Dean Center Treats Long-Term Effects Of Tick-Borne Illnesses
“All of a sudden, the right side of my body was completely numb. My heart was racing. I was disoriented and I said, ‘I think you need to take me to the hospital,’” she remembered.
After the standard antibiotic treatment, Dean still didn’t feel right.
“I’d gone to 12 different specialists and they all had diagnosed me with anxiety.”
She had what the Centers for Disease Control calls Post-Treatment Lyme Syndrome. She eventually found a doctor who understood her condition and recovered.
Doctors don’t always know what causes the lingering symptoms, making the diagnosis controversial and it is difficult for many patients to find help.
“There are hundreds and hundreds and hundreds of people who are severely debilitated from this disease and don’t have the access to the care that they need,” Dean said.
She and her family helped create a special program at Spaulding Rehabilitation Hospital that focuses on treating the lingering effects of tick-borne illnesses, like Lyme, including pain, fatigue, and brain fog.
“We have the ability to get them into physical therapy,” explained Dean Center co-founder, Dr. David Crandell. “If people are having problems with fatigue, we’ll work on ways to improve their efficiencies and if they’re having problems with their cognition, we’ll work with our speech and language pathologist to come up with unique management strategies.”
The Dean Center is the only one of its kind in the country and because of that, they have a long waiting list.
“I think if we’re in a position to show how these services help, hopefully, people will adopt those approaches elsewhere,” Crandell said.
In the meantime, the Dean Center is getting ready to open a pediatric Lyme disease center and the hospital hopes to expand services to treat more adults as well.
Dean continues to help raise money for the Center so more people can have access to care that she had.
“I don’t know where I could be if I hadn’t found those physicians who believed that I was really sick,” she said.
I’m waiting on a response from from Ms. Dean on if this center as part of its treatment, prescribes long-term antimicrobials (antibiotics and/or herbals).
The “lingering” symptoms the CDC labels PTLDS in many is active infection that needs to be dealt with. The reason this is controversial is a long, convoluted story but suffice it to say treatment failures have been noted since the very beginning of this plague and numerous animal and human studies have shown bacterial persistence. They just don’t want to believe it because it doesn’t fit into the nice square box they’ve put it in. I stumbled on this paper hailing from Canada which does a fantastic job laying it all out: TheCaseforthePersistenceofLymeDiseaseAfterAntibioticTherapy
Here’s a bevy of studies broken down into categories showing borrelia persistence: Peer-Reviewed Evidence of Persistence of Lyme:MSIDS copy
So the idea that these lingering symptoms can not be caused by active infections is ludicrous. Mainstream medicine is also ignoring the polymicrobial aspect that many of us are infected with numerous pathogens which research has shown to cause more severe illness of longer duration: https://madisonarealymesupportgroup.com/2017/07/01/one-tick-bite-could-put-you-at-risk-for-at-least-6-different-diseases/ Read comment after article
Going back to 1998, it was known that when a patient has Lyme and Babesia, Lyme is found three-times more frequently in the blood, causing greater symptoms, disease severity, and duration of illness: https://reference.medscape.com/medline/abstract/8637139
https://madisonarealymesupportgroup.com/2017/06/28/concurrent-babesiosis-and-lyme-in-patient/ Great example of a previously healthy 39-year-old male
THE NUMBER OF SYMPTOMS AND DURATION OF ILLNESS IN PATIENTS WITH CONCURRENT LYME DISEASE AND BABESIOSIS ARE GREATER THAN IN PATIENTS WITH EITHER INFECTION ALONE
http://www.lymepa.org/c07%20Lyme%20disease%20and%20Babesiosis%20coinfection.pdf It also suggests a synergistic inflammatory response to both a parasitemia and an increased spirochetemia. In addition, babesial infection enhances Lyme disease myocarditis in mice, which suggests that coinfection might also synergize spirochete-induced lesions in human joints, heart, and nerves.
Persistent and debilitating fatigue characterized coinfection.
ANIMAL STUDIES ALSO SHOW ENHANCED SEVERITY WITH LYME & BABESIA
Similar to humans, B. microti coinfection appears to enhance the severity of Lyme disease-like symptoms in mice. Coinfected mice have lower peak B. microti parasitaemia compared to mice infected with B. microti alone, which may reflect attenuation of babesiosis symptoms reported in some human coinfections. These findings suggest that B. burgdorferi coinfection attenuates parasite growth while B. microti presence exacerbates Lyme disease-like symptoms in mice.
Research on concurrent infection is scant but under appreciated as ticks are coinfected as well as the people they bite. More work needs to be done as well on tick bites potentially reactivating latent infections.