Calgary family shares dire tale to raise awareness of Lyme disease
May is National Lyme Disease Awareness Month.
Until three years ago, it wasn’t something to which Jordan Bentz or her mother, Julie, ever gave much thought.
But in September 2020, Jordan, then 10 years old, developed a strange bulls-eye-shaped rash on her leg, after a summer of playing outside and taking camping trips.
“It was just like, oh, you know, I have a rash. It’s not really a big deal,” Jordan said.
Jordan’s mother took her to a walk-in clinic in Calgary.
“I Googled it, and a bulls-eye rash came up, which is the hallmark of Lyme disease. I didn’t know a lot about Lyme, but I knew that wasn’t good. And so we took her to a walk-in clinic,” Julie said.
“Because we didn’t see a tick, (they) said oh, there’s no way that she could have Lyme (disease).”
The doctor prescribed Benadryl and the pair headed home. (See link for article)
I can hardly read these stories anymore. The continued medical incompetence and/or denial is more than I can handle.
- Despite the bull’s eye rash, which is diagnostic for Lyme, the 10 year old got progressively worse which is what typically happens and why it’s imperative patients are diagnosed and treated early – not continually ignored and gaslit!
- They, like so many others, were kicked from doctor to doctor without obtaining any help or answers.
- Tests from Germany and the U.S. showed the presence of Lyme as well as other coinfections.
- Treatments have cost them $150,000.
- A researcher from the University of Calgary’s Cumming School of Medicine states:
“It changes its coat and constantly puts on new disguises as time goes by so that your immune system is unable to clear it because a new set of variants has popped up. By the time you get antibodies and clear those, yet another set of variants has appeared.” ~ George Chaconas
- He also states current tests are flawed as they look for antibodies not bacteria and it takes weeks to develop antibodies, which means many will be seronegative.
- CanLyme, The Canadian Lyme Disease Foundation recommends two testing facilities, Armin Labs in Germany and Ingenex Inc. in California.
- The article inaccurately states that only 7% go on to develop long-term persistent symptoms caused by an immunological response rather than a continuing infection. This lie has and will continue to be used against patients and will prohibit further treatment.
- Don’t underestimate Lyme and if you feel like something’s wrong, keep fighting and looking for answers.
If you discover a tick and want to have it identified you can submit an image of it to https://www.etick.ca/. That site also offers a mobile app for both Android and iOS phones.