As we are entering another April, you hardly hear much about Autism Awareness (guess everyone that counts IS aware of this terrifying pandemic), and you certainly do not hear about any better answers (medical or otherwise) for parents now, than when Autism Speaks (Feb. 2005) and so many parent groups sprang up to “help “
Why has there been no real help, no real changes in 24++ years?
Sadly, it’s getting easier and easier to explain why. Over all theses year, neither those in charge of our present medical system (impossible to be innocently misdirected at this time) or these groups have wanted to admit the truth; A terrible mistake was made (and still being perpetuated), these children must have a medical disease, because most have organic (medical – motor) issues, and for the reason below do not fit or qualify for what IS being called “autism.”
IF multiple times over in the 40s, 50s, 60s, Dr. Kanner and other worldwide prominent psychiatrists argued, stood up, and fought for the idea this new idea of “autism” was unique from other childhood schizophrenias; AND unless a child met the strict criteria set up, a child did not have “autism”!!!
As discussed, many times, those strict criteria included:
- a child was never affectionate(never in our world to be affectionate)
- a child was never normal (part of never being in our world, connected, etc.) and critically
- if there was an organic finding (i.e. motor issues) one could not be given a psychiatric, DSM label.
IF the system won’t change, the organized groups won’t change, how many of you as parents are ready to finally change, ready to come together in the one fight NEVER done over ALL these years. Your children are ill, they do not have a DSM, psychiatric, developmental label called autism and you want immediate medical help for your children, a medical crisis that has been completely ignored for well over 24++ years.
If enough of you can come together, create a new organization focused on the right solution (starts with this is NOT autism), this April could be the start of real hope for all of you and your families. IF not, sadly safe to say, nothing is going to change . . . hope that statement is finally unacceptable to many more of you. You and your children deserve a lot more, and a real change for a better future . . . not same old, same old.
Michael Goldberg, MD
Dr. Goldberg makes very important and valid points. Without the correct definition, patients can not get appropriate treatment.
This is true in the Lyme/MSIDS world as well. Mainstream medicine is calling this complex illness “Lyme Disease,” when it typically is so much more than that.
Research has proven this is typically a polymicrobial illness causing a wide range of symptoms – each necessitating different treatment: https://madisonarealymesupportgroup.com/2018/10/30/study-shows-lyme-msids-patients-infected-with-many-pathogens-and-explains-why-we-are-so-sick/
Mainstream medicine also hasn’t admitted that borrelia alone is a formidable foe that is pleomorphic requiring different medications for each form: https://madisonarealymesupportgroup.com/2019/04/05/ability-of-stationary-phase-persister-biofilm-microcolonies-of-borrelia-burgdorferi-to-cause-more-severe-disease/
They also push the “classic EM rash” criteria, when far fewer get it than is being touted: https://madisonarealymesupportgroup.com/2019/02/22/why-mainstream-lyme-msids-research-remains-in-the-dark-ages/ Nearly ALL research being done uses the EM criteria as a starting point, leaving out thousands of patients.
Mainstream research on Lyme/MSIDS has used abysmal blood serology testing for decades, suppressing direct detection methods: https://madisonarealymesupportgroup.com/2018/10/12/direct-diagnostic-tests-for-lyme-the-closest-thing-to-an-apology-you-are-ever-going-to-get/ Again, this leaves out thousands of patients in research.
And, importantly, there’s far more at play than the vilified black legged tick: https://madisonarealymesupportgroup.com/2019/04/02/transmission-of-lyme-disease-lida-mattman-phd/
Mattman isolated living Borrelia spirochetes in mosquitoes, fleas, mites, semen, urine, blood, plasma and Cerebral Spinal Fluid. She discovered that this bacteria is dangerous because it can survive and spread without cell wall (L shape). Because L-forms do not possess cell wall, they are resistant to antibiotics that act upon the cell wall.
Others have found various ways Bb is transmitted as well:
- Burgess could infect cats with Bb orally, ocularly, and via IV
- Bb oral infection in mice with subsequent transmission to deer ticks: https://www.researchgate.net/publication/19334437_Oral_Infection_of_Peromyscus_maniculatus_with_Borrelia_burgdorferi_and_Subsequent_Transmission_by_Ixodes_dammini
- Contact transmission in dogs: https://www.researchgate.net/publication/19606769_Experimental_inoculation_of_dogs_with_Borrelia_burgdorferi …. dogs can be subclinically infected with B. burgdorferi and have persistent infections.
- Lischer found Borrelia burgdorferi in synovial fluid and cow’s milk
THE CDC/IDSA/NIH STILL HAVEN’T RECEIVED THE MEMO or are ignoring it