Madison Area Lyme Support Group

When she was 15, she woke up and realized she couldn’t hear when her dad had trouble waking her up. “He was shaking me, and I was like, ‘This is weird,’” she told CBS 8. “I looked at him, I couldn’t hear him, then sat up and realized something was wrong with my left ear.”

Daisy said she had “a lot of high-pitched ringing and then just progressively got worse, and I couldn’t understand speech very well.” She said the experience was “super isolating” and that she felt very alone at the time.

When she was 17, she was diagnosed with Meniere’s disease, a disorder of the inner ear. At 21, tests confirmed that she also had Lyme disease, which doctors think could have potentially caused her Meniere’s disease.

Daisy ended up experiencing seizures, hair loss, joint pain, and severe dizziness, according to a video she made for NEXA Cares.

Hearing aids didn’t work for Daisy, so she ended up getting a cochlear implant, which allows people with profound hearing loss to hear better, per CBS 8.

She actually documented her experience on TikTok and built up a big following.   (See link for article, videos and pictures)

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For more:

• https://madisonarealymesupportgroup.com/2017/11/24/lyme-hearing-loss/
• https://madisonarealymesupportgroup.com/2021/07/12/lyme-sudden-hearing-loss/
• https://madisonarealymesupportgroup.com/2021/10/07/lyme-disease-triggers-vertigo-hearing-loss/
• https://madisonarealymesupportgroup.com/2021/03/30/lyme-disease-patient-with-permanent-tinnitus-hearing-loss/