Archive for the ‘Lyme’ Category

Ink to End Lyme 2020 Isthmus Tattoo

http://lymewarrior.us/ink-to-end-lyme-2020  Go Here to Donate

Visit Isthmus Tattoo on Feb 20 for an awesome day of tattooing for Lyme Disease!

Ink to End Lyme 2020

Ink to End Lyme is a national event in which tattoo shops donate a day to Lyme research.

Last year we raised $18,800 for the amazing research of Eva Sapi at the University of New Haven!

How it works: Tattoo shops host flash days, auctions, or a variety of other events with proceeds benefiting research for a cure or improved treatment during February 2020.

If you are a tattoo shop interested in participating email lymewarriornonprofit@gmail.com
Download a flyer here to take to your local tattoo shop!

tattoos+for+Lyme+disease

*****Disclaimer**** Lyme Warrior does not encourage anyone with health issues to get a tattoo. Please discuss if a tattoo is right for you with a licensed trusted physician. The materials available at this web site are for informational purposes only and not for the purpose of providing medical or legal advice. The opinions expressed at or through this site are the opinions of the individual author and may not reflect the opinions of the nonprofit or any individual.

Over 427,000 people are being diagnosed with Lyme Disease annually.

Help us find a cure for those living with this disease.

 

Category:

Activism, Lyme

Dr. Jason West – The Real Cause of Lyme Disease & The Use of Ozone Therapy

 Approx. 1 Hour

Dr. Jason West – The Real Cause of Lyme Disease & the Use of Ozone Therapy

Dr. West states that he almost always sees improvement on patients using ozone therapy.

Dr. West supports the mechanisms of the body to fight lyme disease. Many of these include natural treatments like ozone therapy and UBI. But they do not work without the surrounding pillars that need to be in place. Natural treatments for lyme disease must be accompanied by lifestyle change.  He does not exclude the use of antibiotics.  We covered multiple topics, including:

  • Is alternative medicine becoming the NEW conventional?
  • How can patients become empowered with education?
  • What is the underlying cause of Lyme disease?
  • What are the standard treatments for Lyme disease and how is the West Clinic totally different?

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For more:  https://madisonarealymesupportgroup.com/2017/12/04/ozone-ten-pass-lyme-msids-treatment-in-ca/

I’ve used ozonated olive oil to help heal after MOHS surgery for skin cancer:  https://madisonarealymesupportgroup.com/2018/03/02/dmso-msm-for-lyme-msids/  (Scroll down to the picture in the video of the gaping hole under my eye.  I was told I would need 2 cosmetic surgeries.  I attribute the healing to the surgery which removed the cancer and the ozonated olive oil with a speedy recovery which made it possible to not need further surgery)

Category:

Lyme, Treatment

Lyme Disease & Heart Transplantation: Presentation of a Clinical Case and a Literature Review

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6992363/

. 2019; 26(3): 173–180.
PMCID: PMC6992363
PMID: 32015672

Language: English | Lithuanian

Lyme disease and heart transplantation: presentation of a clinical case and a literature review

Audrius Aurelijus Pilypas,1 Giedrutė Raišelienė,2 and Jurgita Valaikienė3
Author information

Abstract

Background.

Lyme disease, the most common anthropozoonosis, is a transmissible natural focal infection affecting various organs and systems. Also known as Lyme borreliosis, it is caused by Borrelia spirochetes, which are distributed by ticks of the genus Ixodes. Early diagnosis is difficult due to frequent occurrence of atypical symptoms, unnoticed tick bites, the absence of migratory erythematous lesions, and symptoms occurring during the non-tick season. If not diagnosed and treated in time, dissemination of the infection occurs and various complications develop since borrelias damage not only the skin but also the nervous system, joints, and, in rare cases, the heart and eyes.

Materials and methods.

This article presents a clinical case of Lyme borreliosis-induced myocarditis, which led to the development of dilated cardiomyopathy and, consequently, urgent cardiac transplantation. According to our data, this is one of the first described cases of this complication in the world.

Results and conclusions.

When diagnosed in time and treated properly, the prognosis of Lyme myocarditis is usually good. In most cases, the atrioventricular block disappears within 1–2 weeks of antibiotic treatment and the implantation of a temporary pacemaker is rarely needed. In those rare cases of a chronic Borrelia burgdorferi infection, dilated cardiomyopathy may develop; thus if a sudden atrioventricular block occurs, the physician should be vigilant and perform the necessary tests to exclude the diagnosis of Lyme disease.

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**Comment**

When you consider how many people are turned away on a daily basis due to negative testing you begin to see that stating this is “rare,” is a bit premature.  So many are undiagnosed or misdiagnosed.

Category:

Heart Issues, Lyme, research

Lyme Carditis Presenting As Sick Sinus Syndrome

https://www.ncbi.nlm.nih.gov/pubmed/32007907/

2020 Jan 25;59:65-67. doi: 10.1016/j.jelectrocard.2020.01.007. [Epub ahead of print]

Lyme carditis presenting as sick sinus syndrome.

Gazendam N1, Yeung C1, Baranchuk A2.

Abstract

Lyme disease, a tickborne infection caused by Borrelia burgdorferi, can affect cardiac tissue causing Lyme carditis. Patients with Lyme carditis most commonly present with varying degrees of atrioventricular block and rarely with sick sinus syndrome. A previously healthy 22 year-old male presented with syncope (fainting). His 2 week Holter monitor showed sinus pauses of 6.5 and 6.8 s. Lyme serology, including Western blot, was positive. A stress test, completed after 8 days of intravenous antibiotics for Lyme carditis, revealed no conduction abnormalities. He was discharged on 3 weeks of oral antibiotics and had no conduction abnormalities on subsequent follow-up.

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**Comment**

I hope someone is doing a lengthy follow-up on this young man.  Three weeks of antibiotics in someone with Lyme carditis isn’t enough.  This is a great example of patients not being followed throughout time which would pick up reoccurring/relapsing symptoms.

Sick sinus syndrome doesn’t have anything to do with the sinuses, but rather consists of a group of heart rhythm problems (arrhythmias) in which the heart’s natural pacemaker (sinus node) doesn’t work properly.

The sinus node is an area of specialized cells in the upper right chamber of the heart that controls the rhythm of your heart. Normally, the sinus node produces a steady pace of regular electrical impulses. In sick sinus syndrome, these signals are abnormally paced.

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The heart rhythms of a person with sick sinus syndrome can be too fast, too slow, punctuated by long pauses — or an alternating combination of these rhythm problems. The syndrome is relatively uncommon, but the risk of developing it increases with age.

Many people with sick sinus syndrome eventually need a pacemaker to keep the heart in a regular rhythm.

Symptoms

Most people with sick sinus syndrome initially have few or no symptoms. In some cases, symptoms come and go.

When they occur, sick sinus syndrome signs and symptoms might include:

  • Slower than normal pulse (bradycardia)
  • Fatigue
  • Dizziness or lightheadedness
  • Fainting or near fainting
  • Shortness of breath
  • Chest pains
  • Confusion
  • A sensation of rapid, fluttering heartbeats (palpitations)

https://www.mayoclinic.org/diseases-conditions/sick-sinus-syndrome/symptoms-causes/syc-20377554

Dr. Neil Spector writes about his heart troubles due to Lyme.  He required a heart transplant and pace-maker:  https://madisonarealymesupportgroup.com/2017/08/23/video-dr-neil-spector/

For more:  https://madisonarealymesupportgroup.com/2019/03/10/when-lyme-hurts-your-heart-warning-signs-solutions/

https://madisonarealymesupportgroup.com/2018/09/17/lyme-carditis-heart-block-other-complications-of-ld/

https://madisonarealymesupportgroup.com/2018/06/03/heart-problems-tick-borne-disease/

https://madisonarealymesupportgroup.com/2019/02/21/diagnosis-treatment-of-lyme-carditis/

https://madisonarealymesupportgroup.com/2018/02/22/new-lyme-cme-course-available-lyme-carditis-more-than-blocked-beats/  Course for doctors to become educated.

Category:

Lyme, research

How to Win Your Disability Case

https://www.painnewsnetwork.org/stories/2020/2/6/how-to-win-your-disability-case

How to Win Your Disability Case

By Mia Maysack, PNN Columnist

A dear friend and I have ventured through the Social Security disability process. We’re both severely impacted by chronic head pain caused by traumatic brain injuries. Her pain stems from a motorcycle accident, while mine is a souvenir from bacterial meningitis.

Our paths crossed while attending a lobbying event. We bonded instantly — not only because we could relate to each other’s pain — but because we pushed ourselves far past our limits. Accepting reality is tough on us both.

Neither of us are fluent in the practice of law, although my friend worked as a paralegal prior to her health deteriorating. Together, we’ve cultivated a few main points to be used as a guide for others who may be considering their own pursuit of disability. (See link for article)

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**Comment**

Also, read the comments after the article.  I found this one most interesting and helpful:

I am a retired Social Security Disability Adjudicator. In order to be approved one must have a medical condition that prevents work and is expected to last one year or result in death. It is necessary to have medical documentation supporting your disability. Also, be prepared to document how your condition affects your Activities of Daily Living. If your doctor agrees that you are disabled, get what is called a “Medical Source Statement” from your doctor endorsing your disability. The Social Security Adjudicator must give what is called “weight” to this statement. This is a legal term used in disability reviews. In my opinion, you do not need an attorney. The three levels of review or Initial, Reconsideration, and Administrative Law Judge review. You do not need an attorney at ANY level. One other thing, if not allowed on the first and second level, apply for review within the timeframe given because if this is not done, you end up at the initial level rather than Reconsideration level as you did not apply timely. Also, pain is definitely supposed to be considered in any evaluation decision.

For more:  https://madisonarealymesupportgroup.com/2017/02/04/moores-v-colvin-help-for-lyme-patients-seeking-disability/

https://madisonarealymesupportgroup.com/2016/07/27/great-article-if-you-need-to-consider-disability/

https://madisonarealymesupportgroup.com/2017/07/26/when-the-campus-disability-office-needs-educating-about-lyme-disease/

https://madisonarealymesupportgroup.com/2018/03/07/vermont-lyme-sufferer-fights-to-get-disability-gets-nadda/

 

Category:

Activism, Lyme