https://www.ncbi.nlm.nih.gov/pubmed/29576731

Neuropsychiatr Dis Treat. 2018 Mar 9;14:693-713. doi: 10.2147/NDT.S155143. eCollection 2018.

Aggressiveness, violence, homicidality, homicide, and Lyme disease.

Bransfield RC1.

No study has previously analyzed aggressiveness, homicide, and Lyme disease (LD).

MATERIALS AND METHODS:
Retrospective LD chart reviews analyzed aggressiveness, compared 50 homicidal with 50 non-homicidal patients, and analyzed homicides.

RESULTS:
Most aggression with LD was impulsive, sometimes provoked by intrusive symptoms, sensory stimulation or frustration and was invariably bizarre and senseless. About 9.6% of LD patients were homicidal with the average diagnosis delay of 9 years. Postinfection findings associated with homicidality that separated from the non-homicidal group within the 95% confidence interval included suicidality, sudden abrupt mood swings, explosive anger, paranoia, anhedonia, hypervigilance, exaggerated startle, disinhibition, nightmares, depersonalization, intrusive aggressive images, dissociative episodes, derealization, intrusive sexual images, marital/family problems, legal problems, substance abuse, depression, panic disorder, memory impairments, neuropathy, cranial nerve symptoms, and decreased libido. Seven LD homicides included predatory aggression, poor impulse control, and psychosis. Some patients have selective hyperacusis to mouth sounds, which I propose may be the result of brain dysfunction causing a disinhibition of a primitive fear of oral predation.

CONCLUSION:
LD and the immune, biochemical, neurotransmitter, and the neural circuit reactions to it can cause impairments associated with violence. Many LD patients have no aggressiveness tendencies or only mild degrees of low frustration tolerance and irritability and pose no danger; however, a lesser number experience explosive anger, a lesser number experience homicidal thoughts and impulses, and much lesser number commit homicides. Since such large numbers are affected by LD, this small percent can be highly significant. Much of the violence associated with LD can be avoided with better prevention, diagnosis, and treatment of LD.

_______________

For More:

https://madisonarealymesupportgroup.com/2017/06/20/suicide-lyme-and-associated-diseases/

https://madisonarealymesupportgroup.com/2017/07/12/suicide-and-chronic-lyme-disease/

https://madisonarealymesupportgroup.com/2017/03/21/military-veterans-suicide-and-lymemsids/

https://parentalrights.org/dentist_threats/

PA Dentist Threatens Parents; Utah Adopts a Better Way

Dentist Threatens Parents

PA Dentist Threatens Parents

A dentist’s office in Pennsylvania has made headlines and sparked a social media firestorm of angry parents. Dr. Ross Wezmar of Smiles 4 Keeps came under fire for a letter citing Pennsylvania Act 31 and threatening to report parents for neglect if they failed to schedule their child’s next cleaning with the practice.

The letter, as posted at Health Impact News, reads in part, “Pennsylvania Act 31 (Child Abuse Reporting and Recognition Requirements) states that health care providers must report your failure to bring your child to the dentist for evaluation and care.” That’s not a provision we could find in the Act, however. (Read the Act for yourself here.)

Mom Trey Hoyumpa, rather than being intimidated by the threat, took the issue to social media. From there it went viral, attracting the attention of Health Impact News and of conservative journalist Michelle Malkin, who featured the matter on multiple sites including Heritage Foundation’s The Daily Signal and The Jewish World Review.

ParentalRights.org has shared before that to get good results in court, we need two complementary things: good laws and good judges. If we get bad results, the problem could be one or the other, or sometimes both.

In this case, the Act identifies “mandatory reporters”—those required by law to make a report if they have reason to suspect child abuse or neglect—and lists training requirements they must meet to be licensed in the state. But nowhere does it mention missing a dental cleaning as a cause to report a parent for neglect. (In fact, no definitions for “abuse” or “neglect” are included in Act 31.)

In this instance, the law seems fine; the problem is with its application by the dentist.

According to Malkin, Wezmar claims Smiles 4 Keeps sent the letter “to jar the parent to realize that with a child comes responsibility.” And if that “jarring” results in more money to the dentist’s office as intimidated parents bring their child in for fear of Child Protective Services, well, so much the better.

As pointed out by Health Impact News, Dr. Wezmar’s associations listed on the practice’s website include work with “Harvard University Children’s Hospital,” better known as Boston Children’s Hospital (the site of Justina Pelletier’s now infamous ordeal).

It’s no wonder Hoyumpa accused the dentist’s office of “bullying” and “intimidation.”

Utah Adopts a Better Way

That is exactly the kind of abuse of the system which a newly passed Utah bill seeks to address.

SB 65 made a substantive amendment to the legal definition of “neglect.” According to the U.S. Department of Health and Human Services, as many as 80% of child welfare investigations arise from this nebulous charge. It’s the allegation raised by Smiles 4 Keeps, and too often it is defined in the field as “daring to parent in a way the doctor/dentist/investigator doesn’t like.”

But that is no longer to be the case in Utah.

Under SB 65, “neglect” explicitly “does not include…permitting a child…to engage in independent activities, including: traveling to and from school, including by walking, running, or bicycling…; engaging in outdoor play; remaining in a vehicle unattended [with exceptions]; remaining home unattended; or engaging in a similar independent activity” (section numbers and formatting omitted). So Utah parents who want to raise independent, responsible adults will no longer be hamstrung by a system that sees every risk as a call for a neglect proceeding.

The bill also excludes “a health care decision made for a child by the child’s parent or guardian, unless the state or other party to a proceeding shows, by clear and convincing evidence, that the health care decision is not reasonable and informed.” Under such a provision, Smiles 4 Keeps would be hard-pressed to threaten any good parent who chooses not to get their child’s teeth cleaned on time. Such a choice simply does not meet the legal definition of neglect.

What We Can Do

The Smiles 4 Keeps letter clearly demonstrates why changes like the Utah law are needed in all 50 states. We can make those changes either by passing state legislation like SB 65, or by amending federal laws like the Adoption and Safe Families Act (ASFA) and the Child Abuse Prevention and Treatment Act (CAPTA) to close the loopholes so ripe for abuse. Ultimately, the Parental Rights Amendment to the U.S. Constitution will help raise the bar for parental rights nationwide.

And we are proud to be actively pursuing all of these solutions. In state legislatures, through a bipartisan coalition for ASFA and CAPTA reform, and with the Parental Rights Amendment in Congress, we are on the front lines to protect parents like Trey Hoyumpa from those who would define “neglect” to fit any parent they just don’t like.

But to continue our successes, we need our voice to grow.

Please take a moment to

  • 1) share this newsletter with family and friendsand urge them to sign up for updates as well and
  • 2) contact your U.S. congressman and urge their support for H.J. Res. 121, the Parental Rights Amendment, sponsored by Rep. Randy Hultgren.

By standing together we can stop the bullying of good parents by taking the bullies’ weapons away.

_______________

**Comment**

No where is the parental rights amendment needed more than with infected children and/or adults with Lyme/MSIDS.  Parents with Lyme/MSIDS and/or with infected children have been accused of Munchausen’s by proxy (MBP) https://www.ncbi.nlm.nih.gov/pubmed/15925450, https://sites.google.com/site/drjoneskids/symptoms-literature/munchausen-by-proxy, child abuse, and have even had their children taken away.  

For more:  https://madisonarealymesupportgroup.com/2017/09/14/dutch-parents-accused-of-child-abuse-due-to-children-with-lyme-disease/

https://madisonarealymesupportgroup.com/2017/08/24/dutch-lyme-patients-accused-of-child-abuse/

https://madisonarealymesupportgroup.com/2017/01/11/sick-shaming-of-lymemsids-patients/  This topic has hardly even been broached here in the U.S., but abuse allegations are happening regularly to families with Lyme/MSIDS. This is why I support the Parental Rights Amendment so parents are not forced to comply with the arbitrary U.N. Rights of the Child which effectively imposes international law upon families which is NOT in the best interest of children. For more: https://madisonarealymesupportgroup.com/2017/04/20/why-we-need-the-parental-rights-amendment/
https://madisonarealymesupportgroup.com/2017/02/21/parental-rights-in-medical-settings/
https://madisonarealymesupportgroup.com/2017/05/18/first-peer-reviewed-study-of-vaccinated-vs-unvaccinated-children/ For families struggling with Lyme Disease, they are already fighting a system that doesn’t know how to cope with very ill children who often can’t keep up. Their little bodies are in a raging war of epic proportions. They are often bullied and mocked not only by peers but even by teachers and standard medical professionals who believe they are just being lazy. Infected, exhausted parents often don’t have the energy to fight the “mandatory vaccine” regimens being pushed upon them so just go along rather than weighing in their child’s current health issues. The entire system is stacked against them – forcing many to homeschool just to avoid the unbelievable pressure to conform.

 

 

 

 

https://www.lymedisease.org/lyme-sci-more-mcas/

LYME SCI: More about healing from mast cell activation syndrome

MCAS-4-300x300

By Lonnie Marcum

This is part three of a series on mast cell activation syndrome (MCAS) triggered by Lyme and co-infections. Part one is an introduction to MCAS including an interview with Dr. Jill Carnahan. Part two is a description of my daughter’s diagnosis of MCAS and the five-step process we used to get her back on track. In this part, I give more details about specifically how we did it.

Calming the immune system

When trying to calm mast cells, the key is to reduce the number of flares. Eliminating triggers, lowering histamine levels, and getting on the right medication(s) are critical. Every time you have an allergic reaction, it reactivates the mast cells. This domino effect makes the body more sensitive to even minor triggers. The lower you can get your histamine levels and the longer you can go without an allergic-type reaction, the calmer the immune system becomes. In our experience, if you can go three months without a reaction, you are on the road to healing.

Essential steps for healing
Accepting that you have a problem.

This is a tough one. It reminds me of my daughter’s childhood friend, who was diagnosed with diabetes in second grade. After years of failing oral medications, he eventually received an insulin pump that inserts directly into his abdomen. It completely changed the type of sports he could play and the way he had to live his life. But within a year, he had adjusted and could do nearly everything other kids his age did, as long as he adhered to a routine.

My daughter had to come to grips with the fact that she may never be able to roll in the grass or eat many of her favorite foods again. She also had to accept that she’s lost five years of her life and a lot of childhood dreams. Not only that, but fighting our way through the medical system to a diagnosis and treatment left a lot of emotional scars and a type of trauma caused by medical treatment (iatrogenic)– very similar to post-traumatic stress disorder (PTSD). This is where I truly believe a compassionate therapist is needed.

So, to me, healing from MCAS not only requires lowering histamine levels and retraining your immune system, but also retraining your mind, creating a safe environment within your restrictions, and designing a lifestyle that continues to bring you joy.

Identifying your food triggers.

It may take months to find a doctor well-versed in MCAS. In the meantime, I recommend trying to identify your food triggers. A common method for determining food allergies is an “elimination diet.” You eliminate specific foods for one to three weeks, then systematically reintroduce them and watch for symptoms over the next several days.

If you react to a lot of foods, many doctors recommend starting by eliminating the American Academy of Allergy Asthma & Immunology’s eight foods responsible for most allergic reactions:

  • Cow’s milk
  • Eggs
  • Fish
  • Peanuts
  • Shellfish
  • Soy
  • Tree nuts
  • Wheat

We eliminated all of the above, plus foods that were commonly listed as high histamine (see the list I use here:  http://www.mastzellaktivierung.info/downloads/foodlist/21_FoodList_EN_alphabetic_withCateg.pdf) and the preservatives/additives that are known histamine triggers:

  • Artificial food coloring (especially red dye)
  • Benzoates
  • MSG
  • Sulfites
  • Tartrazine

The secret to a healthy elimination diet is to add one healthy food for each food you cut out. For instance, when you eliminate wheat, you add in quinoa or another nutrient dense carbohydrate. (Read about elimination diets here:  https://en.wikipedia.org/wiki/Elimination_diet)

After consulting with my daughter’s doctors and coming up with a list of low-histamine, nutrient-rich foods, we re-introduced them systematically, almost like low-dose immunotherapy.

The first day she would take a small bite and spit it out. If her mouth didn’t break out, the next day she would swallow a small bite, increasing the bite size each time until reaching a full serving. If her mouth tingled or broke out, we would wait several weeks before trying again. We opted to only add one new food every week so we could monitor immediate and delayed reactions. If she didn’t react, we knew these foods could be rotated into her diet every four days.

I will include more information about how we dealt with food issues in my next installment.

LymeSci is written by Lonnie Marcum, a Licensed Physical Therapist and mother of a daughter with Lyme. Follow her on Twitter: @LonnieRhea Email her at: lmarcum@lymedisease.org .

_____________

More on MCAS:  https://madisonarealymesupportgroup.com/2017/03/23/rebecca-keith-on-mcas-parasites-lymemsids/

https://madisonarealymesupportgroup.com/2018/03/13/mcas-lyme-msids/

https://madisonarealymesupportgroup.com/2017/04/17/mast-cell-activation-syndrome-lymemsids/ Dr. Carnahan’s article also found here.

Some docs are using LDA/LDI to treat this: https://madisonarealymesupportgroup.com/2016/05/30/new-kids-on-the-block-ldaldi/

 

https://www.ncbi.nlm.nih.gov/m/pubmed/29573404/

Correlation of natural autoantibodies and cardiovascular disease-related antibacterial antibodies in pericardial fluid of cardiac surgery patients.

Simon D, et al. Clin Exp Immunol. 2018.

Abstract

Our previous studies showed that anti-citrate synthase (a-CS) IgM natural autoantibodies are present in healthy individuals without previous antigen stimulation, but no studies have investigated their presence in the pericardial fluid (PF). Therefore we detected the natural anti-CS IgG/M autoantibody levels in plasma and PF of cardiac surgery patients and investigated their relationship with cardiovascular disease-associated bacterial pathogens. PF and blood samples of 22 coronary artery bypass graft (CABG) and 10 aortic valve replacement (AVR) patients were tested for total Ig levels, natural autoantibodies and infection-related antibodies using ELISA and Luminex methods. The B cell subsets were measured by flow cytometry. The total Ig subclass levels were 4-8 times lower in PF than in plasma, but the natural anti-CS IgM autoantibodies showed a relative increase in PF. The frequency of CD19+ B lymphocytes was significantly lower in PF than in blood (P=0.01) with a significant relative increase of B1 cells (P=0.005). Mycoplasma pneumoniae antibody positive patients had significantly higher anti-CS IgM levels. In CABG patients we found a correlation between anti-CS IgG levels and Mycoplasma pneumoniae, Chlamydia pneumoniae and Borrelia burgdorferi antibody titers. Our results provide the first evidence that natural autoantibodies are present in the PF and they show significant correlation with certain antibacterial antibody titers in a disease specific manner.

__________________

Chlamydia-like organisms found in ticks:  https://madisonarealymesupportgroup.com/2016/10/07/chlamydia-like-organisms-found-in-ticks/

Mycoplasma:  https://madisonarealymesupportgroup.com/2015/08/12/connecting-dots-mycoplasma/

https://madisonarealymesupportgroup.com/2017/07/16/mycoplasma-and-other-intracellular-bacterial-infections-in-rheumatic-diseases-comorbid-condition-or-cause/

https://madisonarealymesupportgroup.com/2016/02/07/mycoplasma-treatment/

 

 

 

 Approx. 3:45 Min

Dr. Ingels, author of The Lyme Solution

In this video, Dr. Ingels (ND) presents his firsthand experience with LD.  He had many symptoms and even the “classic” bullseye rash.  LD took a toll on his job, relationships and overall health.  He initially used antibiotics over 8-9 months and felt worse.  He says conventional medicine failed him and that he believes in the body’s innate capacity to heal.  “The Lyme Solution” is a 5-part plan:  • fix your digestion and heal your gut • teach you to eat food that nourishes your body and reduces inflammation • treat your infection naturally • remove toxins that affect your immune system • get the best sleep and exercise If you’ve been feeling any combination of these symptoms and you haven’t discovered why you feel this way, then it’s time to find out if it’s Lyme disease. Find out now at his website at http://www.DarinIngelsND.com

_______________

**Comment**

Conventional medicine didn’t fail him – it just wasn’t enough and rarely is.  In response to feeling worse before better that’s how this disease rolls.  Syphilis is similar in this regard.  It’s called a herxheimer reaction.  When you take antimicrobials like antibiotics, your body experiences an autoimmune type response when it finally identifies dead pathogens floating around in your blood stream.  The immune system all of a sudden understands who the bad guys are.  The body’s reaction of inflammation and pain are the outcome of successfully killing pathogens.

Experience has shown me that people often do not give credit to antibiotics.  He admits he took them for 8-9 months effectively reducing pathogens.  The unfortunate truth about Lyme/MSIDS treatment is you are going to feel worse before you feel better.  The herxheimer reaction is very real:  https://madisonarealymesupportgroup.com/2015/08/15/herxheimer-die-off-reaction-explained/.  LLMD’s all admit that one of the challenges is in balancing killing with the ability to detox, thereby reducing the herx as much as possible.

This complex disease will sift you like wheat and take you to some very low places.  It is unlike anything you’ve ever dealt with before.  I felt like death on a stick for over 4 years of treatment using antibiotics, blood ozone with UV light, IV vitamins, hormones, herbs, detox treatments, probiotics & supplements, and more I’ve probably forgotten.  But antibiotics WORKED!  At times they worked too well and the herxes were surreal.  But, my husband and I are living examples that taking oral antibiotics for years can work.  We are off all treatment but a maintenance dose of herbs to keep things at bay.

One of the most difficult aspects of this journey is people can not believe how badly they feel, how poorly doctors are educated, necessitating their own advocacy, and how long it takes to recover.  In my experience it’s also quite common to need numerous doctors.  Lyme/MSIDS can affect every organ in your body and wreak unbelievable havoc.  Doctors typically have their specialities or “hobby horses” they know well.  Lyme/MSIDS patients often “out grow” their own doctors and need help from other sources whether it be diet/nutrition, psych help, heart issues, bone/joint issues, dermatology, pain relief, and on and on.  I know patients that see 3-4 different medical professionals for very real issues.  Don’t be afraid to seek out help from other sources.

Please notice Ingel’s treatment took 3 years.  His approach is NOT a magic bullet. Nor is it curative in that it eradicates all pathogens (at least regarding Bb).  Treatment takes YEARS and there are many facets to successful treatment but never underestimate the killing prong of treatment that antibiotics can accomplish.  Dr. Horowitz, a knowledgable Lyme literate doctor, has gone on record stating herbs alone have about a 70% success rate in his practice.  Some patients have severe psych and cognitive issues.  Would you treat tertiary Syphilis with herbs alone?  Neuro Lyme is no different.

In my experience the folks that do poorly on antibiotics can not detox properly or are using the wrong drugs or wrong dosage.  If they can fix their detox pathways, and get the proper drug and dosage, antibiotics work, if they can’t, they often have to choose something else.  I am thankful there are options.  Never diss something that doesn’t work for you because it will work for someone else.

Another reason for treatment failure is NOT EVERYTHING IS LYME.  There are other coinfections necessitating other drugs, as well as the fact borrelia has 3 forms necessitating antimicrobials that address each form.  There’s a lot of guess work involved in treatment and a lot of experimentation.  One of the reasons I write about the different pathogens is that so you can understand how they work and what it takes to effectively deal with them.  Beyond that complexity there’s the importance of supporting the immune system, obtaining refreshing sleep, detoxing, addressing the gut, psychological/cognitive needs, addressing things like mold and MCAS, and so on to infinity.  Every patient is different requiring different components of individualized treatment.

I don’t want any of you to come away thinking there’s a “magic bullet” to tick borne illness – that this book or one particular treatment is going to “cure” everyone.  If someone claims that they are selling something.  A magic bullet doesn’t exist for everyone.  Period.

I had an extremely negative experience with well-meaning people who attempted to make me feel guilty about taking antibiotics.  It was probably when I was at my lowest and very vulnerable. Mind you, I hadn’t taken antibiotics for my entire adult life so I’m not even a huge fan; however, they were the most effective treatment I’ve used, and were for my husband, as well as many, many patients I’ve dealt with over the years.  Again, we used many other adjunctive therapies as well.

Bottom line:  Give credit where credit’s due.  Antibiotics work.  Don’t get a “mightier than thou” attitude & diss treatments you don’t like or didn’t work for you.  Remain open minded regarding treatment – remembering we are all different.  Don’t be afraid to try numerous things.  Stick with those that work.  When you reach a plateau, work with your practitioner and switch things up and remain open to that one thing that might really make a difference for you.  And mostly, remember that this complex illness is unlike anything you’ve ever treated before and will require savvy, wisdom, knowledge, open-mindedness, patience, and most of all humor.