Petitioning the State of WI

The State of Wisconsin: Adopt a Lyme Disease Testing Disclosure Act in Wisconsin

Petition by Jacob Barnes  – Stoughton, WI

Thousands of Wisconsinites live with Lyme but are unaware of it because doctors told them they were not ill. New testing has proven that these tests (specifically the western blot test and the ELISA test) can often provide false negative tests for the bacterial infection that causes Lyme Disease (borrelia burgdorferi).

This bill can be modeled after Virginia’s Lyme Disease Testing Disclosure Act (HB1933)

In my case, the western blot and the ELISA both indirectly infer that I do not have Lyme Disease. A blood CULTURE test was able to grow live borrelia burgdorferi spirochetes from my blood, proving definitively that current lab testing is fallible and inadequate.

Please sign this petition so patients know Lyme Disease has not been completely ruled out by current testing!

http://www.change.org/petitions/the-state-of-wisconsin-adopt-a-lyme-disease-testing-disclosure-act-in-wisconsin

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Wisconsin Loses Another Dr.

This post is copied from the Wisconsin Lyme Network (www.WisconsinLyme.net)

Dear Wisconsin Lyme Community,

With great sadness we inform you that Dr. Burton Waisbren {Milwaukee, WI.} has passed away. http://www.waisbrenclinic.com The services were held yesterday. I believe Dr. Waisbren was 89 years of age and treated patients right up until his passing. Dr. Waisbren was one of the founding fellows of the IDSA and treated Lyme patients with long-term antibiotics. He was certainly familiar with Lyme and co-infections and that they needed to be addressed properly.

It must be staggering to consider how many patient lives Dr. Waisbren touched over the years. It was our great pleasure in the Wisconsin Lyme community to know, socialize and be treated by such a compassionate and caring man as Dr. Waisbren. His service to his fellow man is incalculable.

May he rest in peace.

Sincerely,

The Wisconsin Lyme Community

2013 January & February meetings scheduled

Our first two meetings of the year will be on the 4th Saturday of each month due to meeting room availability.  The libraries have been very busy lately so booking a room for our normal meeting day and time has been more difficult.  Thank you to everyone for your flexibility with it all.

Saturday January 26th (2013) from 3:00pm – 4:45pm, Madison Pinney Branch Library, 204 Cottage Grove Road, Madison, WI 53716 [Please note that this meeting is the 4th Saturday instead of the 3rd and also starting an hour later due to meeting room availability.  Thanks for understanding.]

Saturday February 23rd (2013) from 3:00pm – 4:45pm, Madison Pinney Branch Library, 204 Cottage Grove Road, Madison, WI 53716 [Please note that this meeting is the 4th Saturday instead of the 3rd and also starting an hour later due to meeting room availability.  Thanks for understanding.]

Rest In Peace Dr. Kim Saxe

This post is copied from the Wisconsin Lyme Network (www.WisconsinLyme.net)

Dear Wisconsin Lyme Community,

It is with great sadness we inform you of the passing of Dr. Kim Saxe of Brookfield, WI. Kim was a great friend and one of our finest Lyme treating practitioners.

She studied and counseled with some of the finest Lyme treating practitioners in the country. This she did in the hope of bettering our lives. She often worked grueling hours in her practice. This she did in the hope of bettering our lives. She packed her office to overflowing in the hallways for support group meetings after these grueling days. This she did in the hope of bettering our lives. She often delayed treatment of her own Lyme disease to treat ours. This she did for her love of us all.

No patient will forget her devotion, her warm smile and her massive hugs. If Kim was asked to help destitute patients, her response was “sure, send ’em my way!” So many regained health under Kim’s care. Her energy and determination were boundless. Our gratitude is as well.

Dr. Jill Evenson and Dr. Michele Nickels are organizing a memorial fund in Kim’s name. The fund will help pay for unpaid medical bills for Kim’s family. Further details on the fund are forthcoming and will be posted shortly. Details on funeral arrangements are pending and will be posted as well.

At this time, our thoughts and prayers are with Kim and her family. Special thoughts and prayers for Kim’s young son, Ethan.

Children will be born one day in a normal healthy state. Children with strong enough legs to turn the pedals on a bike. Children that can run without aching joints. Children that can learn to read without crushing migraines. Children that can live without fear and ridicule. Kim treated their parents. That’s Kim’s legacy. That was her dream.

I used to think that the Lyme community was made up of ordinary people thrust into extraordinary circumstances. In truth, it’s the opposite. It’s extraordinary people thrust into ordinary circumstances. Kim was one of those extraordinary people.

In memory of our good friend,

ATTENTION NEXT MEETING December 1st!

Saturday, December 1st (2012) from 2pm–4pm

Hawthorne Branch

ATTN: This meeting is on the 1st week-end in December due to all the November Saturday meeting rooms being booked and because I was thinking about taking December off due to the holidays.  I hope to see some of you there even though it’s not our typical 3rd week-end. See you then!