

In fact, in a 2012 study published in the US National Library of Medicine, a link between self-compassion and negative states such as depression and anxiety was apparent across 20 studies. Because self-compassion is associated with lower levels of self- criticism, and self-criticism is known to be an important predictor of anxiety and depression, this is where we’re going to start our work.

Even outside of these examples, there has been much information that’s emerged over the years on how positive emotions, including love and acceptance, have a direct impact on your physiology, particularly your nervous system. If you beat yourself up all the time about what you are or aren’t doing, it makes sense that your system would read that self-criticism as danger and stress and react to it in just that way.

The practice of self-compassion is learning to lighten up on yourself just as you would with someone close to you who you loved and cared for. You’ve probably been criticizing yourself for a long time. If this hasn’t worked yet, it’s probably time to try something new

Release attachment to symptoms

During my experience with illness, I spent a lot of time obsessing over every new sensation in my body. I was in a state of constant overdrive, trying to figure out what each symptom was from or how to make it go away. I always alerted my doctors, who also seemed perplexed by what they meant, which of course made me feel even more worried.

Ultimately, I started to approach my body and its symptoms as not warning signs of something severe (as long as my doctor had already been notified), but as just something my body was doing that may not have a clear-cut explanation. I learned how, sometimes, to just let my symptoms be, releasing the massive amounts of energy I spent consumed by trying to solve them.

This is what I learned: sometimes they mean nothing.

We spend so much time analyzing our symptoms, guessing what they could mean, and obsessing over when they’ll go. And sometimes, we need to do that. But other times, we need a break. The truth is that despite all of our incessant “figuring out,” sometimes we just won’t know what our body is doing. We also won’t always know what healing might be taking place despite the raging symptoms. I had my worst month of symptoms came just before I turned a corner toward healing.

Give yourself permission to live a little

I spent most of my life in California, where I ate organic food, held my breath when I walked by a smoker, and focused on controlling my environment to control my health. After I was diagnosed with chronic Lyme, I became even more attuned to my lifestyle and surroundings—afraid that every misstep would kill me.

The turning point for me happened when I was in India in 2007, where I had traveled for stem cell treatment. That was my first hint that I needed to learn to let go. I had to. No choice. No time to get used to an entirely different world and medical system.

At the request of one of the nurses, I had given the staff at the hospital a list of foods I could and could not eat. On the could list: protein and veggies. On the could not list: everything else. Over the years, my brain had been programmed with messages like dairy is bad because it causes inflammation, sugar feeds the Lyme bacteria, and carbs are evil. And while maybe some of that has truth to it, being ridiculously strict about my diet only caused me more intense stress.

When the doctor saw the list, she came to my room with it and asked, “But what about your healthy cells? They need some sugar. Dairy is not bad for them. Carbs are okay in moderation! Each night, you can have a small amount of red wine and chocolate. You need some pleasure too.” All I could think was, Are you trying to kill me?

An epiphany

It wasn’t until I was squatting on a mud-smudged grocery store floor that what she said began to sink in. My whole existence for years had been dedicated to “killing” Lyme. I had built my entire life around Lyme disease, the one thing that I didn’t want. What about the rest of me?

“Mom! Look!” I had found a packaged chocolate lava cake, the kind where you add hot water to the plastic tray full of batter and it magically puffs up into dessert. It was inflatable chocolate cake, and it was a miracle in a country that was hard for me to find food I enjoyed.

This is when I had an epiphany that informed the rest of my healing journey:

What if, in my furious effort to find the cure, I had been missing something critically important all along? What if I loosened the death grip I had on my own life? What if healing is beyond what you eat and how perfectly you take your supplements? What if enjoying life and lightening up didn’t look like healing, but was a tiny step toward it?

Chocolate cake, just like the other lessons I learned, would become part of my protocol; one that brought me joy and helped to teach me that the healing journey doesn’t always look like perfection. Sometimes it looks like lightening and loosening up.

Amy B. Scher, an energy therapist, has written several books on healing, including: This Is How I Save My Life: Searching the World for a Cure – A Lyme Disease Memoir (When doctors have all but given up, when a diagnosis eludes you, and when every test result raises more questions than answers, how do you save yourself?); How To Heal Yourself From Depression When No One Else Can (Scher’s accessible approach to helping anyone struggling with depression to reclaim a joyful life). How To Heal Yourself From Anxiety When No One Else Can (A unique, go-at-your-own-pace book, full of hands-on techniques and guidance that illustrate one profound truth: healing from anxiety is possible). She can be found online at amybscher.com.

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**Comment**

Some great advice in here.  I couldn’t help considering the COVID debacle that’s been thrust upon us.  The same advice about being unable to heal while in a ‘bubble of fear’ is also true for a virus.  Fear is an emotion that will zap your strength and lower your immune system by putting you in hyper-drive, yet this is precisely what our corrupt public health ‘authorities’ have foisted upon an unsuspecting public.

Firstly, accepting death is #1 on the list toward living fully while on planet earth.  Secondly, (despite the denial by public health authorities and a complicit main stream media) there are effective treatments for both COVID and Lyme/MSIDS.  Obtaining good medical help is crucial, and in my experience Lyme literate doctors (LLMD’s) are probably your best bet for both illnesses as they are open-minded, up to date on the science, and willing to go outside the box.  When I felt like I was on death’s door from COVID, my LLMD utilized his knowledge once again and squared me away.  I write about the treatment that worked here. Within 1-2 doses I felt like a new person – demonstrating the importance of effective treatment.

These attributes are what make a good doctor, yet for both diseases we are clearly seeing the monopolization of medicine where doctors not following the narrative are censored, bullied, maligned, and persecuted.

It’s an old, old tactic that continues to be deployed.

Study Detects Tick-borne Illness in Teens Hospitalized for Depression

https://www.lymedisease.org/hospitalized-teens-lyme-depression/

Study detects tick-borne illness in teens hospitalized for depression

June 10, 2021

What Helps Improve Cognitive Function for Lyme Patients?

https://www.globallymealliance.org/blog/what-helps-improve-cognitive-function-for-lyme-patients

When Lyme disease bacteria (spirochetes) cross the blood-brain barrier, they can cause myriad neurological impairments and nervous system inflammation. Neurological Lyme disease can manifest as brain fog, memory loss, word and song iteration, confusion, anxiety and depression, sleep disturbancesand more. “Lyme brain” is terribly frustrating for patients who could once multitask, but now lose their train of thought mid-sentence, or can’t find their way to the store. Many have written to me to ask what helped me improve cognitive function. Here’s what helped the most:

  • Pharmaceutical treatment: Lyme is a bacterial infection, and you can’t improve cognitive function without killing the bacteria that’s causing it. Sometimes symptoms can get worse as bacteria die off faster than your body can eliminate them (a Herxheimer reaction), but in my experience, the payoff is worth the temporary increase in discomfort and decrease in capabilities. Your doctor may want you to pulse antibiotics in order to give your body time to recover. There are particular antibiotics that work best to penetrate the blood-brain barrier and improve cognitive symptoms. Because every single case of tick-borne illness is unique, there is no set protocol, but your Lyme Literate Medical Doctor (LLMD) can tailor one to your needs.
  • Supplements: Certain supplements can help reduce inflammation and neurotoxins. Glutathione and Essential Fatty Acids are two that are commonly used (but again, I can’t give specific medical advice; you need to check with your LLMD about which supplements, and what dosage, would be appropriate for you). I’m wary of doctors who sell supplements themselves (you want to make sure your health, not their financial gain, is their top priority). Though supplements may seem good because they’re “natural,” they can have side effects and contraindications, so don’t always assume that natural is better. For me, I’ve needed a combination of both pharmaceutical treatment and supplements to improve all of my symptoms of Lyme disease, babesiosis, and ehrlichiosis.
  • Rest: Your body needs adequate sleep to heal. This can be really hard to come by for Lyme patients, and it also can be aggravating and downright boring to be in bed all the time. But your body is working really hard to fight infection, and it needs all the rest it can get in order to do so. Even now, a decade into remission, I still can get neurologically overstimulated and experience a flare-up of cognitive symptoms. When that happens, I need to wind down, give myself some quiet time, and get extra sleep.
  • Anti-inflammatory foods: In my post “The Lyme Diet,” I discuss foods that help with reducing inflammation. There are good foods to avoid, like gluten and processed sugar, and good foods to include, like fruits, vegetables, and proteins. Certain foods have antioxidant properties. Whether eating them has helped my cognitive function, I can’t say for sure, but I know it hasn’t hurt, and I’ll take any excuse to have a piece of dark chocolate!
  • Pacing: It can be enticing to keep reading a book that you’re really into, or to binge watch a show, but doing either can be taxing on a Lyme-riddled brain. Often, I don’t know I’m overstimulated until it’s too late. I feel fine reading one page, and then another, and then all of a sudden, my head feels like it’s full of molasses. I’ve learned to stop while I’m ahead. You might tell yourself, “I have to stop reading after two pages, even if I feel fine, and rest for twenty minutes.” Eventually, as your infections get better, you’ll be able to do more, but you have to think of improving cognitive function as a marathon, not a sprint.
  • Making lists: Because memory can be so impacted by tick-borne illness, it can help to make to-do lists for each day. You can literally write down tasks like “shower” and “eat lunch,” and check them off when you’ve done them (it’s especially helpful to set reminders, either in writing or on your phone, to take your medications). Write out only what you can handle for one day at a time, and put other items on lists for later in the week. Remember to include self-care items, too, like “rest” or “take a bath.”
  • Neurofeedback: This non-invasive brain training program helps your brain to work optimally (the system I use is called Neuroptimal). I use it to help quiet my brain down; others use it to sharpen their thinking. The process uses your brain’s own information to figure out what it needs. It’s a relaxing process that involves watching kaleidoscope images on a screen (you can close your eyes if those feel overstimulating) and listening to gentle music while sensors are attached to your head. You’ll hear occasional skips in the music, which are signals that help your brain get back to its optimal state. Neuroptimal is great because it works on the whole brain at once. The neurofeedback practitioners I’ve worked with have cautioned against doing neurofeedback that only works on one section of the brain at once, saying this can actually worsen Lyme brain. I first got connected with my practitioner through a sleep clinic (which meant that sessions were covered by insurance). Your LLMD may want to do a sleep study, or refer you to a practitioner; you can also find one through the Neuroptimal site.
  • Body work/cranial sacral massage: I do a type of hands-on therapy called Integrative Manual Therapy, which encompasses cranial sacral therapy and neurofascial processing. This gentle, light touch helps lymphatic drainage, and often calms my limbic system Easing these symptoms reduces my brain fog, allowing for better cognitive function. Some physical therapists offer this type of therapy (which again means that insurance can cover it).
  • Play word and memory games: To help sharpen my brain (and keep me busy), a friend used to play writing games with me over email. He’d set rules such as, “Tell a story about a dog using only three syllable words” or “Tell me the name of someone we went to school with, and then come up with another using the first letter of that person’s last name.” I think these games helped improve my memory. It was nice to do them over email because I could take as long as I needed to complete them.
  • Recall the music or games of healthier times: Memory care units for the elderly sometimes use music therapy to help prompt long-term memory. People struggling with short-term memory are often able to recall and sing entire songs from their youth. In the midst of convalescence, I played an old card game, “Scrooge.” This elaborate version of double solitaire requires memory, quick thinking, and strategy. These were not functions that I could generally execute well in those darkest days of illness, but while playing that card game, I suddenly could. When I won handily, my opponent quipped, “There’s nothing wrong with that brain of yours!”
  • Limit stimulation: I quickly learned that loud noises, crowded rooms, and flashing screens would stimulate my brain to the point of shut down, and then brain fog would settle in. By limiting the amount of time I spent on screens, and avoiding particularly fast-paced shows, I was able to keep my brain calm so I could engage in other activities like writing and reading.
  • Accept that there will be setbacks: Healing from tick-borne illness is not linear. You will regain some cognitive function, and then have periods of brain fog, and then start improving again. Eventually, if you follow your doctor’s protocol and stick to some of these tips, you should start to see more good days than bad. I still sometimes struggle with cognitive issues, but they are slight now. When I was at my sickest, I couldn’t read or watch TV. I mixed up my words. My head ached. Now, I can write, teach, read and watch TV in short segments, and generally carry on with good cognitive functioning, so long as I work to maintain my health.
Writer

Jennifer Crystal

Writer

Opinions expressed by contributors are their own. Jennifer Crystal is a writer and educator in Boston. Her memoir about her medical journey is forthcoming. Contact her using her email.

Email: lymewarriorjennifercrystal@gmail.com