Archive for the ‘Uncategorized’ Category

Mayo Clinic Holds Teenager Hostage -Why We Need the Parental Rights Amendment

https://parentalrightsfoundation.org/

Here we go again.

Just when I started to think nothing would surprise me anymore, the Mayo Clinic in Minnesota held a teenager hostage a la Justina Pelletier, working to cut her parents out of the picture and take control of the girl’s healthcare for themselves.

According to a series of articles published by CNN, https://www.cnn.com/2018/08/13/health/mayo-clinic-escape-1-eprise/index.html 18-year-old high school senior Alyssa Gilderhus suffered a brain aneurism on Christmas, 2016. Her prognosis for survival was grim, “a 2% chance.” But through four brain surgeries over the next month, neurosurgeons at the Mayo Clinic literally saved her life.

Unfortunately, things took a turn for the worse when she was transferred to the rehabilitation unit on January 30. It wasn’t a medical relapse, though. Rather, the hospital’s treatment of and respect for Alyssa and her family took a nosedive.

It was Justina Pelletier all over again. Only this time, things would be different.

1. Difference One: Alyssa Gilderhus Is 18 Years Old, and a Legal Adult.
Justina Pelletier was only 14 for most of her 16-month ordeal. Before Boston Children’s could take power over Justina, they only had to wrench it away from her parents, something sadly too easy a thing to do. The hospital accused them of “medical neglect” and the state took it from there.

But to get power over Alyssa, the Mayo Clinic had to first wrest authority from the patient herself, and then away from her parents as next in line.

“From my 25 years of experience, a judge is going to say, ‘why isn’t the family the first and best choice here?’ and it had better be a good reason,” adjunct professor and Minneapolis attorney Robert McLeod is quoted as saying in part 2 of the CNN report.

2. Difference Two: Alyssa’a Parents Had the Pelletiers’ Experience to Learn From.
When Justina was taken by Boston Children’s, such a “medical kidnapping” was unheard of in the public eye. But today, such things rarely occur without someone mentioning Justina. In this case, friends of Alyssa’s parents told mom Amber Engebretson about the Pelletiers’ experience.

According to the CNN report, Amber reached out to Linda and Lou Pelletier by phone. They told her what to watch for if the hospital was trying to take over her daughter’s care. That night on Facebook Amber wrote, “OMG I am SICK. This is what is happening…. I am so scared.”

But recognizing what they were up against allowed Amber and husband Duane to go into action to save Alyssa from her prison.

3. Difference Three: Alyssa Escaped.
Once the state of Massachusetts took custody of Justina, they left her in the care of Boston Children’s hospital to be treated as the hospital thought best. Locked away in the psych ward, Justina languished under their abuse for more than a year.

Duane Engebretson was not about to watch Alyssa suffer the same fate. So on February 28, 2017, he managed to trick her “guard” nurses into letting him roll Alyssa’s wheelchair to the lobby to accommodate an elderly grandmother who couldn’t make it all the way to the room. Only the grandmother wasn’t in the lobby. They needed to meet her in the parking lot.

Only she wasn’t in the parking lot, either. But Alyssa’s mother was, and sped away as soon as her daughter was in the car.

The hospital security officer called the Police. Deputies searched for the family, who hid out on the road and got their daughter a second opinion at a South Dakota hospital. But eventually the police came to see the situation for what it was.

“That’s one doctor’s opinion against another, and that doesn’t have anything to do with law enforcement at all,” Chris Vasvick, a Martin County (Minnesota) deputy told CNN.

As it turns out, the hospital was trying to take guardianship of Alyssa. They had made attempts in multiple counties, but couldn’t get a judge to sign off on giving them—and not the parents—control. Had the Mato clinic doctors succeeded, Alyssa might still be in their “care.”

All About Parental Rights

As shocking as this story is, it isn’t a true parental rights case. Alyssa, as an adult, was being held illegally against her will, and from a legal standpoint her parents’ view has nothing to do with it. That they helped her escape provides good drama that would make a good movie. But it isn’t about parental rights.

On the other hand, the fact that this happens as frequently as it does, and that it is that much easier for the hospital if the patient is a child – that is all about parental rights, and demands a closer look.

By federal statistics, some 97% of all parents never abuse or neglect a child. So why is it so easy for a hospital to intrude into the parent-child relationship if a parent disagrees with what the doctors think a child needs?

The doctor is a professional, with certain knowledge and skills. Parents are wise to find the services of a good one when needed. But at the end of the day, “natural bonds of affection lead parents to act in the best interests of their child.” (Parham v. J.R., 442 U.S. 584 (1979), emphasis added)

Sadly, Alyssa’s story, like that of Justina, should serve as a warning to parents: know your doctor. Know your rights. Don’t ignore the red flags. Get that second opinion.

And continue to stand with us as we promote policies and model legislation to preserve the right of parents to make the best, most informed medical decisions for their children, without undue state—or medical—intrusion.

Sincerely,

Michael Ramey
Director of Communications & Research

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**Comments**

Due to the polarization of Lyme/MSIDS, this could easily happen to a child with tick-borne illness.  I’m sure it’s happened already.  Don’t let it happen to you.  Learn about the Parental Rights Amendment and continue to stand up for your children.

For more:  https://madisonarealymesupportgroup.com/2017/04/20/why-we-need-the-parental-rights-amendment/

https://madisonarealymesupportgroup.com/2017/02/21/parental-rights-in-medical-settings/

https://madisonarealymesupportgroup.com/2018/04/05/pa-dentist-threatens-parents-for-not-scheduling-their-childs-dental-cleaning/

https://madisonarealymesupportgroup.com/2017/08/24/dutch-lyme-patients-accused-of-child-abuse/

https://madisonarealymesupportgroup.com/2017/06/30/child-with-lymemsidspans-told-by-doctors-she-made-it-all-up/

https://madisonarealymesupportgroup.com/2018/05/29/more-abuses-against-parental-rights/

https://madisonarealymesupportgroup.com/2017/10/12/parental-rights-come-from-the-state-says-law-professor-james-dwyer/  James Dwyer, law professor at the prestigious College of William and Mary, believes your parental rights come from the State. And what the State can give, the State can take away.

Lyme Found in All 50 States

https://www.lymedisease.org/lymesci-lyme-all-states/

LYME SCI: Lyme has been found in all 50 states and is on the rise

Quest Diagnostics has released its findings from over six million Lyme disease lab tests taken over the last seven years.  Quest’s report says Lyme has been detected in all 50 states and the District of Columbia—and that the number of cases continues to rise nationwide.  This report provides the first national analysis of Lyme disease based on laboratory data. (See here for similar data based on insurance claims.)

A Decided Spike 

According to Quest’s report, 60% of Lyme disease cases occur in the Northeastern United States, with a decided spike in the last few years.

Pennsylvania registered the most positive test results in the nation, with 10,001 cases in 2017, followed by six New England states (Connecticut, Maine, Massachusetts, New Hampshire, Rhode Island and Vermont) reporting another 11,549 cases combined.

More surprising to me was the exponential increase in the number of positive test results found in California and Florida, two states often dismissed by the CDC as not having very much Lyme disease.

What’s most disturbing about these numbers is the huge discrepancy between the positive test results and the number of cases reported by the CDC.

Let me break it down…

First, let’s look at the big picture by comparing the CDC map (each dot represents one CDC positive case), and the Quest map showing the number of positive test results. Note, the Northeast looks pretty similar between the two maps, but what is going on in the South and West? Why such glaring discrepancy?

Now let’s compare Quest’s numbers to the latest CDC data.

In 2015, Quest found 164 cases of Lyme disease in California—while the CDC acknowledged only 83 cases. (California has mandatory lab reporting of Lyme disease. So, those cases from Quest were reported to state officials—and then what happened?)

That same year, Quest found 283 cases in Florida while the CDC reported 116.

In 2016, Quest again shows twice the CDC totals for California, but an even bigger gap emerges in Florida, with Quest reporting three times as many as the CDC. See below:

And look at 2017! According to Quest, California’s positive Lyme tests increased 195% over the two-year period from 2015 to 2017. Florida showed a 77% increase over the same time span. (CDC figures for 2017 are not yet available.)

And, keep in mind, Quest is only one of many laboratories in the U.S. What about positive Lyme tests from other labs?

Ticks are spreading

LymeDisease.org’s own research project, MyLymeData, has also detected discrepancies between the CDC-reported cases and the number of patients with positive tests for Lyme in the South and West. [See LYMEPOLICYWONK: Why Doesn’t the CDC Count Lyme Disease Cases in the South and the West? Everybody Else Does.]

The spread of Lyme disease makes sense with the latest NIH report showing the Ixodes scapularis tick, the primary source of Lyme disease, being found in nearly 50 percent more U.S. counties in 2015 than was detected in 1996.

Further confirming the increasing spread, a recent citizen science study also found Ixodes scapularis ticks in 83 counties (in 24 states) where these ticks had not been previously recorded. But why?

Dr. Harvey Kauffman, of Quest Diagnostics, says,

“Our data show that positive results for Lyme are both increasing in number and occurring in geographic areas not historically associated with the disease. We hypothesize that these significant rates of increase may reinforce other research suggesting changing climate conditions that allow ticks to live longer and in more regions may factor into disease risk.”

It’s past time to take ticks seriously

Lyme disease is only one of 16 tick-borne disease found within the United States. How many other illnesses are being undiagnosed and/or underreported? Is there also a 10-fold difference in reporting of anaplasmosis, babesiosis, rickettsiosis and other tick-borne pathogens, including viruses?

The CDC recently acknowledged that 75% of all reported vector-borne illnesses come from ticks, and of those, most are cases of Lyme disease

Underreporting of Lyme and other tick-borne diseases is a huge problem. It’s time to fix it.

LymeSci is written by Lonnie Marcum, a Licensed Physical Therapist and mother of a daughter with Lyme. Follow her on Twitter: @LonnieRhea  Email her at: lmarcum@lymedisease.org .

Reference:

New Quest Diagnostics Data Shows Lyme Disease Prevalence Increasing and is Now Present in New U.S. States

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**Comment**

According to an independent tick expert, Dr. Kauffman’s hypothesis of climate change driving ticks and Lyme is not only unsubstantiated but part of a nefarious plot being used to rationalize why nothing has been done about Lyme/MSIDS for decades.  https://madisonarealymesupportgroup.com/2017/08/14/canadian-tick-expert-climate-change-is-not-behind-lyme-disease/

Warmer weather actually reduces tick populations.  The climate models have numerous flaws as well:  https://madisonarealymesupportgroup.com/2018/08/13/study-shows-lyme-not-propelled-by-climate-change/  Researcher John Scott shows ticks are marvelous ecoadaptors and will seek out and use leaf litter and snow when conditions are harsh.  Migrating birds are serving as transits for ticks and distributing them all over the word.

https://madisonarealymesupportgroup.com/2018/08/09/why-the-cpis-article-on-how-a-climate-skeptic-is-holding-up-tick-borne-illness-research-is-dead-wrong/   Ticks have been found on beaches, in caves, underneath picnic benches, on rocks, on birds and other animals, blown into swimming pools, falling off trees, and I’ve found them climbing my walls.  “Tick guy” Tom Mather demonstrates ticks surviving 24 hours in 3 degree temps:  https://madisonarealymesupportgroup.com/2016/01/20/polar-vorticks/

https://madisonarealymesupportgroup.com/2018/07/16/ticks-that-carry-lyme-disease-are-spreading-fast/  According to Associate professor, Nate Nieto,

“People should be aware of ticks and tick-borne disease, even when they may think there’s not a recorded incidence of a tick in a county,” Nieto said. “These things, they’re not obeying borders. They’re going by biology. If they get moved there by a deer or bird or people or pets, they’re going to establish themselves and start growing.”

https://madisonarealymesupportgroup.com/2018/07/26/tickborne-diseases-confronting-a-growing-threat/  (For a bullet point list of issues that need to be researched regarding TBI’s please read my comment after the article.  Climate data has not helped patients at all.  Please understand my list is far from complete.)

Climate change regarding Lyme/MSIDS/ticks is as Scott says,

a red herring.

Illinois – 10th Annual Lyme Disease Awareness Walk

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https://wizathon.com/lsn-walk/?id=3362  (Go here to Register, sponsor, or donate)

10th Annual Lyme Disease Awareness Walk

Benefiting: Lyme Support Network (Illinois)

When: Sunday, September 23, 2018

Where: Citizens Park Barrington Park District
511 Lake Zurich Road
Barrington, IL 6001010am

Time: 11am 2.5 Mile Walk/Run

Registration Fees:
$30.00 Adult
$20.00 Child

Live Entertainment
Food/Beverages
Children’s Activities
Raffles
T-Shirts

For More Details:  www.lymesupportnetwork.org

Goal: $25,000
Raised: $90

Our Mission
The Lyme Support Network is a non-profit service organization dedicated to making a difference by building awareness of Lyme Disease within the Illinois community.  Our primary goal is to serve as a support group for people with Lyme Disease and/or other tick-borne diseases. Our work also includes education and advocacy to promote knowledge and understanding of Lyme Disease among the general public, government agencies and within the medical community.

Contact: Kimberly Frank

 

Borrelia Miyamotoi Found to Occur Nationwide in Japan

https://www.ncbi.nlm.nih.gov/m/pubmed/30057339/

Case control study: Serological evidence that Borrelia miyamotoi disease occurs nationwide in Japan.

Sato K, et al. J Infect Chemother. 2018.

Abstract

Since 2011, Borrelia miyamotoi disease (BMD) has been reported in five countries in the northern hemisphere. The causative agent of BMD is transmitted by Ixodes ticks, which are also vectors of Lyme disease borreliae. In this study, we examined 459 cases of clinically suspected Lyme disease (LD group), and found twelve cases that were seropositive for the glycerophosphodiester phosphodiesterase (GlpQ) antigen derived from B. miyamotoi.The retrospective surveillance revealed that the seroprevalence of anti-GlpQ in the LD group was significantly higher than in a healthy cohort. Seropositive cases were observed from spring through autumn when ticks are active, and the cases were geographically widespread, being found in Hokkaido-Tohoku, Kanto, Chubu, Kinki, and Kyushu-Okinawa regions. Seropositive cases for GlpQ were most frequent in the Chubu region (6.3%) where B. miyamotoi has been found in Ixodes ticks. Out of the twelve cases that were found in the LD group, three cases exhibited concomitant seropositivity to Lyme disease borreliae by western blot assay. This is the first report of serological surveillance for BMD in Japan, and we conclude that BMD occurs nationwide.

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**Comment**

Please note that they are saying out of 459 cases of clinically suspected Lyme, 12 ALSO had B. miyamotoi.

This is a prime example of people having more than one tick borne illness and the need to change the current CDC Lyme guidelines as they are woefully out of touch.  In my experience, coinfection is the rule not the exception and until people are treated appropriately, they will never get better.

For more:  https://madisonarealymesupportgroup.com/2017/07/01/one-tick-bite-could-put-you-at-risk-for-at-least-6-different-diseases/  (The actual number is 18 and counting)

https://madisonarealymesupportgroup.com/2017/05/01/co-infection-of-ticks-the-rule-rather-than-the-exception/

The Ixodes ricinus tick species is able to transmit a large number of bacteria, viruses and parasites. Ticks may also be co-infected with several pathogens, with a subsequent high likelihood of co-transmission to humans or animals.

https://madisonarealymesupportgroup.com/2018/08/11/co-infection-patterns-in-wisconsin-black-legged-ticks-show-associations-between-viral-eukaryotic-bacterial-microorganisms/

https://madisonarealymesupportgroup.com/2018/07/16/this-family-learned-tick-bites-can-transmit-more-than-lyme-disease/

 

 

 

Cyclosporiasis Update For Wisconsin

https://www.cdc.gov/parasites/cyclosporiasis/outbreaks/2018/a-062018/index.html

Multistate Outbreak of Cyclosporiasis Linked to Del Monte Fresh Produce Vegetable Trays

CDC and federal, state, and local public health partners are investigating an increase in reported cases of Cyclospora infection.

https://www.cdc.gov/parasites/cyclosporiasis/  Cyclosporiasis is an intestinal illness caused by the microscopic parasite Cyclospora cayetanensis.  People can become infected with Cyclospora by consuming food or water contaminated with the parasite.

https://www.cdc.gov/parasites/cyclosporiasis/disease.html  Symptoms of cyclosporiasis begin an average of 7 days (range, 2 days to ≥2 weeks) after ingestion of sporulated oocysts (the infective form of the parasite).

Symptoms of cyclosporiasis may include the following:

  • Watery diarrhea (most common)
  • Loss of appetite
  • Weight loss
  • Cramping
  • Bloating
  • Increased gas
  • Nausea
  • Fatigue
  • Other symptoms that may occur but are less common include the following:
  • VomitingLow-grade fever

LAST UPDATED JULY 19, 2018 7:30 PM EDT

On June 15, 2018, Del Monte Fresh Produce recalled 6 oz., 12 oz., and 28 oz. vegetable trays containing fresh broccoli, cauliflower, celery sticks, carrots, and dill dip. Recalled products were sold in clear, plastic clamshell containers.

Recalled products were distributed to the following stores: Kwik Trip, Kwik Star, Demond’s, Sentry, Potash, Meehan’s, Country Market, FoodMax Supermarket, and Peapod.

Recalled products have a “Best If Enjoyed By” date of June 17, 2018.
The recalled 6 oz. Del Monte Fresh Produce vegetable tray has a UPC code of 7 1752472715 2 found on the package label.

  • The recalled 12 oz. Del Monte Fresh Produce vegetable tray has a UPC code of 7 1752472518 9 found on the package label.
  • The recalled 28 oz. Del Monte Fresh Produce small vegetable tray has a UPC code of 7 1752478604 3 found on the package label.

Do not eat or sell recalled vegetable trays. Throw them away.
CDC, public health and regulatory officials in several states, and the U.S. Food and Drug Administration are investigating a multistate outbreak of Cyclospora infections.

As of July 19, 2018 (1pm EDT), CDC has been notified of 237 laboratory-confirmed cases of cyclosporiasis in persons who reportedly consumed pre-packaged Del Monte Fresh Produce vegetable trays containing broccoli, cauliflower, carrots, and dill dip. The reports have come from four states.

Seven (7) of these people have been hospitalized, and no deaths have been reported.

Epidemiologic evidence indicates that pre-packaged Del Monte Fresh Produce vegetable trays containing broccoli, cauliflower, carrots, and dill dip are the likely source of these infections.

The investigation is ongoing. CDC will provide updates when more information is available.