Archive for the ‘Meetings’ Category

Dearest Madison Area Lyme Support Group Members and Community,

Untitled-1UPDATE;  A support group attendee has volunteered to take on the support group.  I am very thankful that someone is willing to pick up the torch.  There will be a time of transition, so please continue to be patient.  I’m confident that the meetings will continue to be a great way for people to receive support from others.  Keep checking back to the website for future meeting dates.

 

It has been 5 years since I started treatment for Lyme Disease and co-infections.  I started this group shortly after I started that journey because there wasn’t a local area support group and I was searching for support from other people who were battling this complex and frustrating illness.  It was hard to start when I was so sick and struggling so much. I took on the task to help myself and others but at this time I have decided to step down as the Madison Area Lyme Support Group leader.

Tomorrow, Sept. 6th will be the last support group meeting that I host. 
Saturday September 6th (2014) from 2pm to 4pm, Madison Pinney Branch Library, 204 Cottage Grove Road, Madison, WI 53716
 

I have met so many wonderful people through this support group. As new people continue to get infected people will always search out help and support online and face to face.  Even though I do not want anyone to fall through the cracks I have decided that I need to create space in my life for other endeavors.  It is hard for me to let go of something that I know helps people so much but, I am hoping that someone else in the Lyme community will step up and lead the group just like I did 5 years ago.  I’m willing to hand over informational brochures and materials, and give advice to anyone looking to pick this responsibility up. Basically they would be the contact for the website (which I might be able to just transfer) and the person that schedules and reserves the meetings at the libraries. You are supposed to be present at the meetings but if you had someone helping you then if you are too sick they could fill in or you just cancel the meeting and post that on the website and anywhere else you posted the meeting information.  I use to do that in the early days of treatment.

For now, I’d like to direct everyone searching for help to the many online resources and support groups listed below.

I will keep the website up for now so that people can find these groups but eventually the site may disappear when someone chooses to start their own group with another website. I will be taking the contact option down, so it’s important to use the groups below to seek help.

 

Wisconsin Lyme Network

Wisconsin Lyme Network is a statewide non-profit.  It’s a great resource that lists support groups around the state, both online and face to face.  Click on this hyper link to go to their website: www.wisconsinlyme.net. Or you can contact them directly using this email address to ask questions (including doctor recommendations).  wisconsinlymenetwork@gmail.com

 

 

Wisconsin Lyme Yahoo Support Group

Contact: Mike Nickel miken@tds.net

Group URL: http://health.groups.yahoo.com/group/Wisconsin-Lymesupport/

Please e-mail to miken@tds.net to receive information on monthly support meetings throughout the state and other help.

 

 

Wisconsin/Illinois Lyme Facebook Group

This Facebook group is a great way to connect to others who are suffering from Lyme Disease and other tick borne diseases.  Here’s the link to the group.  https://www.facebook.com/groups/wisconsinillinoislyme/

Category:

Activism, Lyme, Meetings, Uncategorized

Wisconsin Lyme Network Board Recruitment Announcement

Come be a part of our team!

Dear Wisconsin Lyme Community,

The Wisconsin Lyme Network cordially invites ALL OF YOU to join us for our recruitment event located at:

The Marian Center for Non-Profits
Saturday October 27th
11:00 a.m. – 3:00 p.m.

3195 South Superior Street, Milwaukee, WI 53207

Lyme literate practitioner, Dr. John Whitcomb, M.D. from Brookfield will give a short presentation on Lyme disease while we enjoy lunch.

Come visit with other members of the Wisconsin Lyme community and learn how you can support our mission. It is FREE OF CHARGE but we ask that you please bring a dish of your choice to share; potluck style.  Water, soda and coffee will be provided courtesy of the WLN.

We will meet in the gym. Take the third driveway down and turn right into the parking lot. (One driveway past the flagpole in front of the gated building) Enter through back door on SW corner of building. There will be markers to direct you. Come learn what the WLN is about.

The WLN has achieved many wonderful goals this past year and we need new board and committee members to continue this process. The WLN asks that others please consider stepping in and lending a hand so that we can continue to move this organization forward.

Who do you know that can help? Please pass this info to them.

The following positions are open for nomination: 

  • President: The President presides over meetings of the assembled group and conducts its business in an orderly fashion. When the group is not in session, the President’s duties include acting as its head or representative, it’s spokesperson, overseeing committee’s and ensuring that group bylaws and rules are adhered to.
  • Vice President: The Vice President serves as President in the absence of the President, or when a motion involving the President is being discussed. The Vice President assists the President in the President’s required duties, representing the organization, overseeing committee’s and compliance with bylaws and rules.
  • Treasurer:  The Treasurer shall make a report at each Board meeting. Treasurer shall assist in the preparation of the budget, financial related matters and make financial information available to board members, governmental agencies and the public. The Treasurer offers oversight of assets and financial interests to include tax returns every three years.
  • Secretary:  The Secretary shall be responsible for keeping records of Board actions, including overseeing the taking of minutes at all board meetings, sending out meeting announcements, distributing copies of minutes and the agenda to each Board member, assuring that corporate records are maintained, and general correspondence as needed for the WLN.
  • Board of Directors: Board members must have adequate time to devote to the organization. They will:
  1. Ensure adequate resources and participation for the organization to fulfill its mission
  2. Ensure proper oversight of financial assets, Code of Ethics and bylaws of the organization
  3. Enhance the organization’s public standing
  4. Clearly articulate the organization’s mission, accomplishments, and goals to the public and garner support from the community
  5. Is ultimately responsible for adherence to legal standards and ethical norms
  6. Articulate prerequisites for candidates, orient new members, and periodically and comprehensively evaluate their own performance
  7. Participate in teleconferences and voting via email and other forms of communication.

We encourage new participants as a means of expanding our group. Current board members will assist all new board members to ensure a seamless transition.

The WLN is also in need of volunteer committee chair persons and  members. Committee Members DO NOT need to be voting board members.

  • Media Committee: Advertising fundraising activities, PSA’s, radio, internet, (social media and website, etc.) Press releases, etc.
  • Fundraising Committee: Coordinate the Lyme Walk and/or other fundraisers and activities, etc.
  • Newsletter Committee: Coordinate, edit and layout the articles to be printed, distribution of newsletters, mailings, etc.
  • Medical Liaison Committee: Outreach to practitioners, coordinate practitioner training, check the practitioner email a minimum of once per week, etc
  • Patient Liaison Committee: Outreach to local support groups, check patient email daily, send follow up, doctor referrals, etc.
  • Special Projects Committee: Organizing doctor lectures, CME credits, liaison with various medical organizations and groups for outreach.


Those attending (hopefully all) please R.S.V.P. to Mike Nickel at miken@tds.net or Kristin Collins at collins.kristin@att.net .


Look forward to seeing everyone there!

Board of Directors – Marjorie Moorhouse, Lisa Hilton, Aandraya De Silva, Cindy Van Veghel, Jennifer Guzdek, Lauren Lamoreaux {Board Secretary}, Bill Collins {Board Treasurer}, Kristin Collins {Vice President}, Mike Nickel {President}

Category:

Lyme, Meetings

CME accredited lecture by Dr. Cameron Oct. 6th

Please help spread the word about this CME accredited lecture with Dr. Cameron that will be held at The Wisconsin Medical College in Milwaukee October 6th from 1pm to 3pm.

Attached is the flyer for this event. (See word doc. link below) It can be printed and dispersed to clinics, licensed practitioner practices and hospitals.

This activity is designed for Pediatricians, Family Medicine, General Internists, Infectious Disease and Neurologists.

CME accredited lecture with Dr Cameron

 

 

Category:

Activism, Lyme, Meetings

Thank you Jeannette

I’d like to give a big thank you to Jeanette Wheat for writing this and submitting it to the Wisconsin State Journal.  It was a great surprise and I appreciate the awareness and exposure to this website.  It’s important that everyone is able to find support and help when faced with such a devastating disease.

I hope this article is able to reach some people that are unaware that we have a support group here in Madison that meets monthly.  It’s open to the public and we meet in local libraries.  Check out the meetings page to find out the next meeting day, time and location.

Thank you very much Jeanette!

http://host.madison.com/wsj/news/opinion/mailbag/jeanette-wheat-tick-borne-diseases-deserve-more-research/article_4e7ba4ac-ebde-11e1-b799-001a4bcf887a.html

Category:

Activism, Lyme, Meetings

Support Meeting This Week-End

Saturday June 16th (2012)

from 2:30pm – 4:30pm,

Madison Pinney Branch Library

204 Cottage Grove Road

Madison, WI 53716

[NOTE: Please note the time change as this meeting will start a half hour later than our normal time due to the room being used before us.]

Category:

Lyme, Meetings

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