Madison Area Lyme Support Group

There are days I feel as though my body is constricted by a thousand weighted blankets, and I can’t even lift my foggy head off the pillow, let alone carry on a coherent conversation with my husband or daughters. Days my muscles burn like they’re on fire, my bones cry out as if they are being crushed in a crematorium, and I am left bawling on the floor in the fetal position. On days like that, my husband scoops me up and puts me in an Epsom salt bath. Some days, when I’m in a flare, I feel like I am dying inside. It is a battle I will be fighting for the rest of my life.

Now I know I have what some clinicians and researchers are calling chronic Lyme disease, a tickborne infection that took a decade of my life to properly diagnose.  (See link for article)

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**Comment**

Important quote:

Ultimately, she diagnosed Epstein Barr and leaky gut, which she treated through diet, lifestyle changes, and supplements. A conventional Lyme test came back negative. She said that we could go ahead and treat for Lyme since it could be a false negative, but I wasn’t ready to take that step without a definitive diagnosis.