Archive for the ‘Activism’ Category

Down But Not Out

http://www.kansas.com/news/local/article112319972.html

In a moving story, the Repps give their story of unconditional love despite the hardship of having both Lyme Disease and Cancer.

Get your hankies, honk 3 times, and learn from the Repps:  DON’T GIVE UP!

Connection of Acute Flaccid Myelitis and Vaccinations

http://www.thevaccinereaction.org/2016/11/acute-flaccid-myelitis-and-routine-childhood-vaccinations-this-is-nothing-new/

Just two weeks after receiving a vaccination, Daniel Ramirez died after being hospitalized for paralysis.

The connection between vaccination and paralysis has been known since the 40’s and 50’s and was written about in The Lancet by Stephen Mawdsley in an article titled, “Polio Provocation: Solving a Mystery With the Help of History.” Mawdsley states:

“The application of epidemiological surveillance and statistical methods enabled researchers to trace the steady rise in polio incidence along with the expansion of immunization programs for diphtheria, pertussis, and tetanus. A report that emerged from Guy’s and Evelina Hospitals, London, in 1950, found that 17 cases of polio paralysis developed in the limb injected with pertussis or tetanus inoculations. Results published by Australian doctor Bertram McCloskey also showed a strong association between injections and polio paralysis. Meanwhile, in the USA, public health researchers in New York and Pennsylvania reached similar conclusions. Clinical evidence, derived from across three continents, had established a theory that required attention.”

So what happened to this theory that piercing the skin during injection drives the polio virus into deep tissue where it then enters the central nervous system where it ultimately leads to paralysis and even death?

Good question.

The theory was essentially proven in 1998 in an article titled, “Mechanism of Injury-Provoked Poliomyelitis,” in the Journal of Virology. Researchers state:

“Skeletal muscle injury is known to predispose its sufferers to neurological complications of concurrent poliovirus infections. This phenomenon, labeled ‘provocation poliomyelitis,’ continues to cause numerous cases of childhood paralysis due to the administration of unnecessary injections to children in areas where poliovirus is endemic. Recently, it has been reported that intramuscular injections may also increase the likelihood of vaccine-associated paralytic poliomyelitis in recipients of live attenuated poliovirus vaccines. We have studied this important risk factor for paralytic polio in an animal system for poliomyelitis and have determined the pathogenic mechanism linking intramuscular injections and provocation poliomyelitis. Skeletal muscle injury induces retrograde axonal transport of poliovirus and thereby facilitates viral invasion of the central nervous system and the progression of spinal cord damage. The pathogenic mechanism of provocation poliomyelitis may differ from that of polio acquired in the absence of predisposing factors.”

The virus associated with the recent hospitalizations is Enterovirus D68, which is not polio per se, but is very similar and is in the same family of enteroviruses. Doctor Alan S. Cunningham, MD, a retired pediatrician wrote about his fear of the possibility of provocation of a polio-like virus due to vaccination in The BMJ in 2015:

“Since August 2, 2014, our Centers for Disease Control has received reports of 107 cases of ‘acute flaccid myelitis’ (AFM), a polio-like illness in children in 34 states. During the same interval there have been 1153 cases of respiratory illnesses associated with enterovirus D-68 (CIDRAP News 1/16/15. CDC update 1/15/15. Catherine Saint Louis, NY Times 1/13/15). AFM affects motor neurons in spinal cord gray matter, resulting in asymmetrical limb weakness; 34% of patients have cranial nerve motor dysfunction. Median age of patients is 7.6 years/range: 5 months-20 years (MMWR 63: 1243–January 9, 2015). So far only one child has fully recovered. EV-D68 is a suspected cause but, thus far, no viruses have been found in the spinal fluid of patients, and only a minority have had an antecedent illness associated with EV-D68. Case-control studies are planned to look for clues, but presently AFM is a mystery disease of unknown cause. It is taboo to suggest a role for vaccines, but some old-timers remember “provocation poliomyelitis” or “provocation paralysis.” This is paralytic polio following intramuscular injections, typically with vaccines. PP was most convincingly documented by Austin Bradford Hill and J. Knowelden during the 1949 British polio epidemic when the risk of paralytic polio was increased 20-fold among children who had received the DPT injection (BMJ 2:1–July 1, 1950). Similar observations were made by Greenberg and colleagues in New York City; their literature review cited suspected cases as far back as 1921 (Am J Public Health 42:142–Feb.1952). I first became aware of PP 10 years ago while browsing through “Krugman’s Infectious Disease of Children” (page 128 of the 2004 edition). AFM may result from a direct virus attack on the spinal cord, or by an immune attack triggered by a virus, or by something else. If a polio-like virus is circulating in the U.S., the possibility of its provocation by one or more vaccines has to be considered.”

Polio provocation resurfaced in the 80’s when vaccination programs in developing countries increased in tandem with more children becoming paralyzed.

The US government chose to continue vaccinating and stated,

“any possible doubts, whether or not well founded, about the safety of the vaccine cannot be allowed to exist in view of the need to assure that the vaccine will continue to be used to the maximum extent consistent with the nation’s public health objectives.”

This is important information to consider for MSIDS patients, since our immune systems are compromised and viruses often play a role in our illness, we need to consider the very probable connection with provoked viruses by vaccines along with our other tick borne infections.

For more information on vaccines, please read: https://madisonarealymesupportgroup.com/2015/06/19/a-word-on-vaccines/

https://madisonarealymesupportgroup.com/2015/07/15/vaccines-continued/

https://madisonarealymesupportgroup.com/2016/04/10/vaccines-made-in-china/

https://madisonarealymesupportgroup.com/2016/04/24/gardasil-and-bartonella/

https://madisonarealymesupportgroup.com/2016/07/19/motor-and-sensory-findings-in-girls-who-received-gardasil/

https://madisonarealymesupportgroup.com/2015/08/12/connecting-dots-mycoplasma/  Written by the Office of Medical and Scientific Justice and substantiating this further:  http://www.whale.to/vaccine/cantwell2.html “One factor common to all the troops is that they were given experimental and potentially dangerous drugs and vaccines employed to protect them against Iraqi chemical and biowarfare agents. As early as December 1990, there were warnings about using our servicemen as medical guinea pigs. In an unprecedented legal decision, the FDA allowed the Pentagon to give unapproved drugs and vaccines without requiring consent of the soldiers. Claiming security reasons, the Pentagon also refused to identify the types or the number of drugs and injections they forced the troops to take… Soldiers who rejected the injections were given them forcibly. Physicians who refused to cooperate with the military’s experimental vaccine program were treated harshly.”

LD Not in Australia: Here We Go Again

http://www.medicalnewstoday.com/releases/313821.php

A recent article in MNT reports emphatically that due to a study: https://www.mja.com.au/journal/2016/205/9/does-lyme-disease-exist-australia, “Classic” Lyme Disease does Not exist in Australia.  Period.  And, don’t even think about it.

Firstly let’s jut cut through the jargon. No such animal as “Classic Lyme Disease,” exists anywhere in the universe. Blanket statements about Lyme Disease are truly foolish as this is one of the most complex diseases known to man. We are talking about a pleomorphic bacteria that shape shifts into 3 possible forms to evade the immune system and drugs, and is a fungal shedder. The spirochetal form can penetrate any organ in the body including the brain where it can cause symptoms similar to what you find in an Alfred Hitchcock film. It recently has been found in microscopic worms and is associated with dementia and Alzheimer’s.
https://madisonarealymesupportgroup.com/2016/06/03/borrelia-hiding-in-worms-causing-chronic-brain-diseases/

This stuff can kill you but before it does, it makes you want to die.  The authors state that Borrelia burgdorferi and the tick that transmits LD, are not found in Australian animals or ticks, yet a quick cursory search shows:

http://www.lymedisease.org.au/about-lyme-disease/myths-surrounding-lyme-disease-in-australia/, that Willis identified the bacteria in Australian ticks in 1995.  Also, Carly and Pope found an Australian strain, Borrelia Queenslandica in 1962. A 1959 study by Mackerras found Borrelia in kangaroos, wallabies and bandicoots, not to mention there is a large number of positively diagnosed LD patients in Australia who have never traveled outside their country. This site also shows that LD is grossly under diagnosed and using estimates based on the US figures that extrapolates cases, approximately 18,000 new cases of LD occur each year, with potentially 378,000 patients in Australia.

http://www.lymedisease.org.au/stats/
Since Australian public health officials do NOT collect statistics on it, the Lyme Disease Association of Australia (LDAA) has collected bi-annual statistics since 2011. An interactive map shows 910 locations with confirmed LD by tick bite location, mainly on the coasts.

If you want good information about LD it seems you have to find it yourself.

The authors also make their bias completely known when they describe the two camps of current thought on persistent LD. In their own words:

  1. The Infectious Diseases Society of America (IDSA), an association of physicians and medical scientists.
  2. The public advocacy group, The International Lyme and Associated Diseases Society (ILADS)  

They purposely describe ILADS as an advocacy group, not a group of medical doctors, researchers, and other qualified, credentialed and legitimate medical professionals.  I have met a fair share of LLMD’s (Lyme literate doctors) who are members of ILADS and they are some of the brightest doctors I have ever had the privilege of knowing.  They might as well have included a picture of wily haired fringe lunatics with raised fists.

Momentary Monologue

I am finding an alarming trend. When I was trained in journalism in the 80’s, we were taught to present facts and let the reader come to his or her own conclusion, unless it was an opinion piece. Everything I currently read has clear bias of the reporter. Just to be clear, in my case, and on this website, I am fighting for patients. The reason for this is clear – they need fighting for. I do not hide my bias but am proud to be on the side of those who are looking at the worldwide literature, research, and are listening to patients who have far better things to do than make up an illness. There must be a counter to the main-stream clap-trap that currently is being peddled about Lyme Disease or MSIDS (multi systemic infectious disease syndrome – or Lyme with friends as research shows few have just Lyme anymore).

This trend of biases is also in the research and medical fields, and is particularly glaring in groups like the CDC, IDSA, and NIH – the folks who are supposed to be protecting the public. They have been charged with protecting the innocent and they have flatly failed. Fueled by patents, conflicts of interest, collusion with research institutions and big pharmaceutical companies these people have completely forgotten their charge.

Back to the matter at hand

The authors then go on to warn of all the false positives in testing for Lyme. Get real. The ELISA test detects only 50-65% of infected patients, and as many state, is no better than a coin toss.  http://www.ilads.org/lyme/lyme-quickfacts.php.  And Dr. Sin Lee in an open Public Comment for the IDSA states, “It is questionable why the [IDSA] insist on using antibody tests to diagnose a bacterial infectious disease, an obvious deviation from the standard practice of clinical microbiology in dealing with Lyme disease which is really a systemic infection with periodic bacteremia.”  http://www.lymestats.org/assets/25_antibody.pdf

Remember now, this isn’t bronchitis, this is a complex illness that can kill you. In fact, from 1999 to 2001, Dr. Martin Atkinson-Barr tested 150 ALS patients for LD and stated,

“Not one patient was found to be negative across all tests. Many were PCR positive. Effective treatment of late stage ALS is possible with aggressive antibiotic therapy that must include Metronidazole. Other researchers have recently reported success in treating early stage ALS with antibiotic therapy.”
https://lymeandals.wordpress.com/item-1-possible-connection-between-als-and-lyme-disease/

According to the CDC you have to be positive on the ELISA before you can test with the Western Blot, a test that 20-30% of acute culture-proven LD patients remain negative on.  Please understand that these tests are made with one spirochete from one strain from one laboratory tick who never saw the outside world, when there are 300 strains and counting of borrelia worldwide and 100 strains and counting in the U.S, with new strains being discovered continually.

Then, the CDC vilifies small labs that specialize in virology and bacteriology and only stand by FDA approved lab monopolies that only report on a few of the bands, ignoring bands that are critical.

Translation: both of these tests suck.

The article then blathers on that to avoid those horrible, nasty false positive test results, Australian physicians should ONLY request tests if there is a well founded clinical suspicion of LD and not in situations of low-pre-test probability. Do you see the circular reasoning here? You are damned if you do and you are damned if you don’t, because after all, LD does not exist in Australia.

They state that a human volunteer was inoculated with B. queenslandica, but without causing disease, so therefore, they state emphatically it is very unlikely that it can induce “classic” LD.  What poor sucker volunteered for that?  And are you honestly going to state that due to the findings of one poor inoculated sucker that it can’t cause disease in others or even that it might not cause disease in this person later?  Wow.  Now, I’ve truly heard it all.

Moving on

They state that “after controvery in the US about chronic LD intensified, patients in Australia began presenting with non-specific symptoms that they related to the putative disorder, such as chronic fatigue, cognitive impairment, myalgias, and arthralgias. These patients were often clustered around a small number of general practitioners who, assessing their symptoms as being consistent with chronic LD, requested laboratory testing. Most tests undertaken in Australian laboratories returned negative results; specimens were then frequently sent to overseas laboratories, often to facilities describing themselves as being specialized for Lyme and associated diseases. Some of these laboratories reported positive results, interpreted by the treating medical practitioner as confirming their clinical diagnosis of chronic LD.”  The article then goes on to blame social media and patient advocacy groups for playing the Pied Piper’s flute and drawing people with Lyme out of the woodwork like Carpenter Ants.

In answer to this – the reason for the patient clustering is that some educated and credentialed M.D’s, general or not, started listening and using their God-given brains. When you are desperately ill, who are you going to see, someone who listens to you and treats you accordingly, or someone who marginalizes you, says it’s all in your head and proceeds to hand you some anti-depressants while your health spirals downward? Duh! Secondly, do you blame very ill patients for finding each other and consoling each other?  You give us no choice.

http://www.abc.net.au/local/stories/2014/05/13/4003802.htm  According to Dr. Hugh Derham, a Perth-based doctor in Australia, Lyme Disease/MSIDS is common but hasn’t been diagnosed because no one is looking for it.  The brightest thing in the article is when someone mentions that ticks could have hitched a ride into Australia with unknowing travelers.  I always chuckle when “authorities” put geographical constraints on ticks and LD.  Until the bird, fox, lizard, mouse, and 100 other reservoirs as well as numerous potential vectors quit crossing state and international boundaries, the potential for LD is everywhere.  Use your brain.  

The good news is the MNT article does state they have finally “discovered” previously unknown pathogens in Australia and when you read the full article in The Medical Journal of Australia, you learn that they mean specifically Babesia as well as a novel Borrelia species in Australian ticks (which they state has not been shown to be pathogenic). Further, they say patients and practitioners believe other pathogens play a role in “Lyme Disease,” such as Babesia, Anaplasma, Bartonella, and Ehrlichia. To which they counter that these microorganisms are not often diagnosed in Australia. More circular reasoning.  Since it isn’t commonly diagnosed, it isn’t there. This argument was used recently to keep children in Arkansas from getting treatment when a local yahoo stated that they had infected ticks but not infected people. https://madisonarealymesupportgroup.com/2016/09/24/arkansas-kids-denied-lyme-treatment/

Why don’t they teach logic and critical reasoning in school anymore?

They then repeat the often repeated mantra of antibiotic overuse. I want to ask them one question. Just one.

If they were sick with a deadly pathogen(s), would they want antibiotics?

Again, they make it sound as if Lyme literate physicians (LLMD’s) callously ignore all their medical training and randomly hand antibiotics out like candy. While I can not speak for all LLMD’s as they have their own approaches, my treatment and my husband’s treatment was a pulsed antibiotic regimen using multiple antibiotics in a combined effort for two weeks then taking a break from all antibiotics for two weeks until we were symptom-free for three to four months (we treated this way for 4.5 years).  In my understanding there is little chance for antibiotic resistance when pulsing multiple antibiotics with breaks, and constantly switching up the meds.

The article summarizes by saying that there is no convincing evidence that “classic” LD exists in Australia (to which I agree because there is no such beast as “classic LD”) and that prolonged IV or oral antibiotic therapy is unjustified and unethical and will do more harm than good, and that immediate treatment solutions for these patients are not available.

Well isn’t that lovely.

I say, wait until you or someone you love gets infected. Your tune will change – I promise.

For your reading enjoyment, here is an article about an IDSA Founder, right here in good old Wisconsin,  who used potent IV antibiotics:  https://madisonarealymesupportgroup.com/2017/07/09/idsa-founder-used-potent-iv-antibiotics-for-chronic-lyme/

http://www.aph.gov.au/Parliamentary_Business/Committees/Senate/Community_Affairs/Lyme-like_Illness/Submissions  Very recently, over 1,200 people submitted illness information to the Senate hearing in Australia.  I think we can safely say that Lyme/MSIDS is indeed in Australia.

Rock on Aussie Lyme/MSIDS patients.  We stand with you.

http://restormedicine.com/lyme-disease-in-australia/

http://www.lymedisease.org.au

https://www.facebook.com/LymeDiseaseAustralia

https://rarediseases.org/organizations/sarcoidosis-lyme-disease-support-australia/

MSIDS Patients: Make Cash Help Research

Talk to your doctor and get:

For the Babesia Microti study:

*evidence of a positive diagnosis within the past 10 years
*Preapproval of PLASMA MedResearch
*After pre approval, go to the Quest Diagnostic Lab closest to you for a blood draw of 2     tubes of blood
*Collect $40

For the Lyme study:

*new diagnosis of less than 4-5 weeks
*Preapproval of PLASMA Med Research
*After pre approval, go to the Quest Diagnostic Lab closest to you and give two units of plasma.
*Collect $1,200

For more information, contact:
Lloyd Sherman
Patient Recruitment Manager
P.   561.717.5210
M.  561.962.5065
lloyd@plasmamed.com
www.plasmamed.com

NPRM – Act Now!

http://www.nvic.org/NVIC-Vaccine-News/September-2016/cdc-wants-to-expand-power-to-eliminate-measles.aspx

  Published on Sep 12, 2016

In one of the worse offenses against your rights yet, the CDC issued a Federal Register notice on August 15th to amend the Public Health Act. This notice states that CDC would like to expand their government police powers to apprehend people who look “unwell”. Public comment is only open until October 14, 2016.

Notice of Proposed Rule Making – or NPRM – involves the participation of federally funded state health departments and state facilities giving police power to detain, isolate and quarantine US citizens.  

You Can Be Fined and Jailed for Disobeying CDC Orders
And if the CDC finds you guilty of disobeying their orders and they believe you transmitted an infection to someone else, you can be fined “$100,000 if the violation does not result in a death, or one year in jail, or both, or a fine of no more than $250,000 if the violation results in a death, or one year in jail or both.” Plus they have added this curious language without explanation: “Violations by organizations are subject to a fine of no more than $200,000 per event if the violation does not result in a death, or $500,000 per event it the violation results in a death.”

By the way, this is about far more than just measles.  The language is frighteningly vague and you could get in trouble for coughing too much on an airplane.

http://www.enhancedonlinenews.com/news/eon/20160913005591/en  If the NPRM becomes law, it will affect American and non-American travelers entering the U.S. or traveling between states, particularly on commercial airlines and ships. The CDC is proposing to enlist commercial airline and other public transportation personnel to step up surveillance on and report “unwell” passengers with rashes, cough, diarrhea and other symptoms of illness.  (oh goody, more surveillance)

If the NPRM becomes law, it appears U.S. health officials could hold a person in custody for 72 hours without the right to contact an attorney to appeal the detention. Detainees could be asked to sign a contract with the CDC that gives consent to the “public health measures” being applied to the adult or a minor child, which may include “quarantine, isolation, conditional release, medical examination, hospitalization, vaccination, and treatment.” However, the NPRM states that “the individual’s consent shall not be considered a prerequisite to any exercise of any authority” by the CDC. After release, the person can be electronically tracked and monitored, including by electronic tracking devices attached to the body.

Are you shaking yet?

This is a HUGE overreach of government power .  Americans have until Oct. 14, 2016 to make public comment to the CDC.

ACTION NEEDED:

1) Contact your U.S. Congressional Representative and both of your U.S. Senators Representatives and ask them to stop this outrageous federal overreach and unnecessary expansion of police powers by demanding the CDC withdraw the proposed rule. To find who represents you in the U.S. Congress and U.S. Senate, register/login to the NVIC Advocacy Portal, https://nvicadvocacy.org/members/Home.aspx, click on the “national” tab on the top of your home page, and the names of your personal U.S. Congressional Representative and your two U.S. Senators will be listed on the right hand side. Click on their names to be linked to all of their contact information. Send your letter by email, fax or regular mail then follow-up with a personal phone call expressing your concerns.

2) Submit public comments with your concerns directly to the CDC on the proposed rule by Oct. 14, 2016 11:59 pm EST.

3) Share this alert with family and friends by forwarding this email or sending them to http://NVICAdvocacy.org on our National page or to our note on National Vaccine Information Center Facebook.

SAMPLE LETTER TO U.S. LEGISLATORS:

Oct. 11, 2016

The Honorable FIRSTNAME LASTNAME
STREET ADDRESS
Washington, D.C. 20515

RE: Notice of Proposed Rulemaking (NPRM) by CDC and HHS Concerning Quarantine
CDC Docket No. CDC-2016-0068
Dear Representative or Senator LASTNAME,

As a constituent of yours, I am writing to you for your assistance. I have serious concerns about an overreaching proposed HHS/CDC Rule that would expand police powers to forcibly detain, isolate, vaccinate and quarantine citizens. This Notice of Proposed Rule Making was published in the Federal Register on 8/15/16 and is currently open for public comment until 10/14/16.

I am asking you to demand that the CDC withdraw this proposed rule for the following reasons:

· The proposed rule is a violation of civil liberties. U.S. health officials could hold a person in custody for 72 hours without the right to contact an attorney to appeal the detention. Detainees could be asked to sign a contract with the CDC that gives consent to the “public health measures” being applied to the adult or a minor child, which may include “quarantine, isolation, conditional release, medical examination, hospitalization, vaccination, and treatment.” The proposed rule states that “the individual’s consent shall not be considered a prerequisite to any exercise of any authority” by the CDC. After release, the person can be electronically tracked and monitored, including by electronic tracking devices attached to the body.

· The proposed rule is a clear case of federal government overreach. Federal and state laws are already in place to address the control of outbreaks of serious communicable diseases. When similar rules have been proposed in the past they have been withdrawn over concerns of civil rights violations and the cost to implement. http://usatoday30.usatoday.com/news/washington/2010-04-01-quarantine_N.htm

The proposed rule has very subjective and unreasonably broad definitions of illness. The proposed rule defines a potentially “ill” person deserving of special government scrutiny to be someone with “areas of the skin with multiple red bumps, red, flat spots or blister like bumps filled with fluid or pus that are intact or partially crusted over,” warning ominously that “the presence of skin rash, along with fever, may indicate that the traveler has measles, rubella (German measles), varicella (chickenpox) meningococcal disease or smallpox.” These definitions (on pages 54239-40) are very subjective and will open the door for travelers to be detained for something as simple as a skin rash while suffering from a bad sunburn, acne, rosacea, eczema, psoriasis, the hives, or severe allergies and a mild fever that could be due to an old fashioned cold. Measles is not Ebola and chickenpox is not smallpox.

Sincerely,

YOUR NAME
YOUR STREET ADDRESS
YOUR CITY, STATE, ZIP
YOUR EMAIL
YOUR PHONE