https://www.health.com/condition/lyme-disease/tick-bite-chronic-lyme-disease-symptoms

‘If I overdo it, Lyme rears its beastly, ugly head.’

By Stephanie Buice as told to Dana Hudepohl

May 28, 2020

There are days I feel as though my body is constricted by a thousand weighted blankets, and I can’t even lift my foggy head off the pillow, let alone carry on a coherent conversation with my husband or daughters. Days my muscles burn like they’re on fire, my bones cry out as if they are being crushed in a crematorium, and I am left bawling on the floor in the fetal position. On days like that, my husband scoops me up and puts me in an Epsom salt bath. Some days, when I’m in a flare, I feel like I am dying inside. It is a battle I will be fighting for the rest of my life.

Now I know I have what some clinicians and researchers are calling chronic Lyme disease, a tickborne infection that took a decade of my life to properly diagnose.  (See link for article)

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**Comment**

Important quote:

Ultimately, she diagnosed Epstein Barr and leaky gut, which she treated through diet, lifestyle changes, and supplements. A conventional Lyme test came back negative. She said that we could go ahead and treat for Lyme since it could be a false negative, but I wasn’t ready to take that step without a definitive diagnosis.

This right here is the problem….

First, I’m impressed the doctor was willing to treat her despite the negative test. Perhaps word is finally making it around; however, the patient’s refusal to treat due to wanting a definitive diagnosis is pretty common.  They just don’t get it.

It’s up to us to educate the public on how devastating tick-borne illness is because it’s the only way procrastination to get treatment is going to change.  This isn’t like other diseases where you go in get a definitive test and then start treatment.  This is like catching a greased pig in an oil factory.  

This “wait and see” approach is ruining peoples’ lives and must end.  If you are bitten by a tick, treat immediatelybefore any tests can even be taken and get back.  Trust me when I say it’s a lot easier to support the brief negative impact of antibiotics than it is to treat something that can disable you and cause you pain of a magnitude you’ve never experienced before.

For more:  https://madisonarealymesupportgroup.com/2016/02/13/lyme-disease-treatment/