Archive for the ‘Treatment’ Category

The Detox Project

http://thedetoxproject.com

Dr. Jay Davidson is hosting a free on-line summit called The Detox Project from September 26th – October 3 2016.  You can sign up by clicking the link above.

MSIDS sufferers require treatment that not only kills pathogens but is also able to clear these dead pathogens from the body.  This is where detoxing comes into play.  While the mainstream medical community views detoxing as quackery, those of us infected understand quite up close and personal the Herxheimer Reaction where we have an autoimmune type response when our immune system finally recognizes the dead pathogens floating around in our blood stream.  For more information on the Herxheimer Reaction see:  https://madisonarealymesupportgroup.com/2015/08/15/herxheimer-die-off-reaction-explained/

Also, for those who are new to all of this, please read: https://madisonarealymesupportgroup.com/2015/12/06/tips-for-newbies/

Category:

Detoxing, diet and nutrition, Herbs, Lyme, Treatment

Microbiologist Tom Grier to Speak

Grier will be speaking on Tuesday, September 13th at the MLA Lyme Support Group at 6:30 at the Central Middle School at 4855 Bloom Avenue, White Bear Lake, MN  55110.

He will be discussing the brain pathology research based on autopsies he’s done in with the Paul H Duray Pathology Foundation.

If you are unable to attend but would still like to read the material see:  https://madisonarealymesupportgroup.com/2016/08/09/dr-paul-duray-research-fellowship-foundation-some-great-research-being-done-on-lyme-disease/

 

Category:

Activism, Lyme, research, Treatment

EpiPen – the Reason for the Price Hike

http://articles.mercola.com/sites/articles/archive/2016/09/07/epipen-cost.aspx?utm_source=dnl&utm_medium=email&utm_content=art2&utm_campaign=20160907Z1&et_cid=DM118496&et_rid=1654866136

Those of you with allergies or who are using Bee Venom Therapy for MSIDS (multi systemic infectious disease syndrome – or Lyme with friends), have undoubtedly discovered the crazy price hike in Epi-pens.  

Although the epinephrine in the EpiPen costs about a dollar, the list price for a two-pack is currently over $600 in the U.S.  EpiPen sales brought in $1.2 billion in 2015 which meant a 461% price increase from 2007 to 2015.  Mylan CEO Heather Bresch got a 671% increase in  compensation and went from $2.5 million to $19 million.

“Mylan has tried to downplay the drug’s outrageous cost by saying that most patients have insurance coverage and they offer coupons to help reduce co-payments. People with high deductibles may still end up paying most of the costs out of pocket, however, and as The New York Times continued:4

‘Such co-payment assistance is part of the standard playbook for companies selling expensive drugs: The goal is to spare the consumer, who might create a political uproar, and yet still get paid by the insurance company or government health program.’

Ultimately, inflated drug costs are often passed down to consumers in the form of higher premiums from insurance companies and higher taxes to cover government health programs.

It should be noted, too, that most people have to purchase new EpiPens every year, even if they don’t use them, because they have a one-year expiration date. Some, however, are taking a gamble by keeping their expired EpiPens in lieu of spending hundreds of dollars on a new set.”

Mylan may be hiking prices before the introduction of a generic, which was expected last year, but U.S. Food and Drug Administration (FDA) rejected the generic version (made by Teva), and Sanofi’s Auvi-Q, another alternative, was pulled from the market due to problems with dosing.

The New York Times reported, “So rather than a last grasp for profits, Mylan has a near monopoly now, allowing it to continue the price increases for at least another year.”

Well I don’t know about your world, but where I live there are many MSIDS patients without insurance due to the fact insurance hardly ever covers proper treatment (anything outside the CDC guidelines of essentially 21 days of doxy), as well as the fact many are opposed to many unethical issues with Obamacare, as well as the fact they simply can’t afford it as they are paying out of pocket for proper MSIDS treatment outside the CDC’s box of horrors.  So the very people needing EpiPens are caught in the cross-fire and are without this insurance that’s supposed to pay these horrific prices.

Also, a bit of a history lesson on medical insurance from my 97 year old retired doctor who remembers:  Medical insurance was created to fill the gap from when farmers needed health care to when their crops came in, went to market, and they ultimately got paid so they could pay their own medical bill.  That’s it.  It helped them in the gap.

Ponder that and you will realize we have NOT “come a long way, baby.”  

Category:

Treatment

A Bartonella Story

Mom, also a veterinarian, ran to ground her son’s “medical mystery.”

https://www.lymedisease.org/bartonella-can-steal-life/

The above link describes two other cases.  One was an 11 year old Ottawa girl who suddenly developed weakness, difficulty walking, and headaches after tending to an abscess in a shelter dog.  Three years later she developed progressive neurological issues including anxiety, depression, visual and auditory hallucinations, as well as chest pain, eye floaters, and fatigue, and partial paralysis.  She finally received diagnosis and treatment 11 years later from a physician 2,700 miles from her home.

Sue Ferrara’s daughter, the author of the article in the link above, developed Bartonella after two simultaneous tick bites.  She also got the red-streaked rash that often accompanies Bart infections as well as headaches, dizziness, and neuro symptoms.  Four long years after the bites she was finally diagnosed by a psychiatrist who recognized the red rashes.  She finally sees the light at the end of the tunnel after 2 years on a Chinese herbal protocol.

For more information on Bartonella:

https://madisonarealymesupportgroup.com/2011/09/25/the-bartonella-checklist-copyrighted-2011-james-schaller-md-version-11/

https://madisonarealymesupportgroup.com/2016/01/03/bartonella-treatment/

https://madisonarealymesupportgroup.com/2016/04/24/gardasil-and-bartonella/

 

 

Category:

Bartonella, Treatment

Dr. Paul Duray Research Fellowship Foundation: Some Great Research Being Done on Lyme Disease

https://durayresearch.wordpress.com/about-2/7-provocative-findings-intro/

The link above will lead you to an incredible article written by Microbiologist, Tom Grier.  There is even a pdf version with extra spacing that makes it easier to read.

In a nutshell, he shows that “virtually no funding in any country has been put into Borrelia pathology.”  He also states, “there are more than a dozen species of Borrelia that cause Lyme disease, many of which can penetrate any tissue, and add a couple Relapsing Fevers that tag along for the ride, and it becomes clear that the Lyme disease blood tests based on Borrelia burgdorferi detection that have been used for 30+ years have become pretty much useless.”

There you have it folks – straight from the horse’s mouth – with more to follow.

Grier’s story of how he met and began working with Duray can only be chalked up to Providence as at the time Grier, infected with Lyme himself, could barely walk or stay awake.  The rest would make for great nonfiction – but unfortunately, it’s ALL TRUE.  Let’s just say restraining orders are involved and other stuff you wouldn’t believe – but then again, most of you would because similar things have happened to you.

There are direct links showing:

*Mother-to-child transmission of Borrelia across the womb

*Burgdorferi and miyamotoi associated with amyloid plaques in Alzheimer’s brains

*Borrelia found in Lewy Body Dementia

*Nematode worms found in Alzheimer’s brains

*Borrelia found in five deadly brain tumors (Glioblastoma multiforme)

*Borrelia Mayonii and Borrelia burgdorferi found in human testicle

Grier states that what this means is that some dementia patients, if caught early, may improve on antibiotics (similarly to Kris Kristofferson’s story) https://madisonarealymesupportgroup.com/2016/06/09/alzheimers-byproduct-of-infection/, or even stop the progression of disease – but that treatment must be from a clinical diagnosis due to the poor testing.  It is also possible that lengthy and/or life-long therapy will be needed – and that adding an anti parasitic medicine might be the first step due to the research showing nematodes in the brain which harbor the Lyme spirochete.  https://madisonarealymesupportgroup.com/2016/06/03/borrelia-hiding-in-worms-causing-chronic-brain-diseases/.

On page four of Grier’s article he tells the story of Jack Gordon – a patient with Lewy-Body dementia.  His wife, Betty, a Lyme patient and advocate in Iowa, donated money to determine if Jack’s brain had borrelia in it.  It did.  Grier states this research is what helped them connect Lyme and Lewy-Body Dementia.

Similarly to the treatment stated above, if Lewy-Body Dementia patients can be found in the early stages, antibiotics could halt the formation of alpha-synuclein, and that the addition of an anti parasitic would be wise for the same reason stated above.

He goes on to discuss the research involving those with MS.  Grier feels that due to their research also discovering nematode involvement, the MS patient should be put on an anti parasite for nematodes, (making sure to kill all parasites in every growth stage including eggs) followed by antibiotics for Borrelia.  He states treatment would have to be aggressive to get past the Blood-Brain-Barrier, and prolonged to eradicate the Borrelia.

He also reports that while the work of veterinarian Dr. Elizabeth Burgess DVM PhD in 1990 showed that dogs infected with LD were transmitting and infecting female dogs through sexual transmission, proof in humans is lacking.  Pathologist Alan McDonald found B. burgdorferi and B. mayonii in the testicle and brain of a man who had been treated nearly continuously on antibiotics for the last seven years of his life.  Grier states the case for sexual transmission is stronger than ever.

The take home:  Treat all Borrelia early and aggressively to prevent Borrelia in immune privileged sites like the testicles and brain, and that antibiotics may not be enough, so infected couples should use a condom.

***Grier gives the caution:  Do not self treat with anthelmintics as they can cause severe inflammatory reactions and fatal encephalitis.

Category:

Lyme, research, Treatment, Uncategorized