Long-term sequelae and health-related quality-of-life associated with Lyme disease: A systematic review
Patients with LD are more likely to report non-specific long-term sequelae, especially those experiencing persistent symptoms post-treatment. Opportunities exist for prospective longitudinal studies to better understand LD outcomes.
For a great read on this PTLDS issue: https://madisonarealymesupportgroup.com/2019/02/25/medical-stalemate-what-causes-continuing-symptoms-after-lyme-treatment/
10-20% of Lyme disease patients who are promptly diagnosed and treated with an antibiotic within the first few weeks of infection, still end up with chronic disease. This is PTLDS.
30-40% of Lyme disease patients who have been infected for weeks to months before getting diagnosed, and THEN treated with an antibiotic, still end up with a chronic disease. This subgroup has no specific label but it has been referred to as “chronic Lyme disease,” or CLD.
60% OF LYME PATIENTS END UP WITH CHRONIC SYMPTOMS
Combining these two subgroups implies that up to 60% of people with Lyme disease will experience chronic illness as a result of this tick-borne disease.
Notice that authorities have only been including those diagnosed and treated early in their PTLDS group. They have NOT be counting those diagnosed and treated late – which is far more common and constitutes nearly every patient I work with including myself and my husband.