https://www.lymedisease.org/diagnosis-changed-everything/
“D-Day” and the diagnosis that changed everything
Oct. 21, 2026
By Darlene DiBara O’Connor
A door closed. Then another swung wide open.
Wait.What?
You mean I might not really have ALS? I am not going to die a slow, painful death in my forties? And will still be here to raise my two young sons?
So, wait. Even after seeing 22+ practitioners, undergoing dozens of diagnostic procedures, and having numerous negative Lyme disease tests, I could still have it?
And it could be what is killing me right now?
These were the frantic questions, fraught with confusion and exhausting emotions that swirled in my brain or out of my mouth in that doctor’s office on October 16, 2013. The day after my mother’s funeral. That day that changed the course of my life–and my family’s lives–forever.
That day was what I now call my D-Day. The day that I was finally, properly diagnosed and then, successfully treated, by a brilliant and caring doctor from Connecticut. That visit saved my life, my sons’ lives, and many others in our family and beyond. This altered the course of my life. Forever.
Earlier that week, in the middle of the night, I bellowed the most guttural sobs while I prayed, on my hands and knees on my cold, kitchen floor. I vowed out loud to God, my dying mother’s mother, and the blessed St. Anne, that if WHATEVER “it” was that I really had, and was killing me, was truly revealed to me, I would beat it. And IF, whatever it was, was shown to me, I promised that I would dedicate the rest of my life to helping others with ‘it,’ also.
Oh, it was absolutely revealed to me. And I did get better. A lot better. And I kept my promise. (See link for article)
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**Comment**
Yet another misdiagnosed Lyme/MSIDS patient who got well after getting the proper diagnosis and treatment.
Here’s some more:
- https://madisonarealymesupportgroup.com/2018/06/04/ld-diagnosis-took-forever-because-of-mental-health-stigma/
- https://madisonarealymesupportgroup.com/2017/06/30/child-with-lymemsidspans-told-by-doctors-she-made-it-all-up/
- https://madisonarealymesupportgroup.com/2022/10/06/misdiagnosed-for-30-years-had-lyme-disease/
- https://madisonarealymesupportgroup.com/2026/02/17/lyme-disease-ruined-by-life-i-was-misdiagnosed-with-hypochondria-and-depression-for-over-20-years/
- https://madisonarealymesupportgroup.com/2025/09/22/from-misdiagnosis-to-remission/
- https://madisonarealymesupportgroup.com/2025/10/02/as-my-daughter-got-sicker-and-sicker-our-quest-for-answers-dragged-on-how-did-we-all-miss-lyme-disease/
- https://madisonarealymesupportgroup.com/2020/09/07/after-the-devastation-of-lyme-disease-a-family-finds-healing/
- https://madisonarealymesupportgroup.com/2020/05/16/lyme-disease-awareness-month-kris-kristofferson-was-misdiagnosed-with-alzheimers-memory-loss-was-due-to-ticks/
- https://madisonarealymesupportgroup.com/2019/01/23/never-had-a-single-ms-als-or-parkinsons-patient-in-past-5-years-who-didnt-test-positive-for-lyme-dr-klinghardt/
I could go onto infinity with stories of misdiagnosis. Sadly, we are no better off than we were when it was first ‘discovered’ in the 80’s.
