Archive for the ‘Activism’ Category

Crucial Deadline for WI Complementary & Alternative Health Care Access Bill

Crucial Deadline Approaching for Wisconsin’s Complementary and Alternative Health Care Access bill, SB 492/AB 546!  Take Action Now!

We desperately need your help to get AB 546 on the agenda for the next voting meeting of the Assembly Health Committee on Feb. 13!  Why? That will be the committee’s last voting meeting of this legislative session!  If it’s on the Agenda, then there’s still hope it can become law!  If you already wrote to your legislators, do it again please.  If you haven’t, we’re begging you for a minute of your time to Take Action here.

If AB 546 is left off the agenda, then the bill is essentially dead for the session in both chambers and we’ll have to start all over next year (i.e., find sponsors, get a draft bill number, circulate a co-sponsorship memo, wait for bill introduction and committee assignments, lobby for a public hearing in each committee in each chamber, lobby for each bill to be included on the agenda of a voting meeting, pass it out of committee, etc., and all the remaining milestones we still hope to accomplish this session)!

Thank you to everyone who joined NHFA in Madison for the public hearings on the bills in the Assembly and Senate Health Committees on Jan 7 and Jan 23, respectively.  We made a strong case at each about why this proactive, solution-oriented legislation is needed to protect consumer access to unlicensed practitioners who provide complementary health care services in Wisconsin, including herbalists, traditional naturopaths, homeopaths, nutrition consultants, and many others.

But, the bills are stuck in committee!!!  Help us move it out by Taking Action here and spreading the word to your friends and family in Wisconsin.  If the Assembly Health Committee votes on it on Feb. 13, then the Senate Health Committee is more likely to schedule a vote to do so too.  Please do everything you can to get the bill past this important milestone.

Together we can protect complementary and alternative health care practitioners who are vulnerable to being charged criminally for practicing medicine – or another licensed health care profession – without a license.  And, in turn. your right to access and utilize their wonderful healing services. Take Action now.

 

 

 

 

 

 

 

 

 

Category:

Activism, Treatment

Why the Medical Community’s Perspective on Lyme Disease is Different From a Pathologist’s Perspective

Just a year ago I posted a short letter by microbiologist Tom Grier to governors and congressmen in Lyme endemic regions.  You can read it here:  https://madisonarealymesupportgroup.com/2019/08/25/open-letter-to-governors-congressmen-in-lyme-endemic-areas/  Today I post his lengthier letter explaining the state of affairs in simple lay-man’s terms that can be understood by all.  This is a wonderful resource for you to save and refer to when explaining the science behind this horribly mishandled 21st century plague.

LTR to Congress (Letter here)

Executive summary:

  1. Lyme disease is a collection of many species of bacteria, not just borrelia burgdorferi (Bb).
  2. Current testing uses only this one strain (B-31) therefore missing many cases. B-31 is not found in nature and is a created lab strain designed for cost, convenience, & consistency.
  3. Researchers are discovering approximately one new species a year to the existing 17 pathogenic borrelia species.
  4. There are numerous reasons patients are not testing positive on antibody testing such as: low infection load, different borrelia species, immune system ineffectiveness, borrelia quickly moves out of the blood stream and into  human cells.
  5. It can take less than a day for Lyme to get into the brain.
  6. Mouse models show spirochetes entering tissues within minutes.
  7. Some species of Borrelia settle in the brain where it is safe behind the blood brain barrier which prevents drugs from entering.
  8. Borrelia forms protective biofilms also impeding antimicrobials from working.
  9. Brain-autopsies on dementia patients almost always show Borrelia in amyloid plagues.  
  10. Borrelia infections can survive in a dormant state for decades.
  11. Regarding testing, each lab has a different cut off point for dilution.
  12. Independent researchers have found there are more false negatives than false positives.
  13. There are rife conflicts of interests within the CDC regarding Lyme testing as they own the patents.
  14. Borrelia Miyamotoi (Bm) can be transmitted in 20 minutes and autopies show it loves the human brain, and is associated with Alzheimer’s Dementia.
  15. Although Bm is similar to Bb, testing won’t pick it up.
  16. The CDC ignores the shortcomings of testing, the newer species of Borrelia, as well as Lyme-like diseases typically found in the South, and continues to use a one-size-fits-all approach.

I will add to this list the fact that the CDC besides only looking at one strain of borrelia, refuses to acknowledge coinfection involvement of other pathogens which research has shown to complicate cases making them more severe and of longer duration:  https://madisonarealymesupportgroup.com/2019/09/05/babesia-subverts-adaptive-immunity-and-enhances-lyme-disease-severity/

Nearly every patient I work with is coinfected with numerous pathogens yet the CDC/NIH/IDSA refuse to acknowledge this.  Researchers also are finding that ticks are also coinfected:  https://madisonarealymesupportgroup.com/2017/05/18/powassan-and-bb-infection-in-wisconsin-and-u-s-tick-populations/

https://madisonarealymesupportgroup.com/2019/07/28/coinfection-of-many-types-of-borrelia-rickettsia-babesia-bartonella-anaplasma-in-french-castor-bean-ticks/

https://madisonarealymesupportgroup.com/2019/04/26/three-strains-of-borrelia-other-pathogens-found-in-salivary-glands-of-ixodes-ticks-suggesting-quicker-transmission-time/ Another false notion is that ticks have a “grace period” in which they don’t seemingly transmit infections to humans.  This is asinine.  Ticks often feed partially and then drop off.  The pathogens are right in the salivary glands ready to be transmitted to the next unlucky host.

We’ve been sold a bill of lies and the mythology continues unabated.

Category:

Activism, Alzheimer's, Lyme, research, Testing

Another Lyme Doc Under Fire

https://www.lymedisease.org/patients-rally-zackrison-virginia/

Patients rally to support Lyme doctor under fire from Virginia Board of Medicine

Dr. Leila Zackrison

The following message was sent to us via NatCapLyme, on behalf of the “Friends of Dr. Zackrison.”

Dear Lyme Community,

On September 12, 2019, the Virginia Board of Medicine summarily suspended Dr. Leila Zackrison’s medical license for treating Lyme disease, pending a hearing.

This has thrown hundreds of patients into panic. If the board succeeds with their case, current patients will lose their doctor and the Lyme community will lose one of the few physicians in the country who treats children with Lyme disease.

This dangerous precedent of suspending a physician’s license before the hearing puts all Lyme-literate MDs at risk. The harm to current Lyme patients and the risks to future Lyme patients are incalculable; the potential suffering, unimaginable.

Dr. Zackrison’s patients have set up a support group called “Friends of Dr. Zackrison” and they are encouraging all Lyme patients in the area to help join the fight.

Without a HUGE showing, patients will have little impact on the medical board’s decision. We must send a message to the Virginia Board of Medicine and to medical boards across the country that a patient’s choice of doctor and treatment methods is paramount to optimal healing.

Hearing on February 20-21

Please join us for a peaceful show of support at Dr. Zackrison’s hearing:

Thursday, February 20, beginning at 11 am
Friday, February 21, beginning at 8:30 am

The hearing will be held at the Perimeter Center, 9960 Mayland Dr., Henrico, VA 23233

NatCapLyme has generously agreed to help with transportation to the hearing. If enough people are interested, we will rent a bus to Henrico and then back to the Metro DC area for each day. The estimated cost would be about $50 per person.  We also hope to secure a discount at a local hotel for those who would prefer to spend the night nearby.

“Friends of Dr. Zackrison” will facilitate carpools for those who prefer to travel by car.

Please, if you can come to the hearing either by car, carpool, or bus – we need to hear from you no later than January 31.

Email: FriendsOfDrZackrison@gmail.com to let us know which day(s) you’d like to come, whether by bus or car, and if you can provide transportation for others. Once you have emailed us, you will be sent all the detailed information you need to attend.

To stay updated and for easy reference, please go to our website:
https://www.keepdrzfightingforus.com

Dr. Zackrison has significantly improved the lives of hundreds and saved the lives of dozens of patients. Many of us were sick for years before we found Dr. Z (as she is affectionately called) and we are passionate about supporting her. We must not let them take Dr. Z out of our lives without accountability and without a fight.

Sincerely,

Friends of Dr. Zackrison

___________________

**Comment**

This has happened right here in Wisconsin as well:  https://www.dailykos.com/stories/2012/01/29/1059800/-Wisconsin-Lyme-doctor-gets-reprieve   My doctor paid more than 50K to protect his practice.

Category:

Activism, Lyme

WLN Jan. Newsletter

WLN_At_A_Glance_January_2020

WLN-Logo-copy-300x84

Summary:

  • The Howard Young Foundation has raised $3.2 million of the $3.5 million goal for the Tick-Borne Center of Excellence in Woodruff, WI.
  • The center has seen 54 patients from the midwest & has a waitlist of 178 people.
  • The center is recruiting for a number of research studies.
  • You can purchase permethrin treated socks from WLN.

Category:

Activism, Lyme

CDC Website Updated Today: Possibility of Mother to Fetus Transmission Of Lyme Disease

https://www.lymehope.ca/news-and-updates/cdc-website-updated-today-possibility-of-mother-to-fetus-transmission-of-lyme?

CDC Website Updated Today: Possibility of Mother to Fetus Transmission of Lyme Disease

1/31/2020

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The CDC has updated their website today in three different spots to address the very important issue of maternal-fetal transmission of Lyme disease, from an infected mother to her fetus/baby.

The first update is in the Transmissionsection under ‘Are there other ways to get Lyme disease‘  which states:  ​

‘Untreated Lyme disease during pregnancy can lead to infection of the placenta. Spread from mother to fetus is possible but rare. Fortunately, with appropriate antibiotic treatment, there is no increased risk of adverse birth outcomes. There are no published studies assessing developmental outcomes of children whose mothers acquired Lyme disease during pregnancy.’
The second update is in the Lyme Disease FAQ under the question ‘I am pregnant and think I have Lyme disease, what should I do? which states:
‘If you are pregnant and suspect you have contracted Lyme disease, contact your physician immediately.  Untreated Lyme disease during pregnancy can lead to infection of the placenta. Spread from mother to fetus is possible but rare. Fortunately, with appropriate antibiotic treatment, there is no increased risk of adverse birth outcomes.* There are no published studies assessing developmental outcomes of children whose mothers acquired Lyme disease during pregnancy.’* Silver HM. Lyme disease during pregnancy . Infect Dis Clin North Am. 1997 Mar;11(1):93-7.
The third update is to the Pregnancy and Lyme Disease poster.

Clearly addressing the possibility of transmission from an infected mother to her baby is so important and we hope and trust this will open new doors for families who have expressed concern that their children were infected in-utero, so as to access medical treatment, support, follow-up and care.  This update also provides confirmation of the necessity for urgent, dedicated, scientific and medical research, in this area.

It is clear that the issue of maternal-fetal transmission of Lyme disease requires urgent research and a collective, multi-disciplinary, ‘all-hands on deck’ approach to address this alternate mode of transmission.

We are thankful for CDC leadership on this specific issue. Other countries around the world will take note.

It is time that ALL voices are heard, validated and acted upon. We can and must work together for the sake of our children and future generations.

It is also important to note that the HHS Tick-Borne disease working group subcommittee Clinical Aspects of Lyme Disease, recently issued a report which also included a section:
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And, please remember, this is only about Lyme disease.  Most patients are infected with numerous pathogens which the CDC refuses to recognize.  Transmission studies on these pathogens hasn’t been done because they aren’t even considering them.  The effects of being infected with multiple things isn’t even on their radar, let alone being considered as an issue with maternal transmission.
They continue to tell us over and over ad nauseam that all of this is rare.

 

 

 

Category:

Activism, Lyme, Transmission