Madison Area Lyme Support Group

The newly funded multidisciplinary Lyme disease program will improve patient care and seek new breakthroughs in early detection, treatment and prevention.

By Nancy Kilburn

11/27/23

Excerpts:

To address this public health challenge, Mass General is establishing a Multidisciplinary Lyme Disease Clinical Research Program. Made possible with the support of Phillip H. Morse, Vice Chairman of the Boston Red Sox, the program will bring together experts from infectious diseases, neurology, rheumatology and other departments across the hospital to provide more coordinated care for patients and advance research toward new treatments and methods for early detection and prevention.

In all, the Morse family’s transformational gift provides funding for an endowed chair — recently awarded to Dr. Steere — and the creation of a multidisciplinary clinic with a Lyme disease research program.

The Morse Endowed Chair in Medicine, the highest academic honor Mass General can give, provides Dr. Steere with flexible funding to pursue high-impact work. As Chair, Dr. Steere is launching the Lyme disease clinical research program, alongside Jacob Lemieux, MD, PhD, a leading physician-scientist who studies the genetics of Lyme and other tick-borne illnesses. “Jake represents the next generation of Lyme research and this gift will help us realize the vision of what they can accomplish in the future,” says Dr. Steere.  (See link for article)

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SUMMARY:

• One of the goals is that patients will receive “coordinated” care in one location.
• The article erroneously states that a “small subset” of patients go on to suffer with persistent symptoms. (This myth must be destroyed or patients will never get the attention they deserve)
• The article states patients are frustrated by the slow rate of progress in treating long-Lyme. (Ya think?!)
• Regarding the NIH, research into persistent symptoms as been a “hard sell.” (This is the understatement of the year!)
• Due to this FACT, research into persistent symptoms would not be possible without philanthropic support. (They fully admit that doing ANY research with government grants is a WASTE OF TIME.  Please remember this when you read about Lyme advocates clamoring for more government money/research. It is never yielded anything productive for patients and it never will unless the accepted narrative is replaced by reality)

It remains to be seen if this new interdisciplinary group is any different from the same-o-same-o of the past.  I’m not holding my breath.  The juggernaut of corrupt research institutions in academia as well as in ‘public health’ agencies is very real and only appears to be worsening.

For more:

• https://madisonarealymesupportgroup.com/2024/02/14/harvard-magazine-deciphering-lyme-disease/  Long time Lyme advocate and patient Carl Tuttle rightly asks Dr. Lemieux, the aforementioned physician scientist at the clinical research program, why Lyme/MSIDS has been transformed into a low-risk and non-urgent health issue when Steere‘s own work has documented the severity of the illness since 1979.  Lowering the seriousness of this illness has eliminated disability for hundreds of thousands of patients (perhaps millions worldwide).  Tuttle also points out that instead of finding a cure, all effort has been for a vaccine.
• https://madisonarealymesupportgroup.com/2024/02/01/deciphering-lyme-disease/  The team included none other than Allen Steere who first identified the disease affecting children in Lyme, Connecticut that he wrongly attributed to juvenile arthritis. His continued myopic focus on Lyme arthritis is worth noting as the disease(s) in the literature has shown it to cause dermatological, neurological, and neuropsychiatric manifestations since the 1800’s. He was also named in the racketeering lawsuit alleging he colluded to deny persistent infection. He is a pharma consultant, co-author of the antiquated and unscientific IDSA Lyme guidelines and a CDC/EIS biowarfare officer which is chartered with responding to biowarfare agents released on U.S. soil, as well as developing vaccines against them. He also worked for the private Yale Corporation that worked closely with the biowarfare tick lab in Connecticut. Steere personally oversaw the Lymerix vaccine trials and associated tests run by the company that licensed the vaccine from his previous employer.  Steere personally testifies against doctors who who treat chronic Lyme.  Source
• I must add a personal note here: I couldn’t help but notice Polly Murray‘s frustration in working with Steere way back in the beginning of this fiasco as noted in her book, “The Widening Circle.”  Murray meticulously documented her entire family’s ongoing symptoms and the fact antimicrobials helped them greatly.  Steere refused to work with her and ignored the obvious ongoing infection(s). Why anyone would award this Lyme denialist any more money defies all logic and common sense.  
• https://madisonarealymesupportgroup.com/2023/10/10/the-lyme-disease-vaccine-separating-fact-and-fiction/
• https://madisonarealymesupportgroup.com/2020/02/10/the-bitter-feud-over-lymerix/

I think we have our answer about this already. I’d love to be wrong.