Archive for the ‘Lyme’ Category

Center for Courageous Kids Partners With Avril Lavigne Foundation

https://www.wnky.com/center-for-courageous-kids-partners-with-avril-lavigne-foundation/

Center for Courageous Kids partners with Avril Lavigne Foundation

SCOTTSVILLE, Ky. – The Center for Courageous Kids, the 168-acre not-for-profit medical camp facility located in Scottsville, which enhances the lives of seriously ill children at no cost, is partnering with The Avril Lavigne Foundation to continue their joint effort to help protect campers from Lyme disease. A 30-second promotional commercial spot featuring The Center for Courageous Kids will premiere during pop-rock icon Avril Lavigne’s one-of-a-kind livestream benefit concert on Oct. 24, 2020 at 7 p.m.  (See link for article)

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**Comment**

In 2019 the camp received a grant from The Avril Lavigne Foundation for tick prevention.  This was the first season without any tick bites!

Now that is something to celebrate

For more:  https://madisonarealymesupportgroup.com/2019/04/12/tick-prevention-2019/

https://madisonarealymesupportgroup.com/2020/07/20/ticks-lyme-disease-information-for-families/

Lyme Patients: Know Your Rights

https://www.boothbayregister.com/article/patients-know-your-rights

LYME TIME

Patients: Know Your Rights

Paula Jackson Jones Wed, 09/16/2020

Believe it or not, there are still doctors who claim that Lyme is nothing more than mass hysteria ~ even with statistical data showing confirmation of the rise in new cases. How can this be? How can medical professionals still deny that Lyme is a serious health risk here in Maine? How can they argue with patients who present with information in hand about research, testing and treatment? And they do argue with the patients. They argue when a patient asks for their bloodwork to be sent to Igenex, the leading tick-borne disease laboratory for over 25 years (located in California). Patients have the right to have their bloodwork sent anywhere and yet they are being denied this option because providers use whoever their facility is networked with. Interesting…

Medical providers tell patients that Igenex scams patients and pays doctors for their usage. This is not true but I am beginning to wonder, by denying a patient the right to use whatever lab they want and by only using the lab that their medical office is contracted with, who’s scamming who here? Many providers don’t trust Igenex just because they don’t take insurance. To those providers I ask,” then why aren’t you using the tick-borne disease experienced labs that do take insurance??” Daily, I get calls and emails from patients asking what tests should their PCPs be using, which is why patient AND provider resources and educational links are on our website.

They say that Igenex is not FDA-approved.

Laboratories are not required to be FDA approved. They are, however, required to be CLIA approved. The Clinical Laboratory Improvement Amendments (CLIA) regulate laboratory testing and require clinical laboratories to be certificated by their state as well as the Center for Medicare and Medicaid Services (CMS) before they can accept human samples for diagnostic testing. In general terms, the CLIA regulations establish quality standards for laboratory testing performed on specimens from humans, such as blood, body fluid and tissue, for the purpose of diagnosis, prevention, or treatment of disease, or assessment of health.

Igenex, MDL and Galaxy Labs are just a few of over 260,000 US labs that are CLIA-approved and offer highly reliable tests sand panels tarting at $495.

This is a smoke screen practiced by doctors who do not:

  1.  understand how labs work and are federally regulated
  2. do not support the new evidence-based scientific research
And why, Why is this still so controversial in 2020?

Did you know that vitamins and supplements are not FDA approved? They are regulated by the U.S. Dietary Supplement Health and Education Act of 1994. Now you know, and does that change how you feel about taking that One A Day vitamin or Melatonin before bed? I didn’t think so.

Medical providers who do not fully understand tick-borne disease will use this argument every time and it back fires, every time. It only shows their patient what they don’t know.

Medical providers who continue to spread “fake news” about how other medical providers and labs work, well folks, that is the real scam and it goes to show what they don’t know.

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**Comment**

The reason for “fake news” regarding testing is our public ‘authorities’ own the patents on Lyme testing: https://madisonarealymesupportgroup.com/2019/06/28/who-owns-the-elisa-patents/

They malign anything that competes with their profitable products: https://madisonarealymesupportgroup.com/2020/04/26/cdc-playbook-learning-from-lyme/

They also rig treatment guidelines for their own patent purposes:

https://madisonarealymesupportgroup.com/2020/02/10/the-bitter-feud-over-lymerix/

https://madisonarealymesupportgroup.com/2020/07/30/how-the-cdc-uses-their-own-guidelines-to-rig-the-system/

https://madisonarealymesupportgroup.com/2020/09/25/why-should-we-care-about-lyme-disease-a-colorful-tale-of-government-conflicts-of-interest-probable-bioweaponization-and-pathogen-complexity/

Doctors are just ignorant pawns used by ‘authorities’ who have severe conflicts of interest.  Time for doctors to wake up and listen to patients who have been saying the same things for over 40 years.  Time for a public health reboot and a CDC, NIAID, FDA walk-away movement:

https://madisonarealymesupportgroup.com/2020/09/01/it-is-time-to-reboot-public-health-time-for-a-cdc-niaid-fda-walk-away-movement/

Tick-Borne Disease Warning Signs in State Parks – Wisconsin Mentioned

https://astho.org/StatePublicHealth/Tick-Borne-Disease-Warning-Signs-in-State-Parks/10-01-20/

Tick-Borne Disease Warning Signs in State Parks

iu-11

https://www.campgroundsigns.com/tick-warning-signs

October 01, 2020|3:57 p.m.| ASTHO Staff

Incidences of tick-borne disease are on the rise, according to the CDC. In 2018, state and local health departments reported about 47,000 cases of tick-borne disease to CDC, 33,000 of which were Lyme disease. According to CDC, state health departments report 30,000 Lyme disease cases each year. However, tick-borne diseases are considered very underreported as recent estimates suggest that approximately 300,000 people contract Lyme disease annually.

Though late spring and summer is considered “tick season,” ticks are still a threat in the fall as many areas of the country continue to see temperatures that ticks can thrive later and later in the year, and as people continue to get outdoors and enjoy their state parks.

Unlike in the case of mosquito-borne disease, where chemical control methods such as adulticiding and larviciding are often used, public health relies on outreach and education for reducing an individual’s exposure to ticks and tick bites. To combat this, some state legislatures are directing state agencies to develop public outreach for preventing tick-borne disease, including signage and communication materials for the public. Below is a look at existing state laws and proposed bills that were introduced or enacted in the past year and a half to determine the legislative landscape around tick-borne disease signage requirements or printed materials in state parks.

Since 2019, three states have introduced legislation requiring state parks to feature warning signage or printed materials on tick-borne diseases at their parks, campgrounds, or other recreation areas. Two states (New York and Wisconsin) have enacted laws surrounding tick-borne disease information signs at state parks since 2019. Wisconsin considered a second bill addressing the state’s Department of Natural Resources’s efforts to raise awareness about Lyme disease. Michigan also introduced a bill in 2019 requiring the installation of signage at state park entrances warning of ticks and tick-borne illnesses.

New York state enacted companion bills in August 2019 requiring its office of Parks, Recreation, and Historic Preservation to install Lyme and tick-borne disease warning signs at all state-managed parks, including trail entryways and campgrounds. Assembly Bill A 6752 and Senate Bill S4355 directs the Preservation to conduct an assessment of state parks to determine the best spots to install signage warning the public about Lyme and other tick-borne infections.

Wisconsin enacted a bill in January directing the Department of Natural Resources—along with the Department of Health Services—to design signs in each state park, trail, and recreation area that will raise awareness on Lyme disease, how to avoid tick bites, and encouraging the public to check for bites after each visit. Wisconsin also considered a bill directing each state park that produces its own brochure to also include information on Lyme disease, how to prevent tick bites, and encouraging visitor to check for ticks after visiting. The bill also calls on the Department of Natural Resources to conduct a Lyme disease awareness campaign during the month of May, in connection with Lyme Disease Awareness Month. If enacted, the campaign would have used a combination of digital platforms, including the department’s website, social media, digital newsletters, and print platforms, including the Wisconsin Natural Resources Magazine.

Michigan is considering a bill that would amend the Natural Resources and Environmental Protection Act. House Bill 4659 would add a section requiring the Department of Natural Resources to install and maintain signs warning the public about the presence of ticks and the threats of tick-borne diseases at each state park entrances, state park and state forest campgrounds, and access points to state trails. The bill defines “state trail” as a right-of-way owned or operated by the department and adapted to hiking, horseback riding, cross country skiing, bicycling, or snowmobile or off-road vehicle use.

Developing and posting signage and communication materials is a low-cost approach to inform the public about potential risks of tick bites, as well as strategies to prevent exposure to ticks. While park services may be hesitant to develop these materials due to a potential reduction in the number of visitors, equipping the public with information about timely prevention strategies and empowering the public to make informed decisions about risks may increase comfort and trust in the park service overall. This is especially important, since public warning and education is the strongest defense against tick-borne diseases.

ASTHO will continue to monitor legislative and executive activity to protect and educate the public on tick-borne diseases.


Courtney Youngbar is a senior analyst of environmental health at ASTHO
Kathy Dolan is the director of environmental health at ASTHO

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For more:  https://madisonarealymesupportgroup.com/2020/01/31/tony-evers-signs-two-lyme-bills/

https://madisonarealymesupportgroup.com/2019/06/01/news-story-update-lawmakers-introduce-package-of-bills-aimed-at-lyme-awareness-in-wisconsin/

https://madisonarealymesupportgroup.com/2019/05/30/tick-prevention-lyme-disease-awareness-are-goals-of-new-bills-wisconsin-has-fallen-behind/

https://madisonarealymesupportgroup.com/2019/05/30/newscasts-on-proposed-lyme-bills-tonight-at-6-9-pm-wisconsin/

https://madisonarealymesupportgroup.com/2020/02/27/wisconsin-assembly-passes-lyme-disease-brochure-bill/

https://madisonarealymesupportgroup.com/2019/11/01/update-on-wisconsin-lyme-bills-please-contact-your-representative-on-ab-313/

Could Lyme Disease in Children Lead to Parental Flooding?

https://danielcameronmd.com/lyme-disease-in-children/

COULD LYME DISEASE IN CHILDREN LEAD TO PARENTAL FLOODING?

lyme disease in children

I have found that in my practice, Lyme disease in children can cause emotional, educational, and social issues, oftentimes with debilitating consequences. Some of the parents have felt overwhelmed by their child’s illness. Could there be parental flooding during conflicts with a child who has Lyme disease?

Parents experiencing flooding “are overwhelmed by the intensity and aversive nature of child negative affect,” writes Del Vecchio and colleagues in the Journal of Abnormal Child Psychology.1

When this occurs, parents “may be less likely to react effectively and instead may focus on escaping the aversive situation, disciplining either overly permissively or punitively to escape quickly from child negative affect.”

Lyme disease in children can trigger behavioral changes, including extreme mood swings, explosive anger, and aggressiveness.2 Managing these symptoms can be exhausting for parents and overwhelming. In such cases, parental flooding may likely occur.

The authors created the Parent Flooding Scale (PFS) to assess “the extent to which parents believe their children’s negative affect during parent-child conflicts is unexpected, overwhelming, and distressing.” Such a scale may be helpful to therapists working with parents and children who have Lyme disease.

READ MORE: When Lyme disease in children causes oppositional behavior

Flooding does not refer to a particular emotional experience (i.e., sadness or anger), but rather the degree to which another person’s emotion is experienced as overpowering and interfering, explains Del Vecchio.

When flooded, the sympathetic nervous system is heightened and the parental reaction is “thought to overwhelm rational deliberation, making it difficult to attend to the situation and engage in calm, organized behaviors.”

Parents may employ an “escape-conditioning model,” the authors explain. “To the extent that some parents are overwhelmed by the intensity and aversive nature of these emotional experiences, they may consequently employ a discipline response, often either overly permissive or punitive, that offers the quickest escape from child negative affect.”

Editor’s note:

For the purposes of transparency, I am not a trained psychiatrist or psychologist. I am using this paper on flooding to better understand my patients. I would find research in this area helpful.

References:
  1. Del Vecchio T, Lorber MF, Slep AM, Malik J, Heyman RE, Foran HM. Parental Flooding During Conflict: A Psychometric Evaluation of a New Scale. J Abnorm Child Psychol. 2016;44(8):1587-1597.
  2. Bransfield RC. Aggressiveness, violence, homicidality, homicide, and Lyme disease. Neuropsychiatr Dis Treat. 2018;14:693-713.
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**Comment**
We definitely struggled with this and our kids weren’t even infected, but we sure were.  We seemed much less capable of remaining calm and logical in stressful situations – particularly with children who were just acting like children.  It didn’t help to be our sickest when they were all in puberty!
It was better when one of us was “with it,” but absolutely horrible when we were both affected.  The worse we felt, the worse we acted.
I agree with Dr. Cameron – we need more information on these important topics.
Lyme is over 40 years old and we have so little to show for it. Doctors are still uneducated and patients are still commonly being misdiagnosed. Patients are still misunderstood and being told, “It’s all in your head.”

CDC, EPA Release Framework for Preventing and Controlling Tick & Mosquito-Borne Diseases

https://www.informnny.com/abc50-now/cdc-epa-release-framework-for-preventing-and-controlling-tick-and-mosquito-borne-diseases/

CDC, EPA release framework for preventing and controlling tick and mosquito-borne diseases

ABC50 NOW
Pixabay

WASHINGTON D.C. (WWTI) — The United States Center for Disease Control has released framework regarding vector-borne diseases in humans.

The CDC framework, “A National Public Health Framework for the Prevention and Control of Vector-Borne Diseases in Humans,” addresses the growing threat of ticks and mosquitoes. The framework discusses diseases such as dengue virus, eastern equine encephalitis virus, malaria, zika virus and lyme disease.

The CDC worked alongside five federal departments and the Environmental Protection Agency to develop the 16-page framework. With goals of better understanding these diseases, developing tools and guidance for protection, developing effective drugs and treatments and providing more information to the public.  (See link for article)

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For more: