https://www.change.org/p/the-us-senate-calling-for-a-congressional-investigation-of-the-cdc-idsa-and-aldf/u/24842662?

Avoiding direct detection methods for the purpose of concealing chronic Lyme disease is a crime

JUL 19, 2019 — 

The letter below from Dr. Paul Auwaerter (Past president of the IDSA) is third in a series of correspondence over my request for proficiency testing for Nested PCR And DNA Sequencing For The Detection Of Lyme Disease And Related Borreliosis; the direct detection of the spirochete causing Lyme disease. Previous communication can be reviewed in recent Petition Updates.

The real reason the CDC stopped communication with Drs Lee and Shearer is because they published a case of chronic Lyme where a so-called Lyme disease specialist condemned a sixteen year old to a psychiatric ward because his Western blot only had 4 out of the 5 IgG bands required for positive test result. It is no secret that the US Centers for Disease Control is in bed with the IDSA.

Lyme Bumper Stickers (Public Service Announcement)
https://www.ebay.com/itm/123659578861

WAKE UP AMERICA!
Today’s letter to the Tick-borne Disease Working Group……

——— Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: tickbornedisease@hhs.gov, chris.smith@mail.house.gov
Cc:(98 Undisclosed recipients)
Date: July 19, 2019 at 9:16 AM
Subject: Re: Lyme disease often misdiagnosed, resulting in unnecessary antibiotics

To the Tick-Borne Disease Working Group,

Please see the final response from Dr. Paul Auwaerter who is not interested in proficiency testing for direct detection of Lyme disease. My reply to Dr. Auwaerter immediately follows his note below:

Response from Dr. Paul Auwaerter:

——— Original Message ———-
From: Paul Auwaerter <pauwaert@jhmi.edu>
To: CARL TUTTLE <runagain@comcast.net>
Cc: psax@bwh.harvard.edu, jli@bwh.harvard.edu, cbusky@idsociety.org, Takaaki Kobayashi <tkobayashi@jhmi.edu>, jmstiglich@healio.com, infectiousdisease@healio.com
Date: July 18, 2019 at 9:23 PM
Subject: RE: Lyme disease often misdiagnosed, resulting in unnecessary antibiotics

Dear Mr. Tuttle,

I’d like to close our correspondence to make clear the Foundation doesn’t have funds currently to entertain your specific area of research.  You may get a sense of the funding priorities of the IDSA Foundation from our website; however, if philanthropic funds are made available with disease-specific areas, the IDSAF would entertain such research funding.

I have read your other concerns with our paper and approach, and I do hear your disagreement.

Sincerely,

Paul Auwaerter MD

Vice-Chair, IDSA Foundation

__________________________________

Carl Tuttle’s reply to Dr. Auwaerter:

———- Original Message ———-
From: CARL TUTTLE <runagain@comcast.net>
To: Paul Auwaerter <pauwaert@jhmi.edu>
Cc: psax@bwh.harvard.edu, jli@bwh.harvard.edu, cbusky@idsociety.org, Takaaki Kobayashi <tkobayashi@jhmi.edu>, jmstiglich@healio.com, infectiousdisease@healio.com
Date: July 19, 2019 at 8:58 AM
Subject: RE: Lyme disease often misdiagnosed, resulting in unnecessary antibiotics

Dear Dr. Auwaerter,

In conclusion of our correspondence I would like to offer the following publication:

DNA sequencing diagnosis of off-season spirochetemia with low bacterial density in Borrelia burgdorferi and Borrelia miyamotoi infections.

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4139787/

Faulty/misleading antibody tests landed a sixteen year old male in a psychiatric ward when his lab results did not meet the CDC’s strict criteria for positive results. His Western blot had only four of the required five IgG bands. Subsequent DNA sequencing identified a spirochetemia in this patient’s blood so his psychiatric issues were a result of neurologic Lyme disease misdiagnosed by antiquated/misleading serology. This patient was previously treated with antibiotics.

Current antibody tests for Lyme disease cannot be used to gauge treatment failure or success which makes them the ideal tool for concealing persistent infection.

I want to make this perfectly clear Dr. Auwaerter; avoiding direct detection methods for the purpose of concealing chronic Lyme disease is a crime.

Sincerely,

Carl Tuttle

Lyme Endemic Hudson, NH

__________________

**Comment**

This unfortunate story of someone being admitted to the psych ward due to not testing “positive enough” is only one of thousands…

This has been going on for over 40 years all over the world.

I’ve posted this before, but it bears repeating:  https://madisonarealymesupportgroup.com/2017/07/09/idsa-founder-used-potent-iv-antibiotics-for-chronic-lyme/

“Setting arbitrary level of antibodies to diagnose a disease that has not been amenable to Koch’s postulates seems open to question.  By the same token, ignoring antibody results unless they meet arbitrary levels seems suspect.  The vast majority of patients in this series showed some WB antibody exposure, but many did not meet the arbitrary limits set….in our present state of knowledge, the diagnosis of chronic Lyme disease is a clinical one.  Many of the patients in this series have suffered serious ‘hurts’ when they have been told that they could not have LD because their WB did not meet arbitrary limits.”  Dr. Waisbren

Horrific antibody testing has been dooming patients for literally 4 decades. Time for change.

https://madisonarealymesupportgroup.com/2018/09/12/lyme-testing-problems-solutions/

https://madisonarealymesupportgroup.com/2018/01/16/2-tier-lyme-testing-missed-85-7-of-patients-milford-hospital/