Madison Area Lyme Support Group

I received an invitation from the Office of Infectious Disease and HIV/AIDS Policy (OIDP) to submit questions in relation to their “National Community Engagement Initiative” which came out of the Tick-Borne Disease Working Group established by Congress in 2016 as part of the 21st Century Cures Act.  This so-called working group turned out to be a total farce as those in charge refused to acknowledge chronic Lyme disease; the illusion of a working group.

My questions follow: (How about everyone reading this demand a response?)

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: “James.Berger@hhs.gov” <James.Berger@hhs.gov>, “tickbornedisease@hhs.gov” <tickbornedisease@hhs.gov>
Cc: “tbdengagement@roseliassociates.com” <tbdengagement@roseliassociates.com>, “kaye.hayes@hhs.gov” <kaye.hayes@hhs.gov>, “ross_boyce@med.unc.edu” <ross_boyce@med.unc.edu>, “ASH@hhs.gov” <ASH@hhs.gov>, “OIDP-HAI@hhs.gov” <OIDP-HAI@hhs.gov>, “mwcurtis@bcm.edu” <mwcurtis@bcm.edu>, “job.lopez@bcm.edu” <job.lopez@bcm.edu>, “michael.a.boatwright2.mil@health.mil” <michael.a.boatwright2.mil@health.mil>, “tlalani@idcrp.org” <tlalani@idcrp.org>, “Schotthoefer.Anna@MarshfieldResearch.org” <Schotthoefer.Anna@MarshfieldResearch.org>, “Linz.Alexandra@MarshfieldResearch.org” <Linz.Alexandra@MarshfieldResearch.org>, “lashyra_nolen@hms.harvard.edu” <lashyra_nolen@hms.harvard.edu>, “bennett.nemser@steveandalex.org” <bennett.nemser@steveandalex.org>

Date: 12/26/2024 9:47 AM EST
Subject: Re: Sign Up Today! HHS Virtual Session on Tick-Borne Diseases and Diagnosis

Tick-Borne Disease and Associated Illnesses Virtual Community Engagement Session
https://www.hhs.gov/oidp/initiatives/tick-borne-diseases-associated-illnesses-national-community-engagement-initiative/index.html
Thursday, January 28th, 1:00 pm – 4:15 PM Eastern

“If you would like to submit a question for one of the speakers, please send it by Jan 17th at 11:59 PM to tickbornedisease@hhs.gov. Questions will be compiled prior to the meeting and presented to the speakers during the Q&A sessions.” 

ATTN: James Berger, MS, MT(ASCP), SBB
Office of Infectious Disease and HIV/AIDS Policy (OIDP)

In reference to Lyme disease; There are literally hundreds and hundreds of publications identifying persistent infection after antibiotic treatment dating all the way back to 1977.

Here is just one example from 1995: 

European Neurology 1995
Seronegative Chronic Relapsing Neuroborreliosis
https://www.karger.com/Article/Abstract/117104
Lawrence C., Lipton R.B., Lowy F.D., Coyle P.K.d

Abstract 
We report an unusual patient with evidence of Borrelia burgdorferi infection who experienced repeated neurologic relapses despite aggressive antibiotic therapy. Each course of therapy was associated with a Jarisch-Herxheimer-like reaction. Although the patient never had detectable free antibodies to B. burgdorferi in serum or spinal fluid, the CSF was positive on multiple occasions for complexed anti-B. burgdorferi antibodies, B. burgdorferi nucleic acids and free antigen.

Questions:  
What is the motivation driving the deliberate suppression of this evidence identifying Borrelia burgdorferi as an antibiotic resistant/tolerant superbug? Does a chronic relapsing seronegative disease fit the vaccine model?

Carl Tuttle
Independent Researcher
Hudson, NH