Archive for the ‘Activism’ Category

Pain at the Prescription Counter: How to Reduce What You Pay For Drugs

https://health.usnews.com/health-care/patient-advice/articles/2018-09-05/pain-at-the-prescription-counter-how-to-reduce-what-you-pay-for-drugs?

Pain at the Prescription Counter: How to Reduce What You Pay for Drugs

Even generic medications are often shockingly pricey. Here’s what you can do to bring your drug costs down.
By Elizabeth Gardner, Contributor Sept. 5, 2018
U.S. News & World Report

Pharmacist talking to customer

One strategy to reduce prescription costs is to check local pharmacies for the best prices.(Getty Images)

Have you seen the cost of a prescription jump from $3 to $30 when your doctor changed your dosage? Were you ambushed by a $500 copay for a tube of steroidal skin cream? Are you carrying a $300 EpiPen – essential for emergency treatment of deadly allergic reactions – that used to cost $50? Have you discovered that your atorvastatin (generic Lipitor) costs less if you put away your insurance card and pay cash?

Welcome to the drug price maze! More and more, certain peculiarities of the pharmaceutical market are clashing with insurance arrangements that require patients to pay a bigger share for their prescriptions, leading to confusion and sticker shock.

“When your insurer paid most of the cost and copays were minimal, no one complained as the prices skyrocketed,” says physician Elisabeth Rosenthal, editor in chief of Kaiser Health News and author of “An American Sickness: How Healthcare Became Big Business and How You Can Take It Back.”

Now, she explains, “copays and deductibles are going up, and we’re all feeling those prices in a way that has made everyone sit up and go, ‘Whoa!’ ” There are ways for consumers to reduce what they pay for many drugs, but they must learn how to ask questions and where to look for answers.

Drug pricing has been relatively straightforward until recently, at least for consumers. Branded drugs, patented by their creators, cost a lot, but insurance picked up most of the bill. When the patents expired, manufacturers of generic drugs offered much cheaper versions, and typical copays dropped to just a few dollars. Pharmaceutical companies had an incentive to keep discovering new drugs, and the price burden for underwriting those discoveries was temporary and led to a steady flow of new, inexpensive generics.

 

It’s still a straight path most of the time. Generic drugs accounted for 90 percent of the more than 5.8 billion U.S. prescriptions written in 2017, according to research firm IQVIA, and more than 97 percent of all prescriptions (both branded and generic) cost patients less than $50 out of pocket. Almost a third of prescriptions written in 2017 were free to the patient, because of regulations or insurance arrangements. (For example, the Affordable Care Act mandates no patient payment for all FDA-approved contraceptives and preventive medications, like cholesterol-lowering drugs and vaccines, and insurance plans may stop charging copays once patients have reached their deductible limit for the year.)

“The vast majority of drugs are inexpensive and are one of the best values in the health care system,” says Brigham and Women’s Hospital’s Aaron Kesselheim, associate professor of medicine at Harvard Medical School, who studies drug pricing.

But he notes that several factors distort the market for pharmaceuticals in general and generics in particular, and they can deliver extreme price blows to people whose prescriptions are in that expensive 3 percent, or to those whose insurance coverage, or lack of it, makes them responsible for a significant chunk of their medication costs. Those factors include:

No standard pricing. Retail pricing for prescription drugs is a black box, says Doug Hirsch, a former Facebook executive who co-founded GoodRx, a drug price comparison app and website, in 2011. He realized there was a need for such a service when he discovered that the cash cost for a month’s supply of the ADHD medication Vyvanse, which wasn’t covered by his insurance, could vary by as much as $150 depending on which pharmacy he went to.

“I assumed the guy with the white coat had a master price list, but there isn’t one,” he says.

Most insurers rely on pharmacy benefit managers, or PBMs, to negotiate with drug companies, and those deals vary. If a pharmacist tells you that a drug isn’t “on your formulary,” Hirsch says, it means your insurer’s PBM hasn’t negotiated any savings on it and may not cover it. Sometimes you can make out by skipping your insurer entirely, using discounts available on price comparison websites or “doorbuster” specials offered by some pharmacies. Take the cholesterol drug atorvastatin, for example. In early June 2018, GoodRx showed that the cash price for a month’s supply was $150 at Walgreens but a mere $17 at Costco ($7.84 with a GoodRx coupon). If you check your coverage, you may find that your copay at Walgreens is more than the cash price at Costco.

No competition. A three-month supply of 40-milligram capsules of the popular antidepressant fluoxetine (generic Prozac) costs as little as $10 at Walmart, according to GoodRx, and will rarely trigger more than the minimum copay at most pharmacies. But if your doctor ups your dosage to 60 mg, the cash price can hit $900 at many pharmacies, according to GoodRx, though a store coupon can knock it down by more than one-quarter. Your insurance copay is likely to rise accordingly.

That’s most likely because that particular dosage is available from only one or a small number of sources, Kesselheim says.

“If there are eight manufacturers making a 40-mg version of a certain drug, but only one making a 60-mg version, then that manufacturer can charge whatever it wants.”

It takes four or more manufacturers of the same product for prices to go down significantly, according to his research. Patients can sometimes avoid the high-priced version by asking their doctors to prescribe a drug in its cheapest form (in the example above, by asking their doctor to prescribe a combination of 40-mg and 20-mg capsules), but that strategy requires knowledge.

“Most physicians don’t know anything about costs, or talk about them with their patients,” Kesselheim says.

No price regulation. As a generic drug’s price approaches rock bottom, manufacturers may lose interest and leave the field. The last one standing can jack up the price, and patients who need the drug have to pay. That’s how the anti-parasite drug Daraprim went from $1 per pill several years ago to $750 in 2016. Martin Shkreli, who engineered that headline-grabbing increase while at the helm of Turing Pharmaceuticals, recently went to prison, though for securities fraud rather than price-gouging (still widely legal at this writing). But Daraprim still costs about $750 per pill (as of June 2018), leaving patients with life-threatening toxoplasmosis or other parasitic infections to either pay up or resort to less effective medications. This incident and others have prompted a flurry of state-level legislative activities – 357 bills in 47 states in the first five months of 2018 alone – directed at pricing and payment, according to the National Conference of State Legislatures.

No generics. Even if a product goes off patent, generic drug manufacturers may ignore it if it’s hard to duplicate the branded version. Creams, ointments and inhaled medications are especially likely to be available only as branded products, Rosenthal says. In March of 2018, Kaiser Health News’s “Bill of the Month” – a column that deciphers medical bills submitted by readers – featured a $1,500-per-month treatment for toenail fungus that drained the patient’s health savings account without her knowledge when she relied on her insurer’s mail-order pharmacy.

“The dermatologist’s office never told her it was expensive,” Rosenthal says. “But it’s the first thing you should ask.”

EpiPen supplier Mylan raised its price from about $100 to over $600 for a two-pack between 2007 and 2016. After public outcry and protests from lawmakers, the company started offering coupons and making a generic EpiPen.

You may be able to get your drug costs down with a few simple strategies. Jennifer Spare, of Hanover Park, Illinois, usually saves between $25 and $40 per prescription just by checking local pharmacies for the best prices. She usually skips large chains in favor of a small family-owned pharmacy.

“They have the best pricing around, and they’ll mail your prescription to you at no charge,” she says.

Spare has also saved as much as $60 just by asking the pharmacy for a discount. Comparison shopping is a little more complicated with electronic prescribing, where the doctor automatically sends the prescription to the patient’s pharmacy of choice. Many states now require e-prescriptions for some or all medications. You might find it a pain to compare costs every time and request that the pharmacy in your electronic medical record be changed once you find the best price, but it should take your doctor under a minute to make the switch, says Los Angeles internist Sharon Orrange, a clinical associate professor of medicine at the University of Southern California’s Keck School of Medicine. She often uses the GoodRx phone app to check local prices with patients before she writes a prescription.

Some patients look abroad to find deals. Consumers can sort through the many foreign sources of medication to find ones that are reputable at PharmacyChecker.com. The site verifies the credentials, contact information, product quality and pricing for foreign pharmacies, says Gabriel Levitt, president and co-founder.

“It is technically against the law to import a medication, but as far as we know the government has never prosecuted anyone as long as it’s for themselves or a family member.”

In a 2016 poll by the Kaiser Family Foundation, 8 percent of Americans said they had bought prescription drugs from another country. Rosenthal knows a U.S. asthma patient who buys his inhalers in Paris. With a $200 difference between the U.S. price and the French price, savings on two or three inhalers can cover his airfare.

Patients hit with big drug bills may have to choose between paying the rent or forgoing medications: a choice that can have dire ramifications. One study estimated the U.S. racks up $100 billion to $300 billion in avoidable health care costs annually from people not adhering to their regimen, and high costs accounted for 17 percent of those failures. In a 2016 survey by the Commonwealth Fund, 14 percent of insured Americans didn’t fill a prescription or skimped on their dosage because of cost. For the uninsured, it was 33 percent.

Orrange, like all doctors, wants her patients to use their medications. If you’re tempted to skimp or pass because of cost, she wants to know immediately – not three months later during a follow-up appointment. She’s happy to go to bat with insurers, especially if her patient does much better on a branded drug than on its generic cousin, or if the insurer suddenly decides not to cover a drug that the patient has been taking for a long time.

“Bring it up with me, and I’ll help you find the best price,” she says. “Both of us have a stake in you taking your medications.”

If your doctor isn’t as price-aware as Orrange (and most aren’t), speak up.

“Tell your physician about the price of your drugs,” Kesselheim says. “It’s possible there’s another equally effective drug that might be cheaper.” Rosenthal agrees. “Train your doctor,” she says. “If all their patients ask how much their prescriptions will cost, they’re going to have to know.”

9 Strategies for Saving Money on Prescription Meds

Hands of man holding pill bottle with pills on hand

Getty Images

9 Strategies for Saving Money on Prescription Meds:  https://health.usnews.com/health-care/patient-advice/slideshows/9-strategies-for-saving-money-on-prescription-meds

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**Comment**

I’ve found Costco Pharmacy to be the cheapest local pharmacy.  Also, I use a Canadian pharmacy https://www.pharmacyrxworld.com for really expensive meds like tinidazole and Albenza.  The advice to switch to a less expensive drug with similar action has helped me save at times, and I recommend looking into Goodrx as well as asking about coupons and looking online.

For Mepron (liquid gold) we applied for bridges to access, a program put on by the manufacturer:  https://www.scbn.org/  It’s a lot of paperwork but we were able to get 1 year of Mepron free for two people. To say that saved us a boatload would be an understatement.

Support groups are a great place to ask questions about drug prices as patients have done a lot of footwork and we can all help each other save by sharing this intel.

I would also suggest trying compounding pharmacies.  I learned the hard way that Cytomel (T3) has many additives while the compounded form at Women’s International Pharmacy has an extremely clean T3 with only olive oil as it’s additive.  Some patients are extremely sensitive to dyes and additives so make sure to ask about those as well.

Sneak Peak – Truth About Vaccines Docu-Series – No safety studies on Combined Doses of Vaccines

https://www.facebook.com/ttavdocuseries/videos/1955704004492186/  Approx. 5 Min

Watch Dr. Larry Palevsky and Barbara Loe Fisher discuss the CDC schedule of vaccines… and the studies that have been done on vaccines with multiple viruses, like the MMR vaccine.  They’re talking about the blatant lack of safety studies on the combined doses of vaccines we’re giving to children right now, like the MMR, which is three vaccines in one.

Much, much more in The Truth About Vaccines starting on September 12 when you sign up right here to watch for FREE! –> http://bit.ly/PalevskyFisherTTAV

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**Comment**

I must correct Dr. Palevsky’s statement that people don’t get multiple diseases at the same time in nature.  Lyme/MSIDS patients are often infected with multiple things at once which is why we are so sick and why the CDC’s mono therapy of doxycycline rarely works.

If Lyme/MSIDS patients are an example of the combined effect of being infected with multiple pathogens and the resulting cytokine cascade and inflammation, we should all stop and reflect upon the potential damage combined vaccines can pose – even to a healthy population.

For the record, here you can see the ACIP vote “yes” for a new vaccine despite the lack of safety studies on the cumulative effects:  https://madisonarealymesupportgroup.com/2018/09/08/acip-vote-yes-for-new-vaccine-despite-no-safety-studies-on-cumulative-effect-with-other-vaccines/  It’s all right here in bright purple crayon.

ACIP Vote “Yes” for New Vaccine Despite No Safety Studies on Cumulative Effect With Other Vaccines

 Approx. 2:15,  Sept. 2018

ACIP voting on a new vaccine

This is how brand new vaccines are approved to the pediatric immunization schedule. Basic dialogue before they voted:

Q: Is it dangerous to use this vaccine with other vaccines?

A: We have no data on that. Once approved, it will be given along with other vaccines but we have no clue whether that’s safe or not.

Somehow approving a new vaccine with no data on the accumulated cocktail effect is OK to them IF you put them in different limbs……scientifically, this is quite a head scratcher.  By nature, vaccines are systemic.

Q: Do we at least have any data from other countries that used this vaccine in combination with other vaccines?

A: Not to my knowledge.

Sounds good to me. Lets vote yes!

Only after they vote, one guy voices concern over 16 heart attack deaths in the safety trials.

Illogic at it’s best.

Perhaps it has something to do with money & power?  https://thevaccinereaction.org/2018/09/global-vaccine-market-expected-to-reach-50-52-billion-by-2023/

The value of the vaccine market will reach $50.42 billion by 2023 from $36.45 billion in 2018, at a Compound Annual Growth Rate (CAGR) of 6.7 percent, according to recently published report by private research firm MarketsandMarkets of India.1

 

 

Avil Lavigne’s New Album About Her Battle With Lyme

https://www.lymedisease.org/5-year-break-avril-lavigne-drop-new-album-battle-lyme-disease/

After A 5 Year Break, Avril Lavigne to Drop a New Album About Her Battle with Lyme Disease

avril-lavigne-300x200

Singer Avril Lavigne has announced her return to music, some five years after the release of her last album.

The Canadian pop-rock artist, 33, has explained in searing detail the health problems that kept her away from the limelight for so long.

In an open letter to her fans announcing the impending release of comeback single “Head Above Water” later this month, Lavigne explains that her well-publicized battle with infectious tick-borne Lyme disease caused her body to completely shut down.

Her new album “Head Above Water” will release on September 19th.

The Avril Lavigne Foundation supports people with Lyme Disease, serious illness or disabilities. Through programs and grants, it provides funding, education and encouragement for its beneficiaries.

Letter found here: https://avrillavigne.com

For more:  https://madisonarealymesupportgroup.com/2015/07/29/excellent-lyme-article-avril-lavigne/

Lyme Taking Toll on Lunenburg County Search and Rescue Team

http://thechronicleherald.ca/novascotia/1589348-lyme-disease-taking-toll-on-lunenburg-county-search-and-rescue-team

Lyme disease taking toll on Lunenburg County search and rescue team

ANDREW RANKIN THE CHRONICLE HERALD
Published August 8, 2018

Search and Rescue volunteers confer before heading into the woods during a May search in Middle Musquodoboit. (TIM KROCHAK / Staff)

Before she got Lyme disease, Sherry Veinot says she heeded every precaution to stay clear of ticks during search and rescue operations in Lunenburg County (Nova Scotia).

So did all the other members of the Lunenburg County Ground Search and Rescue team, said Veinot, the group’s search director and vice-president of the Nova Scotia Ground Search and Rescue Association. Despite their efforts, she and two other members of the group living in Bridgewater and LaHave areas were diagnosed with Lyme disease last summer, shortly after participating in a missing person search in Queens County.

“We did everything we could; protected ourselves with Deet, made sure we tied our pant cuffs to our boots, buttoned our shirt cuffs but it wasn’t enough,” said Veinot, a 30-year search and rescue volunteer. “A lot of our members found (black-legged) ticks on them when they got home, some found them even after they showered.

Staying protected comes out of pocket

Veinot’s diagnosis came in last August during a visit to the Fishermen’s Memorial Hospital outpatient clinic in Lunenburg. She said she was flattened by the disease for weeks but antibiotics provided temporary relief. Veinot says the disease has re-emerged twice, most recently six weeks ago when she was given a three-week antibiotic prescription. She said the other two members who contracted the diseases were treated successfully with antibiotics and haven’t had any flare-ups.

But she says the province is not taking measures to help protect the 1,260 association volunteers from the disease. The association’s 23 search and rescue teams fall under the jurisdiction of Emergency Management Office, a division of the Department of Justice. Veinot says members are provided no formal guidance from the province on how to protect themselves from Lyme disease, and other serious tick-borne diseases. Some of them have purchased permethrin-coated clothing at their own expense. Permethrin is a tick repellant insecticide.

Each of the search and rescue teams is allotted $3,000 in annual funding from the province to cover necessary expenses. The teams purchase their own clothing. Eight teams are without a building to store their gear and fundraise for basic equipment.

“We just want to know what the actual risk we’re facing. We want to know exactly what kind of ticks are out there and what diseases they are carrying.”

Risky business

A female black-legged tick. (FILE)

In Nova Scotia, all but Cape Breton Island and Guysborough County are deemed high-risk areas for Lyme disease by the Department of Health and Wellness. In 2016, the number of reported cases of the disease in the province rose to 326, up from 247 in 2015. That amounts to 34.4 per 100,000 population, 12.7 times the national average. Data for 2017 is not yet available.

Vett Lloyd, a Mount Allison University biologist and tick expert, says no other place in Canada rivals the ballooning tick population on the province’s South Shore, with Ontario being the possible exception.

Nova Scotians shouldn’t just be concerned about Borrelia burgdorferi, the bacteria which causes Lyme disease and is carried only by black-legged ticks.

A Dalhousie University study released in May shows black-legged ticks carry more than just Borrelia burgdorferi. The study also sampled American dog ticks and found they also carried dangerous bacteria. All of the parasites were collected in Nova Scotia, and in one test of 115 black-legged ticks, 20 carried Borrelia burgdorferi.

But 76 per cent of dog ticks and 40 per cent of black-legged ticks tested carried Bartonella, which causes endocarditis, and several other serious and potentially fatal diseases in humans. Rickettsia, which can cause Rocky Mountain Spotted Fever, was found in 53 per cent of dog ticks tested compared to 14 per cent in black-legged ticks. Some of the ticks also carried Francisella tularensis, a potentially deadly bacteria, and Anaplasma phagocytophilum, which caused tick borne fever.

The Department of Health and Wellness said it was unaware of the study but said the study is consistent with its own surveillance of ticks. Yet, similar data has not been made readily available to the public by the Department of Health and Wellness or any other provincial government department.

Veinot said the two search and rescue members who contracted the disease opened claims with the Workers’ Compensation Board of Nova Scotia. Because she’s retired, Veinot said she didn’t attempt to open a claim and got no financial support from the province. Her treatment was paid through her husband’s drug plan.

The Chronicle Herald inquired with Emergency Management Office, asking questions about whether the department was aware of the three Lyme disease cases and if measures are in place to protect search and rescue members from tick-borne diseases. None of the questions were answered directly. Spokeswoman Susan Mader-Zinck said the province maintains a tick safety website as a reference guide for residents but added no other information.

“The association would be best to provide information on the training and standards they follow regarding tick borne illnesses, including Lyme disease,” said Mader-Zinck.

Newly appointed Municipal Affairs Minister Chuck Porter sent a letter to the group last week promising to host a meeting with the association executives in the near future. Veinot hopes he’ll see to it that the association gets more provincial support.

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**Comment**

Great article reminding us of how our search and rescue folks, police, fire, EMS, and forest workers are in harms way.  These folks are in the elements, including grassy ditches and other tick friendly habitats.

Education is key, provision of tick insecticides a must, as well as a nationwide effort at tick reduction is paramount.  For more on this:

https://madisonarealymesupportgroup.com/2018/04/03/fire-good-news-for-tick-reduction/

https://madisonarealymesupportgroup.com/2018/05/27/study-conforms-permethrin-causes-ticks-to-drop-off-clothing/

https://madisonarealymesupportgroup.com/2017/05/11/tick-prevention-and-removal-2017/