Archive for the ‘Morgellons’ Category

Interview With Morgellons Expert Dr. Ginger Savely

Interview With Morgellons Expert, Dr. Ginger Savely

November 8, 2019

You have to fast forward to 8:24 for the start.

Thank God for Dr. Savely.  Morgellons patients are believed even less than Lyme disease patients which hardly seems possible yet is. These poor patients are marginalized and told they are making it all up.

For more on Morgellons:   https://madisonarealymesupportgroup.com/2019/05/29/mixed-borrelia-burgdorferi-helicobacter-pylori-biofilms-in-morgellons-disease-dermatological-specimens/

https://madisonarealymesupportgroup.com/2016/06/17/morgellons-believe-it/

https://madisonarealymesupportgroup.com/2019/08/19/interview-marianne-middelveen-on-morgellons/

https://madisonarealymesupportgroup.com/2019/05/19/skin-deep-the-battle-over-morgellons/

https://madisonarealymesupportgroup.com/2016/12/10/morgellons-in-dogs/

https://madisonarealymesupportgroup.com/2016/12/05/new-book-on-morgellons/

https://madisonarealymesupportgroup.com/2016/10/27/research-on-morgellons/

https://madisonarealymesupportgroup.com/2018/11/16/study-strengthens-association-between-tickborne-infections-morgellons-disease/

 

Category:

Lyme, Morgellons, Treatment

Morgellons Movie – Oct 5 in Los Angeles, CA

https://www.morgellonsmovie.org  Trailer found in link

Skin Deep: The Battle Over Morgellons

October 5, 2019 @ 2:00 PM – 4:00 PM

Skin Deep explores the controversy of Morgellons Disease: with its bizarre symptoms and contentious scientific proof, you’ll wonder who is delusional—the patients who believe or the doctors who deny.

According to Lyme Disease.org, the film gives both sides of the debate but but there is recent peer-reviewed scientific evidence that links Morgellons to Lyme disease and has proven that the source of the suffering is biological and likely borrelia:  https://www.lymedisease.org/morgellons-movie-oct5/

Details

Date: October 5
Time: 2:00 PM – 4:00 PM
Cost: $18
www.awarenessfestival.org

Organizer

Heal One World
Phone: 323-709-3456
Email: festival@healoneworld.org
Website:  www.healoneworld.org

The Regal at LA LIVE

1000 W Olympic Blvd
Los Angeles,CA90015 United States
 

THE MOVIE’S DONE! HERE COMES OUR EDUCATION CAMPAIGN:

The documentary is complete (!) and we’re bringing it to the most important “influencers” we know of… medical students.

Your tax-deductible donation to our Morgellons Disease Education Campaign will fund screenings of this documentary in medical schools, universities, conferences, and communities around the world. The more money we raise, the more places we can screen, and the more medical students and professionals we’ll educate.

Make a tax-deductible donation HERE.

As of August 24 2019 we have 4 educational screenings booked, and we’d like to book 96 more. Please donate to help us achieve this goal!

Together we can make a difference. We can educate young doctors and nurses about Morgellons disease. We can foster empathy where there was once dismissal. And we can change the world for the better.

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For more on Morgellons:

https://madisonarealymesupportgroup.com/2019/05/29/mixed-borrelia-burgdorferi-helicobacter-pylori-biofilms-in-morgellons-disease-dermatological-specimens/

https://madisonarealymesupportgroup.com/2019/08/19/interview-marianne-middelveen-on-morgellons/

https://madisonarealymesupportgroup.com/2016/12/10/morgellons-in-dogs/

https://madisonarealymesupportgroup.com/2016/06/17/morgellons-believe-it/

https://madisonarealymesupportgroup.com/2018/11/16/study-strengthens-association-between-tickborne-infections-morgellons-disease/

 

 

 

 

 

 

 

Category:

Activism, Morgellons

Interview – Marianne Middelveen On Morgellons

Live Interview With Marianne Middelveen

  1. Can you tell us what kind of science you practice and describe how that applies to your work?
  2. What is the extent of your involvement with the Charles Holman Foundation?
  3. Is the diagnostic criteria for Morgellons just the fibers under the skin or are there any other symptoms specific to the Morgellons condition?
  4. In 2012 the CDC accomplished a study of Morgellons but could not determine an infectious agent. Why couldn’t they and how can you find these pathogens and what exactly did you find?
  5. Why does the serologic test for Lyme not reveal bacterial infection in those who it is apparent, like in Morgellons patients?
  6. Can you describe the culture method you employed for your research?
  7. How strong is the evidence that Lyme disease is sexually transmissible?
  8. Is it true that Deer do not get Lyme disease?
  9. Is it true that most people who get Lyme don’t get Morgellons, but most Morgellons patients do get Lyme?
  10. Can some people carry Lyme bacteria without health consequence?
  11. What was your research in the South American jungles regarding?
  12. Is Morgellons associated with mold or fungus?
  13. Can you explain what a follicular cast is, what it is made of and how they relate to Morgellons patients?
  14. Can someone have follicular casts but not the Morgellons fibers?
  15. Your latest study demonstrates mixed bacterial biofilms in Morgellons patients, what are biofilms?
  16. You also detected Alzheimer’s plaques in the skin, are there other conditions where Alzheimer’s plaques are discovered in other parts of the body?
  17. In your study you tested 6 of 14 patients for tau and beta-amyloid, why not the other eight?
  18. Is it likely then that the six might develop Alzheimer’s?
  19. Some of your research demonstrates the Morgellons condition in Dogs, and BVV in cattle. Do other animals have Morgellons like birds and cats?
  20. What is the difference between relapsing fever, dental spirochetes, and Lyme and how are all three associated with Morgellons?
  21. What is H-pylori and do all Morgellons patients have it?
  22. Is Morgellons associated with Bartonella?
  23. Your latest study cites research demonstrating beneficial biofilms producing melanin, is this suspected of a possible mechanism by which Morgellons fibers are colored?
  24. What does blind controlled and peer-reviewed mean and how many labs are replicating your work? How does the scientific process work from where you sit?
  25. What is your proudest achievement in regards to your research, Morgellons or otherwise?
  26. What can people watching at home do to help you produce more answers about Morgellons?
  27. Do you have any personal causes or charities that you are passionate about?
The CDC disclaimer states:
“A surveillance case definition is a set of uniform criteria used to define a disease for public health surveillance. Surveillance case definitions enable public health officials to classify and count cases consistently across reporting jurisdictions. Surveillance case definitions are not intended to be used by healthcare providers for making a clinical diagnosis or determining how to meet an individual patient’s health needs.”
https://www.webwire.com/ViewPressRel…. “Parachutes” is a novel written by Marianne Middelveen: https://www.amazon.com/Marianne-Midde…
Please visit our website: https://www.thecehf.org
Please be sure to like and subscribe to the Charles Holman Foundation on YouTube: https://www.youtube.com/c/MorgellonsS…
Follow the CEHF on Twitter: https://twitter.com/thecehf
Follow the CEHF on Facebook: https://www.facebook.com/CharlesEHolm…
Follow the CEHF on Flickr: https://www.flickr.com/photos/thecehf/
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Category:

Activism, Lyme, Morgellons, Testing

Mixed Borrelia Burgdorferi & Helicobacter Pylori Biofilms in Morgellons Disease Dermatological Specimens

https://www.mdpi.com/2227-9032/7/2/70

Mixed Borrelia burgdorferi and Helicobacter pylori Biofilms in Morgellons Disease Dermatological Specimens†

Marianne J. Middelveen 1, Katherine R. Filush 2, Cheryl Bandoski 2, Rumanah S. Kasliwala 2, Anthony Melillo 2, Raphael B. Stricker 3,* and Eva Sapi 2
Healthcare 2019, 7(2), 70; https://doi.org/10.3390/healthcare7020070
Received: 15 March 2019 / Revised: 17 April 2019 / Accepted: 14 May 2019 / Published: 17 May 2019
(This article belongs to the Special Issue Lyme Disease and Related Tickborne Infections)
Full-Text
PDF [3717 KB, uploaded 17 May 2019]

Abstract

Background: Morgellons disease (MD) is a dermopathy that is associated with tick-borne illness. It is characterized by spontaneously developing skin lesions containing embedded or projecting filaments, and patients may also experience symptoms resembling those of Lyme disease (LD) including musculoskeletal, neurological and cardiovascular manifestations. Various species of Borrelia and co-infecting pathogens have been detected in body fluids and tissue specimens from MD patients. We sought to investigate the coexistence of Borrelia burgdorferi(Bb) and Helicobacter pylori(Hp) in skin specimens from MD subjects, and to characterize their association with mixed amyloid biofilm development.

Methods: Testing for Bb and Hp was performed on dermatological specimens from 14 MD patients using tissue culture, immunohistochemical (IHC) staining, polymerase chain reaction (PCR) testing, fluorescent in situ hybridization (FISH) and confocal microscopy. Markers for amyloid and biofilm formation were investigated using histochemical and IHC staining.
Results: Bb and Hp were detected in dermatological tissue taken from MD lesions. Bb and Hp tended to co-localize in foci within the epithelial tissue. Skin sections exhibiting foci of co-infecting Bb and Hp contained amyloid markers including β-amyloid protein, thioflavin and phosphorylated tau. The biofilm marker alginate was also found in the sections.
Conclusions: Mixed Bb and Hp biofilms containing β-amyloid and phosphorylated tau may play a role in the evolution of MD. View Full-Text
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Category:

Biofilm, Lyme, Morgellons, research

Skin Deep: The Battle Over Morgellons

Skin Deep: The Battle Over Morgellons

Trailer for the upcoming film, SKIN DEEP The Battle Over Morgellons, about the facts surrounding the contested and misunderstood illness often referred to as fiber disease. This film highlights the personal story of Charles E. Holman Foundation President Cindy Casey and her struggle with Morgellons disease. Also in this film, a Morgellons conference of the suffering is filmed as guest professionals are invited to view the evidence that Morgellons is not a psychosomatic illness. http://www.morgellonsmovie.org/ http://thecehf.org/
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Category:

Activism, Lyme, Morgellons, research