Lyme patient misdiagnosed with anxiety and depression
Survivors spread word about often misunderstood disease as two additional counties named risk areas for ticks
Caitlin Leonard says she spent years trying to figure out what was behind her health problems.
She had depression and anxiety so severe she could “barely go outside,” but she also had extreme lethargy and felt physically very ill, “like you have malaria or something,” Leonard said.
“Not to be dramatic, but I was basically dying.
“And my doctor was telling me, ‘You have anxiety,’ and, ‘Eat well. Get exercise.'”
Leonard said it was a lonely and confusing time.
“Even your family doesn’t understand, you know.”
It never occurred to her she could have Lyme disease.
“I didn’t really know what it was,” she said.
That changed about six years ago, when her parents heard an interview with another patient, Rory Pronk, on Information Morning Fredericton.
Leonard had gone to school with Pronk, and his parents paid her a visit.
“They took one look at me and were like, ‘If you don’t have this, we’re going to be really surprised,” said Leonard.
I was so happy to just do normal things again and talk to people and go to bars and just be a young person and have friends and stuff.– Caitlin Leonard
The Pronks gave her advice about what to do and what tests to get.
“And it was the beginning of me getting better, actually.”
But even after a blood test in California came back positive for Lyme disease, she still couldn’t get treatment at home.
“At the time, which is not that long ago, there was no real recognition that I found in New Brunswick,” Leonard said.
She decided to move in with a relative in Alberta, where she eventually found a medical doctor who was also a naturopath and willing to try to help her.
“She was like, ‘I don’t know how to treat this, but I believe you,'” Leonard said.
Under the supervision of a practitioner of Chinese medicine, she began treatments with natural supplements in 2013.
“I’ve gotten so much better,” she said. “I think it really saved my life.”
She recalled how life changing it was to return to good health.
“I was so happy to just do normal things again and talk to people and go to bars and just be a young person and have friends and stuff,” said Leonard.
She urged anyone who suspects they may have Lyme disease to check the list of symptoms on the New Brunswick Health Department website and to talk to their doctor.
Help in province
“Just trust what you feel because maybe you don’t have Lyme disease, but maybe you do, and if you do, you deserve to be treated,” she said.
Rory Pronk said care is now available in New Brunswick.
“If you see one doctor and you don’t get anywhere, keep trying until you find somebody who believes you because there are doctors out there now that are treating it,” Pronk said.
Pronk is involved in a support group for Lyme patients. It meets at 6:30 p.m. on the first Thursday of every month at Brunswick Street Baptist Church in Fredericton.
New risk areas
The New Brunswick Health Department issued a news release on Monday saying two more counties are now risk areas for the kind of ticks that carry Lyme disease.
Sunbury and Queens join Charlotte, Kings, Saint John, Westmorland, Albert and York counties as regions where a person can come in contact with blacklegged ticks.
People in those areas are advised to avoid contact with tall grass, shrubs and leaves, to use insect repellent, to check for ticks after being outdoors and to see a doctor if they develop flu-like symptoms within 30 days of a tick bite.
- We should’t have to hunt and peck to find doctors to believe us
- No tick is a GOOD tick and transmission potential is always present.
- There are 18 and counting potential pathogens ticks can transmit: https://madisonarealymesupportgroup.com/2017/07/01/one-tick-bite-could-put-you-at-risk-for-at-least-6-different-diseases/
- Blood tests suck. Many patients never test positive because their immune system has been hijacked by stealth pathogens.
- Medical professions NEED to be educated on this and treat it clinically: https://madisonarealymesupportgroup.com/2018/02/19/calling-all-doctors-please-become-educated-regarding-tick-borne-illness-heres-how/, and https://madisonarealymesupportgroup.com/2018/06/06/lyme-education-for-healthcare-professionals/
- Spread the word about this in your sphere of influence. Things HAVE TO CHANGE.
- If you had this crap you’d be anxious and depressed too!