Lorraine Johnson, JD, MBA, CEO of LymeDisease.org, presents results from MyLymeData in San Ramon, CA, on April 8, 2017. MyLymeData uses big data research tools which allow patients to quickly and privately pool their data to determine which treatments work best. For more information, go to www.LymeDisease.org.
This informative talk has some telling graphs.
At 5:12 Johnson explains a graph which shows the disproportionate amount of money going toward Lyme Disase research versus other diseases. Only 3 small clinical trials on the treatment of chronic Lyme disease were funded by the NIH – the most recent was 15 years ago. Fifty one percent of infectious disease trials are funded by industry – but industry isn’t interested in Lyme Disease.
At 10:36 using standard government questions used by the CDC and the NIH, she then explains another graph showing that those suffering with chronic Lyme disease have a worse quality of life than those with MS, Fibromyalgia, and even congestive heart failure. This finding is in agreement with two other studies.
22:38 A graph shows that according to the survey about half were on antibiotics and about half were on alternative therapies. The most popular and successful alternative treatment was herbal protocols. Interestingly, 331 people did stem cells treatments but only 3% found them to be effective. Sixty-nine percent stated that rife was not effective or they were unsure.
Thousands are taking the MyLymedata surveys giving important data that we can take to legislators to drive change.
Please enroll today. The only way things are going to change is if WE do it. Everyone is needed.