Raise the health threat to HIGHEST ALERT!
MAY 30, 2019 —
Please see below, additional communication with the New Hampshire Department of Health. This is happening with all Health Departments across the nation.
Lyme Bumper Stickers (Public Service Announcement)
WAKE UP AMERICA!
———- Original Message ———-
From: CARL TUTTLE <email@example.com>
Cc: Howard.Moffett@leg.state.nh.us, firstname.lastname@example.org, Tom.Sherman@leg.state.nh.us, Martha.FullerClark@leg.state.nh.us, Jeb.Bradley@leg.state.nh.us, James.Gray@leg.state.nh.us, Shannon.Chandley@leg.state.nh.us, Doug.Marino@leg.state.nh.us, email@example.com, Polly.Campion@leg.state.nh.us, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org, Harold.French@leg.state.nh.us, email@example.com, firstname.lastname@example.org, email@example.com, firstname.lastname@example.org
Date: May 30, 2019 at 8:41 AM
Subject: Re: “Let’s Talk Ticks” at Litchfield’s Public Library
To: Elizabeth R. Daly, MPH
Chief, Bureau of Infectious Disease Control
It is well known that untreated strep throat can progress to rheumatic fever, causing irreversible heart damage. Untreated syphilis leads to progressive disability and dementia, and untreated human immunodeficiency virus (HIV) infection progresses to AIDS with significant disability and death. What happens to a patient with Lyme disease who goes months, years, or decades before diagnosis because of a false-negative serological test result, missing erythema migrans (Bulls-eye rash) misdiagnosis etc.?
Based on the email you sent yesterday (attached below) it would appear that the NH Department of Health has gone to great lengths to raise awareness to avoid this scenario. So obviously Lyme disease must be a serious life-altering/life-threatening disease because we don’t see the same DOH action for strep throat, tonsillitis, or dermatitis.
So why then is this class of disabled Lyme patient ignored by the NH Department of Health/CDC and left to fend for themselves?
Post Treatment Lyme Disease Syndrome (PTLDS) after early treatment and untreated Lyme of months, years or decades are two entirely different disease states; the latter being ignored for three decades. Patients who have had a prolonged exposure to the pathogen are almost always incapacitated as testimony is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin.
The number of these horribly disabled patients continues to grow but for some unknown reason this is of no interest for the New Hampshire Department of Health. Not recognizing Lyme as a disabling disease excludes these individuals from any disability compensation.
In summary: the health treat level for Lyme disease does not match patient experience and as long as you and the NH DOH continue to ignore these pleas to upgrade Lyme to Highest Alert then the citizens of New Hampshire will continue to experience unimaginable pain and suffering.
As spokesperson for the disabled Lyme community I am challenging the New Hampshire Department of Health to stop following this thirty year travesty of ignoring the disabled wrongly established by the CDC/IDSA and the seven academics that have controlled the Lyme disease narrative and are now defendants in a racketeering lawsuit in Texas District Court.
Once again I am requesting a response to this inquiry and please do not circumvent the topic of this message which is the deliberate avoidance of the disabled Lyme patient population.
Cc: -The New Hampshire Medical Society Advisory Council on Tick and Other Insect Borne Diseases
– Commissioner Meyers
-The Tick Borne Disease Working Group
-ADM Brett P. Giroir, M.D., Assistant Secretary for Health
-Rep. Howard Moffett sponsor of House Bill 490https://legiscan.com/NH/bill/HB490/2019
Yesterday’s email from Beth Daly:
——— Original Message ———-
From: “DHHS: NHBIDC” <NHBIDC@dhhs.nh.gov>
To: CARL TUTTLE <email@example.com>
Date: May 29, 2019 at 3:40 PM
Subject: RE: “Let’s Talk Ticks” at Litchfield’s Public Library
Hi Mr. Tuttle –
We do actually report all suspected cases of Lyme disease to CDC, not just those that meet the national definition for “Confirmed” and “Probable” disease. CDC includes the “Confirmed” and “Probable” cases in their national surveillance reports. In our NH reports, we provide both the number of confirmed and probable cases (for national comparison) as well as the total number of all suspected illness reports received regardless of whether they meet the national case definition.
Using some extra federal funds, we were able to partner with TickFreeNH to air a PSA in July 2017, which aired 1,712 times on WMUR and Comcast cable channels. Unfortunately, we have not had federal funds to develop and air PSAs since then. There are no state funds dedicated to Lyme disease. You may have heard the Governor proposed this spring to provide $760,000 in the state budget for the purpose of combating tickborne diseases through statewide tick collection and surveillance and a statewide educational campaign. These funds were removed during the House phase of the 20-21 budget process, although the budget process is not yet complete so it is possible these funds could be added back in.
We have surveyed New Hampshire residents several times over the last decade or so about their awareness of Lyme disease and have found that overall awareness is high (>98%). About 63% of people think their risk of Lyme disease is moderate or high and 60% reported seeing Lyme disease prevention messaging in the prior 6 months. Airing PSA’s are not a magic solution. With the limited resources we do have, we take a multifaceted approach that involves leveraging partnerships with others (like TickFreeNH) and providing education and resources across stakeholder groups from the public to providers. Example activities include:
Development and maintenance of the State of New Hampshire Tickborne Disease Prevention Plan, which is available to local communities and public health networks to guide local prevention activities.
Distribution of messaging to healthcare providers regarding identification and reporting of tickborne diseases through our Health Alert Network, which has 8,000 recipients across the state including all licensed physicians. We have also conducted provider surveys to assess provider knowledge and practices related to tickborne disease.
Development of a tickborne disease elementary school curriculum (Tickborne Disease Curriculum Kits) for science and health teachers to use.
Distribution of 9,153 educational materials throughout New Hampshire in 2017, including a Lyme Disease kids activity book developed jointly with TickFreeNH as well as other educational materials available on the Department’s website (Tickborne Disease Educational Materials and Publications).
Issuing an annual press release for broad general public prevention and awareness messaging.
Posting tickborne disease prevention messaging to the DPHS and DHHS Facebook and Twitter accounts.
Responding to requests for media interviews to promote prevention activities. DPHS generally speaks to all of the major newspapers, WMUR, and NHPR throughout the year.
Attendance at various fairs and events to hand out prevention materials. DPHS also gives custom presentations to various audiences; 34 such presentations were conducted in 2017.
Conducting special projects to contribute to the science and understanding of tickborne diseases. For example, DPHS was one of the primary states that helped CDC investigate and better characterize Lyme carditis. DPHS also recently published a paper on the burden of tick bites on emergency departments.
Three Sudden Cardiac Deaths Associated with Lyme Carditis — United States, November 2012–July 2013
Notes from the Field: Update on Lyme Carditis, Groups at High Risk, and Frequency of Associated Sudden Cardiac Death — United States
Tick bite and Lyme disease‐related emergency department encounters in New Hampshire, 2010–2014
Collaboration with our regional center of excellence for vectorborne diseases to enhance and coordinate activities in our region and with CDC to better understand emerging tickborne diseases.
Collaboration with the New Hampshire Department of Agriculture, Markets, and Food and the New Hampshire Department of Environmental Services to develop and pilot a tickborne disease prevention lending library kit for elementary students.
Investigating ~3,500 tickborne disease illness reports annually. Analyzing surveillance data and posting information to the DPHS website in bulletins, reports, and maps. DPHS also developed an interactive online dashboard with Lyme disease and other tick-related environment data so individuals and communities can better assess risk and use the information to inform targeted educational initiatives (Tickborne Disease Data Dashboard).
Conducting tick surveillance when funds are made available. Funds were last available from 2007 to 2010. Tick testing demonstrated that 60% of tested ticks carried Borrelia burgdorferi, the causative agent for Lyme disease. Since 2010, the Division has not had funding for systematic collection of ticks.
Additionally, our partner, TickFreeNH has distributing over 300,000 materials requested by schools, camps, child care centers, hospitals, private practices, and communities in just over two years. For example, over 140 NH schools have requested the Be a Tick Detective Workbook for Kids to use in elementary classrooms in 2017 and 2018.
We care a lot about this illness and the work we do. We get a lot done for the $80,000 annual budget we have for Lyme disease from CDC. This is an important illness that impacts our state and, as you point out, our own families.
Elizabeth R. Daly, MPH
Chief, Bureau of Infectious Disease Control
NH Department of Health and Human Services
29 Hazen Drive, Concord, NH 03301-6504
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“In a manner that is ‘like what occurs in syphilis, we found Lyme infection can have long periods of latency and then cause slowly progressive disease‘ leading to chronic problems including memory loss, fatigue, sleep disorders, numbness and spinal pain,” Steere said.