It was May 2013 when I was diagnosed with “the summer flu.” I was bedridden with fevers, chills, and body aches. My hands, feet, and face started tingling, and I could no longer turn my head. It was my boss who first suggested I might have Lyme disease. A long-time resident of Martha’s Vineyard, she knew something I didn’t—the Vineyard is infested with ticks. Even still, I struggled to find a doctor who would treat me.

My health was eventually restored with a course of antibiotics. A year later, my hands and arms throbbed, followed by electric pain through my body and brain a year after that. I lost my ability to read, forgot how to get home from work, and every night, I journaled details of my life—desperate to remember who I was. I was in fierce denial that it was Lyme-related. According to mainstream doctors, I had been cured.

I was 26 years old when I had my first appointment with a Lyme specialist. The nurse asked how I was going to get through this, and I saw one way forward: leverage my passion for storytelling to create a documentary about Lyme. I needed a reason to live that was bigger than myself—to help others avoid this experience. The nurse connected me to another filmmaker, also diagnosed with Lyme—Winslow Crane-Murdoch—and we began co-directing The Quiet Epidemic.  (See link for article)

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**Comment**

And so it goes……another person infected with a complex illness that is denied by most doctors and the realization that we need a reason to live that is bigger than ourselves.

I can write this story by heart.

Important quote:

Our health agencies have failed to properly respond to this public health crisis for 50 years. We’re witnessing what happens when nothing is done. It’s time to involve our nation’s decision-makers on Capitol Hill.

Unfortunately, I do not believe involving our nation’s decision-makers is going to do squat.  Remember COVID?  Yeah, we are still being told it was a horrible pandemic and that the clot shots are ‘safe and effective.’

Nope.  They are not the answer.

It’s up to us.

For more:

http://  Approx. 5 Min

Willy Burgdorfer Ph.D. 2014

Toward the end of his life, Burgdorfer gave a telling interview.

  1. The Lyme organism can sequester in tissues.
  2. He feels the controversy in Lyme disease research is a shameful affair.
  3. ‘Money goes to the people that have for the past 30 years produced the same thing – nothing.’
  4. ‘Serology or serology-plus has to be started from scratch with people that don’t know beforehand the results of their research.’
  5. He also blames physicians as they are clueless and many won’t even touch a Lyme/MSIDS patient.