Archive for the ‘Lyme’ Category

Tick Act Bill Renamed & Passed Unanimously

Thank you to everyone who contacted Wisconsin Senator Tammy Baldwin.  I’m happy to report that the Tick Act Bill, renamed to the Kay Hagan Tick Act Bill after former U.S. Senator Hagan who recently succumbed to Powassan Virus, passed unanimously through the HELP Committee. It now moves forward to the Senate for a vote.

Politicians are listening due to one thing only – your involvement and effort.

Voice from every U.S. state were heard with over 150 Lyme foundations and organizations along with state the federal organizations.

This is a win for patients.

For more on Ms. Hagan:  https://madisonarealymesupportgroup.com/2019/10/29/former-u-s-senator-dies-of-powassan-virus/

More on the Kay Hagan Tick Act:   https://madisonarealymesupportgroup.com/2019/06/07/representatives-create-bipartisan-bill-tick-act/

https://madisonarealymesupportgroup.com/2019/10/25/wi-lyme-msids-patients-contact-senator-tammy-baldwin-today/

https://madisonarealymesupportgroup.com/2019/09/10/maines-senator-collins-holds-field-hearing-on-tick-act/

https://madisonarealymesupportgroup.com/2019/06/13/the-tick-act-should-aid-fight-against-lyme-disease-but-will-congress-pass-it-and-will-more-tax-payer-money-go-to-the-cabal/  Tuttle is appropriately concerned and asks the following question regarding research monies:

Excerpt:

Is there a provision within the Tick Act to restrict research funds from the con artists who have characterized Lyme as a simple nuisance disease (Hard to catch and easily treated)?

Patients who fail treatment are kicked to the curb and told they have “Medically Unexplained Symptoms” [3] while ignoring the large body of evidence that we have been dealing all along with an antibiotic resistant/tolerant superbug. [4]

Previous NIH funding for Lyme was under the direction of Edward McSweegan and Philip Baker. Corrective action: The NIH should suspend all funding to researchers with a bias against persistent Borrelia infection particularly those who have been named in the Texas racketeering lawsuit [6] who continue to use taxpayer dollars to fund their ongoing racketeering/propaganda scheme.

There needs to be an immediate shutdown of the “open checkbook” handed to Dr. Gary Wormser by the US Centers for Disease Control (Funding: RO1 CK 000152) with his unethical fixation on the acute stage of disease purposely avoiding the advanced stage which hides the horribly disabled.

Complaint filed with the Office of Research Integrity:

https://www.dropbox.com/s/94jv3w2hb0z9lv7/Email%20sent%20to%20the%20Office%20of%20Research%20Integrity.docx?dl=0

Here is the short list of con artists who were also coauthors of the deplorable Lancet article, Lyme disease antiscience. [7]

Defendants in the RICO lawsuit: (There are many more researchers to be included in this short list)

  1. GARY P. WORMSER
  2. RAYMOND J. DATTWYLER
  3. EUGENE SHAPIRO
  4. JOHN J. HALPERIN
  5. LEONARD SIGAL
  6. ALLEN STEERE
Put an end to the favoritism in research funding for Lyme at the NIH or are we going to experience yet another decade of unimaginable pain and suffering.

 

 

 

Category:

Activism, Lyme

Lyme Disease is an Emergency. Instead of Feeding the Hype, We Must Support the Science

https://www.nbcnews.com/think/opinion/lyme-disease-emergency-instead-feeding-hype-we-must-support-science-ncna1062611  Go here for full article

Lyme Disease is an Emergency. Instead of Feeding the Hype, We must Support the Science.

The controversy may be low-hanging fruit, but what we really need to focus on is a motherlode of hopeful research shining new light on the disease.

Oct. 7, 2019

By Pamela Weintraub, health and psychology editor, Aeon
The fight over Lyme disease is one of the hottest topics in medicine right now. Is Lyme underdiagnosed or overdiagnosed? Easily detected with current tests, or often missed? Cured with a 30-day supply of doxycycline or immortal, impossible to treat no matter what? These polarized debates have fueled a series of articles and trend pieces. But as a science journalist covering the epidemic for 20 years, I’ve found the hype can cause confusion. The controversy may be low-hanging fruit, but what we really need to focus on is the motherlode of hopeful research shining new light on the disease.
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**Comment**
I appreciate Weintrabu’s intent, unfortunately, it’s not that simple. Much of the science on Lyme/MSIDS has been done by a white coat wearing Cabal whom have rife conflicts of interests. ConflictReport
For instance, I can not support tick research with the moniker of “climate change” due to the fact ticks have been proven to be marvelously ecoadaptive – and quite able to survive armageddon. You may not feel this important; however, if you saw the number of research articles crossing my desk on a daily basis with the climate change agenda behind it you would appreciate the shear number and amount of dollars going to research that according to independent tick researcher John Scott is a “red herring,” and is a complete ruse designed to get the focus on anything but the real issues surrounding this debacle:  https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/

“I’m an independent researcher,” he tells me. “I can go in any direction I want and, therefore, I haven’t got flawed science. I can move in any direction and not be blocked. That’s the way it should be. If I were tied in with an institution, my work would be influenced and manipulated.“John explains, “The climate change range expansion model is what the authorities have been using to rationalize how they have done nothing for more than thirty years. It’s a huge cover-up scheme that goes back to the 1980’s. The grandiose scheme was a nefarious plot to let doctors off the hook from having to deal with this debilitating disease. I caught onto it very quickly. Most people have been victims of it ever since.”

“This climate change ‘theory’ is all part of a well-planned scheme. Even the ticks are smarter than the people who’ve concocted this thing,” he says.

“Climate change has nothing to do with tick movement. Blacklegged ticks are ecoadaptive, and tolerate wide temperature fluctuations. On hot summer days, these ticks descend into the cool, moist leaf litter and rehydrate. In winter, they descend into the leaf litter, and are comfortable under an insulating blanket of snow. Ticks have antifreeze-like compounds in their bodies, and can tolerate a wide range of temperatures. For instance, at Kenora, Ontario, the air temperature peaks at 36°C and dips to –44°C, and blacklegged ticks survive successfully.

He’s even called out officials doing biased research:  https://madisonarealymesupportgroup.com/2019/06/17/ontario-public-health-officials-called-out-on-shoddy-biased-research-utilizing-an-erroneous-climate-change-model-to-program-a-futuristic-tick-problem/Yet, you never hear Scott’s name in the “important: circles due to the fact he purposely stays independent.
Until researchers are allowed to truly investigate things without strings being attached to the money, we will never be told the truth.
I will only support researchers who are doing transparent work and are willing to go against the accepted narrative, and trust me, those researchers are few and far between.

 

 

 

Category:

Lyme

Center For Lyme Launches to Lobby Congress For More Research, Treatment Options

https://triblive.com/news/world/center-for-lyme-launches-to-lobby-congress-for-more-research-treatment-options/

Center for Lyme launches to lobby Congress for more research, treatment options

Patrick Varine
PATRICK VARINE

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SUBMITTED PHOTO/CENTERS FOR DISEASE CONTROL
This undated file photo provided by the U.S. Centers for Disease Control and Prevention shows a blacklegged tick, also known as a deer tick, a carrier of Lyme disease.
A new nonprofit launched this week will focus on lobbying Congress to expand funding for the development of new drugs and diagnostic tools for battling Lyme disease.

The Center for Lyme Action launched on Tuesday in addition to hosting a congressional forum with lawmakers from Minnesota, New Jersey and California, along with Sen. Susan Collins (R-Maine), who gave a keynote address via video.

“The incidence of Lyme and other tick-borne diseases has exploded over the past 15 years,” Collins said in her video statement. “The TICK Act that I authored would apply a three-pronged public health approach to address Lyme and other tick-borne illnesses, establishing a national effort and providing much-needed investments to help slow the spread of these devastating diseases and better protect the health of more Americans.”

Lyme disease is the fastest-growing vector-borne illness in the United States, and Pennsylvania ranks first in the nation when it comes to Lyme cases.

The National Institute of Health earlier this month released a “Strategic Plan for Tick-borne Disease Research” to address the rising incidence of tick-borne disease and better understand the complex interplay between host, tick, and pathogens.

The number of reported cases more than doubled from 2004 to 2016, according to NIH data.

The plan’s five main priorities are:

• Improve the fundamental knowledge about tick-borne diseases;

• Advance research to improve the diagnosis of such diseases;

• Accelerate research to improve their prevention;

• Promote research to improve treatment of all tick-borne diseases;

• Support tools and resources to advance all of the above goals.

“Lyme is a frustrating and debilitating disease, but it’s a problem we can solve,” said Center for Lyme Action co-found Bonnie Crater. “What is needed is dedicated and sustained funding to research and commercialize a better way to diagnosis and treat this growing public health threat.”

Below, hear Bell Township resident Amy Wiester’s story of dealing with nearly a lifetime of Lyme disease’s effects.

Crater said the NIH report is a positive development given that NIH funding has been in decline for many years. In 2000, the NIH budget for Lyme was $2,117 per patient compared to $700 per patient in 2018, according to Crater.

Similar legislation in the House has the goal of creating a national strategy to address Lyme disease and other tick-borne diseases and disorders.

Patrick Varine is a Tribune-Review staff writer. You can contact Patrick at 724-850-2862, pvarine@tribweb.com or via Twitter .

Category:

Activism, Lyme, Uncategorized

Despite Lyme Insurance Law, Some MA patients Can’t Get Coverage

https://www.lymedisease.org/ma-lyme-insurance-coverage/  News Video within Link

Despite Lyme insurance law, some MA patients can’t get coverage

MA Lyme insurance law ignored

In 2016, Massachusetts passed a law mandating insurance coverage for long-term antibiotic treatment for Lyme disease.

According to Boston 25 News reporter Ted Daniel, some patients are being denied that kind of coverage.

The Massachusetts Office of Patient Protection says since the law took effect, there have been three state-level external appeals for denials of long-term antibiotic treatment for Lyme disease.

All were with Blue Cross Blue Shield of Massachusetts.

The insurance company says they’re just following the rules, but the people who wrote the law say they’re not.

As one interviewee put it,

“Unfortunately, Blue Cross is pretending the law didn’t pass in Massachusetts.”

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**Comment**

I’ve also heard that “doctor protection” bills aren’t being followed either, in fact, Lyme literate doctors in those states have been put under intense scrutiny for their treatment of Lyme/MSIDS.

What kind of nation are we when the rule of law no longer means anything?

Category:

Activism, Lyme, Treatment

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Deal on 3-Book Bundle on Lyme and Recovery Topics

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Written

on October 30, 2019