Madison Area Lyme Support Group

Microbiologist Tom Grier – Talk Reminder April 19, 2017

https://madisonarealymesupportgroup.com/2017/03/20/microbiologist-tom-grier-to-speak-in-april/  Please see this link for details on talk on April 19, at 6:00 p.m. at the Superior Public Library in Minnesota.

This slide prepared by the Dr. Paul H Duray Pathology Research Fellowship shows Borrelia myamotoi in the blood.

As a rule the Tick Borne Relapsing Fevers allow the Borrelia bacteria to remain in the blood-stream in higher numbers and for longer periods of time than Lyme disease (Borrelia burgdorferi) The current Blood serologies including the much promoted C6-Peptide ELISA test cannot detect B. myamotoi or any of the Relapsing Fevers, but more importantly the ELISA and Western Blots cannot detect 9 other “Lyme Disease Species” including several newer species in Minnesota, B. bissettii, B, americana, B. mayonii, Excluded are also: B. afezili , B garinii, B valaisianna, B. lusitanaea.  This is bad because people travel. If you get Malaria in Costa Rica we still expect our doctors to diagnose it, so why not Borrelia amricanna?

Our Research Lab has proprietary immune fluorescent DNA probe stains (FISH Stains for 3 species of Borrelia including Borelia mayonii.  Without our B. myamotoi stain the patient below who tested negative for B. burgdorferi would have never been diagnosed with B. myamotoi. Unfortunately she already had dementia, and our 112 Alzheimer Brain-Bank samples showed that B. myamotoi is the most common pathogen we could find in the human brain with dementia. We have been providing our evidence of B. myamotoi in the human brain since 2012, but now Drexel University and Johns Hopkins Medical are replicating our work.   Sadly, our FISH stains are picking up B. burgdorferi in brain and blood of patients who have tested negative with serology Lyme testing. 

This patient is referred to as a positive control for staining because this logger of 40 years from TWIG MN had two species of Borrelia in his brain, heart and testicle, and other tissues and fluids.  B. mayonii in his testicle is the only B. mayonii we have come across in any sample!

Tom Grier

donatebrain@gmail.com

218-728-3914

For more on Grier’s work:  https://madisonarealymesupportgroup.com/2016/12/19/microbiologist-tom-grier/

Revolution For Truth Protest – Friday March, 31, 2017 in Washington

http://www.thevaccinereaction.org/2017/03/revolution-for-truth-few-causes-more-fundamental-2/  by Marco Cáceres

Revolution for Truth: Few Causes More Fundamental

Published March 29, 2017

As Americans become more informed and better educated about health, medicine, and nutrition and, increasingly, take more responsibility for decisions in these areas, they are starting to realize that the science they’ve been assured is settled is far from settled.
There is an upcoming protest in Washington, DC that, while it has received infinitely less coverage than other protests in our nation’s capital this year, may easily be the most important and urgent of all. It is the Revolution for Truth rally that will be held Friday, Mar. 31, 2017 at 1 pm at the JW Marriott Hotel (the forecasted rain has changed the rally location that was originally to be held at Union Square on Capitol Hill to the JW Marriott Hotel, 1331 Pennsylvania Avenue, Salons D & E).

The protest will “call on elected representatives in state legislatures and Congress to protect parental rights and civil liberties, and to restore transparency within government agencies responsible for ensuring the public health and safety in America.” The call also goes out to the “corporatized mainstream media for manufacturing ‘fake news’ that distorts the truth about environmental toxins, unsafe food and vaccine risks, which endangers our right to know and freedom to choose how we protect our health.”

There is a strong theme underlying this protest event, that will also include a demonstration outside the National Press Club at 11 am, which emphasizes how the mainstream media has failed the American people, as well as people around the world, with regard to investigating the health risks of “certain foods and of medical and pharmaceutical products,” including vaccines.

There is serious concern that, with regard to the foods and pharmaceuticals we consume, the media has become little more than an “instrument of government directed propaganda for the industries that have captured government agencies, and who profit by adversely affecting the health of the American people.”

According to the organizers of the Revolution for Truth rally:

The time is now for the press to publish the truth regarding the risks and benefits of the substances that can and do affect our health and our environment, to publish the truth regarding scientific fraud committed by our government agencies, and to publish the truth regarding corruption in government.

Speakers at the rally will include: Robert F. Kennedy, Jr., Barbara Loe Fisher, Minister Tony Muhammad, Del Bigtree, Brian Hooker, PhD, Paul Thomas, MD, Judy Mikovits, PhD, Toni Bark, MD, Marcella Piper-Terry, Kent Heckenlively, Diane Hennacy Powell, MD, Sheila Lewis Ealey, Jennifer Margulis, PhD, Zen Honeycutt, Robert Moxley, Tami Canal, Sherrie Saunders, Jim Turner, and Alexis Baden-Meyer.

While there appears to be a consensus within medical trade associations, government public health agencies, and the mainstream media that science, for example, has shown that vaccines are safe, the fact is there exists a vibrant and growing national debate in the U.S. on this question. As a recent headline in Healthline News attests, “The Debate Over Vaccine Safety Is Far from Over”.

As Americans become more informed and better educated about health, medicine, and nutrition and, increasingly, take more responsibility for decisions in these areas, they are starting to realize that the science they’ve been assured is settled is far from settled. More to the point—that we have not been told the truth by those who we rely on to be truthful.

The Mar. 31 rally will not involve the big numbers that have been seen at more recent rallies on Capitol Hill but it would be a mistake to misinterpret that fact as truly reflective of the size of the ever increasing numbers of Americans who are becoming enlightened about environmental risks to their health. It is worth noting that a significant number of people who would otherwise be at the event will be at home caring for children and other relatives who have been sickened or injured by the toxins in our environment, foods, and pharmaceutical products.

The truth is that America is a very sick nation and, to a large extent, it is sick precisely because of things we are doing to ourselves and each other. Half of all adults in the U.S. suffer from one or more chronic health conditions. About one-third of adolescents suffer from at least one chronic health condition. One in two children suffers from a chronic health condition.

That’s a lot of people who will be represented at the Revolution for Truth rally. There are few causes more fundamental than the health of our population and the rights of each of us to make our own informed and independent decisions with respect to our bodies and those of our children.

Petition to End Preferential – IDSA Lyme Guidelines

https://www.change.org/p/u-s-department-of-health-and-human-services-enact-rule-to-end-preferential-treatment-of-idsa-guidelines-for-lyme-disease  Please consider signing this “citizen petition” to recently confirmed HHS Secretary Tom Price that calls on him to take action to end CDC’s preferential treatment of the IDSA guidelines for Lyme disease.

This petition was filed in accordance with the Administrative Procedure Act (APA), which governs the conduct of the federal government. APA petitions function as legal instruments and agencies are required to rule on them in a timely manner. If a petition is denied, they must include a statement of the grounds for denial.

This petition is similar to one that was filed directly with CDC in August 2016. CDC has declined to act on that petition, which is the reason we are going above them to the HHS Secretary. As the HHS Secretary, Price has authority to end the preferential treatment with a memorandum of action to the CDC Director.

Summary of Petition

CDC provides preferential treatment to IDSA by endorsing and promoting IDSA’s 2006 guidelines for Lyme disease, which are not compliant with current standards and are not listed by the National Guidelines Clearinghouse (NGC), while withholding information from the medical community, the insurance industry, and the general public, about more current guidelines from the International Lyme and Associated Diseases Society (ILADS) published in 2014 that are fully compliant with current standards and listed on the NGC.

CDC’s preferential treatment of IDSA adversely impacts the health of thousands of chronically ill patients who are harmed by misdiagnosis and denial of medically necessary treatment because of restrictions imposed by the IDSA guidelines. CDC’s failure to provide equivalent exposure for the ILADS guidelines compounds the harm by limiting access to information about evidence-based treatments that could help these severely ill patients recover from this devastating disease.

In addition to harming patients, CDC’s preferential treatment of IDSA violates the Standards of Ethical Conduct for Employees of the Executive Branch, which states:

“Employees shall act impartially and not give preferential treatment to any private organization or individual.”

Especially troubling is that CDC officials who provide and defend the preferential treatment are also members of IDSA, the organization receiving the preferential treatment.

Why This Petition Can Make a Difference

A reason to be optimistic is that Price is a member of Association of American Physicians and Surgeons (AAPS), which is opposed anything that restricts the practice of medicine. In 2009, the AAPS wrote an open letter to the IDSA criticizing its guidelines for Lyme. Below is an excerpt.

“AAPS objects to the overly rigid IDSA Lyme Guidelines that were published in 2006. . . These Guidelines should be revised to recognize that the physician must retain full flexibility in the diagnosis and treatment of Lyme disease. Medical societies do not practice medicine; physicians do. The mandate for specific laboratory confirmation is particularly objectionable, as testing for Lyme disease is notoriously insensitive and unreliable. Patients who do not meet this criterion would often be denied treatment that could mitigate severe chronic disability. In some cases, long-term treatment is required. Physicians must be able to exercise their professional judgment concerning the best treatment for each individual patient, without restraint by one-size-fits-all Guidelines, which amount to mandates and prohibitions.”

Given Price’s membership in AAPS and his public statements, it would be unlikely that he will allow CDC’s preferential treatment of IDSA to continue once it’s brought to his attention.

A hardcopy of the petition and a letter requesting an expedited ruling have been sent via certified mail to Secretary Price and to the HHS Office of General Counsel.

We have a limited amount of time before the new IDSA guidelines come out and weaken our position, so we need to do everything we can to get the attention of the new leadership at HHS. (Click blue link at top of article to sign petition)

**Please sign and share**