Madison Area Lyme Support Group

https://www.lymedisease.org/members/lyme-times/2023-summer-features/new-treatments-chronic-lyme-disease/

• Dr. Mike Snyder’s group at Stanford is working on multiomics for chronic fatigue that track an individual patient’s data. This will help Lyme/MSIDS patients because treatments need to be individualized as each case is different.
• Mitochondrial work is going to become bigger because illness and wellness is fundamentally all about energy.  Detoxing and absorbing nutrients will help the body function effectively without much external intervention.
• Unique modalities like growth hormone, DHEA, and metformin are being used to decrease the age of cells to help the very complicated group of patients who are not getting better on standard treatments.
• Regenerative therapies including exosomes, PRP, and alpha 2-macroglobulin, among others are also helpful for tendon issues, osteoarthritis and orthopedics but exosomes have been used in parallel to stem cell therapies which is written about in a book by Amy Scher titled, This is How I Save My Life.  She wrote about her journey through India, where she received human embryonic stem cells, and went from a very severe neurologic case of Lyme to being quite well now. 
• Jaw misalignment, spinal issues, and craniocervical instability (all related to body structure) needs to be addressed due to the severe inflammation Lyme/MSIDS patients have.
• Trauma needs to be addressed but often requires a circuitous approach such as the Dynamic Neural Retraining System^TM (DNRS), vagus nerve training, neurofeedback, neuro stimulation, and various other methods.  A scientist in Wisconsin, Yuri Danilov, developed the PoNS device, which is a tongue neurostimulation device owned by a company called Helius Medical technologies. It is FDA approved for head trauma but it also works for PTSD.  They’re trying to get FDA approval and they are making it available to physical therapists. It’s mentioned in Dr. Norman Doidge’s book The Brain’s Way of Healing. Some patients have had  phenomenal results using it.
• The onion parable is used to explain the importance of peeling back layer after layer of issues an individual has – and recognizing that being infected with Lyme and/or the various coinfections is only one layer in this complex puzzle.  Typically these onslaughts alone are not the problem, but the cumulative effect of multiple onslaughts is what makes us sick.
• Viruses, which are becoming more of a problem, are opportunistic and cause the body to decompensate.  Again, treating them singularly usually isn’t the answer, but they are important to consider in the overall picture.
• mTOR Agents and Autophagy:  Dr. Steven Phillips uses mTOR agents, (mammalian target of Rapamycin) to increase one’s autophagy (cleans the body of debris).  Honokiol (magnolia leaf), doxycycline, methylene blue, vitamin D, and other agents increase autophagy.
• Toxic load, nutrient status, and environmental stressors:  using different kinds of fats helps patients through membrane chemistry to flush out debris in the lipid bilayer on the surface of cells.  Many things cause patients to be overreactive and dealing with it is very important.

“In conclusion, these are a few different ways to address this most complicated, most difficult group of patients. I truly believe that everybody can get better, and I think that sharing that hope with the patient is a way for them to be able to hold on during what is a marathon for many of them. Not everybody needs to take every step, but the steps are there, and it can be done.” — Dr. Steven Harris

(See link for article)

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For more:

• https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/
• https://madisonarealymesupportgroup.com/2023/07/24/paralyzed-by-lyme-they-were-helped-with-combo-treatments/
• https://madisonarealymesupportgroup.com/2020/06/26/new-treatments-for-lyme-disease-on-the-horizon/
• https://madisonarealymesupportgroup.com/2020/12/07/repurposing-disulfiram-in-the-treatment-of-lyme-disease-and-babesiosis-retrospective-review-of-first-3-years-experience-in-one-medical-practice/
• https://madisonarealymesupportgroup.com/2020/12/22/evaluation-of-disulfiram-drug-combinations-identification-of-other-more-effective-combinations-against-stationary-phase-borrelia-burgdorferi/
• https://madisonarealymesupportgroup.com/2020/02/22/evaluation-of-natural-botanical-medicines-for-activity-against-growing-and-non-growing-forms-of-b-burgdorferi-in-vitro/
• https://madisonarealymesupportgroup.com/2023/07/20/lyme-disease-the-pursuit-of-a-clinical-cure/
• https://madisonarealymesupportgroup.com/2020/06/26/new-treatments-for-lyme-disease-on-the-horizon/
• https://madisonarealymesupportgroup.com/2023/06/01/could-new-antibiotic-prevent-chronic-lyme-disease/
• https://madisonarealymesupportgroup.com/2022/02/02/promising-lyme-antibiotics-in-development/
• https://madisonarealymesupportgroup.com/2020/11/03/success-of-prescription-alternative-medicine-lyme-treatments/
• https://madisonarealymesupportgroup.com/2021/07/21/dr-rawls-lyme-treatment-guide/