https://www.treatlyme.net/guide/lyme-fibromyalgia-chronic-fatigue-syndrome
The Name Matters:
Lyme, Fibromyalgia, or Chronic Fatigue Syndrome
Many people with Lyme disease are incorrectly diagnosed as having fibromyalgia or chronic fatigue syndrome. In my Seattle practice, before I became a Lyme disease physician, my main focus was treating fibromyalgia and chronic fatigue syndrome. In 2004 one of my patients asked for Lyme disease testing. Her pcr test for Lyme came back positive. This got me thinking that others in my practice could have Lyme disease too. So I tested everyone in my practice for Lyme that had a diagnosis of fibromyalgia and/or chronic fatigue syndrome. I discovered that 30 percent of my patients actually had Lyme disease causing their problems. (See link for video and article)
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For more:
- https://madisonarealymesupportgroup.com/2019/11/08/lyme-disease-chris-newton-refutes-bbc-report-stating-most-patients-just-have-chronic-fatigue/
- https://madisonarealymesupportgroup.com/2015/10/17/can-mecfs-be-caused-by-lyme/
- https://madisonarealymesupportgroup.com/2019/05/03/biomarker-for-chronic-fatigue-syndrome-identified/
- https://madisonarealymesupportgroup.com/2019/03/12/unrest-documentary-about-me-cfs-on-netflix/
- https://madisonarealymesupportgroup.com/2017/10/10/lyme-or-fibromyalgia/
- https://madisonarealymesupportgroup.com/2018/12/28/widespread-inflammation-in-brains-of-those-with-fibromyalgia/
- https://www.envita.com/lyme-disease/the-surprising-link-between-fibromyalgia-and-lyme-disease
- https://www.lymedisease.org/lyme-sci-fibro/ Dr. Miller, became a Lyme activist due to his daughter-in-law’s misdiagnosis of fibromyalgia. He believes all patients who have been given a diagnosis of a neurodegenerative disease—including ALS, MS, lupus, and fibromyalgia—should be evaluated for Lyme disease.Dr. Miller’s 4-part Lyme series: https://madisonarealymesupportgroup.com/2017/05/11/dr-al-miller-lyme-disease-series/
Interview with Dr. Miller: https://madisonarealymesupportgroup.com/2017/10/13/dr-miller-a-new-perspective-on-lyme-disease/
According to a survey of over 4,000 patients with Lyme disease,
“roughly 20% of those with chronic Lyme disease were initially misdiagnosed with a neurologic disease including MS, ALS, Parkinson’s and multiple systems atrophy.”
Madison Area Lyme Support Group 