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‘Expert’ on Tick Borne Disease Working Group States Lyme Patients Simply Choose To Get Better

Published on February 23, 2018
Jenna Luche-Thayer

Friends,

The Tick Borne Disease Working Group’s Subcommittee on Access to Care Services and Support to Patients has a person with ‘unique expertise’.

This person, Anna Frost, is considered qualified for the important work of informing and developing recommendations to Congress regarding access to patient care.

On her website, she introduces herself as “a thought leader” and “social influencer.”

Her qualifying experience in this subject is based upon “studying five Lyme disease sufferers in the Pacific Northwest for six months in 2015.”

Anna Frost received a PhD for making this study.

According to Frost,

“The participants in my study who are on their way to optimal health are the ones who choose happiness at least 80% of the time.” [1]

According to the Merriam-Webster dictionary, happiness is a “a state of well-being and contentment” or “a pleasurable or satisfying experience”.

Myself, I don’t know any Lyme patients whose health improved simply because they ‘chose happiness’ –whether it was 80%, 82%, 87% or 93% of the time … and I personally know many hundreds of patients. I do know many of these patients, over time and with access to treatment options that have met internationally accepted standards, improved their health and well-being.

The CDC’s Lyme policy discriminates against Lyme patients with persistent and complicated cases. There are many patients whose access to these treatment options is obstructed by this policy –they cannot afford to pay out of pocket for necessary medical care– and many of these patients struggle and fight for every bit of their life. This discrimination is a human rights abuse as well as a violation of federal laws.

They fight to stay employable, when they lose their jobs due to their untreated and/or under-treated illness, they fight to get disability benefits. They fight to keep their homes and they fight to keep their family together. They apologize to their spouses and children for their lack of strength and energy, for their inability to be there when needed.

These persons are ‘happy’ when they have some hours or a day with manageable pain, they are ‘happy’ when they have the energy to show up to social commitments, they are ‘happy’ to still have some friends and family who love them and give encouragement. They are ‘happy’ for these gifts … but they are still sick because they are denied medical care.

In closing, I have two questions:

(1) Do you know any Lyme patients, with persistent complicated cases, who became well because they could ‘think happy 80%’ of the time?

(2) Can you recommend persons who have more useful ideas than ‘happiness cures’ for the TBDWG Subcommittee on Access to Care Services and Support to Patients?

Faithfully,

Jenna Luché-Thayer. 33 years working globally on the rights of the marginalized. Former Senior Advisor to US government and UN. Director, Ad Hoc Committee for Health Equity in ICD11 Borreliosis Codes. Founder, Global Network on Institutional Discrimination™ – Holding institutions accountable for political and scientific solutions

jennaluche@gmail.com