https://www.nytimes.com/2020/07/15/magazine/borrelia-miyamotoi-diagnosis.

Credit…Photo illustration by Ina Jang

The 50-year-old physician dropped into the leather chair in her psychiatrist’s Manhattan office. Her new normal, she announced to Dr. Deborah Cabaniss, was constant fatigue.

Cabaniss noted that although her patient looked put together as usual, she could see the exhaustion in her eyes.

“You don’t look like yourself,” the therapist agreed.

The patient had seen Cabaniss for more than a decade. She valued the sessions as a chance to talk about the stresses of balancing a medical practice with the demands of family, but since a few months earlier, all the patient could talk about was how awful she felt. (See link for article)

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**Comment**

And so it goes……patient after patient after patient.

This one had intermitted fevers, ached all over, and had diarrhea.  All tests for Lyme were negative.

Telling quote:

She slept but never felt rested.

Thankfully her psychiatrist knew of Dr. Fallon of Columbia University who specializes in tick-borne illness.

And this is how most patients get help – because somebody knows somebody who knows somebody.  Should it be this hard to get medical care?

A concerning passage in the article states that a tick has to be attached for 2-3 days before Lyme can be transmitted.  This is a bunch of hooey.  Lyme has been transmitted within hours and minimum transmission time has NEVER been determined:  https://madisonarealymesupportgroup.com/2017/04/14/transmission-time-for-lymemsids-infection/

Medical professionals are not up on the latest research on ticks and this study shows that ticks often partial feed, drop off, and then reattach.  This means the Lyme spirochete can be in the salivary glands which will make transmission much quicker.  https://madisonarealymesupportgroup.com/2020/07/05/interrupted-blood-feeding-in-ticks-causes-and-consequences/

This patient ended up having B. miyamotoi, which lives in the mouth of the tick which means it can infect you almost immediately.

Another passage in the article states that joint pain caused by Lyme is usually limited to one side.  

I would be careful about such generalizations.

I kept track of my symptoms and my husband’s symptoms for over 5 years and joint pain moved around like the wind.  There are times I questioned by own sanity – it’s so bizarre & highly variable.  I do highly recommend you track your symptoms daily & write them down.  Then, try and notice trends.  I always wrote up an executive monthly summary for our doctor.  It helps them treat you accordingly.

Another concerning passage: Babesia causes anemia.  Dr. Horowitz states that Babesia is one of the most tenacious coinfections he treats and it often presents subclinically – which means it causes untold grief but doesn’t present with exact clinical standards.

Another very concerning passage: the recommended treatment is two weeks of an antibiotic called doxycycline.

Again, these generalities have been killing people.  Each case is extremely complex and individual.  Research has repeatedly shown treatment failures in nearly every antibiotic study done:  https://madisonarealymesupportgroup.com/2019/02/22/why-mainstream-lyme-msids-research-remains-in-the-dark-ages/  There are many reasons for this:

  1. patients aren’t treated long enough
  2. patients aren’t treated with high enough dosages
  3. patients aren’t treated for the numerous coinfections they have
  4. patients aren’t using a “cycling” approach

Lastly, this article brings up a very important point: there are many strains of borrelia that testing isn’t picking up – besides the fact antibody testing is the wrong test for this:  https://madisonarealymesupportgroup.com/2018/09/12/lyme-testing-problems-solutions/

https://madisonarealymesupportgroup.com/2020/05/27/letter-to-cdc-dr-beard-why-isnt-direct-detection-of-lyme-disease-a-priority/

https://madisonarealymesupportgroup.com/2017/12/13/suppression-of-microscopy-for-lyme-diagnostics-professor-laane/

https://madisonarealymesupportgroup.com/2018/10/13/direct-test-for-ld-carl-tuttle-chews-up-cdc-spits-them-out/

https://madisonarealymesupportgroup.com/2018/08/15/milford-pathologist-fires-broadside-at-cdc-motion-to-discuss/