After speaking with the office of Representative Sanfelippo, please note that the committee will be speaking on the Lyme Treatment issue first, right at 10:00. Thank you to those who made phone calls on this matter.
Also, please note that the issue is about getting the Wisconsin State Medical Board to make rules on Lyme Disease treatment, and while that may seem a wise thing at first blush, please know that it is often the folks on this very board who come after LLMD’s for treating outside the horrifically inadequate CDC guidelines. It’s a bit like asking the wolves to guard the hens.
We need to make sure that the committee understands there is a huge schism in the medical community on Lyme Disease treatment with the CDC on one side of the fence and ILADS on the other – and this fence is barbed. Never shall the twain meet. The CDC doesn’t believe chronic Lyme exists and feels Lyme is hard to catch and easy to treat. ILADS believes in chronic Lyme and that it’s easy to catch and difficult to treat.
There couldn’t be more polarization on this one.
Also, important to note: patients rarely have just Lyme or borrelia, but are infected with multiple pathogens (Bartonella, Babesiosis, Mycoplasma, viruses, fungus, and stuff not even named yet) with multiple strains that tests do not pick up. If you read the Babesia article, you realize they are finding new strains monthly. https://madisonarealymesupportgroup.wordpress.com/2016/01/16/babesia-treatment/
So, in a nutshell, MSIDS (multi systemic infectious disease syndrome), rather than the limited label of Lyme Disease – is a complex illness that takes time and numerous treatments with a variety of things to be effective.
The best thing this committee can do is protect doctors who dare to treat outside the CDC guidelines
Please go to the information desk on the main floor and ask for the hearing room (415 Northwest) for the Lyme Disease issue. They will direct you as the Capital is a bit of a labyrinth.
Hope to see you all there
Madison Area Lyme Support Group 