Archive for the ‘Lyme’ Category

Lyme Disease, Autoimmune Encephalopathy, & Basal Ganglia Encephalitis

http://  Approx. 1 hour, 15 Min.

Nov. 23, 2020

The Links between Lyme Disease and Autoimmune Encephalopathy and Basal Ganglia Encephalitis (BGE) – Presentation and Q&A Part of the PANS/PANDAS webinar series
Professor Craig Shimasaki,
CEO of Moleculera Labs,
Oklahoma USA Presentation

Why So Many Are Misdiagnosed With MS & Lyme

https://www.bitchute.com/video/n6mUXJeyYqdg/  Video Here, Approx. 30 Min

DR. KENNETH STOLLER ON WHY SO MANY ARE MISDIAGNOSED WITH MULTIPLE SCLEROSIS & LYME DISEASE

For more with Dr. Stoller:

“Healing Can’t Happen in a Bubble of Fear”

https://www.lymedisease.org/amy-scher-bubble-of-fear/

Amy Scher: “Healing can’t happen in a bubble of fear”

By Amy B. Scher

In order to fully heal, you are going to have to let go and lighten up (mostly on yourself).

That’s what I tell people when they are trying to micro-manage every itty bit of themselves and their protocols in order to heal. It may seem like an easy suggestion to follow after all they’ve been through. However it was personally one of the most difficult parts of healing for me to embrace.

I lived in a bubble of fear, worried that everything I did or didn’t do would make or break my healing. But  eventually, it became clear to me that healing will not (and cannot) happen in a bubble of fear. Fear is contradictory to the environment that is needed for wellbeing.

While much went into my ultimate recovery from Lyme, the act of lightening up and letting go had one of the most profound impacts on my journey.

When we suppress ourselves, we can end up feeling anxious, depressed, and sick. If healing is all about getting free to experience a full life again, we must also pay attention to freeing ourselves from the patterns and behaviors that no longer serve us.

Lightening up does not always come easy, but it’s so worth it, and it does come if we let it.

The tyranny of perfectionism

My parents raised me with all the love and silliness you’d expect from the hippies that they were. They always praised me as smart, sweet, artistic, and kind.

But instead of taking these compliments as truth, the part of me that analyzed and internalized everything contorted them into a rule: I must be perfect.

With no one else requiring this of me, I took perfection on as my calling, my purpose. As I grew older, the pressure of this piled on me like a thousand pounds. I strived to be the one who made everyone happy and was celebrated for great things, but I also longed to be one whose faults went unnoticed.

When I strayed from the person I thought I should be—by not getting perfect grades, not being the perfect friend, or making a mistake—my insides would clench. I spent a lot of time rehearsing in my head what things I could have done differently, better. Even though my parents didn’t seem  bothered by any of my imperfections, I worried I might somehow be less of a shining star to them.

By the time I’d been suffering with chronic illness and my body had been falling apart for a good long while, I had assigned much of the blame to myself. Somehow, I must have not done this life thing good enough, perfect enough. Now, perfection was something I owed to the people around me as an apology for being the glaring burden I felt myself to be. I tried hard to convince myself I deserved mercy in this new small life, yet still, even on my near-deathbed, I felt I wasn’t doing sick perfect enough.

The truth is this: I was unloved by myself long before my physical body went astray. And it had become painfully obvious that this pattern was crushing my being and assaulting my immune system. At some point, I decided that if I didn’t lighten the f**k up, this pattern of perfection was going to kill me. I sensed that maybe it had already started to in some way.

The self-criticism trap

You cannot bully yourself into doing enough good or being good enough to feel good—and good enough to be loved, especially by yourself. That’s just not how it works.

Thanks to Stanford University’s Center for Compassion and Altruism Research and Education, we now have scientific data that shows us how and why self-criticism isn’t healthy. (Although we probably didn’t need scientific proof on this one). Self-criticism “makes us weaker in the face of failure, more emotional, and less likely to assimilate lessons from our failures.”

In fact, in a 2012 study published in the US National Library of Medicine, a link between self-compassion and negative states such as depression and anxiety was apparent across 20 studies. Because self-compassion is associated with lower levels of self- criticism, and self-criticism is known to be an important predictor of anxiety and depression, this is where we’re going to start our work.

Even outside of these examples, there has been much information that’s emerged over the years on how positive emotions, including love and acceptance, have a direct impact on your physiology, particularly your nervous system. If you beat yourself up all the time about what you are or aren’t doing, it makes sense that your system would read that self-criticism as danger and stress and react to it in just that way.

The practice of self-compassion is learning to lighten up on yourself just as you would with someone close to you who you loved and cared for. You’ve probably been criticizing yourself for a long time. If this hasn’t worked yet, it’s probably time to try something new

Release attachment to symptoms

During my experience with illness, I spent a lot of time obsessing over every new sensation in my body. I was in a state of constant overdrive, trying to figure out what each symptom was from or how to make it go away. I always alerted my doctors, who also seemed perplexed by what they meant, which of course made me feel even more worried.

Ultimately, I started to approach my body and its symptoms as not warning signs of something severe (as long as my doctor had already been notified), but as just something my body was doing that may not have a clear-cut explanation. I learned how, sometimes, to just let my symptoms be, releasing the massive amounts of energy I spent consumed by trying to solve them.

This is what I learned: sometimes they mean nothing.

We spend so much time analyzing our symptoms, guessing what they could mean, and obsessing over when they’ll go. And sometimes, we need to do that. But other times, we need a break. The truth is that despite all of our incessant “figuring out,” sometimes we just won’t know what our body is doing. We also won’t always know what healing might be taking place despite the raging symptoms. I had my worst month of symptoms came just before I turned a corner toward healing.

Give yourself permission to live a little

I spent most of my life in California, where I ate organic food, held my breath when I walked by a smoker, and focused on controlling my environment to control my health. After I was diagnosed with chronic Lyme, I became even more attuned to my lifestyle and surroundings—afraid that every misstep would kill me.

The turning point for me happened when I was in India in 2007, where I had traveled for stem cell treatment. That was my first hint that I needed to learn to let go. I had to. No choice. No time to get used to an entirely different world and medical system.

At the request of one of the nurses, I had given the staff at the hospital a list of foods I could and could not eat. On the could list: protein and veggies. On the could not list: everything else. Over the years, my brain had been programmed with messages like dairy is bad because it causes inflammationsugar feeds the Lyme bacteria, and carbs are evil. And while maybe some of that has truth to it, being ridiculously strict about my diet only caused me more intense stress.

When the doctor saw the list, she came to my room with it and asked, “But what about your healthy cells? They need some sugar. Dairy is not bad for them. Carbs are okay in moderation! Each night, you can have a small amount of red wine and chocolate. You need some pleasure too.” All I could think was, Are you trying to kill me?

An epiphany

It wasn’t until I was squatting on a mud-smudged grocery store floor that what she said began to sink in. My whole existence for years had been dedicated to “killing” Lyme. I had built my entire life around Lyme disease, the one thing that I didn’t want. What about the rest of me?

“Mom! Look!” I had found a packaged chocolate lava cake, the kind where you add hot water to the plastic tray full of batter and it magically puffs up into dessert. It was inflatable chocolate cake, and it was a miracle in a country that was hard for me to find food I enjoyed.

This is when I had an epiphany that informed the rest of my healing journey:

What if, in my furious effort to find the cure, I had been missing something critically important all along? What if I loosened the death grip I had on my own life? What if healing is beyond what you eat and how perfectly you take your supplements? What if enjoying life and lightening up didn’t look like healing, but was a tiny step toward it?

Chocolate cake, just like the other lessons I learned, would become part of my protocol; one that brought me joy and helped to teach me that the healing journey doesn’t always look like perfection. Sometimes it looks like lightening and loosening up.

Amy B. Scher, an energy therapist, has written several books on healing, including: This Is How I Save My Life: Searching the World for a Cure – A Lyme Disease Memoir (When doctors have all but given up, when a diagnosis eludes you, and when every test result raises more questions than answers, how do you save yourself?); How To Heal Yourself From Depression When No One Else Can (Scher’s accessible approach to helping anyone struggling with depression to reclaim a joyful life). How To Heal Yourself From Anxiety When No One Else Can (A unique, go-at-your-own-pace book, full of hands-on techniques and guidance that illustrate one profound truth: healing from anxiety is possible). She can be found online at amybscher.com.

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**Comment**

Some great advice in here.  I couldn’t help considering the COVID debacle that’s been thrust upon us.  The same advice about being unable to heal while in a ‘bubble of fear’ is also true for a virus.  Fear is an emotion that will zap your strength and lower your immune system by putting you in hyper-drive, yet this is precisely what our corrupt public health ‘authorities’ have foisted upon an unsuspecting public.

Firstly, accepting death is #1 on the list toward living fully while on planet earth.  Secondly, (despite the denial by public health authorities and a complicit main stream media) there are effective treatments for both COVID and Lyme/MSIDS.  Obtaining good medical help is crucial, and in my experience Lyme literate doctors (LLMD’s) are probably your best bet for both illnesses as they are open-minded, up to date on the science, and willing to go outside the box.  When I felt like I was on death’s door from COVID, my LLMD utilized his knowledge once again and squared me away.  I write about the treatment that worked here. Within 1-2 doses I felt like a new person – demonstrating the importance of effective treatment.

These attributes are what make a good doctor, yet for both diseases we are clearly seeing the monopolization of medicine where doctors not following the narrative are censored, bullied, maligned, and persecuted.

It’s an old, old tactic that continues to be deployed.

Need for Tick Bite Reporting in Non-Endemic States

https://www.mdpi.com/2227-9032/9/6/771/htm

Tick-Borne Surveillance Patterns in Perceived Non-Endemic Geographic Areas: Human Tick Encounters and Disease Outcomes

*Author to whom correspondence should be addressed.
Academic Editor: Raphael B. Stricker
Healthcare 20219(6), 771; https://doi.org/10.3390/healthcare9060771
Received: 12 May 2021 / Revised: 15 June 2021 / Accepted: 16 June 2021 / Published: 21 June 2021
Abstract
Recent scholarship supports the use of tick bite encounters as a proxy for human disease risk. Extending entomological monitoring, this study was designed to provide geographically salient information on self-reported tick bite encounters by survey respondents who concomitantly reported a Lyme disease (LD) diagnosis in a state perceived as non-endemic to tick-borne illness. Focusing on Texas, a mixed-methods approach was used to compare data on tick bite encounters from self-reported LD patients with county-level confirmed cases of LD from the U.S. Centers for Disease Control and Prevention (CDC), as well as serological canine reports.
A greater proportion of respondents reported not recalling a tick bite in the study population, but a binomial test indicated that this difference was not statistically significant. A secondary analysis compared neighboring county-level data and ecological regions.
Using multi-layer thematic mapping, our findings indicated that tick bite reports accurately overlapped with the geographic patterns of those patients previously known to be CDC-positive for serological LD and with canine-positive tests for Borrelia burgdorferi, anaplasmosis, and ehrlichiosis, as well as within neighboring counties and ecological regions. LD patient-reported tick bite encounters, corrected for population density, also accurately aligned with official CDC county hot-spots. Given the large number of counties in Texas, these findings are notable.
Overall, the study demonstrates that direct, clinically diagnosed patient reports with county-level tick bite encounter data offer important public health surveillance measures, particularly as it pertains to difficult-to-diagnose diseases where testing protocols may not be well established. Further integration of geo-ecological and socio-demographic factors with existing national epidemiological data, as well as increasingly accessible self-report methods such as online surveys, will contribute to the contextual information needed to organize and implement a coordinated public health response to LD.
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Important excerpts:
  • Primary care physicians may under-diagnose LD in areas perceived as non-endemic [33].
  • Misdiagnosis was reported in seventy-two percent of respondents in a large survey [34], indicating the need for improved surveillance beyond entomology that links tick encounters with human disease risk, which can inform diagnostic approaches.
  • The need for expanded and improved LD research and knowledge is highly apparent for the benefit of both patients and health practitioners.
  • Given that LD is often labeled a “contested illness,” TTS respondents who may be perceived as “faking it” could easily report any random county if their tick bites were indeed a false entry in the TTS survey. In other words, it would be highly unlikely that the totality of respondents’ tick bite reports would map directly to confirmed official CDC cases or canine serological findings through attempted deception. TTS-reported tick bites overlap almost exactly with CDC-confirmed LD cases in county-level and eco-region analyses. In one case, in a county in which TTS respondents did not overlap with human cases, tick encounter reports did overlap with a positive canine county.
You know it’s bad when researchers have to deal with the myth that patients are considered deceivers.

COVID-19: Is Infection Along With Mycoplasma Or Other Bacteria Linked to Progression to a Lethal Outcome?

https://m.scirp.org/papers/100307

COVID-19 Coronavirus: Is Infection along with Mycoplasma or Other Bacteria Linked to Progression to a Lethal Outcome?

 
Abstract: Most patients with COVID-19 disease caused by the SARS-CoV-2 virus recover from this infection, but a significant fraction progress to a fatal outcome. As with some other RNA viruses, co-infection or activation of latent bacterial infections along with pre-existing health conditions in COVID-19 disease may be important in determining a fatal disease course. Mycoplasma spp. (M. pneumonaie, M. fermentans, etc.) have been routinely found as co-infections in a wide number of clinical conditions, and in some cases this has progressed to a fatal disease.
 
Although preliminary, Mycoplasma pneumoniae has been identified in COVID-19 disease, and the severity of some signs and symptoms in progressive COVID-19 patients could be due, in part, to Mycoplasma or other bacterial infections. Moreover, the presence of pathogenic Mycoplasma species or other pathogenic bacteria in COVID-19 disease may confer a perfect storm of cytokine and hemodynamic dysfunction, autoimmune activation, mitochondrial dysfunction and other complications that together cannot be easily corrected in patients with pre-existing health conditions.
 
The positive responses of only some COVID-19 patients to antibiotic and anti-malaria therapy could have been the result of suppression of Mycoplasma species and other bacterial co-infections in subsets of patients.
 
Thus it may be useful to use molecular tests to determine the presence of pathogenic Mycoplasma species and other pathogenic bacteria that are commonly found in atypical pneumonia in all hospitalized COVID-19 patients, and when positive results are obtained, these patients should treated accordingly in order to improve clinical responses and patient outcomes.  (See link for full article)
 
Important note:

Since we prepared this manuscript, there have been recent contributions, mostly brief preprint reports or letters that support our hypothesis. Charkraborty and Das [98] discussed the possibility that anaerobic bacteria, including Mycoplasma species, could be causing secondary infections in COVID-19 disease. They have proposed that such infections may be altering hemoglobin degradation and producing metabolites that affect hypoxia in progressing COVID-19 patients [98]. Stricker and Fesler [99] suggested that patients who have COVID-19 disease should not progress to a fatal outcome, if their therapy includes combinations of antibiotics (including minocycline or doxycycline) used for tick-borne infections [99]. As we discussed previously, Lyme disease patients often have mycoplasma co-infections that are sensitive to minocycline and doxycycline [62] [75].

For more: