“Mommy, I just want to die:” Mother recalls daughter’s fight against Lyme disease
AUG 21, 2019 —
The 3rd letter below addressed to Cynthia L. Sears, MD, FIDSA, President of the IDSA highlights yet another example how Lyme is “destroying lives, ending careers while leaving its victim in financial ruin.”
#1. It’s time to recognize that we need an entirely different approach; anything less is inhumane
#2. IDSA treatment guideline has been identified as a “predatory device”
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——– Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: csears@jhmi.edu
Cc: PracticeGuidelines@idsociety.org, tickbornedisease@hhs.gov, chris.smith@mail.house.gov, (88 Undisclosed recipients)
Date: August 20, 2019 at 9:22 AM
Subject: ‘Mommy, I just want to die:’ Mother recalls daughter’s fight against Lyme disease
On Aug 17, 2019 Carl Tuttle wrote: “I have 1,100 pages of comments describing a disease that is destroying lives, ending careers while leaving its victim in financial ruin. This PDF file is evidence that the Infectious Diseases Society of America has grossly misrepresented the disease and has left the horribly disabled to fend for themselves when the one-size-fits-all treatment guideline fails.”
Aug 20, 2019
IDSA
1300 Wilson Boulevard
Suite 300
Arlington, VA 22209
Attn: Cynthia L. Sears, MD, FIDSA, President
Re: Draft Lyme Disease Guidelines Public Comment
Dear Dr. Sears,
We can add the following article to the growing number of patients describing a disease that is “destroying lives, ending careers while leaving its victim in financial ruin.”
August 20, 2019
‘Mommy, I just want to die:’ Mother recalls daughter’s fight against Lyme disease
By Heather Schlitz, AccuWeather staff writer
Excerpt:
Though Nicole’s doctors prescribed her a year’s worth of antibiotics that Jennifer said saved her daughter’s life, allowing her to go to college, become a nurse and later, a mother of three kids, Auwaerter is skeptical that long-term antibiotics benefit patients with post-traumatic Lyme disease syndrome.
The Lecrones emptied their bank accounts to pay for the uninsured doctor’s visits and to keep injecting $5,000-a-month Rocephin, an antibiotic, into Nicole’s IV. They lost their house and 401(k). Jennifer’s husband drove a truck for 15 hours a day. Jennifer’s oldest daughter, a high school student and varsity soccer player, gave her mom the paychecks she earned from working part-time at Subway and told her mom to use it to buy groceries and pay bills. The family struggled to function as Nicole languished in bed.
__________________
Dr. Sears…. This patient experience is happening all across America and the IDSA is 100% responsible for the mishandling of this devastating disease misclassifying it as “hard to catch and easily treated.”
What is the motivation for downplaying the severity of Lyme disease Dr. Sears?
A response to this inquiry is requested.
Carl Tuttle
Lyme Endemic Hudson, NH
Madison Area Lyme Support Group 