Archive for June, 2019

Updates in the Diagnosis & Treatment of Resistant Lyme & Chronic Disease – Dr. Horowitz

https://chrissmith.house.gov/uploadedfiles/richard_horowitz_presentation.pdf

Updates in the Diagnosis and Treatment of Resistant Lyme and Chronic Disease

(Used with permission from Dr. Horowitz)

Lyme & TBD Congressional Town Meeting

May 29, 2019

Dr. Richard Horowitz

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**Comment**

The above link of a pdf by Dr. Horowitz is chuck-full of information.  For those of you who are just beginning this journey, this Lyme/MSIDS treating doctor has written numerous books I highly recommend.  He has many ideas & suggestions for why many do not get better.  He also is the one who came up with the MSIDS questionnaire, which you can access here:  https://madisonarealymesupportgroup.com/wp-content/uploads/2016/01/symptomlist.pdf

The questionnaire is validated & does a much better job of diagnosis than current 2-tiered testing: https://madisonarealymesupportgroup.com/2017/09/05/empirical-validation-of-the-horowitz-questionnaire-for-suspected-lyme-disease/(This link also has other links with information Dr. Horowitz given including his research on mycobacterium drugs)

 

This is the first item I recommend to patients suspecting tick-borne illness.  I tell them to print it off, fill it out, and take it to their doctor appointment.

 

 

 

 

Decoding NeuroLyme: Live Webinar With Dr. Rawls – June 19, 2019

https://rawlsmd.com/webinars/decoding-neurolyme/?

Decoding NeuroLyme: Live Webinar with Dr. Bill Rawls

Wednesday 6/19, 8pm EDT

Lyme disease can manifest in seemingly endless ways. But neurological symptoms such as brain fog, limb pain, muscle weakness, anxiety, and more can feel especially debilitating and difficult to diagnose, manage, and overcome.

So why are some people more likely to experience neurological Lyme disease — and what can you do to feel better? 

Join a live webinar with Dr. Bill Rawls, best-selling author of Unlocking Lyme, who knows firsthand what it’s like to live with chronic Lyme disease, as he demystifies neurological Lyme and offers an alternative view of causes and solutions.

You’ll learn how to take control of your health, and the essential steps for empowering your body’s natural defenses. 

PLUS: Don’t miss an exclusive gift for webinar attendees, and have your questions ready for a LIVE Q&A on neurological Lyme disease with Dr. Rawls.

“Dr. Rawls is such a genuine resource in this bewildering Lyme maze. I appreciate you making his insights readily available.” – David

Understanding and Overcoming Neurological Lyme Disease

Live Webinar with Dr. Bill Rawls

RESERVE MY SEAT »

“Super helpful and informative. It was great to hear someone talk about this in a knowledgeable manner given that it seems like a mystery to so many others in the medical community. Thank you!” – Christian

In this webinar, Dr. Rawls will also discuss:

  • Why neurological symptoms such as cognitive impairment, nerve and limb pain, mood disruption, and more are so prevalent among Lyme sufferers
  • What causes these symptoms to become so overpowering in some people
  • Connections between neurological Lyme and other infections and chronic illnesses
  • Why conventional methods of diagnosis and treatment are limited and controversial
  • His holistic, restorative approach to overcoming neurological Lyme

“Neurological symptoms are the most exasperating of all Lyme symptoms, because they disconnect you from the world at large. There is a path to recovery.”  — Dr. Bill Rawls

 

Ontario Public Health Officials Called Out on Shoddy, Biased Research Utilizing An Erroneous ‘Climate Change’ Model to Program a Futuristic Tick Problem

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Ontario Public Health Officials Called Out on Shoddy, Biased Research Utilizing An Erroneous ‘Climate Change’ Model To Program a Futuristic Tick Problem

The following comment by independent Canadian tick researcher John Scott on the article by Schillberg, E., et al; “Distribution of Ixodes scapularis in Northwestern Ontario: Results From Active and Passive Surveillance Activities in the Northwestern Health Unit Catchment Area,” is a fantastic example of why we as patients should care about where and how research dollars are being spent.

Research article found here:  https://www.ncbi.nlm.nih.gov/pubmed/30314334.  Comment  here: Scott, 2019, 3 errata, comments on Schillberg et al., 2018

Scott outlines three important corrections (errata) on the research article on various ticks in northwestern Ontario.  Please refer to the Scott link above for the full details, but I highlight the major issues below:

1.  Correction #1 has to do with shoddy research. Scott points out that important details are completely omitted from the study about the proper identification of ticks making one wonder if it’s even true. There are no details on history of travel, collection data, life stage, identification method, and who identified it. There was no molecular analysis (i.e. DNA barcoding) which is important on a foreign tick found in a place it shouldn’t be situated. For example, the Amblyomma cajennense tick has been divided into 6 separate tick species. Then there’s the issue of five years lapsing between tick collection until publication.

2.  Correction #2 has to do with research bias. Researchers always cite previous research that pertains to their work and either correct or build upon it. Schillberg, et al. purposely left out previous published work outlining important history on tick movement, infection rate, ecology, and epidemiology. Then, they go on to state more research is needed when it’s’ already been done, making the reader seriously wonder if they are just looking for further research funding. They underplay the problem by only citing five tick species, when there are nine, eight of which are positive for Lyme disease, and five of which  bite humans. Of particular note and importance to patients, Scott provided key information on the pathological and neurological manifestations of Lyme disease for health care providers. By not citing this work, Schillberg, et al., which are all public officials, are clearly using research bias by flat out ignoring previous work that doesn’t fit their paradigm. It just simply doesn’t fit with what they want people to believe.

3.  Correction #3 has to do with creating an erroneous climate change model to fit their bias. Schillberg, et al., cited references that were hypothetical computer models that had erroneous baseline maps. They completely ignore and dismiss previous published work and instead create their own reality to show a gradual tick expansion northward due to supposed climate change.  The problem is tick populations already existed in those locations. Scott’s most telling statement for patients to be aware of regarding research on climate change and ticks is this theory would,

“explain to the public a reason for not tackling this serious health care issue earlier. The tick problem was programmed for the future. Thus, ill-founded statistical analyses culminated in fabricated erroneous data and, ultimately, resulted in a series of maps that turned out to be flawed science.”

Scott also states the authors’ hypothesis on temperature increase is based on the United Nations International Panel on Climate Change Computer forecasts that have been consistently wrong. And yet, articles & books continue to be pumped out stating that warmer winters mean more ticks, when in fact, Scott has shown that overwinter survival of ticks dropped to 33% when the snow melted in late winter exposing black legged ticks to sudden drops in overnight temperature. This has been substantiated by other researchers as well.  https://madisonarealymesupportgroup.com/2018/11/07/ticks-on-the-move-due-to-migrating-birds-and-photoperiod-not-climate-change/

4.  Lastly, if I had a dollar for every article and book that came across my desk pushing this “warmer winters mean more ticks” mantra due to ‘climate change’, I’d be a millionaire. More research under this false pretense is being done by the minute.

How much does that cost? How many research dollars are being diverted from important issues patients and the doctors treating them really need answers to?

Even well-meaning Lyme advocates/journalists write books on Lyme being a disease driven by climate change.

Meanwhile, in the real world, thousands upon thousands of patients continue to be misdiagnosed with everything from medically unexplained symptoms (MUS), to depression, to MS and fibromyalgia. They are flat-out denied treatment and are told, “It’s all in your head.” The subset of patients (30%-40% of us) that are undiagnosed and untreated for months to years continue to be ignored by research and mainstream medicine. We have no new research on potential modes of transmission, good diagnostics, and effective treatments.

There were 53 troubling points noted throughout this research article.

Schillberg et al., 2018 was created by public officials so desperate to keep their jobs that they will literally fabricate a paradigm and create an alternate reality.

Speak up in your sphere of influence, and insist that your tax dollars go towards research that will help sick people – not line the pockets of dishonest researchers and public officials.

For more: https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/

https://madisonarealymesupportgroup.com/2018/11/17/uw-madison-phd-in-ecological-climatology-climate-change-computer-models-fudged-except-russian-model/  Dr. Patrick Michaels, director of the Center for the Study of Science at the Cato Institute, provides insight into the debate over climate change and the political games played to create policy.

Political games surrounding Lyme/MSIDS have gone on long enough. Do research on important issues that will help patients.

 

 

 

Ticks? There’s An App For That

TICKS? THERE’S AN APP FOR THAT
Just in time for summer tick season, a free smartphone app is now available to better understand and limit exposure to disease-carrying ticks. The Tick App helps scientists track the threat of tick-borne diseases and also serves as a prevention tool for users, providing a tick risk forecast by location and information on how to prevent tick bites and identify and remove ticks. The app was developed in part by the Midwest Center of Excellence for Vector-Borne Disease, co-directed by Lyric Bartholomay, professor in the UW School of Veterinary Medicine.

Study Shows Effectiveness of Factory-Treated Permethrin-Impregnated Clothing Works

https://www.ncbi.nlm.nih.gov/pubmed/25416331/

2015 Feb;114(2):671-8. doi: 10.1007/s00436-014-4232-y. Epub 2014 Nov 22.

Pilot study assessing the effectiveness of factory-treated, long-lasting permethrin-impregnated clothing for the prevention of tick bites during occupational tick exposure in highly infested military training areas, Germany.

Abstract

The protective effectiveness of factory-based permethrin-impregnated polymer-coated battle dress uniforms (PTBDUs) against tick bites was evaluated at four military training areas in southwestern and central Germany where tick bite incidence is known to be high. Data were analyzed by comparing tick bite incidence using non-permethrin-treated BDUs (NTBDUs) during 2009 versus PTBDUs during 2010 and 2011, the first two years after their formal introduction for in-country use in the German Bundeswehr. During 2009, 262 individual tick bites were reported at the four training sites, resulting in a tick bite incidence of 8.8 % per exposed person when wearing NTBDUs only. In 2010 and 2011, one tick bite case occurred under field conditions each year that PTBDUs were worn, corresponding to a protective effectiveness of 99.6 and 98.6 %. These data imply an annual tick bite incidence of 0.035 and 0.078 % per exposed person, respectively. Between 2010 and 2011, a 0.8 % decline in the protective effectiveness of PTBDUs was observed. Five tick bite incidents occurred while wearing non-impregnated parkas over correctly worn PTBDUs. Ixodes ricinus ticks were collected by standard tick drags from 2009 to 2011, with high mean annual densities ranging from 28.9 to 106.5 ticks per 100 m(2), while single drags revealed tick densities between zero and 381 ticks per 100 m(2).

Overall, 4596 I. ricinus ticks (54 ♂, 82 ♀, 1776 nymphs, and 2684 larvae) were collected, of which 128 (2.8 %; mean annual range, 0-10.1 %) were Borrelia burgdorferi s.l. positive. The Borrelia genospecies distribution was as follows: 112 (87.5 %) Borrelia afzelii, 10 (7.8 %) B. burgdorferi s.s., and 6 (4.7 %) Borrelia garinii. Neither the tick density means from 2009 to 2011 nor associated B. burgdorferi s.l. prevalences differed significantly among the military locations investigated.

The documented tick bite reductions clearly demonstrate the powerful protective effectiveness of properly worn PTBDUs against tick bites. Nevertheless, all apparel worn over PTBDUs should also be impregnated with permethrin in order to prevent tick infestation and subsequent bites.

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For more:  https://madisonarealymesupportgroup.com/2018/05/27/study-conforms-permethrin-causes-ticks-to-drop-off-clothing/

https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

https://madisonarealymesupportgroup.com/2019/06/08/ticks-are-out-for-the-summer-how-can-bites-be-prevented/

https://madisonarealymesupportgroup.com/2018/04/03/fire-good-news-for-tick-reduction/