Archive for the ‘Lyme’ Category

Could Lyme Disease in Children Lead to Parental Flooding?

https://danielcameronmd.com/lyme-disease-in-children/

COULD LYME DISEASE IN CHILDREN LEAD TO PARENTAL FLOODING?

lyme disease in children

I have found that in my practice, Lyme disease in children can cause emotional, educational, and social issues, oftentimes with debilitating consequences. Some of the parents have felt overwhelmed by their child’s illness. Could there be parental flooding during conflicts with a child who has Lyme disease?

Parents experiencing flooding “are overwhelmed by the intensity and aversive nature of child negative affect,” writes Del Vecchio and colleagues in the Journal of Abnormal Child Psychology.1

When this occurs, parents “may be less likely to react effectively and instead may focus on escaping the aversive situation, disciplining either overly permissively or punitively to escape quickly from child negative affect.”

Lyme disease in children can trigger behavioral changes, including extreme mood swings, explosive anger, and aggressiveness.2 Managing these symptoms can be exhausting for parents and overwhelming. In such cases, parental flooding may likely occur.

The authors created the Parent Flooding Scale (PFS) to assess “the extent to which parents believe their children’s negative affect during parent-child conflicts is unexpected, overwhelming, and distressing.” Such a scale may be helpful to therapists working with parents and children who have Lyme disease.

READ MORE: When Lyme disease in children causes oppositional behavior

Flooding does not refer to a particular emotional experience (i.e., sadness or anger), but rather the degree to which another person’s emotion is experienced as overpowering and interfering, explains Del Vecchio.

When flooded, the sympathetic nervous system is heightened and the parental reaction is “thought to overwhelm rational deliberation, making it difficult to attend to the situation and engage in calm, organized behaviors.

Parents may employ an “escape-conditioning model,” the authors explain. “To the extent that some parents are overwhelmed by the intensity and aversive nature of these emotional experiences, they may consequently employ a discipline response, often either overly permissive or punitive, that offers the quickest escape from child negative affect.”

Editor’s note:

For the purposes of transparency, I am not a trained psychiatrist or psychologist. I am using this paper on flooding to better understand my patients. I would find research in this area helpful.

References:
  1. Del Vecchio T, Lorber MF, Slep AM, Malik J, Heyman RE, Foran HM. Parental Flooding During Conflict: A Psychometric Evaluation of a New Scale. J Abnorm Child Psychol. 2016;44(8):1587-1597.
  2. Bransfield RC. Aggressiveness, violence, homicidality, homicide, and Lyme disease. Neuropsychiatr Dis Treat. 2018;14:693-713.
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**Comment**
We definitely struggled with this and our kids weren’t even infected, but we sure were.  We seemed much less capable of remaining calm and logical in stressful situations – particularly with children who were just acting like children.  It didn’t help to be our sickest when they were all in puberty!
It was better when one of us was “with it,” but absolutely horrible when we were both affected.  The worse we felt, the worse we acted.
I agree with Dr. Cameron – we need more information on these important topics.
Lyme is over 40 years old and we have so little to show for it. Doctors are still uneducated and patients are still commonly being misdiagnosed. Patients are still misunderstood and being told, “It’s all in your head.”

CDC, EPA Release Framework for Preventing and Controlling Tick & Mosquito-Borne Diseases

https://www.informnny.com/abc50-now/cdc-epa-release-framework-for-preventing-and-controlling-tick-and-mosquito-borne-diseases/

CDC, EPA release framework for preventing and controlling tick and mosquito-borne diseases

ABC50 NOW
Pixabay

WASHINGTON D.C. (WWTI) — The United States Center for Disease Control has released framework regarding vector-borne diseases in humans.

The CDC framework, “A National Public Health Framework for the Prevention and Control of Vector-Borne Diseases in Humans,” addresses the growing threat of ticks and mosquitoes. The framework discusses diseases such as dengue virus, eastern equine encephalitis virus, malaria, zika virus and lyme disease.

The CDC worked alongside five federal departments and the Environmental Protection Agency to develop the 16-page framework. With goals of better understanding these diseases, developing tools and guidance for protection, developing effective drugs and treatments and providing more information to the public.  (See link for article)

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For more:  

 

Lyme Disease is Associated With Various Sleep Disorders

https://danielcameronmd.com/lyme-disease-sleep-disorders/

LYME DISEASE IS ASSOCIATED WITH VARIOUS SLEEP DISORDERS

woman awake in bed with lyme disease and a sleep disorder

Patients with post-treatment Lyme disease syndrome (PTLDS) may experience sleep disturbances, according to a study by Johns Hopkins University School of Medicine. Researchers found,

“PTLDS participants reported significantly worse global sleep and sleep disturbance scores and worse fatigue, functional impact, and more cognitive-affective depressive symptoms compared to poor-sleeping controls.” [1]

Dr. Robert Bransfield, a New Jersey-based psychiatrist who specializes in the diagnosis and treatment of tick-borne illnesses, has seen a broad range of sleep disturbances in Lyme disease patients treated at his practice. He describes the various sleep disorders in the article “Neuropsychiatric Lyme Borreliosis: An Overview with a Focus on a Specialty Psychiatrist’s Clinical Practice.” [2]

The patients experienced:

  • Non-restorative sleep
  • Early insomnia
  • Middle of the night insomnia
  • Early morning insomnia
  • Excessive daytime sleepiness
  • Loss or reversal of circadian rhythm
  • Restless leg
  • Paroxysmal nocturnal limb movements
  • Sleep apnea (central and/or obstructive)
  • Sleep paralysis
  • Hypnagogic hallucinations
  • Sleep attacks
  • Cataplexy
  • Narcolepsy

The combination of “non-restorative sleep and chronic unremitting stress appear to play a significant role in disease progression,” explains Bransfield.

“Both non-restorative sleep and the chronic unremitting stress seen in these chronically ill patients contribute to disease perpetuation and progression and are associated with fatigue, cognitive impairments, decreased regenerative functioning, compromised immunity, decreased resistance to infectious disease and neurodegenerative processes,” he writes.

Editor’s note: I have also found that Lyme disease patients can suffer from a broad range of sleep issues. However, it can be difficult to determine whether Lyme disease or a comorbidity is responsible for the sleep disturbance. I have found that antibiotic treatment often improves sleep disorder symptoms.

References:
  1. Weinstein ER, Rebman AW, Aucott JN, Johnson-Greene D, Bechtold KT. Sleep Quality in Well-defined Lyme Disease: A Clinical Cohort Study in Maryland. Sleep. 2018.
  2. Bransfield RC. Neuropsychiatric Lyme Borreliosis: An Overview with a Focus on a Specialty Psychiatrist’s Clinical Practice. Healthcare (Basel). 2018;6(3).
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Chronic lack of sleep is a terrible thing.  Parasites notoriously cause insomnia.  Appropriate treatment for infection(s) is the most important step but often times other adjunctive therapies are needed as well.

Mid-Ohio Valley Sees Rise in Lyme Disease

https://www.newsandsentinel.com/news/community-news/2020/09/mid-ohio-valley-sees-rise-in-lyme-disease/

Mid-Ohio Valley sees rise in Lyme Disease

Parkersburg resident Kristin Carvell inspects her dog Siren for ticks after a walk at City Park. (Photo Provided)

PARKERSBURG — Despite summer being over, warm weather and ideal circumstances for ticks remain and it is important to understand the potential consequences of bites.

According to the Mid-Ohio Valley Health Department, lyme disease cases have been on the rise in the region.

(See link for article)

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**Comment**

Remember ticks are in many other places besides wooded and grassy areas. Migrating birds drop them virtually anywhere. Also remember that Lyme is just the ‘tip of the spear’ and numerous pathogens can be transmitted simultaneously in a singular tick bite.

Reports have come in from around the world announcing the unabated spread of ticks and Lyme/MSIDS yet virtually nothing has changed in Lyme-land. Doctors still utilize abysmal testing, are uneducated on tick-borne illness – misdiagnosing a majority of patients, utilize ineffective treatment, and abuse patients by not listening to them and labeling them hypochondriacs.

Veterinary Nurse Tells of Long Road to Lyme Disease Diagnosis

https://www.agriland.ie/farming-news/veterinary-nurse-tells-of-long-road-to-lyme-disease-diagnosis/

Veterinary nurse tells of long road to Lyme disease diagnosis

Veterinary nurse tells of long road to Lyme disease diagnosis

A veterinary nurse has told how her road to diagnosis for chronic Lyme disease took almost two years and 22 doctors, including consultant visits.

Siobhan Coleman, a native of Listowel, Co. Kerry, who has worked as a veterinary nurse for over 20 years, was finally diagnosed as having Lyme disease in 2017 after what she said were several medical misdiagnoses.

The former senior head nurse of two equine hospitals in Co. Kildare has been supported by her husband Eamonn in her battle to get a correct diagnosis after being severely neurologically affected. She is now passionate about creating awareness of Lyme disease and working for patient advocacy. (See link for article)

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**Comment**

Siobhan states what so many patients have experienced:

“I was forced to become my own health advocate after several medical misdiagnoses. I don’t recall the distinct ‘bullseye rash’ despite being symptomatic of the disease,” Siobhan said.

Ireland also suffers with the same issues we all do:
  • the tests are abysmal
  • the reported numbers don’t accurately reflect reality
  • the majority of doctors are uneducated about tick-borne illness (despite it being around for over 40 years)

She, like so many, used a smaller CLIA-certified lab that specializes in tick borne illness, but that ultimately a clinical diagnosis is made based on symptoms.

Interestingly, these smaller labs have been vilified by the CDC and IDSA.  Could this be because these people have a financial conflict in that they own patents on the tests?  I appears so.

https://madisonarealymesupportgroup.com/2019/06/28/who-owns-the-elisa-patents/

For those in Ireland, she directs them to Tick Talk Ireland (a great resource):  https://www.ticktalkireland.org