I take 64 pills a day.
Sixty-four pills: That’s 25 before breakfast, another 20 after breakfast, another 10 before dinner, and another 9 before bed.
I take 64 pills a day, and I feel like it’s slowly killing me. Or if it’s not killing me, directly, then I at least know one thing for sure: It’s really bad for me. Longterm, taking that much medicine on that regular of a regimen is just straight-up bad for you. It’s literally an elaborate trick that you play on yourself — a lie that you tell your body so it keeps thinking everything is fine.
It’s a never-ending, exhausting, miserable cycle.
But I do it anyway.
I do it anyway because I have Lyme disease. (See link for article)
Elena states what I hear so often –
“I want to help.”
Admirable sentiment for sure.
But, speaking from experience, tread carefully.
Lyme/MSIDS (multi systemic infectious disease syndrome – a far better moniker than Lyme because we are typically infected with numerous pathogens) is not only hard on the body – it’s very hard on the mind. Patients can’t handle stress.
Since this is a hotly contested and politically incorrect disease which has caused a complete polarization within the medical community, even family and friends can oppose you and make you miserable.. It can be a very isolating journey where you question your own sanity.
So here’s what I tell these patients who want to help: get better first. Or – at least able to handle a bit of stress.
That’s not to say we can’t all educate those in our sphere of influence – but if you face a lot of resistance in your efforts, know when to “call it a day.” Stress from ignorant people can actually make your symptoms flare and make you feel very despondent. Lyme/MSIDS can also give you rage, anxiety, fear, and a whole host of psychological symptoms that in your right mind you could handle but due to an infection in the brain leave you feeling powerless in controlling your emotions.
For more on this: https://madisonarealymesupportgroup.com/2015/10/18/psychiatric-lymemsids/ Mainstream medicine is woefully ignorant of the mental/psychological effects of Lyme/MSIDS but it’s very real.
Recently, I posted a man’s admission that this complex illness nearly did him in: https://madisonarealymesupportgroup.com/2020/07/17/lyme-disease-made-man-consider-suicide/
He’s not alone. Make sure you get help if you find yourself feeling despondent.
And now we learn Elena is facing another battle. She’s been vocal about Lyme and now they will make an example out of her: https://madisonarealymesupportgroup.com/2020/07/23/its-ridiculous-the-wnba-is-forcing-elena-delle-donne-to-choose-between-her-health-and-her-paycheck/