Madison Area Lyme Support Group

Update: The president signed this into law on Dec. 27, 2020.

From Bonnie Crater, of the Center for Lyme Action:

Congratulations to all you Lyme advocates who played a key role in getting historic increases for Lyme disease funding passed by the House and Senate yesterday.

The Fiscal Year 2021 Omnibus Appropriations bill, which includes a $36M additional Lyme and tick-borne funding or $91M total funding, is on to the President for his consideration and signature.

Here’s what happened

+$10M ($63M total) NEW Lyme disease line item at NIAID. The NIH’s National Institute of Allergy and Infectious Diseases requested an increase from $34M in FY20 to $53M in FY21. While the NIAID budget is almost entirely discretionary, the Senate proposed, and the House approved a $10M mandatory increase on the FY21 budget for Lyme disease making the total $63M.  This mandatory increase is very helpful to our cause because it sets a precedent for an annual line increase that we can work on each year.

+$5M NEW funding for the Kay Hagan Tick Act. The Kay Hagan Tick Act required the CDC to enhance surveillance (expected to be very poor due to Covid-19 distractions at the state level) and to fund the Centers of Excellence for Lyme and tick-borne disease. This budget was added to the vector-borne disease line item. While the Kay Hagan Tick Act recommended larger annual funding ($30M per year over fice years), this initial $5M represents another line item which we work to grow. The good news is that the House-Senate negotiators asked that CDC include an FY22 spending plan for the Kay Hagan Tick Act in their Congressional Budget justification to accompany the President’s FY 22 Budget Request. This will help create some stability and predictability for the Tick Act.

+$2M ($16M total) for the Lyme disease budget for the CDC.  An additional $2M was added to the CDC Lyme disease budget, which will be used for the agency’s prevention programs.

TBDRP funding held steady at $7M.  While the Tick-Borne Disease Research Program did not increase, this important research program with Lyme community input did not decrease.

In total – the federal government plans to spend $91M in FY21 vs. $55M in FY20, a 65% increase in spending on Lyme disease.  Wow!

This number is an historic increase in funding for Lyme disease and yet we are just at the beginning of our journey.  Thank you all for your support and very important participation and contributions!  The meetings, the letters, the emails and more!  Lyme disease is a team sport!

SAVE THE DATE. Now mark your calendar for February 23 from 3-5pm ET and February 24 from 9am – 5pm ET for our 2021 Lyme Fly-In, which will be virtual this year.

We will now begin work on the FY22 budget.

Click here to read about the Center for Lyme Action’s Lyme Moonshot.

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**Comment*

“Insanity is doing the same thing over and over and expecting different results.”

Giving more money to NIAID and the CDC is like throwing sand into the ocean where sharks come along and eat it all.

The CDC and NIAID have not done ONE good thing for patients or doctors who dare to treat them except abuse patients by telling them they are “imagining” their illness and crucify doctors by creating extremely limited diagnostic and treatment guidelines that are then used as criteria for witch hunts.  This hasn’t changed in over 40 years and will now continue.

Why do we give these people more and more tax-payer money when we get nothing in return but heartache?

The polarizing politics over tick-borne illness hasn’t changed. The new IDSA guidelines are even more entrenched than before.  Do not expect any change within mainstream medicine.  They will still abuse patients and they will still consider Lyme literate doctors “quacks.”

Dr. Anthony Fauci, head of NIAID for over 6 presidencies, is the one who doles out research dollars.  He is going to take all this money and give it to researchers who will NOT study persistent infection.  He will NOT support research studying autopsies of those who have succumbed to Lyme/MSIDS by looking at brains and tissues.  He will NOT study and support other tests as CDC employees own the patents and are profiting from the CDC 2-tiered testing.  Expect a lot more climate data – which has been proven to be a mute point in tick proliferation.

Yet, they now have a bigger pot of money to spend.  Don’t expect anything in return.