Archive for June, 2019

‘It Was a Terrifying 12 Hour’: 7-Year-Old Temporarily Paralyzed by Toxins From a Tick Bite

https://www.dailymail.co.uk/health/article-7176839/It-terrifying-12-hours-7-year-old-temporarily-paralyzed-toxins-tick-bite.html

‘It was a terrifying 12 hours’: 7-year-old temporarily paralyzed by toxins from a tick bite

  • Jenna Ganahl, seven, went to her first overnight summer camp in Colorado and came home with a few ticks in her hair 
  • Her mother, Heidi carefully plucked them out 
  • But part of one tick must have still been in the wound on her daughter’s scalp, where it transferred a neurotoxin to the littler girl
  • About 10 days after returning home, Jenna’s feet felt like they were ‘asleep’ 
  • She was diagnosed with the rare ‘tick paralysis’ that can cause a form of temporary paralysis in people bitten by female ticks carrying eggs 
  • The paralysis subsides after the tick is fully removed, and Jenna is now fine – though experts warn it will likely happen more as the globe warms  

A week-and-a-half after her first ever overnight summer camp, Jenna Ganahl, seven, couldn’t feel her legs.

It seemed at first like her legs had just gone to sleep, as everyone’s occasionally do if we sit too long, but the next morning, the little girl’s legs still didn’t seem to work.

Her mother, Heidi, was terrified and rushed her daughter to the doctor.

Heidi had no idea what could do such a thing to her energetic, healthy little girl, and never would have guess the diagnosis doctors ultimately gave them: tick paralysis. 

She’d had no idea that the few tiny parasites embedded in Jenna’s hair when she got back from camp could do such a thing, according to Heidi’s Facebook post.

And the physicians warned that Colorado’s unusually warm, wet summer could mean more kids are at risk for temporary paralysis.

Heidi Ganahl (left) plucked several ticks from her daughter, Jenna's (right) head after the seve-year-old got home from camp, but a tiny piece of one of the bugs left in the little girl's scalp caused her to develop rare, temporary tick paralysis

Heidi Ganahl (left) plucked several ticks from her daughter, Jenna’s (right) head after the seve-year-old got home from camp, but a tiny piece of one of the bugs left in the little girl’s scalp caused her to develop rare, temporary tick paralysis

The US is getting warmer and wetter as climate change alters our environment.

That’s good news for populations of deer, dog and blacklegged ticks, and bad for the people and pets they like to prey on.

Dealing with a tick bite is mostly just itchy and unpleasant as they have to be carefully plucked from the skin where they bury their heads to gorge themselves on the blood of mammals.

But as the number or ticks living and feeding in the US grows, so does the number of people sickened by the parasites.

In fact, in 2017, tickborne illnesses struck a record-shattering 59,349 people, according to the Centers for Disease Control and Prevention’s latest data.

Those diseases include the dreaded Lyme disease, Rocky Mountain spotted fever, Powassan virus, tularemia, and anaplasmosis/ehrlichiosis.

But one illness is caused not by a bacterial or viral species the ticks carry, but by a compound from the animal itself.

Ticks’ saliva contains a neurotoxin that can seep into the human bloodstream if you get bitten by a tick.

There are 40 species of the parasite that carry the immobilizing toxin, according to the American Lyme Disease Foundation.

Interestingly, the toxin seems to be present in a female tick that’s carrying eggs and reaches a human when she bites and attaches to a host to feed.   

But it’s a slow process.

Paralysis may not set in for five to seven days after the tick attaches, and it may not start as paralysis, but as fatigue, weakness, numbness and muscle pain.

Jenna had numbness, that feeling of her legs being ‘asleep.’

Her mother, Heidi, ‘had a bad feeling’ and took her to the doctor.

She told the the doctors about the ticks she’d found in Jenna’s hair after summer camp and that she’d plucked them out.

The saliva of female ticks carrying eggs (not pictured) may contain a paralyzing neurotoxin. If any little bit of the parasite is not removed carefully and cleanly, the toxins may continue to seep into the host body, causing paralysis in rare cases

The saliva of female ticks carrying eggs (not pictured) may contain a paralyzing neurotoxin. If any little bit of the parasite is not removed carefully and cleanly, the toxins may continue to seep into the host body, causing paralysis in rare cases

Jenna told her mother she had had enough of the woods for awhile after her encounter with the rare tickborne illlness

Jenna told her mother she had had enough of the woods for awhile after her encounter with the rare tickborne illlness

But after careful inspection, the doctors found a tiny fragment of a tick that had been left behind when Heidi had removed the bugs.

‘It was only caught because of the great docs (most CU School of Medicine) that recognized the similarities to two other cases in recent weeks there (it’s extremely rare so it was very abnormal to see 3 cases in 3 weeks),’ Heidi wrote on Facebook.

This tends to be the way of tick paralysis – it comes in periodic waves, likely when weather conditions are optimal for ticks to fertilize or lay their eggs.

‘It was a terrifying 12 hours as we waited to see if they were able to remove the tiny bit of tick left in her producing the toxin had been cleaned out of the wound (they didn’t see it),’ wrote Heidi.

‘The only fix is to get it out or things get very bad.’

In about 12 percent of untreated cases, the patients die.  But, fortunately, once the tick is removed the toxin stops flowing to the person and paralysis subsides.

‘She is ok!’ Jenna’s mother wrote.

‘Other than never wanting to go in the woods again.

‘I learned more about ticks than I ever wanted to know – the wet weather makes for a bad tick season, check your little ones often, if you find one remove them with tweezers and scrub the wound to clean it out thoroughly with soap and water to make sure you get it all, then watch for symptoms for 14 days. Take it seriously this year.’

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**Comment**
Again, the climate has nothing to do with this. Ticks are marvelous ecoadaptors and will be the last species on the planet besides the IRS:  https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/

“The climate change range expansion model is what the authorities have been using to rationalize how they have done nothing for more than thirty years. It’s a huge cover-up scheme that goes back to the 1980’s. The grandiose scheme was a nefarious plot to let doctors off the hook from having to deal with this debilitating disease. I caught onto it very quickly. Most people have been victims of it ever since.  This climate change ‘theory’ is all part of a well-planned scheme. Even the ticks are smarter than the people who’ve concocted this thing.  Climate change has nothing to do with tick movement. Blacklegged ticks are ecoadaptive, and tolerate wide temperature fluctuations…..It’s all a red herring to divert your attention.”- John Scott

It’s also a ruse to obtain research dollars.

Who Owns the ELISA Patents…

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Credit: Tom Grier https://www.facebook.com/thomas.grier1

“I am Barbara Johnson. I am a biochemist by training and I am speaking today on behalf of the Centers for Disease Control and Prevention concerning serodiagnosis of Lyme disease. Specifically, my statement is in support of (the) IDSA recommendation in the guidelines to use two-tiered serology (an ELISA screening test followed by Western Blots if ELISA positive) to support the diagnosis of Lyme disease in patients who have manifestations other than acute erythema migrans.  – IDSA Lyme Disease Review Panel Hearing, July 30, 2009

For more dirty deeds done dirt cheap: ConflictReport

 

 

IDSA, AAN, & ACR 2019 Draft Lyme Guidelines – Public Comments Allowed Until Aug. 10, 2019

 

Public Comment Period Now Open

The Infectious Diseases Society of America (IDSA), American Academy of Neurology (AAN), and American College of Rheumatology (ACR) are now accepting comments on the “2019 Draft Guidelines for the Prevention, Diagnosis and Treatment of Lyme Disease.”

They are looking for feedback from not only physicians and healthcare professionals, but also individuals affected by Lyme disease, such as patients, care givers, patient organization members, advocates, and researchers. The drafts and comment form will be available for 45 days.

To view the draft guidelines, supplementary materials, and submit comments, please see below.

2019 Draft Guidelines for the Prevention, Diagnosis and Treatment of Lyme Disease

2019 Draft Supplement Materials for the Prevention, Diagnosis and Treatment of Lyme Disease

Submit comments:  https://www.surveymonkey.com/r/7HG3XCQ

Deadline for Public Comments

August 10, 2019, 5PM ET

On page one, it is stated that these “guidelines” are not intended to replace doctor judgement and that adherence to the “guidelines” are voluntary.  They also give a caveat that there is no assurance of accuracy & reliability within these “guidelines,” and that the authors are not liable for loss, damage, or claim.

Please read and send comments by August 10, 2019. This needs to be sent around the world.

Please, get this into hands that are affected by it.

Fibromyalgia Diet: What to Eat, What to Avoid

https://www.holtorfmed.com/fibromyalgia-the-diet-connection/?

Fibromyalgia Diet: What to Eat, What to Avoid

Fibromyalgia Diet: What to Eat, What to Avoid
Fibromyalgia is a complex pain disorder characterized by muscle pain, joint stiffness, and fatigue. It affects over ten million Americans, (4% of the population), primarily women. Although there is no known treatment that works for everyone, following a healthy diet by eliminating processed foods, caffeine, aspartame (artificial sweetener), food additives and nightshades may reduce the symptoms.

Fibromyalgia (FM) is a very real condition that affects millions of Americans and its symptoms include chronic widespread pain, fatigue, sleep disorders, joint pain, problems with cognitive functioning, migraines, IBS (irritable bowel syndrome), anxiety, depression, and environmental sensitivity – learn more about fibromyalgia symptoms here.

Unfortunately, FM is a condition rather than a specific illness and presents itself as an array of complex symptoms; believed to be caused by biological, psychological, and environmental factors and there is no specific universal treatment for the condition.

Sufferers of FM may be able to find some relief by following a healthy diet, which includes eliminating some foods while adding or increasing others. Kent Holtorf, M.D., Medical Director of the Holtorf Medical Group says,

“We’re at the point now where we know diet plays a role in this disease – it’s just the same diet for everybody. And not everybody is helped in the same way.”

However, there are a number of secondary health conditions such as gluten intolerance, gout (a form of arthritis), and restless leg syndrome that coexist with fibromyalgia causing an overlapping of symptoms or exacerbating the FM symptoms. Treating secondary conditions through dietary control may also bring some relief to the pain and fatigue brought on by fibromyalgia.

Foods to Avoid When You Have Fibromyalgia

Due to the nature of fibromyalgia that it is non-specific condition, these dietary guidelines may not be right for all FM sufferers but appear to make a difference for a significant number of those suffering.

1. Aspartame (NutraSweet)

Aspartame is classified as an excitotoxin, which stimulates NMDA pain receptors, which are already overly active with fibromyalgia.

2. Food additives including MSG (monosodium glutamine) and nitrates

MSG is an additive or flavor enhancer and nitrates are preservatives. Both are found in many processed foods and are also classified as an excitotoxin. Nitrates and MSG can often difficult to tolerate in people without fibromyalgia and are extremely difficult to tolerate in those who do.

3. Sugar, fructose, and simple carbohydrates

There is not clear evidence that cutting out simple carbohydrates will have an impact on fibromyalgia but it will reduce symptoms of chronic yeast infection, which may be a secondary condition contributing to the pain of fibromyalgia.

High fructose corn syrup, which is found in carbonated beverages, is prone to cause a metabolic reaction resulting in much more sugar pouring into the blood at a quicker rate. The quick rise is followed by a fast fall with can exacerbate the fatigue element of fibromyalgia.

4. Caffeine – including coffee, tea, colas, and chocolate

Caffeine does create a boost in energy; however, it is followed by a longer and deeper sedative effect. People with fibromyalgia already suffer from fatigue therefore amplifying the downside.

5. Yeast and gluten

Yeast and gluten are frequently found together, particularly in baked goods. Cutting both out can have equal benefit. Cutting yeast out of a diet may yield yeast fungus overgrowth, which may cause or exacerbate joint and muscle pain. Cutting gluten can improve digestive problems, stomach ailments, and fatigue associated with fibromyalgia.

6. Dairy

Dairy has been known to aggravate symptoms in some fibromyalgia sufferers but not all. If avoiding diary does not seem to relieve symptoms, then drinking skim milk provides calcium to build bones and protein to build muscle.

7. Nightshade Plants

Common nightshade plants include tomatoes, chili, bell peppers, potatoes, and eggplant. However, there are over 2,000 other varieties of “nightshades.” Edible nightshades can trigger flares on various types of arthritis and symptoms associated with fibromyalgia. If by eliminating nightshades there is no noticeable relief from symptoms of FM, then bring them back into your diet because these are some of the most nutritious vegetables.

Important Dietary Changes for Fibromyalgia Patients

Nutritionist, Samantha Heller, MS, RD, says, “When you body is healthier overall, you may be better able to cope with any disease, and better able to respond to even small changes you make.” A vegetarian diet consisting mostly of raw whole foods has shown to reduce symptoms caused by fibromyalgia. It also produces improvement of mitochondria dysfunction, which according to Holtorf, “This is the area of the cell where energy is made. Consequently, it’s necessary to have high levels of nutrients to get the mitochondria to work and for energy to by produced.”

Included in a healthy diet should be a high-quality vitamin supplement as well as supplements containing omega 3 fatty acids – we recommend HoltraCeuticals’ Ultra Omega – and eating “good fat” foods such as foods rich in fish oil, flax seed, walnuts, some fortified cereals and eggs. All of which have been show to have an impact on inflammation.

At Holtorf Medical Group, our physicians are trained to utilize cutting-edge testing and innovative treatments to uncover and address the underlying cause of fibromyalgia. Additionally, our Health and Nutrition Coach can work with you and your Holtorf physician to create a diet specifically for you! If you are experiencing symptoms of fibromyalgia, but aren’t getting the treatment you need, call us at 877-508-1177 to see how we can help you!

Resources

1. Kent Holtorf, MD. “A Confounding Condition.” https://www.holtorfmed.com/download/chronic-fatigue-syndrome-and-fibromyalgia/A_Confounding_Condition.pdf
2. Kent Holtorf, MD. “Chronic Fatigue Syndrome and Fibromyalgia; Now Treatable Diseases.”https://www.holtorfmed.com/download/chronic-fatigue-syndrome-and-fibromyalgia/Chronic_Fatigue_syndrome_and_Fibromyalgia_now_treatable_diseases.pdf
3. Kent Holtorf, MD. “Fibromyalgia: The Diet Connection.” https://www.holtorfmed.com/download/chronic-fatigue-syndrome-and-fibromyalgia/Fibromyalgia__The_Diet_Connection.pdf

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For more:  https://madisonarealymesupportgroup.com/2019/01/08/wahls-protocol-impact-of-diet-nutrition-in-ms-other-neurological-diseases/

https://madisonarealymesupportgroup.com/2018/08/15/whats-the-best-diet-for-lyme-disease-dr-rawls/

https://madisonarealymesupportgroup.com/2018/05/15/overview-of-anti-inflammatory-diets/

https://madisonarealymesupportgroup.com/2018/04/18/comparative-diets-to-address-chronic-inflammation/

https://madisonarealymesupportgroup.com/2018/02/03/do-these-popular-diets-make-you-nutrient-deficient/

https://madisonarealymesupportgroup.com/2018/01/03/the-invisible-universe-of-the-human-microbiome-msm/

 

Jennifer Crystal Interview: “One Tick Stopped the Clock”

 Approx. 45 Min.

Jennifer Crystal: “One Tick Stopped the Clock”

Published on Jun 24, 2019

In this video I interview Jennifer Crystal who teaches creative writing in Massachusets and Vermont and writes a column at www.globallymealliance.com.
She has just finished a book called One Tick Stopped the Clock about her experiences with Lyme Disease.
As most people who have suffered with Lyme, Jennifer spent almost 10 years going through the wringer trying to figured out what was going on with her health. Jennifer popped up on my radar as I was doing some research on circadian rhythms and Lyme disease.
Latent infections that pop up randomly just scream circadian rhythms to me. I found a blog of hers detailing how changing the clocks would cause a relapse of her symptoms as she was battling with Lyme. Then I found another on how sticking to a schedule was part of her routine. Jennifer spent 8 years being misdiagnosed, but this story has a happy ending: She’s been in remission for 12 years. She didn’t find the magic pill we’re all hoping for, but what she found was a way to conquer Lyme disease following her own path.
We discuss what she did, the mindset she needed to find, and a little bit about how finding the right sleep doctor who clued her in to the importance of circadian rhythms got her to where she is today. Her experience is very relatable to anyone who has had a chronic condition, and I think many will get tremendous benefit from this interview and her book, coming soon.
Her book is meant to encourage people with any sort of adversity in life to find their way.
As a patient advocate, her hope is also to bring attention Lyme disease and the people affected by it.
If you’d like to contact Jennifer on the internet or on social media, you can find her at: www.jennifercrystal.com lymewarriorjennifercrystal@gmail.com IG: lymewarriorjennifercrystal Twitter: @writerjcrystal
Her blog Falling Back: It’s not real can be found here: https://globallymealliance.org/fallin…
Her blog Scheduling life with Lyme can be found here: https://globallymealliance.org/schedu…
Her sleep doctor in Great Barrington, MA is Ed O’Malley who runs a clinic focusing on holistic health. You can find info at: https://youroptimalnature.com Information on Neuroptimal, the neurofeedback program she did can be found here: https://neuroptimal.com
She is currently seeking representation for her second book, One Tick Stopped the Clock, a riveting memoir that explores questions of identity and belonging through the lens of a young person whose life has been involuntarily interrupted.