https://www.localsyr.com/living-with-lyme/living-with-lyme-tiny-terror/ News Video Here (Approx. 24 Min)
Tiny Terror: The Truth About Ticks
SYRACUSE, N.Y. (WSYR-TV) Ticks are in our yards and they’re saturating Central New York. One bite can change everything. Most people do not know Central New York is an epicenter for tick-borne disease. Most recent data indicates a 439% increase in Central New York between 2008 and 2018.
What are some of the symptoms of Lyme disease?
- Brain fog
- Joint Pain
- Extreme Fatigue
Doctors and scientists struggle to agree on how to get this under control.
(See link for video and story)
- The reason Lyme/MSIDS patients are not treated appropriately is due to the faulty, unscientific, and fraudulent CDC Lyme guidelines which serve as an Iron Curtain in the medical community.
- It is imperative to get to a Lyme literate (LLMD) doctor trained by ILADS, a group of medical professionals who recognize the faulty, unreliable testing and ineffective CDC guidelines.
- The quote from a doctor in the news story that taking a single or double dose of doxycycline reducing the risk of transmission has been completely and utterly debunked.
- Based on animal studies, ILADS recommends that known blacklegged tick bites be treated with 20 days of doxycycline (barring any contraindications).
- Given the low success rates in trials treating EM rashes for 20 or fewer days, ILADS recommends that patients receive 4-6 weeks of doxycycline, amoxicillin or cefuroxime. A minimum of 21 days of azithromycin is also acceptable, especially in Europe. All patients should be reassessed at the end of their initial therapy and, when necessary, antibiotic therapy should be extended.
- ILADS recommends that patients with persistent symptoms and signs of Lyme disease be evaluated for other potential causes before instituting additional antibiotic therapy.
- ILADS recommends antibiotic retreatment when a chronic Lyme infection is judged to be a possible cause of the ongoing manifestations and the patient has an impaired quality of life.
- Lyme survivor Brenna Osmun, who lost her ability to walk, is interviewed on the report. Two months of IV antibiotics saved her life. She suffered years of relapses until she saw a LLMD, a specialist rarely covered by insurance. She also had Babesia and Bartonella and was treated with more than a dozen herbs and antibiotics. She says this to patients:
“It gets better. It really, really does. And my life changed for the better I wanna say. Even though I was really sick, it does get better. And having that support really helps you. Don’t give up. Please don’t give up. I didn’t and I’m still alive.” ~ Brenna Osmu
- Executive Director of the Central New York Lyme and Tick-Borne Disease Alliance, Royale Scuderi became infected years ago when doctors treating this were scarce. She had to drive to Long Island for year to get appropriately treated.
- Journalist and host of the news program, Nicole Sommavilla became septic with her organs shutting down. Years later she was diagnosed with Lyme disease and required a dozen drugs to treat Lyme, Babesia, and Anaplasmosis
“I went from years of oral medications and injections to just one medication I’m on now and just a lot of maintenance with diet and knowing when not to push myself past my limit, it’s a lot of self-awareness.” ~ Nicole Sommavilla
A MESSAGE FROM NICOLE:
If you’re fighting Lyme right now, please don’t give up.
Don’t quit in the darkness. Most days it may feel easier to give in, but hang on. Lean into your support system and keep fighting. Because joy and healing are coming. ~ Nicola Sommavilla
- https://madisonarealymesupportgroup.com/2019/04/16/ny-tv-reporter-tells-her-own-lyme-disease-story/ Nicole Sommavilla’s story here