Archive for the ‘Activism’ Category

WKOW Updates Lyme Story: Lyme Disease Spread Sexually?

https://wkow.com/2020/02/14/researchers-move-forward-with-shot-to-prevent-lyme-disease/ Interview here

I was pleased to see WKOW updated their story on Lyme disease. The initial interview focused upon the new Lyme vaccine, but they recently updated the website to include new details including the possibility of sexual transmission, the high costs of treatment, and other cognitive and psychological aspects of the disease mainstream medicine does not currently acknowledge.

Kudos to WKOW for spreading the word.

For more on sexual and congenital transmission:  https://madisonarealymesupportgroup.com/2019/05/11/lyme-found-in-genital-lesion-sexual-transmission-studies-screaming-to-be-done/

https://madisonarealymesupportgroup.com/2020/02/01/cdc-website-updated-today-possibility-of-mother-to-fetus-transmission-of-lyme-disease/

https://madisonarealymesupportgroup.com/2017/02/24/pcos-lyme-my-story/

https://madisonarealymesupportgroup.com/2018/06/19/33-years-of-documentation-of-maternal-child-transmission-of-lyme-disease-and-congenital-lyme-borreliosis-a-review/

https://madisonarealymesupportgroup.com/2018/11/11/gestational-lyme-other-tick-borne-diseases-dr-jones/

https://madisonarealymesupportgroup.com/2019/12/26/borrelia-crocidurae-in-vaginal-swab-after-miscarriage/

https://madisonarealymesupportgroup.com/2019/04/02/transmission-of-lyme-disease-lida-mattman-phd/

Category:

Activism, Lyme, Psychological Aspects, Transmission

Coronavirus: How Bad Can It Get? (Includes Treatments – Disulfiram is One)

https://jameslyonsweiler.com/2020/02/26/things-you-dont-yet-know-but-need-to-know-about-the-novel-coronavirus-including-treatment-information-and-how-to-prepare-your-home/

Cov2

James Lyons-Weiler, PhD – 2/25/2020

Here is a list of a few important things you may not yet know about the novel Coronavirus. There are some technical points up front; details on issues related to government action on quarantine and treatments follow.

I thank Dr. Theron Hutton, MD for leads on treatment.

  1. The virus is called SARS-COV-2. It is a close relative of SARS. It has a very different Spike protein from SARS, and is a different virus with a distinct disease progression. The disease caused by SARS-CoV-2 is called COVID-19 (IPAK hypothesis of original antigenic sin).
  2. Because SARS-CoV-2 has a distinct spike protein it is thought to engage a slightly different mechanism for cellular entry (for those up to speed, it binds less strongly to the protein ACE2 on the surface of human cells than SARS). I have found a motif pattern in the Spike protein that might be useful in determining which data from studies from various studies of SARS might be most relevant for SARS-CoV-2.
  3. Our best available data at this time indicates that this virus was not made in a laboratory. It most likely is an older virus related to SARS and is rare in nature and was transferred to humans either in a laboratory studying the virus or from a spillover event from someone handling an infected animal or its meat. The most likely candidate for the reservoir species is a bat.
  4. Infected people without symptoms can spread the virus. Infected people without symptoms can spread the virus before they start showing symptoms. The period of asymptomatic transmission is anywhere from one to two weeks – or longer.
  5. This virus has a basic reproduction number of about 2.6. That means typically people spread the virus to between 2 and 3 people. Superspreaders do exist. However, the lengthy asymptomatic period and multiple modes of transmission means those 2.6 people are easy for the virus to find.
  6. The virus is thought to spread via body fluids – and, unfortunately aerosolization – and can be found in body fluids and in feces. Masks are best saved for the infected to prevent spread, but knowing who is infected is difficult due to the prolonged asymptomatic prodromal period. It is important to know that greetings in public should no longer involve shaking hands or high-fives, hugging or kissing – even in areas of the world where SARS-CoV-2 has not yet been found. Elbow bumps are ok.
  7. There is no vaccine for SARS-CoV-2 , and it is extremely unlikely that a vaccine will be will play a role in ending this pandemic. This makes isolation and even mildly effective treatments incredibly important. It is best not to rush to a vaccine with the spiked protein either, because animal studies have shown that animals vaccinated and SARS with a spike protein vaccine have had a high mortality rate. Individuals who have had a past SARS or MERS infection may reasonably be expected to be at increased risk of a serious severe case of COVID-19.
  8. Treatments under study include nutriceuticals and supplements; Supplements that might have a positive effect, noted by colleague Dr. Theron Hutton, MD, include N- acetyl cystein, selenium, spirulina and high dose glucosamine (See “Nutraceuticals have potential for boosting the type 1 interferon response to RNA viruses including influenza and coronavirus” and antiviral drugs such as Disulfiram and Chloroquine Phosphate (See: “Disulfiram can inhibit MERS and SARS coronavirus papain-like proteases via different modes“. See “Remdesivir and chloroquine effectively inhibit the recently emerged novel coronavirus (2019-nCoV) in vitro“.
  9. The disease from SARS-CoV-2 infection has reasonably high case-fatality rate to take this outbreak seriously. If you contracted coronavirus you currently have about a 2 to 3% chance of dying. However those who die usually have some cardiovascular disease or other problems leading to lung issues. Children seem to not be at as high risk of death from SARS-CoV-2 infection.
  10. The best way to protect yourself and everyone else to stay away from people. While that is not feasible especially for people in the medical community it is imperative that everyone understand that they can pick up and spread the virus without having any symptoms for a long time. Don’t share food or utensils for cell phones.
  11. If you have coronavirus in your city or town, you may expect widespread quarantine even for those who do not have symptoms. That means sheltering-in-place in place at home. That means a bit of prepping this and next week.
  12. Quarantine and even partially effective treatments are really the only tools we have to shut down the spread of this Coronavirus. There are at least two potential treatment that the medical community is aware of that are at least partially effective.
  13. If you are quarantined you can be expected to be quarantine for 3 to 4 weeks. This means that before the coronavirus is widespread you may want to stock up on non-perishable food items and some extra water. Be sure to buy some energy drinks that can replenish your electrolytes in case you get diarrhea which can be a symptom of coronavirus infection. Food distribution systems will very likely be in place but do not count on that alone.
  14. While the virus has a 3% case fatality rate most people have a mild illness. However some people with a mild illness can rapidly deteriorate. The best medical support for the coronavirus infection at that time is oxygen support.
  15. It is possible that this virus can infect domesticated animals and pets. They are for the usual routine quotes affection with your Animal Companions and puss is probably going to be discouraged. For their own protection you may want to designate a room in your house for your pet for animal companion to minimize exposure and to prevent your pet from infecting other family members. When you stock up on food for your household don’t forget to stock up on pet food.
  16. There is still time to reduce the rate of spread of this virus substantially by adhering to proactive social isolation practices and self-quarantine whenever possible. Employers should encourage employees to work from home if possible.
  17. If you are caught in a situation where you’re in a hotel or other buildings that is quarantined because someone in the building has come down with a diagnosis of coronavirus do not break the quarantine. Each person quarantined in any building should be isolated – and remain isolated – as much as possible. If feasible, each person in the building should have their own toilet.
  18. All public spaces should be sanitized by staff members once or twice an hour with lease space disinfectant or with disinfectant that are known to kill coronavirus. Check the label of your cleaning products for wife to see if it lists Coronavirus.
  19. In end-stage COVID-19, oxygen support is essential. Pairing non-medical sources of oxygen (industrial, e.g, welding) with medical oxygen masks in the homes of those at highest risk of death may help prolong the life of those at risk. Hyperbarid oxygen therapy will certainly aid those with low oxygen levels. Individuals around the world should stop smoking cigarettes and using inhaled products known to cause lung damage such as vaping.

Where Do We Go From Here?

The governments and people of the world have a stark choice to make – short-term (3-4 week) harsh quarantine and experimental treatments now with antivirals to whatever percentage of the population we can get them to, or prolonged outbreak and cycles of disruption that will last ito an interdeterminantly long future throughout the world.

If it’s not apparent why this is so, watch this video in which I model the outbreak, the effects of what I call Social Isolation, and even moderately effective treatment. Below the video are three files with some information on preparing your home for extended self-quarantine.

Preparedness checklist:  https://jameslyonsweiler.com/wp-content/uploads/2020/02/individuals_and_families_checklist.pdf

For more:  https://madisonarealymesupportgroup.com/2020/02/13/washington-doctors-successfully-treat-coronavirus/

https://madisonarealymesupportgroup.com/2020/02/04/novel-coronavirus-the-latest-pandemic-scare-which-professor-states-is-a-biowarfare-weapon/

https://madisonarealymesupportgroup.com/2020/02/05/first-coronavirus-case-in-wisconsin/

 

Category:

Activism, Viruses

Docs Said it Was Cancer; She Didn’t Believe Them, and She Was Right

https://www.medpagetoday.com/publichealthpolicy/generalprofessionalissues/85044

Docs Said It Was Cancer; She Didn’t Believe Them, and She Was Right

— What a 60-year-old refugee taught me about skepticism of medical professionals

by W. Robert Graham, MD February 24, 2020

The public wants to believe in the profession of medicine. These beliefs are often justified. But not always.

For example, one day, a 60-year-old woman came to the ED for abdominal pain. A refugee from El Salvador, she was admitted to a team of doctors and medical students at a county hospital. The supervising attending physician on that team was an oncologist. He held a high position at the medical school that was affiliated with this hospital. (See link for full article)

Important excerpts:

There was also a “summary of the case” on that requisition. It said, “60-year-old with liver mass, suspect hepatocellular carcinoma.” When the pathologist read this, she assumed that she was looking for liver cancer.

Most pathologists do not review clinical records. Rather, they read the summaries of the case on the requisitions. This summary seemed straightforward — i.e., “suspect hepatocellular carcinoma.”

The pathologist took the biopsy sample, put it on slides, and looked at those slides with the bias of hepatocellular carcinoma in mind.

Excerpt:  

This woman never had cancer. Had she gotten chemotherapy she probably would have died. Treating a patient with chemo when they have a serious underlying infection would likely cause that infection to kill. But had she died in that manner, the doctors would have said that she died from liver cancer. No one would have known the truth.

___________________

**Comment**

Ends up she had amebiasis – a parasitic infection found in contaminated water which can migrate from the intestine to the liver, where it forms a cyst. 

After being treated for the infection she improved.

Doctors are human and have biases. Never forget that.

 

 

Category:

Activism, Parasites

PTLD as a Model for Persistent Symptoms in Lyme Disease

The following petition update by Lyme advocate Carl Tuttle is about this recent publication:  https://www.frontiersin.org/articles/10.3389/fmed.2020.00057/full In it, the authors discuss the subgroups of those who go on to develop persisting symptoms, as well as the continuing controversy in medicine over this disabling disease(s). The authors present both sides of the fence and state:

However, ILADS CLD is a symptom-based definition and therefore ongoing infection is difficult to assess in individual patients with no currently available biomarker test, and given the large degree of symptom overlap between CLD and other illnesses.

This is important, as the IDSA on the other side of the fence wants to define everything by testing – which research has proven to be abysmal. It’s important for medical professionals to remember that the criteria for reporting Lyme disease is extremely stringent and that even the CDC states diagnosis should be clinical.  Their own website indicates that doctors should be looking for signs, symptoms, and exposure.  Then, it says “results of laboratory testing when indicated.” https://www.cdc.gov/lyme/diagnosistesting/index.html  Regarding testing, you’d have to have your head under the sand to not know it misses over half of all cases, and not to mention takes precious time to develop antibodies for the test to even pick it up – which means the patient, if it’s Lyme, will worsen and be added to the ever growing large group with persisting symptoms. https://madisonarealymesupportgroup.com/2018/10/12/direct-diagnostic-tests-for-lyme-the-closest-thing-to-an-apology-you-are-ever-going-to-get/

“Insanity is doing the same thing over and over and expecting different results,” so why on earth would a doctor WAIT when the signs, symptoms, and exposure indicate a Lyme disease infection?

https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/25808085?

Post-treatment Lyme Disease as a Model for Persistent Symptoms in Lyme Disease

FEB 26, 2020 — 

Today’s letter…….

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, jaucott2@jhmi.edu
Cc: (98 Undisclosed recipients)
Date: February 26, 2020 at 9:44 AM
Subject: Post-treatment Lyme Disease as a Model for Persistent Symptoms in Lyme Disease

Frontiers in Medicine

Post-treatment Lyme Disease as a Model for Persistent Symptoms in Lyme Disease
Alison W. Rebman and John N. Aucott*
https://www.frontiersin.org/articles/10.3389/fmed.2020.00057/full
Feb 26, 2019

Johns Hopkins Lyme Disease Clinical Research Center
At Greenspring Station  Joppa Concourse
2360 W. Joppa Rd, Suite 320
Lutherville, MD 21093
Attn: John N. Aucott, M.D.

Dr. Aucott,

The content of this letter should not be misconstrued as disrespectful.

As someone whose entire family with firsthand experience of the late stage disabling effects of Lyme, it becomes crystal clear when reading your manuscript that we don’t know how to treat Lyme disease. And yet, state medical boards will go after those clinicians who are attempting to help these patients: (Past IDSA president Paul Auwaerter testified against this doctor)

Before the Virginia Board of Medicine
In RE: Leila Haddad Zackrison, M.D.

Order of Summary Suspension
http://www.dhp.virginia.gov/Notices/Medicine/0101045689/0101045689Order09122019.pdf

I stopped reading your publication at page three simply because it’s the same information that we have seen over and over and over and over again for the past four decades.

The suppression of a mountain of evidence identifying persistent infection after extensive antibiotic treatment has misclassified this disease as a low-risk and non-urgent health threat.

The deliberate avoidance of the horribly disabled allows the CDC to ignore public outcry:

From your publication:

“….the CDC does not track disease outcomes or cases of persistent symptoms (34). Estimating the population-level prevalence of persistent symptoms following Lyme disease is challenging due to this lack of standardization or consensus in operationalizing a case definition.”

If we’re not counting the number of lives ruined by the disease we can continue the well-established racketeering scheme indefinitely.

Until those responsible for this health disaster are removed from positions of authority we will have another decade of unimaginable pain and suffering.

We have a public health emergency that requires a response on the level of a Manhattan Project [1] as patient testimony all across America (and the globe) is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin.

We are dealing with a life-altering/life-threatening infection with faulty/misleading antibody tests, inadequate treatment, no medical training and absolutely no disease control whatsoever; a public health disaster misclassified as a simple nuisance disease.

Lyme disease is a 21st Century incurable plague hidden in plain site as we are dealing with an antibiotic resistant/tolerant superbug and it is time to acknowledge the severity of this crippling disease.

Respectfully Submitted,

Carl Tuttle
Lyme Endemic Hudson, NH

Reference:

1. Lyme Disease: Call for a “Manhattan Project” to Combat the Epidemic
Raphael B. Stricker, Lorraine Johnson

Published: January 02, 2014 DOI: 10.1371/journal.ppat.100379

http://www.plospathogens.org/article/info:doi/10.1371/journal.ppat.1003796

In summary, preliminary studies from the CDC indicate that the Lyme disease epidemic has reached an unprecedented level with at least 300,000 people and as many as one million people, a majority of them women and children, diagnosed with Lyme disease each year in the United States. The staggering magnitude of the epidemic should prompt the CDC to show leadership in developing new guidelines for the diagnosis and treatment of Lyme disease. A coordinated “Manhattan project” similar to the attack mounted against the HIV/AIDS epidemic is urgently needed to address the serious worldwide threat of Lyme disease.

_______________

**Comment**

While Rebman and Aucott respectfully present both sides of the controversy, I agree with Tuttle that nothing has been done for the sickest patients.  I also realize from a researcher’s perspective that the PTLDS group is the easiest to study as the parameters are extremely narrow and defined.  The problem is, the sickest patients don’t fit into this group yet continue to suffer – with nobody studying them.  

We desperately need researchers to dig into this group of patients that is growing exponentially by the minute:  https://madisonarealymesupportgroup.com/2019/02/25/medical-stalemate-what-causes-continuing-symptoms-after-lyme-treatment/

According to microbiologist Holly Ahern,

60% go onto develop chronic/persistent symptoms.
That’s nothing to sniff at.

Category:

Activism, Lyme, research

How Did Lyme Escape From Plum Island?

Approx. 17 Min

Brian Wilson reveals how U.S. biological warfare programs led to the proliferation of disease carrying ticks, causing a health crisis of epic proportions.

Much of the research presented in this investigative report can be found in Kris Newby’s acclaimed book: “Bitten: The Secret History of Lyme Disease and Biological Weapons.”

The ‘Swiss Agent’ article:  https://www.statnews.com/2016/10/12/swiss-agent-lyme-disease-mystery/

To listen to an interview with Charles Piller on the ‘Swiss Agent’:  https://www.wbur.org/hereandnow/2016/10/12/swiss-agent-lyme-disease

Important to note: US laboratories don’t test for the Swiss Agent.

**Correction** Wilson called Rickettsia a virus – when it’s a bacteria that is often pleomorphic (shape-shifts). Rickettsia helvetica or the ‘Swiss Agent’ is in the spotted fever family along with Rocky Mountain Spotted Fever.  That’s not to say viruses aren’t involved, just that Rickettsia is a bacteria:  https://www.bayarealyme.org/about-lyme/what-causes-lyme-disease/rickettsia-helvetica/

Interestingly, Dr. Steere, first on the Lyme, Connecticut scene initially thought the cause of the juvenile arthritis was viral.

“A virus is the most likely candidate,” Dr. Steere said. “Just because we haven’t found one yet doesn’t mean it isn’t there. We’ll keep looking.” Dr. Allen Steere https://www.nytimes.com/1976/07/18/archives/a-new-type-of-arthritis-found-in-lyme-new-form-of-arthritis-is.html

An ironic quote for sure considering the fact this man has denied the possibility of chronic/persistent Lyme disease, yet when it was his work in question he was willing to entertain something he couldn’t find or see.

Please note another important quote in the same article by Steere:

“Mycoplasmas, another type of microbe, do cause arthritis in some animals, but the available tests for them have proved negative.”  https://www.nytimes.com/1976/07/18/archives/a-new-type-of-arthritis-found-in-lyme-new-form-of-arthritis-is.html

The only person seriously doing work on Mycoplasma is Dr. Garth Nicolson who states 80% of those with Lyme also have Mycoplasma:  https://madisonarealymesupportgroup.com/2020/02/25/pathogenic-mycoplasma-infections-in-chronic-illnesses-general-considerations-in-selecting-conventional-and-integrative-treatments/  He uncovered a particularly lethal, bioweaponized form of Mycoplasma. Mainstream medicine doesn’t bat an eye at this.

Also important: when I spoke with Dr. Hoffman (deceased), probably the most experienced Lyme doctor in Wisconsin, he told me that as a medical resident in Illinois he treated patients with something he called a “rickettsial-like” illness before it was given the label of Lyme disease.

This video points out the importance of coinfections and the fact that this is often a polymicrobial illness – of which little research has been done:  https://madisonarealymesupportgroup.com/2018/10/30/study-shows-lyme-msids-patients-infected-with-many-pathogens-and-explains-why-we-are-so-sick/  This recent study gave a 85% probability that a randomly selected TBD (tick borne disease) patient will respond to Borrelia and other related TBD microbes rather than to Borrelia alone.

We never hear about the polymicrobial issue in mainstream research.  They avoid it with a 10-foot pole. If one adds in flawed testing based on antibodies, coinfection involvement (mycoplasma and others), pleomorphism/persisters, as well as the bioweaponization aspect, you begin to  understand that the very definition of “designed” microbes means they are difficult to detect as well as treat.

Until these issues are acknowledged and resolved, many people will remain ill.

For more:  https://madisonarealymesupportgroup.com/2019/07/29/usas-history-of-testing-bioweapons-on-the-public-were-ticks-used-too/

https://madisonarealymesupportgroup.com/2019/07/19/biological-warfare-experiment-on-american-citizens-results-in-spreading-pandemic/

https://madisonarealymesupportgroup.com/2019/07/31/tick-expert-admits-to-working-on-ticks-dropping-them-out-of-airplanes/

 

 

Category:

Activism, Lyme, Testing, Ticks, Transmission