Archive for the ‘Bartonella’ Category

ALS & MS Suspected in Woman Later Diagnosed With Bartonella & Lyme Disease

https://danielcameronmd.com/als-and-ms-suspected-in-woman-later-diagnosed-with-bartonella-and-lyme-disease/

ALS AND MS SUSPECTED IN WOMAN LATER DIAGNOSED WITH BARTONELLA AND LYME DISEASE

bartonella-lyme-disease

After developing multiple neurologic symptoms following a spider bite, a woman tests positive for Bartonella. Yet, her symptoms are attributed to possible multiple sclerosis (MS) or ALS. Just prior to having hip surgery, additional tests confirm that she is positive not only for Bartonella, but for Lyme disease, as well.

In their article, “Bartonella- and Borrelia-Related Disease Presenting as a Neurological Condition Revealing the Need for Better Diagnostics,” Ericson and colleagues describe the case of a 61-year-old female, who experienced a painful bite while hiking in Minnesota.¹

It was diagnosed as a spider bite because of the two large bite marks present and the painful sensation. One day after the bite, a large blue ring appeared around the bite and the woman developed muscle aches and pains.

The woman was treated with doxycycline for two weeks, which decreased but did not resolve the arthritic pain.

Five months later, her symptoms progressed to include blurry vision, lack of balance, muscle pain, night sweats and insomnia.

At this point, testing for Lyme disease and Bartonella were negative.

After expressing continued concern about having Lyme disease, she was referred to an infectious disease physician, who stated that he “did not believe in persistent Lyme disease.” She was then referred to a neurologist for an MRI.

“At this time, her blood was used in a research study aimed at developing new PCR diagnostic techniques for Bartonella infections,” the authors state.

This new PCR test confirmed the presence of both Bartonella vinsonii and Bartonella henselae.

One year after infection, the patient visited an integrative medicine physician who prescribed clarithromycin and rifampin based on symptoms consistent with a Bartonella infection.

However, her symptoms continued and she was referred to a physical therapist, who prescribed a wheeled walker. Her primary care physician attributed her symptoms to possible ALS or MS.

“She reported to multiple physicians that her hips sounded like popcorn whenever she walked or climbed stairs.”

Hip x-rays revealed a loss of cartilage. She had bilateral hip degeneration, which would require hip replacements.

Prior to surgery, the woman underwent another round of tests for Bartonella. And again, test results confirmed for a second time the presence of Bartonella.

However, in addition, testing revealed “a spirochete-like organism” in a buffy coat smear sample.

“Given her symptomology and the known possibility of co-infections in Lyme disease, the spirochete was suspicious for Borrelia burgdorferi.”

Testing for Lyme disease was positive.

Once the woman began treatment for Lyme disease, her condition improved.

However, “Despite the intermittent use of antibiotics for five years, the patient remains positive for Bartonella henselae and Borrelia burgdorferi.”

If she ceases taking antibiotics, her symptoms recur within 3 months.

Authors Conclude:

  • “This case report illustrates the inadequacy of conventional tests in diagnosing Bartonella spp. infections, and the potential promise of enhanced techniques.”
  • Serology and other antibody-based tests are usually used for Bartonella and Borrelia detection. However, this patient never tested positive through serology but was positive by FISH and PCR testing.
  • “The limitations of serology for detecting an active infection need to be more clearly understood by the medical community.”
References:
  1. Ericson ME, Mozayeni BR, Radovsky L, Bemis LT. Bartonella- and Borrelia-Related Disease Presenting as a Neurological Condition Revealing the Need for Better Diagnostics. Microorganisms. 2024; 12(1):209. https://doi.org/10.3390/microorganisms12010209

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**Comment**

Incredible work here, and it’s easy to see why: the funding for it was independently obtained through the Steven & Alexandra Cohen Foundation and all the authors are serious researchers who are not part of the Cabal.  I know three of them personally and Dr. Mozayeni is a widely known and respected LLMD.  This work would NEVER happen in mainstream research which is completely bought out and untrustworthy.  Ericson, whose son had a severe Bartonella infection, continues to do amazing work:   https://madisonarealymesupportgroup.com/2019/02/27/advanced-imaging-found-bartonella-around-pic-line/

This study shows perfectly what patients have been up against for decades: negative serology, coinfection involvement making the CDC definition meaningless, and transmission by other insects and arachnids.

But, nobody will care about this work except patients and the doctors who dare to treat them.

For more:

Woman With Bartonella Seeks Medical Aid in Dying & Canadian Doctors Revolt Against MAID for Mentally Ill

https://www.lymedisease.org/bartonella-babe-remembrance/

In remembrance of Jake Picker, the “Bartonella Babe”

From Galaxy Diagnostics:

We lost a bright light in the Bartonella patient community on January 20, 2024. Jake Picker, aka the Bartonella Babe, passed away peacefully Saturday evening surrounded by loved ones at her home in California.

At age 30, Jake had struggled for over five years with a gastrointestinal illness complicated by mast cell activation syndrome (MCAS), small intestinal bacterial overgrowth (SIBO) and Bartonella infection. Her mother shared that Jake was increasingly losing tolerance for food, leaving her at only 79 pounds and in constant pain.

After many months of intense struggle, Jake decided to end her torment through medical aid in dying (MAID), which is legal in California as of 2016. It was a heart-breaking choice for such a remarkable young woman but one by which Jake found dignity and peace. She had the full support of her family and loved ones who had witnessed her extreme suffering.

If you are experiencing thoughts of suicide, please call the Suicide Lifeline for your region. In the US, that number is 988.

Galaxy Diagnostics CEO Amanda Elam and Jake Picker speaking together on a remote videMemories by Amanda Elam, Galaxy Diagnostics Co-founder and CEO

After hearing the news, I looked through my email conversations with Jake over the years. We had so many positive interactions. I reached out to members of our team with the news as well. Our hearts are broken by the loss of this exceptional young patient and advocate. With tremendous humor and grace, Jake educated and entertained us all and gave hope to many patients struggling with chronic illness and trying to understand how Bartonella infection might play a role in their symptoms.

Jake was an exceptional and very talented young woman who turned her health struggles into extraordinary disease advocacy. Despite the demands of her illness and her determination to recover her health, she, with two mothers of patients created a Facebook patient forum, Breaking Down Bartonella, for others navigating Bartonella-associated chronic illness and produced an “edu-tainment” series, Bartonella Babe, on YouTube. Everything that Jake did, she approached with thoughtfulness and craft.

Amazingly, Jake took her skills as an actor, powered by research training from her Masters in Gender, Policy, and Inequalities from the London School of Economics, and threw herself into disease advocacy to learn everything she could about the science behind Bartonella, MCAS, and infection-associated chronic illness.

She reached out to me at Galaxy Diagnostics to share her idea for a video series and later for a patient forum. I offered to support her efforts in any way that would be helpful, especially as a guide on Bartonella research publications and a connector to other scientific experts.

Jake took me up on this offer and worked tirelessly with our team and many other experts to learn the science. Lo and behold, Jake proved to be an outstanding student. She devoured every publication, asked loads of questions, and requested calls to work through trickier pieces of the available science. We were repeatedly impressed by Jake’s commitment to excellence and, honestly, amazed by the entertaining video series that she created.

Our thoughts are with Jake’s mother and other family and friends as they mourn her loss. We will deeply miss Jake’s bright spirit and leadership in the Bartonella community.

We are endlessly grateful for all her contributions to building awareness and educating the public on the complexities of Bartonella-associated disease. Finally, we will work harder on our mission and in our work with disease advocates, researchers, and other partners to drive better clinical solutions for patients in Jake’s memory.

Rest in Peace, dear Jake. Your legacy lives on in the hearts and minds of many.

Republished from the Galaxy Diagnostics blog.

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https://slaynews.com/news/canada-forced-stop-euthanizing-mentally-ill-doctors-refuse-comply/

Canada Forced to Stop Euthanizing Mentally Ill as Doctors Refuse to Comply

Canada’s government has been forced to halt its controversial program to euthanize mentally ill patients after large numbers of doctors have refused to participate in the scheme.

Canadian health officials announced that the extension of its “assisted suicide” program, to people suffering solely from mental illness, has been delayed.

As Slay News has reported, Canada has some of the most liberal euthanasia laws in the world.

In recent years, the government has been increasingly relaxing the laws that were originally meant to give terminally ill people an option for dying.

However, the expansion of the laws means people can now be euthanized for far less severe issues such as depressionhomelessness, or mental illness.

The laws have even been expanded to include “mature minors” with a push to expand to infants (See link for article)

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**Comment**

It is a sad state of affairs when Lyme/MSIDS patients, due to lack of proper care and effective treatments, consider assisted suicide.  It’s even more worse when a government is euthanizing the mentally ill, the impoverished, and infants.

Euthanasia accounted for 4% of all Canadian deaths in 2022.
We’ve truly come a long way, baby.

Methylene Blue for Lyme: Dr. Jemsek

http://

Methylene Blue For Lyme

Pharmacist Jay Gill interviews Dr. Joseph Jemsek from the Jemsek Specialty Clinic in Washington DC. Dr. Jemsek treats patients affected by Lyme or other tic born illnesses. In this podcast he talks about his experiences using Methylene Blue for his patients suffering from Lyme Borreliosis Complex.

The podcast will educate you on the history of Methylene Blue and current scientific literature supporting its use for Lyme Disease. While Methylene Blue is not a sole cure for Lyme, Dr. Jemsek has seen great results when used in combination with other Lyme therapies. Dosing, side effects, and contraindications are also reviewed. Interesting to note, low dose Methylene Blue can help with nerve regeneration and may improve mental clarity.

Dr. Gill and Dr. Jemsek both emphasize the importance of using a quality Methylene Blue product. While it can be purchased online, you’d want to ensure you’re receiving the actual prescription-only product by working with an accredited compounding pharmacy.

Go to link for transcript and time markers for topics.

For more:

Fixing Muscle Wasting in Tick-Borne Infections & Mold Toxicity

https://www.treatlyme.net/guide/muscle-wasting-lyme-mold-toxicity-tick-borne-infections

How to Fix Muscle Wasting in Tick-Borne Infections and Mold Toxicity

Causes of Muscle Wasting in Lyme, Tick-borne Infections, & Mold Toxicity

By Dr. Marty Ross

Muscle wasting in tick-borne infections, like Lyme disease, and mold toxicity has a number of different causes.

  1. Increased cytokines from white blood cells fighting the infections or toxins, can lead to muscle wasting.
  2. Decreased physical activity leading to muscle atrophy and loss of muscle mass.
  3. Nerve injury from Lyme and Bartonella leads to muscle mass loss. In addition to sending electric signals that make muscles move, nerves also release chemicals that maintain muscle mass.
  4. Mitochondrial energy factory dysfunction can also lead to muscle mass loss. Mitochondria are the energy factories in each cell.

Fixes for Muscle Wasting

(See link for article)

Methylene Blue For Tick-borne Infections & More

https://www.treatlyme.net/guide/methylene-blue-for-lyme-and-bartonella

Mighty Methylene Blue for Tick-borne Infections and More

By Dr. Marty Ross

Methylene Blue for Lyme and Bartonella Persisters

Methylene Blue Actions–What All The Buzz is About

Methylene blue is a repurposed prescription medicine that has many health benefits. Methylene blue

  • kills Bartonella and Borrelia,
  • improves fatigue and mitochondria dysfunction,
  • fixes cognitive dysfunction and brain fog,
  • lifts depression, and
  • treats methemoglobinemia (this is what it is approved to treat).

All About Methylene Blue for Lyme and Bartonella

Marty Ross, MD discusses key facts, risks, and benefits of using methylene blue to treat Lyme and Bartonella.  (See top link for article and video for how to build a MB treatment)

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Important note:

Caution!

Before starting methylene blue check a glucose 6 phosphate dehydrogenase (G6PD) blood test.  If you have low levels of G6PD, methylene blue could break your red blood cells apart.

If you are on anti-depression medicines or other medicines that raise serotonin, you should also use Methylene blue with caution. Here is a complete list of medicines that the United States Food and Drug Administration (FDA) advises using with caution when using Methylene blue.

In my practice, I have used Methylene blue with a number of these restricted medicines, but I always try to use them at no more than one-half the upper dose limit. Talk to your healthcare provider before taking Methylene blue with these restricted medications.

For more: