https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/27531835?

2nd letter published in the BMJ

AUG 16, 2020 — 

Please see the letter below addressed to the Tick-Borne Disease working Group……

———- Original Message ———-

From: CARL TUTTLE <runagain@comcast.net>
To: “tickbornedisease@hhs.gov” <tickbornedisease@hhs.gov>
Cc: (98 Undisclosed recipients)
Subject: Carl Tuttle’s 2nd letter published in the BMJ

To the Tick-Borne Disease Working Group,

Please see the letter below in response to a misleading, over-simplified article on Lyme disease published in the BMJ:

Tick bite

BMJ 2020; 370 doi: https://doi.org/10.1136/bmj.m3029 (Published 13 August 2020) Cite this as: BMJ 2020;370:m3029

Rapid Response:

Re: Tick bite

Dear Editor

In reference to the following statement from the “Tick bite” paper:
“…most tick bites are harmless and do not transmit Lyme disease. Apart from in high risk areas, most ticks (=85%) are not infected. In Europe, including the UK, between 5% and 40% of ticks may be infected.1 Only 2-3% of people with a tick bite develop Lyme disease.”

This is like playing Russian roulette with one’s health…. five of the chambers in a six shooter do not contain a projectile (83%). So no big deal… everyone should play the game!

Patient testimony all across the United States and (the globe) is describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin. [1]

Is this publication a continuation of a racketeering scheme to downplay the severity of Lyme disease? [2]

Patients who miss the narrow window of opportunity for successful short-term treatment (due to a false negative serologic test, missing bulls-eye rash, misdiagnosis, etc. etc.) advance to late stage debilitating neurologic Lyme and are left to fend for themselves and are often told that they need a psychiatric evaluation.

Question: What was the motivation for this paper on tick-borne Lyme disease?

Respectfully Submitted,
Carl Tuttle

References: [please read them]

1. 1100 Page Comment File from the Change.org petition calling for a congressional investigation into the mishandling of Lyme disease (personal Dropbox storage area)
https://www.dropbox.com/s/u01uifxi4ni71hv/petition_comments_June%2010%20

93,000 signatures from across America and twenty additional countries. Please open that PDF and read the comments.
2. Rapid Response: The BMJ
Re: Lyme borreliosis: diagnosis and management
https://www.bmj.com/content/369/bmj.m1041/rr-1
_______________________________________________________
Follow-up letter to the Editor-in-Chief of the BMJ
———- Original Message ———-

From: CARL TUTTLE runagain@comcast.net
To: “fgodlee@bmj.com” fgodlee@bmj.com
Cc: (coauthors of the “tick bite” paper)
Date: 08/15/2020 9:20 AM
Subject: Inquiry to Dr. Godlee

Dear Dr. Godlee,

The fixation on the acute stage of Lyme disease with bulls-eye rash and early treatment has long been established here in America. Avoidance of the horribly disabled Lyme patient population and suppression of persistent infection after extensive antibiotic treatment is the established modus operandi of the academics who have controlled the Lyme disease narrative for the past thirty years. As mentioned in my previous letter to the editor, ( published on June 10, 2020) these academics are now defendants in a racketeering lawsuit in Texas District Court.

Focusing on the acute stage of disease gives the illusion that Lyme is a simple nuisance disease but it is well known that strep throat left untreated progresses to rheumatic fever causing irreversible heart damage.

So, what happens to the Lyme patient who goes months, years or decades without treatment because of a “false negative serologic test, missing bulls-eye rash, misdiagnosis, etc. etc”?

The consequences of untreated Lyme disease are not emphasized in the Razai paper but Lyme left untreated can lead to horrible disability.

For example:

1. A 1993 hearing in Washington was chaired by Senator Ted Kennedy where fourteen-year-old Lyme patient Evan White testified while in a wheelchair.
NEWS: Former patient who testified as a child about Lyme disease recalls encounter with Sen. Ted Kennedy
https://www.lymedisease.org/186/

Excerpt:

“No one could hear or feel the moment of that child and not be moved,” Kennedy explained to the [Boston] Globe at the time. Anyone who wasn’t moved, he said, “hasn’t got a heart.”

Based on the summary below it appears that it took years of antibioticsnot weeks to treat Evan’s disability.  Had he not met Dr. Joseph Burrascano, Evan would have been a burden on the Social Security program today through “therapeutic nihilism.”  [1]

Late Neurologic Lyme Is Reversible: Evan White

Post by CaliforniaLyme » Wed 31 Oct 2007 16:46
https://www.lymeneteurope.org/forum/viewtopic.php?t=147

2. Wheelchair-Bound Girl Calls Blessing By Pope Francis ‘Most Precious Moment Of My Life’ 
http://newyork.cbslocal.com/2015/09/24/pope-francis-blesses-girl-in-wheelchair/

NEW YORK (CBSNewYork) — A 12-year-old girl who has been confined to a wheelchair since being diagnosed with Lyme disease said meeting Pope Francis as he arrived in New York Thursday was “the most precious moment of my life.”

3. Nashua Mom in the ‘Lyme Light’ on Katie Couric Show
http://patch.com/new-hampshire/nashua/nashua-mom-talks-chronic-lyme-on-katie-couric-show

Fifth-grade teacher Kelly Downing was paralyzed from the neck down and interviewed by Katie Couric.

4. Professor Neil Spector: Duke physician uses near-death experience to encourage patient self-advocacy
http://www.dukechronicle.com/articles/2015/05/28/duke-physician-uses-near-death-experience-encourage-patient-self-advocacy#.VYlYnxtViko

Dr Neil Spector from Duke University required a heart transplant after his Lyme disease went undiagnosed for four years.

5. Cardiac Tropism of Borrelia burgdorferi: An Autopsy Study of Sudden Cardiac Death Associated with Lyme Carditis.(March 2016)
http://ajp.amjpathol.org/article/S0002-9440(16)00099-7/abstract

Excerpt:

“Fatal Lyme carditis caused by the spirochete Borrelia burgdorferi rarely is identified. Here, we describe the pathologic, immunohistochemical, and molecular findings of five case patients.”

6. CDC Case Study #1: Three Sudden Cardiac Deaths Associated with LymeCarditis: http://www.cdc.gov/mmwr/preview/mmwrhtml/mm6249a1.htm?s_cid=mm6249a1_w

7. CDC Case Study #2: A case report of a 17-year old male with fatal Lyme carditis
http://www.cardiovascularpathology.com/article/S1054-8807(15)00025-3/abstract?rss=yes

8. Infection by Borrelia burgdorferi and cutaneous B-cell lymphoma (Cancer)
https://www.ncbi.nlm.nih.gov/pubmed/9331890

Specific DNA sequences of Borrelia burgdorferi were identified in cutaneous lesions from 9 patients (follicle center lymphoma: 3/20; immunocytoma: 3/4; marginal zone B-cell lymphoma: 2/20; diffuse large B-cell lymphoma: 1/6).

Dr. Godlee,

I didn’t find any of these references in the Razai paper or references of persistent infection after extensive antibiotic treatment which as you know were omitted from the Kullberg paper.

So who are the peer reviewers of these two papers and what is the connection if any to the defendants of the racketeering lawsuit?

Respectfully submitted,

Carl Tuttle

Hudson, NH USA

Reference:

1. The twin traps of overtreatment and therapeutic nihilism in clinical practice
Sílvia Mamede ,  Henk G Schmidt
DOI:   10.1111/medu.12264

___________________

**Comment**

Please note the polar opposite way ‘authorities’ handle Lyme/MSIDS vs COVID.  It’s clearly known that the elderly population with co-morbidities are mostly at risk for COVID with a similar mortality rate as seasonal flu, yet the world is stopped, faces are covered, and the media is whipped up into a frenzy spreading daily fear porn.

Versus

Lyme/MSIDS which is growing exponentially everywhere, many are not getting well after standard treatment, and it’s becoming more widely known that Lyme is just the tip of the spear, with ticks transmitting much more than just Lyme.  Yet, funding for Lyme/MSIDS research is abysmal, nothing has changed in over 40 years, and the world is still waiting to hear the outcome of a racketeering lawsuit as well as an inquiry into our own government experimenting and dropping ticks out of airplanes.  Doctors are still woefully uneducated and hide behind ancient CDC dogma that hasn’t changed, despite new evidence.  The same corrupt players are doing the same biased research on our dime.

It’s crystal clear that there is much more at play than meets the eye because if you are going to use statistics, at least use the same logic, yet we are told 85% of ticks aren’t infected and not to worry (despite the fact ticks are being found in areas they shouldn’t be, full of pathogens they shouldn’t have) yet it’s known that 81% of us can mount a strong response to COVID-19 without ever having been exposed to it before.  It’s also known that 80% of people with COVID are mildly ill.  We also know that up to 80% are asymptomatic – meaning they have ZERO symptoms.

The question begging to be asked is why are these 80% figures being treated completely differently.  With ticks we are told, “Don’t worry, be happy,” yet when it comes to COVID, we are told “cover your face, don’t leave your house, shutter your business, keep kids home from school, and wash your hands repeatedly,” ad nauseum.

Something doesn’t smell right.  Time to speak up about this disparity.